Tag Archives: VerySevereME

Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019

I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.

Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019

The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.

Severe ME Day: ‘LIFE’ with Very Severe M.E. – A poem by Natasha Adams | 08 August 2019

Day after day this fragile hope is crushed, shattered, ground down like broken glass. Monotony, drudgery, despair! How can I escape?

Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019

The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.

We need to speak up for those who cannot by Charlotte Stephens | 07 August 2019

They don’t see the days spent in tears from being in so much pain and the frustration of not being able to spend time with them.

Introducing Severe M.E. Week from the ME Association | 05 August 2019

It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.

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