I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.
Tag Archives: Care
Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019
The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.
This ombudsman decision shines a light on the difficulty that some people with M.E. face in obtaining social care.
It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.