Welcome to The ME Show with Gary Burgess
Season Two of The ME Show began on Monday, 28th January 2019. You can listen to the podcast series from this page of the website (see below), or via a subscription to iTunes or other podcast platforms.
Gary started the new season interviewing Dr Charles Shepherd who provided an update on M.E. research, the NICE guideline review and the important patient surveys that are feeding into that process. There is a note of cautious optimism about the developments taking place in the world of M.E.
“Thank you Gary and to the ME Association for supporting you in this and to all your guests for their input too. We need to keep at it as a community and eventually we’ll have a breakthrough!”
“A good clear and interesting podcast for ME/CFS sufferers, carers, friends and family members. Great to be able to listen rather than read information.”
“Thank you Gary, it was wonderful to hear the interview with Carol Monaghan. It is so encouraging to hear that someone in a place of authority is a ‘on our side’. She very clearly understands ME/CFS and is a passionate advocate. Thank goodness for people like her.”
‘My illness has shown journalism can be a force for good’
Gary Burgess has become a well-known advocate in the M.E. community after the disease left him unable to continue in his chosen career.
“Since sharing my story I have been utterly overwhelmed with messages from people I know and people I don’t, from all around the world.”
He also appeared as guest-editor on Radio 5 Live which featured an hour-long phone-in, raising awareness of the issues people with this disease regularly must face. Gary also produces The Zonked Club his own series of blogs and articles.
Follow or contact Gary Burgess on Twitter.
Use the hashtag #TheMEShow to share your feedback and messages.
You can listen to the show right here on our podcast player:
The most recent episode will be shown here automatically.
Or, subscribe to The ME Show on iTunes:
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Special Episode: ME Awareness The Real ME
To mark ME Awareness Week, Gary Burgess shares stories from Real people with M.E. Hear them describe their own experiences in their own words. A transcript of this show is also now available and will appear as a separate blog very soon.
“Gary really brings out the best in his subjects in this excellent podcast series. They all know their stuff and bring much-needed information, and, dare I say it, hope to the many people, sufferers and carers, who are held under this invisible yet life-changing chronic illness.”
“Wonderful series – both engaging and informative. Gary is a great interviewer and has chosen excellent interviewees. I’m very grateful to have such an illuminating light shone on this little know and often-misunderstood illness.”
“Fantastic show Gary, thanks. Excellent guests and the show gives a invaluable insight into what’s happening in the ‘world of ME’… essential listening for patients, their families and medical professionals alike. Keep up the good work and thanks again!”
Season 2 Episode 10 with Dr Mark Guthridge
Gary Burgess speaks to Australian medical researcher Dr Mark Guthridge, who has lived with M.E. since 2015. Mark now devotes much of his time to promoting awareness and understanding of M.E. and is about to begin a new research project which could lead to a diagnostic test
- Emerge Australia
- Details of the Emerge Australia symposium
- Article by Dr Guthridge about ME/CFS from The Conversation, May 2018
Season 2 Episode 9 Show Notes with Carol Monaghan, MP
Gary Burgess speaks to Carol Monaghan MP, a staunch supporter of people with ME who’s arranged a number of Westminster debates – most recently in January this year.
Gary spoke to her in the week ME was making the headlines after a psychiatrist announced he was stopping his ME research because of bullying, and Rod Liddle wrote a comment piece in the Sunday Times mocking people with ME for believing their illness was “real”.
S2 Episode 8 Show Notes with Dr Nina Muirhead
Gary Burgess speaks to Dr Nina Muirhead who has ME and now campaigns to raise awareness among her medical peers. In this conversation she talks about her own experience of understanding ME as both a medic and a patient, and of her work to ensure the new generation of medical students have a better understanding of the illness.
- Dr Nina Muirhead is a British doctor who has myalgic encephalomyelitis. She is a specialist surgeon in dermatology. Dr Muirhead educates other doctors about ME/CFS and is part of Forward-ME, a group of UK charities and advocates for people with ME/CFS (source: MEPedia.)
- The video that inspired this episode. Dr Muirhead’s moving presentation given at the 2018 CMRC research conference in Bristol.
S2 Episode 7 Show Notes with the Countess of Mar
Gary Burgess speaks to the Countess of Mar, who sits in the House of Lords, and chairs the Forward ME coalition of ME charities. The Countess speaks about her work to unite charities in the face of lobbying from psychological groups as well as the ongoing review of official guidelines for the treatment of ME.
S2 Episode 6 Show Notes with Dr Sarah Myhill
Gary Burgess speaks to Dr Sarah Myhill, a long-time ME campaigner who runs a specialist clinic for people with ME and Chronic Fatigue Syndrome. In this episode she explains, in detail, her understanding and experience of treating people with ME and CFS, as well as her own ongoing battles with the General Medical Council. In this episode she makes allegations about the authors of the Pace trial report, and her fight to get the GMC to look again into those allegations is ongoing.
- Dr Sarah Myhill’s website
- Natural Health Worldwide website
- Note re: Acumen mitochondrial test that was developed by Dr Sarah Myhill:
The MEA has funded an independent research team from Oxford and Newcastle to test the validity of this commercial test. We heard from Dr Karl Morten in December 2018 that the results did not support its continued use. The study will be published early in 2019 when we can learn more.
S2 Episode 5 Show Notes with Sue Pemberton
Gary Burgess speaks to Sue Pemberton, an occupational therapist who runs the Yorkshire Fatigue Clinic. She has a deep understanding of M.E. through many years of working with people from mild to moderate through to severe forms of the illness.
S2 Episode 4 Show Notes with Dr Nigel Speight
This week, Gary Burgess speaks with long-time M.E. advocate and expert, Dr Nigel Speight. He is the paediatric medical adviser to the ME Association and to the 25% Group, and has been working tirelessly to help families affected by M.E. Dr Speight provides crucial medical evidence and knowledge when children are subjected to court proceedings over disputed care and treatment.
S2 Episode 3 Show Notes with Caroline Kingdon
Gary Burgess speaks to Caroline Kingdon from the ME CFS Biobank at the Royal Free Hospital in London. Caroline has worked at biobanks in both the United States and Middle East, and now works closely with ME patients who donate samples which are used by researchers around the world.
S2 Episode 2 Show Notes with Linda Tannenbaum
Gary Burgess speaks to Linda Tannenbaum of the Open Medicine Foundation in the United States which raises millions of dollars annually to fund ME research.
S2 Episode 1 Show Notes with Dr Charles Shepherd
Gary Burgess speaks to Dr Charles Shepherd about the latest developments in M.E. research at the start of 2019. Also discussed:
The ME Association
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