NHS ME/CFS Specialist Services

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Find an NHS specialist service in your area

NHS Diagnosis and Illness Management for ME/CFS

Most of the NHS specialist services for people with ME/CFS will base their management programme on the use of cognitive behaviour therapy (CBT) and/or two differing approaches to activity/energy management known as graded exercise therapy (GET) and Pacing.

We suggest that you download the ME Association report on CBT, GET and Pacing, before deciding which of these approaches would be acceptable and may be helpful in your situation.

You could also take a copy of the summary of the ME Association report to the clinic if you have any questions or concerns about the sort of management programme that is being offered.

The NICE clinical guideline

The NICE clinical guideline on ME/CFS is very clear about informed consent and shared decision making, for example:

  • Healthcare professionals should be aware that – like all people receiving care in the NHS – people with CFS/ME have the right to refuse or withdraw from any component of their care plan without this affecting other aspects of their care, or future choices about care. 1.1.1.3
  • Healthcare professionals should recognise that the person with CFS/ME is in charge of the aims and goals of the overall management plan. The pace of progression throughout the course of any intervention should be mutually agreed. 1.1.1.4
  • Healthcare professionals should provide diagnostic and therapeutic options to people with CFS/ME in ways that are suitable for the individual person. This may include providing domiciliary services (including specialist assessment) or using methods such as telephone or email. 1.1.1.5

The guideline is also quite clear about the kind of support and the provision of care that should be expected from the NHS. For example:

  • To facilitate effective management of the condition, healthcare professionals should aim to establish a supportive and collaborative relationship with the person with CFS/ME and their carers. Engagement with the family is particularly important for children and young people, and for people with severe CFS/ME. 1.1.2.1
  • A named healthcare professional should be responsible for coordinating care for each person with CFS/ME. 1.1.2.2
  • Healthcare professionals should provide accurate information to people at all stages of CFS/ME, starting from when a diagnosis is first being considered. This should be tailored to the person’s circumstances, including the stage and duration of the condition, symptoms experienced and relevant personal and social factors. 1.1.2.3
  • Healthcare professionals responsible for caring for people with CFS/ME should have appropriate skills and expertise in the condition. 1.1.3.1
  • Every person diagnosed with CFS/ME should be offered:
    • information about the illness (see section 1.1.2)
    • acceptance and understanding
    • assistance negotiating the healthcare, benefits and social care systems
    • assistance with occupational activities including work and education if appropriate (see section 1.4.5). 1.1.3.2
  • An individualised management plan should be developed with the person with CFS/ME, and their carers if appropriate. The plan should be reviewed and changes documented at each contact. It should include:
    • relevant symptoms and history
    • plans for care and treatment, including managing setbacks/relapses
    • information and support needs
    • any education, training or employment support needs
    • details of the healthcare professionals involved in care and their contact details.
In September 2017, Sir Andrew Dillon, Chief Executive of NICE announced that the ME/CFS guideline would be reviewed and updated with a new version published by 2020.

As stakeholders in the process, and as a co-opted member of the guideline development group, the ME Association will continue to work with NICE to try and ensure the new guideline better reflects the actual experience of people with this disease, and that NHS services where necessary, are improved.

Read more about the NICE guideline review.

Contact details for NHS ME/CFS specialist services

Please remember that while patients can contact any of the services for information, referrals for assessment, diagnosis, and treatment, must be made by your GP or the professional responsible for your healthcare.

While we try to keep the contact information up-to-date the ME Association cannot be held responsible for the consequences of any errors.

If you do happen to notice any mistakes, then please contact our website content manager and we will ensure the necessary corrections are made as soon as practicable.

Page Contents

Click the headings below to jump to each section on the page.

Part 1: Adult NHS ME/CFS Specialist Services in England

Part 2: Young People’s NHS ME/CFS Specialist Services in England

Part 3: NHS ME/CFS Specialist Services in Northern Ireland

Part 4: NHS ME/CFS Specialist Services in Scotland

Part 5: NHS ME/CFS Specialist Services in Wales

Part 6: NHS ME/CFS Specialist Services in Isle of Man


Please note that this page is currently being updated and not all the links may work. You can still scroll down to the clinic information which should largely be accurate. We aim to complete the review by the end of November 2019. Any problems please contact: Russell.Fleming@meassociation.org.uk Thank you.

The ME Association Clinical and Research Guide

  • The 11th edition of our clinical and research guide is a must-have for anyone who has been affected by – or has an interest in – ME/CFS/PVFS.
  • This authoritative publication represents the most comprehensive, evidence-based summary currently available and contains everything that health professionals and patients need to know about this devastating neurological disease.
  • It has been written by Dr Charles Shepherd, Hon. Medical Adviser to the ME Association and Dr Abhijit Chaudhuri, Consultant Neurologist, from the Essex Centre for Neurosciences.
  • To purchase your copy, visit our website shop, or click the image opposite. The guide is also available as a Kindle e-Book!
Free copy available for health professionals!
We are pleased to offer a free hard-copy guide to GPs, NHS consultants and other healthcare professionals in the UK. Contact head office with name(s) and address details or for more information and for any bulk orders.

Part 1:

Adult NHS Specialist Services in England

Bedfordshire

Website: Bedfordshire CFS Service

Address: Disability Research Centre, Poynters House, Poynters Road, Dunstable, Bedfordshire LU5 4TP
Telephone: 01582 470918
Email: beds.cfs@nhs.net
“Bedfordshire Chronic Fatigue Service provides multi-disciplinary assessment, diagnosis and treatment for people living in Bedfordshire with medically unexplained fatigue as their main symptom. For people registered with Luton GPs, referrals can only be accepted once funding has been agreed.” 
“We help clients to understand and manage their symptoms so that they can have a better quality of life and engage in activities which are most meaningful to them. For those who do not receive a diagnosis of chronic fatigue syndrome, the team will we offer advice and signpost to more appropriate services. This service offers NICE recommended Cognitive Behaviour Therapy (CBT) and Graded Exercise Therapy (GET).”

Berkshire

Website: NHS Berkshire HealthMakers

Telephone: 01344 415 947
Email: HealthMakers@Berkshire.nhs.uk
Facebook: HealthMakers UK
Available free to anyone living with a long term health condition in East Berkshire (Ascot, Bracknell, Maidenhead, Sandhurst, Slough and Windsor).
“The HealthMakers self-management course teaches you how to manage your long term health condition. Through a series of interactive workshops, you’ll cover a range of topics, including: the benefits of good self management and how it can improve your quality of life, anxiety management, goal setting, living with a long term condition, developing a good and effectively relationship with your healthcare professionals.
“The course, which was was commissioned by the NHS, is run by two fully qualified facilitators.”
Note: This is not a specialist ME/CFS service but the course and telephone consultations might be helpful for learning to manage your condition.

Birmingham and Solihull

Website: Birmingham and Solihull CFS Service

Address: Neuropsychiatric Department, The Barberry, 25 Vincent Drive, Birmingham B15 2FG
Telephone: 0121 301 2002/2207
“Our service offers triage appointments and a person-centred approach. This means that when you are referred to the Chronic Fatigue Syndrome service, you will be assessed by a health professional who will assess your needs.
“We work with the ethos of a person-centred approach as people who suffer with chronic fatigue are all unique, and therefore all treatments should be unique to the individual. There are various options which can be discussed with you. We ensure you are involved in all decisions about which options are offered.
“Once you have had your triage appointment and your needs have been assessed, you will be involved in formulating an individual care plan to help support you with the condition. There would be on-going evaluations throughout the treatment process ensuring your needs are met.”

