Tag Archives: SevereMEWeek

Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019

I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.

Navigating Disability Benefits – Hints, Tips and Information Resources | 07 August 2019

Navigating the benefits system can be very challenging with M.E. We hope that this resource will improve your chance of a successful outcome.

We need to speak up for those who cannot by Charlotte Stephens | 07 August 2019

They don’t see the days spent in tears from being in so much pain and the frustration of not being able to spend time with them.

Wales Online: The frail teenager set to spend all of her summer holidays in her bedroom by Mark Smith | 07 August 2019

“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”

There’s No Point in me having a Netflix subscription or an Audible account by Anna Wood | 07 August 2019

Cognitive symptoms are common for everyone who has M.E., but it is the cognitive fatigue which disables me the most.

My daughter and the pervasive dangers of PACE in paediatric M.E. by Adam Johnson | 06 August 2019

Zoe was put under surveillance – monitors, lights on constantly, nurses watching her eat and humiliatingly insisting on escorting her to the loo…

Tips for coping with Severe M.E. by Laura Brockway | 06 August 2019

This year marks 10 years of M.E for me. With 6 1/2 of those being severe, I wanted to write a little something that might help others cope.

MEA Website Survey: Illness Severity and Definitions | 05 August 2019

This month we’re asking about your level of illness severity and for a discussion around definitions.

Introducing Severe M.E. Week from the ME Association | 05 August 2019

It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.

Follow by Email
Twitter
Visit Us
Follow Me
Tweet
Instagram