ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
Tag Archives: Care
ME Awareness: “ME is a cruel illness and whether we have it mild or severe, we all still suffer,” by Naomi Gilchrist | 15 May 2020
“I’ve tried so many different methods to manage my symptoms. Medication helps to a degree alongside self-management techniques.”
Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019
I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.
Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019
The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.
Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.
The Care Act and M.E. – Positive Decision by the Ombudsman and Case Study| 06 August 2019
This ombudsman decision shines a light on the difficulty that some people with M.E. face in obtaining social care.
Introducing Severe M.E. Week from the ME Association | 05 August 2019
It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.