Bristol

Website: Bristol CFS/ME Service

Address: The Lodge, Cossham Hospital, Lodge Road, Bristol, BS15 1LF
Telephone: 0117 4145192
Email: CFS.NHS.Bristol@nbt.nhs.uk
“Bristol CFS/ME Service is a specialist NHS Service for people with Chronic Fatigue Syndrome/ME which has been offering evidence-based care since 2004.
“We offer an outpatient service to people living in Bristol, North Somerset, and Gloucestershire. We can offer a combination of telephone and face-to-face contact, and part of our role is to advise and support other Health Care Professionals in the clinical management of people with CFS/ME.
“The clinical team includes Occupational Therapists, Physiotherapists and Psychologists, as we offer a multidisciplinary team approach. We do not currently employ a medic as there are no evidence-based medications for CFS/ME which cannot be prescribed by a GP. We maintain close links with other hospital specialties within North Bristol NHS Trust and at United Bristol Hospital NHS Foundation Trust.”

Buckinghamshire

Website: Bucks Chronic Pain and Fatigue Management Service

Address: Rayners Hedge, Croft Road, Aylesbury, Bucks HP21 7RD
Telephone: 01296 393319
Email: buc-tr.buckscpfms@nhs.net
‘The service provides chronic fatigue management programmes (CFMPs) at Rayners Hedge in Aylesbury. The CFMPs are led by members of the interdisciplinary team and each group has up to 10 participants and meets weekly for 2.5 hours for 10 weeks.
“All participants are offered an individual review following completion of the programme and a follow up at six months.
‘The groups use cognitive-behavioural principles and methods. Each session has explicit objectives, with topics including pacing, relaxation, coping with thoughts and feelings, work/leisure, communication and relationships, sleep and medical management.
“The format of the group is interactive, participants are encouraged to share their experiences and strategies for coping. Information about chronic pain/fatigue and techniques for managing it are taught.”

Cambridgeshire

Website: Cambridgeshire CFS/ME Service

Address: Administration Hub, 1 Commerce Road, Lynch Wood, Peterborough, PE2 6LR
Telephone: 0330 726 0077
Email: cpm-tr.cfsme@nhs.net
“The team consists of a Neuro Conditions Clinical Manager, Specialist Nurse Practitioner and three Specialist Occupational Therapists who specialise in the management of CFS/ME.  The team will aim to establish a supportive and collaborative relationship with the person with CFS/ME and their family/carers.
“The occupational therapists are specialist CFS/ME clinicians who have a wide range of skills and experience in the management of CFS/ME. They will support you to self-manage the condition in a way that is appropriate to you, providing you with the necessary skills and strategies to sustain or gradually extend, if possible, your physical, emotional and cognitive capacity and manage the physical and emotional impact of CFS/ME symptoms.”

Cornwall and the Isles of Scilly

Website: Cornwall & IoS CFS/ME Service

Address: Royal Cornwall Hospital, Truro, TR1 3LJ
Telephone: 01872 252935
Email: rch-tr.CFSME@nhs.net
“We offer an outpatient and community ­based service for patients who live in Cornwall and are suspected of having Chronic Fatigue Syndrome, which is also known as Chronic Fatigue Syndrome/ME.
“Our specialist team offers diagnosis and assessment, and works with patients and their GPs to develop a clinical management plan and help them with their long­term rehabilitation.
“The service provides assessment, diagnosis and therapeutic pathways. These can be either one-to-one or groupwork programmes. Depending on your clinical needs, you can be seen at home, in a GP surgery, in a hospital clinic or receive telephone consultations. You will be offered an assessment appointment with any one member of the team followed by the option to discuss various care pathways and treatment interventions.”

County Durham and Darlington

Website: Durham & Darlington CFS/ME Service

Address: Building 9, Bishop Auckland General Hospital, Cockton Hill Road, Bishop Auckland, DL14 6AD
Telephone: 01388 455200
“Clinic locations are Shotley Bridge Community Hospital, Healthworks at Easington, Chester-le-Street Community Hospital, University Health Centre at Green Lane Durham, Pioneering Care Centre at Newton Aycliffe and Sedgefield Community Hospital.
“It is the aim of the service to provide a responsive and high quality service to patients who present with CFS/ME, aiming to empower patients and carers to manage the problems of the illness in everyday life. 
“Where necessary the service will work with partner organisations who are involved with the patient or may need to become involved. This includes providing expert reports for any associated bodies such as DWP or Occupational Health.
“Treatment response is variable between patients. Typically patients will receive a maximum of 12 therapy sessions. Some of these sessions may include telephone consultation, by mutual agreement.  
“End of treatment will be mutually planned. All patients (barring change of circumstances) will be then offered six month and one year reviews to revisit the end of treatment outcome and to ensure the patient is still empowered to manage their condition.”

Cumbria

North, East and West Cumbria
Website: Persistent Physical Symptoms Service

Address: Voreda, Portland Place, Penrith, CA11 7SZ
Telephone: 01768 245954
Patient information: PPS Service Information
“We are a rehabilitation service designed to support people in understanding and managing their symptoms, with the aim of improving both their day to day activities of daily living as well as improving their mood.”
“The people we support may experience chronic (or persistent) pain or they may have been given a diagnosis such as Fibromyalgia, Chronic Fatigue Syndrome/ ME, Functional Neurological Symptoms (including Non-Epileptic Attacks) or Medically Unexplained Symptoms.”
“Our team provide a combination of physical and psychological interventions and includes clinical psychologists and practitioners, physiotherapists, CBT therapists, rehabilitation assistants and assistant psychologists.”

South Cumbria
Website: See South Cumbria CFS/ME Service

Contact details as above for the PPS Service.
Patient information: CFS/ME Service Information
“If you and we agree that the CFS/ME service is appropriate for your needs, we will offer you a combination of two evidence-based treatments: Cognitive behaviour therapy (CBT) and Graded exercise treatment (GET).
“We treat most patients in groups tailored to your needs. Our patients tell us they find group work beneficial and supportive. They learn from talking to their fellow group members. The health professionals running the group will offer their expertise to help you manage your condition and reduce the negative impact on your life.
“If we decide together at the assessment that working in a group does not suit you, we will talk about other options with you.”

Derbyshire

Website: Derbyshire CFS/ME Service

Address: University Hospitals of Derby and Burton, Specialist Rehabilitation, London Road Community Hospital, London Road, DE1 2QY
Telephone: 01332 258 255
“The Derbyshire Chronic Fatigue Syndrome/ME service has moved from the Royal Derby Hospital site to the newly refurbished Specialist Rehabilitation Department based at London Road Community Hospital.
“Patients will continue to be seen by the most appropriate professional to meet their needs including trained therapists in the field of CFS/ME. They will follow a specialist CFS/ME pathway which includes specialist assessment, therapy interventions and self-management advice for adults (aged 16 and above) who have been diagnosed with chronic fatigue syndrome/ME. (Children and young people should be referred to a paediatrician).
“Patients can choose either one to one or group therapy treatment. The team consists of occupational therapists, physiotherapists, a cognitive behavioural psychotherapist and consultants in rehabilitation medicine.
“Patients who are severely affected can be seen at home. Referrals are accepted from GPs or consultants.”

