Tag Archives: Care

Very Severe ME: It’s Time for Something New! By Greg Crowhurst | 16 August 2019

I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.

Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019

The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.

Severe ME Day: A Call to Act with Truth and Integrity by Greg Crowhurst | 08 August 2019

The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.

The Care Act and M.E. – Positive Decision by the Ombudsman and Case Study| 06 August 2019

This ombudsman decision shines a light on the difficulty that some people with M.E. face in obtaining social care.

Introducing Severe M.E. Week from the ME Association | 05 August 2019

It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.

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