ME Association

I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.

The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.

The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.

This ombudsman decision shines a light on the difficulty that some people with M.E. face in obtaining social care.

It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.