Devon

Exeter East, Mid, and North Devon
Website: CFS/ME Service Exeter Community Hospital

Address: Exeter Community Hospital, Hospital Lane, Exeter EX1 3RB
Telephone: 01392 405479
“The service is for people 18 and over, and based at the Exeter Community Hospital delivering assessment and treatment and then interventions on an outpatient basis primarily. For a patient who is bedbound or completely housebound a home assessment can be arranged providing the GP confirms that this is the case.
“It provides a specialist service for patients with Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) and supports local clinicians in the continued management of the condition, where this proves appropriate.
“Primary care, social care/ employment/ housing or benefits services should continue to be involved whilst the patient is seen within the specialist service to ensure continuity of care and a seamless service upon discharge.”

Plymouth
Website: Plymouth CFS/ME Service

Address: Sentinel Healthcare Southwest CIC, Express Diagnostics & Treatment Centre, Plymouth Science Park, Derriford, Plymouth PL6 8BU.
Telephone: 01752 435205.
Email: SHS.SentinelCFS@nhs.net
“This is a part-time service operating from: 08:30 am – 4:30 pm on Monday, Tuesday and Wednesday.
“Sentinel Healthcare Southwest CIC is commissioned to provide treatment based on The National Institute of Clinical Excellence (NICE) guidelines.
“The treatment may focus on the following goals: to restore a balance between rest and activity in a multi-tasking lifestyle; to improve sleep patterns and dietary intake; to overcome difficulties with concentration, memory and information processing; to develop problem solving and goal setting techniques; to increase participation in valued social activity; to provide advice related to employment or education; to develop strategies to prevent relapse. However this is tailored to the individual needs of each patient.”

Torbay and South Devon
Website: Torbay & South Devon CFS/ME Service

Address: 4th Floor, Union House, Union Street, Torquay, TQ1 3YA.
Telephone: 01803 219859.
Contact Form: CFS/ME Service.
“The Torbay and South Devon CFS/ME Service is dedicated to the diagnosis, assessment and treatment of patients with CFS/ME. The team also provide training, education and support to other professionals who are working with people with CFS/ME. We hope that this video will provide you with a useful introduction to our services and how we can help.”

Dorset

Website: Dorset CFS/ME Service

Address: Wareham Hospital, Streche Road, Wareham, BH20 4QQ
Telephone: 01929 557560
Email: dhc.dorset.cfsme@nhs.net
“For adults: CFS/ME diagnostic/review clinics are held bi-monthly at Wareham Hospital.
“For children and young people: a diagnostic/review clinic is held monthly at Poole Hospital for families based in the East of the county. A patch paediatrician system operates in West and North Dorset.
“We provide specialist diagnosis, assessment, treatment and review for people with CFS/ME. We are focused on recovery, and work with patients to help them lead healthy, independent and fulfilling lives.
“The service is available across Dorset, with specific support for both adults and children. Our team includes GPs, rheumatologists, occupational therapists, consultant paediatricians and psychologists.
“If you, or your loved one, would like to access this service, please speak to your GP or other healthcare professional.”

Essex

Southend University Hospital
Website: The Essex CFS Service

Address: Rehabilitation Department, Southend University Hospital, Prittlewell Chase, Westcliff-on-Sea, Essex, SS0 0RY
Telephone: 01702 385247
Email: cfsservice@southend.nhs.uk
“The Essex Chronic Fatigue Service (CFS) is a county-wide service run by Southend University Hospital, with outpatient assessments and therapy sessions held throughout Essex.
“We believe that the best care possible involves making an accurate diagnosis. We assess our patients using an integrated approach, and then decide with the patient what approach has the best chance of restoring their health.
“Our treatment aims to work with you towards recovery and management of your symptoms. Treatments offered by us are based on evidence from research into CFS (also known as Myalgic Encephalomyelitis) and the National Institute for Health and Clinical Excellence (NICE) guidelines which are set for patient care by the government.”

Romford
Website: Chronic Fatigue Outpatient Service

Address: Queens Hospital, Neurology Department, Queen’s Hospital
Rom Valley Way, Romford, Essex, RM7 0AG
Telephone: 01708 503542
Administrator: Catherine Cruise
Email: Catherine.cruise@nhs.net
Neurology Consultant: Dr Abhijit Chaudhuri
Highly Specialist Occupational Therapist: Amelia Goldsmith Lister
Specialist Counsellor: Karen Crowe
“You will be seen for a joint intake assessment with the consultant and the occupational therapist. If diagnosed with Chronic Fatigue Syndrome (CFS), you will then have treatment sessions with the occupational therapist. There will also be sessions with the counsellor and/or the physiotherapist if needed.
“Our service provides joint medical occupational therapy assessment, counselling and physiotherapy. We also provide follow-up after the completion of treatment. Our approach is based on principles of Cognitive Behavioural Therapy and Graded Activity/Exercise Therapy.
“There is an outpatient clinic three times a month and a telephone clinic once a month. But please contact the clinic for more information.”

Gloucestershire

The Bristol CFS/ME Service covers Gloucestershire.

Hampshire and the Isle of Wight

Website: South Coast Fatigue

Address: Lancaster Court, 8 Barnes Wallis Road, Fareham, Hampshire, PO15 5TU.
Telephone: 01489 668109
Email: fran.hill@nhs.net
“South Coast Fatigue has been supporting the NHS since April 2014 by providing an outpatient Chronic Fatigue Syndrome/ME Service. We also provide a bespoke domiciliary programme to individuals diagnosed with severe CFS/ME funded by Individual Funding Request (IFR).
“In accordance with current NICE guidelines, South Coast Fatigue runs two alternative programmes to meet the different needs of those individuals who are mild to moderately affected by CFS/ME and those that are severely affected.”

Hertfordshire

Kingsway Health Centre
Website: Herts CFS & Chronic Pain Management Service

Address: Kingsway Health Centre, Unit 18, Stevenage Leisure Park, Stevenage, SG1 2UA
Telephone: 01438 847512
“The Service is available to patients aged 18 years and over who are registered with a Hertfordshire GP in Stevenage, North Herts, Welwyn & Hatfield, Lower Lea Valley, Upper Lea Valley and the Stort Valley.
“It is comprised of a specialist, multidisciplinary team of clinicians, highly experienced in working with patients who have Chronic Fatigue Syndrome and/or chronic pain.
“Following acceptance of your referral, you will be assessed by our multidisciplinary team. This team is made up of physiotherapists, occupational therapists and clinical psychologists.
“After you have been assessed, an individualised care plan will be produced and agreed. This will take into account your physical, psychological and social needs.” See also: Additional Information for Patients.

Herts Valleys
Website: Connect Health

When visiting the website above, select ‘East of England’ from the list of options, scroll down to ‘Herts Valley’ and then select the GP surgery that is applicable.

Telephone: 01442 913 356
“From the 15th January 2018 the contract for the CFS Service for Herts Valleys Clinical Commissioning Group was awarded to an organisation called Connect Health.
“For people living in Hertfordshire with a GP registered under Herts Valleys Clinical Commissioning Group, they will be able to access the service provided via a referral from their GP.
“Connect Health has grown from a single private clinic established in 1989 to being the largest provider of community musculoskeletal (MSK) physiotherapy services in the UK, with over 350 clinical experts in MSK and occupational physiotherapy.”
Note: There does not appear to be a specialist ME/CFS service now in this area but you can read more about the Integrated Musculoskeletal Service that is provided.

Kent

Website: Kent CFS/ME Service

Address: Neuropsychology Medway Admin Hub, Disablement Services Centre, Medway Maritime Hospital, Gillingham, Kent ME7 5NY
Telephone: 01634 833937
“The service offers multidisciplinary assessment and treatment programmes for adults from 18 years with Chronic Fatigue Syndrome or Myalgic Encephalopathy.
“The emphasis of our service is on self-management and rehabilitation and draws on principles of cognitive behavioural therapy.
“Treatment is a collaborative process and the focus is always based on your needs and capabilities. The treatment programme aims to help you develop problem solving techniques so you can discover the most useful ways to manage and overcome your illness.”

Lancashire

We will update this section as soon as we receive information from the other NHS Trusts operating in Lancashire. In the meantime the only service available seems limited as below (October 2019).

Central Lancashire and South Cumbria NHS Trust
Website: CFS/ME Service

Part of the Central Lancashire ‘Moving Well‘ Service.
Main Address: Minerva Health Centre, Lowthorpe Road Preston, PR1 6SB
Telephone: 01772 520900 (select option 4)
The service also operates from: Chorley Health Centre, Collisson Avenue, Chorley PR7 2TH
“This service is available for people who are registered with a GP Practice in Greater Preston, Chorley or South Ribble.
“The service aims to help people deal with and reduce the difficulties that are associated with CFS/ME. Following a referral and initial assessment, the specialist team will work with you to create an individual management plan to help you lessen the impact of CFS/ME, and gradually improve. The team will also work closely with your GP and any other health professionals who may be involved in your care.
“We aim to provide supportive, holistic patient centred advice to aid acceptance, education and self-management for adults with mild or moderate CFS/ME in Lancashire. Sessions are run on a one to one basis in clinics across Lancashire and cover topics such as pacing, activity management, sleep regularisation and relaxation.”

Leicestershire and Rutland

Website: Liaison Psychiatry Service

Telephone: General Switchboard: 0116 225 6000.
Note: The service provision in Leicestershire is currently under review (September 2019) and we will provide an update as soon as we learn more.

Lincolnshire

Website: The Lincolnshire CFS/ME Service

Address: Ward 14a, Grantham Hospital, 101 Manthorpe Road, Grantham 
Lincolnshire NG31 8DG
Telephone: 0303 123 4000
Email: lpn-tr.LincsCFS-MEService@nhs.net
“The CFS/ME service is a small, multidisciplinary team consisting of a consultant clinical psychologist, a specialist occupational therapist, a senior rehabilitation assistant, a specialist physiotherapist and an assistant psychologist. Our administrative base is Grantham and District Hospital, but clinical staff are community based covering Lincolnshire.
“We aim to offer specialist assessment and teach the evidence based adaptive coping strategies known to enable individuals to learn to manage the condition more effectively and ultimately improve their health.
“We take a patient centred approach to care and work collaboratively with other health care professionals and services in responding to the needs of this patient group. Our further primary function is to offer advice, education and support to other healthcare professionals, employers, education authorities, patients, and their carers on CFS/ME.”

Liverpool

Website: Liverpool CFS/ME Service

Address: Broadgreen Hospital, Thomas Drive, Liverpool, L14 3LB
Telephone: 0151 2826185
“The service is a regional centre accepting referrals from all over the North West of England.”
“It comprises a specialist multi-disciplinary team of consultant physician, specialist physician, nurses, occupational therapists, a clinical psychologist and therapy assistant, along with administration support.”
“It provides a self-management rehabilitation programme, beginning with one group session, a triage call and two workshops over several months. Finally, a one to one review assesses the patient’s individual needs. The patient may then go on to have tailored therapy sessions.”

London

Hillingdon Chronic Fatigue Service
Website: Hillingdon Hospital

Address: Greenacres Centre, Hillingdon Hospital, Pield Heath Road,
Middlesex, UB8 3NN
Telephone: 01895 279374
Email: hillingdoncfsme.cnwl@nhs.net
“We accept referrals from GPs and other NHS professionals on behalf of patients within the boroughs of Harrow, Hillingdon, Hammersmith & Fulham, Kensington, Chelsea & Westminster, Brent, Ealing and Hounslow.
“This service is delivered by a multidisciplinary team which includes a clinical psychologist, occupational therapist and physiotherapist, and supported by an assistant psychologist and service administrator. Medical diagnostic screening appointments are offered by a consultant neurologist on a locum basis.
“The Team runs a limited satellite clinic at St Pancras Hospital on Thursdays, intended for patients who live or work closest to this location.
“Therapy assessments and individual treatment sessions are available at St Pancras Hospital. The physiotherapist offers telephone appointments for patients receiving treatment at this location.
“Due to resource limitations, medical screening appointments and group treatment are only available at Hillingdon Hospital.”

Royal Free Hospital
The Fatigue Service, Department of Infection and Immunity, Royal Free Hospital, Pond Street, London NW3 2QG.
Consultant: Dr Gabrielle Murphy (part-time).
Patient and GP enquiries: 020 7317 7529
Phone is manned from 08.30am to 11.00am. After 11.00am there is a messaging service which is checked throughout the day.
Email: rfh-tr.fatigueservice@nhs.net
Areas covered: Barnet, Camden, Enfield, Haringey and Islington.

Royal London Hospital for Integrated Medicine
Adult Chronic Fatigue Service, Royal London Hospital for Integrated Medicine (formerly the Royal London Homeopathic Hospital), 60 Great Ormond Street, London WC1N 3HR.
Telephone: 0203 448 2000.
Email: rlhimpatients@uclh.nhs.uk (not for referrals).
Service Manager: Loretta Chinwokwu
Consultants: Dr Saul Berkovitz, Dr Helmut Roniger and Dr Christian Hasford.

This is the adult service for University College Hospital, London as a whole. Although physically based within the RLHIM, it is not a homeopathic service but offers all interventions recommended by the National Institute for Health and Clinical Excellence in their ME/CFS Guideline – including consultant physician assessment, activity management, exercise and psychological interventions including medical hypnosis, autogenic training and CBT.
The team consists of three consultant physicians, a senior nurse practitioner, occupational therapist, physiotherapist and dietitian.
The team also can advise on appropriate complementary medicine interventions and, in some cases, provide them – such as acupuncture for chronic widespread muscle pain.
Referrals through the patient’s GP or NHS hospital consultant.

South London and Maudsley NHS Trust
Chronic Fatigue Research and Treatment Unit, Mapother House, De Crespigny Park, London SE5 8AZ.
Telephone: 0203 228 5075. Fax: 0203 228 5074

Our multidisciplinary team includes psychiatrists, psychologists, physiotherapists, psychotherapists, doctors and researchers.
Director: Professor Trudie Chalder.
We offer evidence-based treatment that is routinely evaluated. Our aim is to increase the person’s functioning and reduce the severity and impact of their symptoms. We also offer assessment and treatment for people with fatigue associated with chronic diseases like rheumatoid arthritis, multiple sclerosis, HIV or cancer.
We offer diagnostic specialist assessment, routine blood tests, CBT and GET.
Eligibility: 10+ years (we work in conjunction with our child and adolescent service), long lasting fatigue, profound disability, disturbed sleep pattern.
We accept referrals from consultant psychiatrists, community mental health teams, CAMHS, GPs and GP consortia from all over the UK apart from those areas which have their own local adult services.

Manchester

Bolton and Bury
The Breightmet Health Centre, Breightmet Fold Lane, Breightmet, Bolton BL2 6NT, tel: 01204 462 765, fax: 01204 462 768.
Principal service lead: Simon Crozier. Manager: Michelle Wardle.
‘The appointments are at Breightmet Health Centre if in Bolton or the Prestwich Walk-In Centre if you live in Bury. The aim of the service is to offer group and individual therapy and a domiciliary service for the housebound, in Bury and Bolton.’

Newton Heath
The Chronic Fatigue Programme, Silk House, Holyoak Street, Newton Heath, Manchester M40 1HA

Tel: 0161 219 9420
Opening hours: Monday to Thursday 9am – 4pm with answerphone available when the office is closed.
Clinical lead: Gill Walsh. Team comprises a nurse and a physiotherapist.

‘The Chronic Fatigue Programme is a community service for adults living in Manchester who have a chronic/long term health conditions where chronic fatigue and/or chronic pain are the primary problems.’
‘The service offers a pain course and a mindfulness course for chronic conditions, aiming to empower people to increase their self-management of pain and fatigue, reduce the day to day impact of their long-term condition on their daily life and work towards improving independence and increasing physical activity.’

SalfordCFS/ME Service, Department of Clinical Health Psychology, Clinical Sciences Building, Salford Royal NHS Foundation Trust, Stott Lane, Salford, M6 8HD
Department Telephone: 0161 206 5588
Salford Royal Foundation Trust CFS/ME Service is a specialist NHS Service aimed at meeting the needs of people from 18 years of age who have a diagnosis of Chronic Fatigue Syndrome (CFS), also referred to as Myalgic Encephalomyelitis (ME).’
‘There is a Multidisciplinary Team based here at Salford Royal that includes Specialist Medical Consultants, Physiotherapists and Clinical Psychologists. The team offers an outpatient service Monday to Friday.
We approach treatment for CFS in a holistic manner. This means exploring both the physical and psychological aspects of your illness.’

Stockport, Tameside and Glossop
Stockport CFS/ME Service, Marple Clinic, Memorial Park, Marple, Stockport SK6 6BATelephone: 0161 835 6684
Email: snt-tr.mecfs@nhs.net
Monday to Friday 9am-5pm.
‘Welcome to the Stockport Chronic Fatigue Syndrome/ME Service. We are a specialist multidisciplinary team who offer guidance and support to people 16 years and over with Chronic Fatigue Syndrome/ME.’
‘The Stockport Chronic Fatigue Syndrome/ME Service is available to adults who have a diagnosis of Chronic Fatigue Syndrome/ME and are registered with a GP in the Stockport and Tameside & Glossop areas. We aim to support people to self-manage their condition and adapt our treatment plan to individual needs.’ 

Wigan
Chronic Fatigue/MyalgicEncephalomyelitis Service, Golborne Clinic, Lowton Road, Golborne. WA3 3EG.
Telephone 01942 483680
Email: cfsme.service@bridgewater.nhs.uk
This service is open to adults aged 18 years and over who are registered with a GP in the Metropolitan Borough of Wigan. There’s also access to 17-year-olds if no longer in full-time education or 16-year-olds considered by all agencies to be better placed with adult services.
The service provides specialist assessment, treatment, advice and support for adults who have a diagnosis of CFS/ME. Referral is by GP or consultant after exclusion of other possible causes for their symptoms.  Patients previously known to the service can self-refer within 12 months of discharge.
The service 
* adheres to the NICE Guideline (53) for CFS/ME
* Recognises and promotes the importance of early diagnosis and intervention
* Provides a Consultant in Rehabilitation Medicine-led Assessment
* Provides intervention on a 1:1 and or group basis
* Assessment and Intervention takes place in our clinic setting or via home visit dependent on identified need.

Norfolk
There are two services in Norfolk and Suffolk, a community service provided by ECCH, which delivers care across both counties, and an additional specialist service for patients in Suffolk only (see ‘Suffolk’ below).

Community Service: Norfolk and Suffolk ME/CFS Service

This is an adult and paediatric community outpatient service covering all of Norfolk and Suffolk and provided by East Coast Community Healthcare (ECCH). The service is led by senior Occupational Therapist, Jo Wiggins and is based at Herbert Matthes Block, Northgate Hospital, Northgate Street, Gt Yarmouth, Norfolk NR30 1BU, 01493 809977 Fax: 01493 809970.

The service is staffed by occupational therapists, physiotherapists and GP’s with a special interest in ME and CFS. Referrals are made by GP’s; patients under 16 must also be under the care of a paediatrician.

More information and a referral form can be found on the ECCH website.

If the patient has not already been diagnosed by their GP, diagnosis is made either by a senior therapist or a GP with Special Interest in ME & CFS. Children are diagnosed by their paediatrician; one therapist within the service oversees paediatric care for under 18’s.

The service offers help and advice regarding pacing, activity management, graded activity, rest, relaxation, analysing activity, goal planning, stress, thoughts / feelings (including elements of CBT), sleep, memory, diet, illness and other people and managing setbacks. The service also advocates for patients in liaison with education authorities and occupational health.  The service no longer provides support for benefit claims.

Contact is face to face, by email and telephone, with domiciliary visits available.  Patients are offered a maximum of 6 therapy sessions. A trial of group therapy is to begin in January 2019.

Outpatient clinics operate from Great Yarmouth, Lowestoft, Halesworth, Stowmarket, Kings Lynn, Norwich and Aylsham. Your follow-up appointments will be at one of these locations and can also be done via telephone.

Nottinghamshire

The Nottinghamshire specialist service (formally based at the Mobility Centre at Nottingham City Hospital) was closed following a service review by Greater Nottingham Clinical Commissioning Groups in 2016-2017.

In March 2017, following an engagement campaign, it was decided that the ME/CFS specialist service would be decommissioned and that needs would be met in the community (see PICS below).

The CCGs have said the situation will be reviewed again when the new NICE clinical guideline for ME/CFS is published in October 2020.

Primary Integrated Community Services (PICS)

The service can be accessed by asking your GP for a referral or telephone the number below for more information.

Website: Persistent Pain and Chronic Fatigue Syndrome.
Address: Unit H4 Ash Tree Court, Nottingham Business Park, Nottingham NG8 6PY.
Telephone: 03000 830 000 option 1 for Pain Management service or option 5 for the Chronic Fatigue Syndrome service. 
Email: pics.enquiries@nhs.net
Provided for people registered to GP practices within, Nottingham West, Nottingham North and East, Rushcliffe, Newark and Sherwood, and Mansfield and Ashfield Clinical Commissioning Groups.
“An innovative community pathway where a multidisciplinary team of specialist clinicians help patients with spinal and other persistent pain conditions as well as patients with chronic fatigue syndrome (CFS) to get the right diagnosis and treatment, manage their symptoms better and improve their quality of life.”

Oxfordshire

Oxfordshire CFS/ME Service
Windrush House, Windrush Industrial Estate, Witney, Oxfordshire OX29 7DX. 
Telephone: 01865 903 757 Email: cfs@oxfordhealth.nhs.uk 
Office hours: Mon-Thurs 9am-5pm
Clinical Lead: Rachael Rogers, Specialist Occupational Therapist
‘A community based specialist service, offering individualised programmes for adults and young people over the age of 14 with CFS/ME.’
‘GP referral required.’

Oxford University Hospitals Fatigue ServiceChurchill Hospital, Old Road, Headington, Oxford OX3 7LE. 
Telephone: 01865 225218
Members of the team: Dr Daniel Zahl, clinical psychologist; Dr Charlie Winward, clinical specialist physiotherapist.
‘The therapists offer NICE (National Institute for Health and Clinical Excellence) recommended treatment for ME/CFS. These are Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT). These treatments focus on helping you to develop the tools to overcome your difficulties.’

Shropshire
Community Neuro Rehabilitation Team, Shropshire Rehabilitation Centre, Lancaster Road, Harlescott, Shrewsbury SY1 3NJ.
Email for General Inquiries: cnrt@shropcom.nhs.uk
We have Occupational Therapists, Physiotherapists, Psychologists, Speech and Language Therapists, Rehab Assistants and a Dietitian. The named contact for the team is occupational therapist Simon Toghill, tel: 01743 453 600.

Somerset

Bath (also covers Wiltshire)
Bath Centre for Fatigue Services, RNHRD & Brownsword Therapies Centre, Royal United Hospital Bath, Combe Park, Bath, BA1 3NG
Telephone: 01225 473456
Email: ruh-tr.RNHRDAdminBCFS@nhs.net
‘We are a national service providing outpatient based specialist services for adults experiencing longstanding fatigue linked to a variety of illnesses.
‘People referred to our service might have Chronic Fatigue linked to a neurological or other long standing condition, such as joint hypermobility syndrome, Chronic Fatigue Syndrome/Myalgic Encephalomyelopathy (CFS/ME) or Cancer Related Fatigue (CRF).
‘The ethos of our service is based on supported self management. This approach enables people to better manage their conditions and regain some control over day to day activities and routines.’
‘Services are provided in a variety of locations in Bath and Wiltshire and via a variety of media including SKYPE where appropriate.’
See website for more information and referral details. A leaflet provides some evidence of patient feedback (2018-2019).

Bristol (North Somerset)
Bristol CFS/ME Service, The Lodge, Cossham Hospital, Lodge Road, Bristol, BS15 1LF.
Telephone: 0117 3408390. Fax: 0117 3408466.
Email: CFS.NHS.Bristol@nbt.nhs.uk
‘Bristol Chronic Fatigue Syndrome/ME Service is a specialist NHS Service for people with Chronic Fatigue Syndrome/ME. The clinical team includes – Occupational Therapists, Physiotherapists, Clinical Psychologists, A Counsellor.’
‘We offer an outpatient service to people living in Bristol, North Somerset, and Gloucestershire. We offer a combination of telephone and face-to-face contact, and a telephone counselling service is available for people who have been assessed by the Service. Part of our role is to advise and support other Health Care Professionals in the clinical management of people with CFS/ME.’

WellsPriory House, Priory Health Park, Glastonbury Road, Wells BA5 1XL Contact Karen Butt, tel: 01749 836703, fax: 01749 836543.
Email: CFSME@somerset.nhs.uk

‘This service is provided by a small team based in Wells and uses strategies endorsed in the NICE Clinical Guideline for ME/CFS. The service offers assessment and treatment based on activity management which includes pacing setting baselines and relaxation.
‘Following assessment we offer up to four individual appointments with a practitioner held in Wells or a group programme of six sessions which are held in a number of venues across the county including Bridgwater, Taunton and Yeovil. Telephone appointments and e-mail contact are also available.’
‘The Service operates on Tuesdays, Wednesdays and Fridays each week.’

Staffordshire
The ME/CFS service is provided within the Department of Psychology (Physical Health Psychology and Rehabilitation), Cannock Chase Hospital, Brunswick Road, Cannock WS115XY.
Telephone: 01543 576609  Fax: 01543 576608 (Correspondence to M. Wong).

Suffolk
There are two services in Suffolk, a community service, and an additional specialist service for patients who have made limited improvement after accessing the community service (see also ‘Norfolk’ above).

Community Service: Norfolk and Suffolk ME/CFS Service

This is an adult and paediatric community outpatient service covering all of Norfolk and Suffolk and provided by East Coast Community Healthcare (ECCH). The service is led by senior Occupational Therapist, Jo Wiggins and is based at Herbert Matthes Block, Northgate Hospital, Northgate Street, Gt Yarmouth, Norfolk NR30 1BU, 01493 809977 Fax: 01493 809970

The service is staffed by occupational therapists, physiotherapists and GP’s with a special interest in ME and CFS.

Referrals are made by GP’s; patients under 16 must also be under the care of a paediatrician. The referral form can be found on the ECCH website.

If the patient has not already been diagnosed by their GP, diagnosis is made either by a senior therapist or a GP with Special Interest in ME & CFS. Children are diagnosed by their paediatrician; one therapist within the service oversees paediatric care for under 18’s.

The service offers help and advice regarding pacing, activity management, graded activity, rest, relaxation, analysing activity, goal planning, stress, thoughts / feelings (including elements of CBT), sleep, memory, diet, illness and other people and managing setbacks. The service also advocates for patients in liaison with education authorities and occupational health.  The service no longer provides support for benefit claims.

Contact is face to face, by email and telephone, with domiciliary visits available.  Patients are offered a maximum of 6 therapy sessions. A trial of group therapy is to begin in January 2019.

Clinics are held at Stowmarket: Stow Lodge Centre (IP14 1SZ), Reydon: Sole Bay Health Centre (IP18 6GY) and Lowestoft: Kirkley Mill Health Centre (NR33 0HF)

Suffolk Specialist ME and CFS Service

Please Note: From April 2019 this service will be suspended. A statement from Suffolk CCG and related information can be found here. The CCG is committed to reinstating the service once a replacement for Dr Nacul can be found.

This service has been established by the CCG’s in Suffolk to meet the needs of people in Suffolk with moderate or severe ME or CFS.  These patients will have made limited improvement after accessing the Community Service provided by East Coast Community Healthcare.

The Suffolk GP Federation and Dr Luis Nacul are working together to provide this new part time service which began in July 2018.

Dr Nacul is experienced in public health and general practice and is a Clinical Associate Professor in epidemiology and public health at the London School of Hygiene and Tropical Medicine (LSHTM).  Dr Nacul leads the ME Biobank Team at the LSHTM.

The service is currently for adults (over 18’s) and referrals are made by GP’s.

The clinic is based at the Riverside Clinic, 2 – 4 Landseer Road, Ipswich, Suffolk, IP3 0AZ, Telephone: 0345 241 3313 or 01473 344 930. An occupational therapy couch is provided to lie down on during the consultation.

Dr Nacul undertakes an extensive review of symptoms, function, family history, medication, supplements etc.  A physical examination may also be undertaken.

Recommendations are made to the patients GP regarding medication and any further investigations. A summary of the consultation is also sent to the patient. Follow up review is provided where appropriate.

The service does not provide for prescription of medication, direct referral to other services, benefit letters or domiciliary visits. This is a new service and the details of provision is likely to change as the service evolves.

Sunderland

South of Tyne CFS Service, Chester Lodge, Sunderland Royal Hospital, Kayll Road, Sunderland, SR4 7TP.
Telephone: 0191 5410045.
“The South of Tyne CFS Service is a specialist multidisciplinary service. We offer outpatient treatment to adults with CFS in Gateshead, South Tyneside and Sunderland. We only accept referrals from GP’s within these areas. Treatment is tailored to the individual following assessment and is delivered either through individual appointments or in a group programme.”

Surrey

Epsom and St Helier University Hospitals Trust, Sutton Hospital, CFS/ME Service, Cotwold Road, Sutton, Surrey, SM2 5NF
Telephone: 020 8296 3940
We provide one-to-one consultations, lifestyle management and education groups. Please be advised that due to limited resources we can only provide advice and information regarding the management of chronic fatigue syndrome to patients currently in the service. If you have any queries of a general nature we advise you to contact your local support group or other voluntary CFS/ME organisations.
We do encourage local support services to contact us for information on management of CFS/ME in general and to liaise with us in the management of patients who are being seen in their services and ours.
The service website provides links to information leaflets and audio recordings for relaxation.

Sussex (Brighton, East Sussex, Hove, West Sussex)CFS/ME Service, Haywards Heath Health Centre, Heath Road, Haywards Heath, West Sussex, RH16 3BB
Telephone: 01444 475799 Fax: 01444 475743
Monday to Friday 9am to 5pm.
Email: SC-TR.CFSMESussex-WideService@nhs.net
‘Our service is for people with mild to moderate CFS/ME. We provide outpatient treatment at several locations across Sussex. We will help you with learning self-management strategies. The service is aimed at assisting with diagnosis, assessment, therapy and treatment (where possible) for adult patients diagnosed with mild to moderate CFS/ME, using evidence based treatment programmes following NICE guidelines.’

Tyne and Wear (Northumberland)


The Newcastle upon Tyne Hospitals NHS Trust, CFS/ME Service, Molineux Street NHS Centre, Newcastle upon Tyne, NE6 1SG
Telephone: 0191 213 8823
Email: jeanette.welch@nuth.nhs.uk
Office hours 8.15am – 4.15pm, Wednesday and Thursday; 9.00am – 12.45pm Friday.
“The team working with CFS/ME patients in our area has a range of experience, and includes: consultants in immunology, and infectious and tropical medicine, clinical psychologists who carry out the initial psychological assessment, and work with patients whose condition has impacted on their physical and psychological well-being, cognitive behavioural therapists, and physiotherapists.”

Warwickshire (Nuneaton)


CFS/ME Service, Occupational Therapy, George Eliot Hospital NHS Trust, College Street, Nuneaton,  Warwickshire, CV10 7DJ
Telephone: 024 7686 5159
The service manager is a senior Occupational Therapist: Trudi Mawby. Clinical lead: Dr Vinod Patel.
‘The Chronic Fatigue Syndrome Therapy service offers assistance in managing patterns and levels of activity and rest to maximise function, but avoid increases in symptoms. Graded Exercise Therapy (GET) is used during therapy as this is the most up to date evidence based practice.’
‘The service can offer patients advice and guidance on the following; graded exercise therapy, rest/relaxation, sleep management, work/educational advice and help with managing relapses and setbacks. The aim is to provide patients with the knowledge of how to create the best conditions for recovery to occur, and for patients to become an expert in managing their own condition.’

Wiltshire

See ‘Somerset’ entry above (Bath Fatigue Service also covers Wiltshire as well as Somerset). The Swindon service appears to have closed.

Worcestershire


Chronic Fatigue Syndrome Service, Malvern Community Hospital, 185 Worcester Road, Malvern, Worcestershire WR14 1EX. Tel: 01684 612 671 This is a part-time service with admin hours as follows: Tues-Wed 8am-1pm, Thurs 8am-12noon. Email: WHCNHS.chronicfatigue@nhs.net
“We are a specialist part-time service that delivers support and treatment to people with CFS/ME within community settings across Worcestershire.”
“The main aspect of our treatment is our Managing Lifestyles Group programme.  This offers patients the opportunity to learn more about the ways in which they can manage their condition, with the aim of improving functional independence and quality of life.”
“The group teaches skills in sleep management, pacing, relaxation and mindfulness, and communication, as well as many further topics. We find that the majority of our patients benefit greatly from this programme and particularly find that meeting and building relationships with other group members helps to reduce the isolation that is so commonly felt as a result of the condition.”

Yorkshire

Harrogate, North Yorkshire
CFS/ME service, Briary Wing, Harrogate District Hospital, Lancaster Park Road, Harrogate HG2 7SX.
Tel 01423 553526 Fax: 01423 553586.
Julie Robinson, occupational therapist (Team Leader).
The service was set up by North Yorkshire and York Primary Care Trusts and covers Harrogate, Ripon, Skipton and surrounding areas. It hopes to expand in the future.

Hull and East YorkshireA multi-disciplinary service for adult patients with a diagnosis of Chronic Fatigue Syndrome (CFS).
Clarendon House, Victoria House, Park Street, Hull, HU2 8TD.
Telephone: 01482 617735
The general contact hours for the service are 9am to 5pm, Monday-Friday.

‘This service does not take the view that CFS is ‘all in the mind’, not do we believe that patients are mentally ill. However evidence suggests that as with many long term physical conditions, there may be psychological or social issues which can predispose, trigger or perpetuate CFS. Therefore our treatment approach reflects this and includes physical, social and psychological elements.’

Leeds (and West Yorkshire)
The Leeds and West Yorkshire CFS / ME Service is based in the Therapy Suite on the first floor of the Newsam Centre at Seacroft Hospital in Leeds.
Telephone: 0113 85 56330 / 0113 85 56331 / 0113 85 56334 Email: cfsme.lypft@nhs.net.
Monday to Friday, 8.30am to 4.30pm.
‘Our individual treatment plans and different options for treatment help people make sense of their condition and work towards recovery.’

‘The aims of our service are to:
– improve your quality of life – people say we are giving them their lives back
– help you on a journey towards recovery
– help you to continue in education and work if this is important to you
– help you understand your condition
– involve and support your carers, family and friends too.’

Middlesbrough (North Yorkshire)
The ME/CFS Team, Department of Infectious Diseases and Travel Medicine, James Cook University Hospital, South Tees Foundation NHS Trust, Marton Road, Middlesbrough TS4 3BW
Gemma Gibney, CFS administrator: Telephone: 01642 854462
‘The team includes: Dr John Williams clinical lead/consultant physician, Dr Brendan McCarron consultant physician, Dr David R Chadwick consultant physician, Sister Amanda McGough specialist nurse, Dr Alison Woods senior clinical psychologist, Mrs Angela Park specialist physiotherapist.
‘Referrals to the clinical psychologist and specialist physiotherapist can only be made by the CFS/ME team. There is no direct access to these services at present.’

Sheffield (covering South Yorkshire and North Derbyshire)
Michael Carlisle Centre, Lyndhurst Road, Sheffield S11 9BJ
Service manager and lead occupational therapist: Anne Nichol.
Telephone: 0114 226 3232
Email: Sheffield.cfsmeservices@nhs.net

This is a specialist therapy service for people affected by ME/CFS across South Yorkshire and North Derbyshire. The catchment area covers Sheffield, Rotherham, Doncaster, Barnsley, North Derbyshire County and Hardwick Clinical Commissioning Groups.
Referral guidance and summary information can be found on the Sheffield CCG website.

York (covering North Yorkshire excluding Harrogate)
Yorkshire Fatigue Clinic, York Eco Business Centre, Amy Johnson Way, Clifton Moor, York YO30 4AG
Telephone 01904 479922
Email: sue@yorkshirefatigueclinic.co.uk
Therapy Director: Dr Sue Pemberton, Specialist Occupational Therapist. Other team members: Joe Bradley, Sue Stanley and Nina Dunn, Specialist Occupational Therapists; and Dr Vikki McKeeever, part-time GP with a special interest.
‘We are the contracted provider for NHS assessment and rehabilitation for patients with CFS/ME in North Yorkshire, excluding adults in the Harrogate and rural area.’
Further information for patients, here.

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Part 2:

Children and Adolescent NHS ME/CFS Specialist Services in England

Cambridgeshire and Peterborough
The Children’s Community Nursing Teams Nightingale Court, Ida Darwin Fulbourn Cambridge CB1 5EE Tel: 01223 884335 Fax: 01223 884299
The lead paediatrician is Dr David Vickers. This a small community team based at the Ida Darwin unit, Fulbourn, who provide a specialist service to children and young people up to the age of 19 years with CSF/ME, who are registered with a GP and attend school in Cambridgeshire and Peterborough.

Cornwall and the Isles of Scilly
Cornwall and Isles of Scilly CFS/ME Service, The Lighthouse, Royal Cornwall Hospitals Trust. Truro. TR1 3LJ 01872 252935.
New services for children and young people under 16 have been commissioned by Kernow Clincial Commissioning Group for patients registered with a GP in the county.

Cumbria (North)
Children’s Community Team, Cockermouth Cottage Hospital, Isel Road, Cockermouth, Cumbria CA13 9HT
Tel: 01900 324 131 Mob: 07789 925 705
Service lead: Laura Wilson, children and young people’s CFS/ME practitioner.

Dorset
CFS/ME Service for Children and Young People, Children’s Centre, Damers Road, Dorchester, DT1 2LB. Tel: 01305 253148  Email: dorset.cfs@dchft.nhs.uk
Assessment and treatment is available to all children living in Dorset with appointments offered locally.  Limited domiciliary visits are available if required for those unable to attend an out-patient appointment.

Hertfordshire
East and North Hertfordshire NHS Trust Chronic Fatigue Syndrome Service for Children and Young People, Children and Adolescent Unit, Lister Hospital, Coreys Mill Lane, Stevenage, Hertfordshire, SG1 4AB. Tele: 01438 284235. Fax: 01438 284812. Email: cfspaeds.enh-tr@nhs.net
We are a Specialist Team comprising: Dr Deborah Gale, Specialist Clinical Psychologist; Janey Readman, Specialist Nurse; Lisa Ackerman, Specialist Physiotherapist.

Liverpool
CFS/ME Service Alder Hey Children’s Hospital, Eaton Road, Liverpool, L12 2AP
Tel: 0151 228 4811 (ext 3803)
“This is a general paediatrician led multidisciplinary team (MDT) including senior physiotherapist, CFS/ME specialist nurse, psychologist, consultant psychiatrist and a medical secretary. We provide both diagnostic and therapeutic services to children and young people with this condition coming from Liverpool, Knowsly and Sefton areas.”

London, University College Hospital
Chronic Fatigue Syndrome (CFS) 6th Floor central, 250 Euston Road, UCLH NHS Foundation Trust, London, NW1 2PG.
Patient enquiries: Telephone: 020 3447 5240 Email: uch.appointments@uclh.nhs.uk
GP enquiries: Telephone: 020 3447 5240
Service manager: Aurelia Neumark: Telephone: 020 3447 7790 Email: aurelia.neumark@uclh.nhs.uk
Consultants: Jo Begent, Terry Segal and Professor Deborah Christie.
“Living with CFS/ME can be hard, but we are here to try and make it easier to get life back on track.
“The service has been successfully treating Chronic Fatigue Syndrome (CFS) and Medically Unexplained Symptoms (MUS) for the past 16 years.
“We are part of a teaching hospital with state-of-the-art facilities and have a specialist team of doctors, nurses, physiotherapists, occupational therapists, psychologists, dieticians and social worker.
“Our nationally recognised service helps children and young people (up to 19 years) who are living with CFS/ME, chronic pain, medically unexplained symptoms, non-epileptiform seizures and chronic headaches.”

Manchester
Manchester CFS/ME Service for Children and Young People, Harrington Building, Royal Manchester Children’s Hospital, Hathersage Road, Manchester M13 9WL
Tel: 0161 701 4516
Email: cfs.me@cmft.nhs.uk
Opening hours: 11.00 am and 3.00 pm, Monday to Friday.
Team members:
Alex Woore, Co-ordinating Clinician/ CFS/ME Therapist
Dr Swaminathan Kannan, Consultant Paediatrician
Dr Paul Abeles, Clinical Lead / Consultant Clinical Psychologist
‘We are a multi-disciplinary team offering individualised evidence based treatment packages incorporating Cognitive Behaviour Therapy, Graded Exercise Therapy, Sleep Hygiene and Activity Management and work generically on a one-to-one basis with patients and their families. We have diverse professional backgrounds including Paediatrics, Clinical Psychology, Nursing, Physiotherapy, Occupational Therapy and Social Work.’

Norfolk
See under Adult Services ‘Norfolk’ above.

Nottinghamshire
Children’s Service, C Floor, South Block, Office 3086, Queens Medical Centre, Nottingham NG7 2HU
Tel: 0115 924 9924 (ext 66282)
Clinical co-ordinator and Specialist Occupational Therapist at the Nottingham Children’s Hospital: Jacqui McIntyre, email: Jacqui.McIntyre@nuh.nhs.uk
Working days – Monday to Thursday. Referrals must be made by a consultant paediatrician.

North of Tyne
Dr Caroline Grayson, Community paediatrician, Newcastle Hospitals NHS Trust, Royal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne NE1 4LP
Telephone: 0191 282 5517
Email: gavin.spickett@nuth.nhs.uk

Somerset
Bath Specialist Paediatric Chronic Fatigue Syndrome/ME Treatment Service, Children’s Centre, Royal United Hospital, Combe Park, Bath BA1 3NG.
Telephone: 01225 821340
Email: ruh-tr.paedscfsme@nhs.net
‘Our specialist treatment service can provide assessment, diagnosis and treatment programmes for children and young people with CFS/ME anywhere in the UK.’
‘The team comprises specialist consultant paediatricians, Psychologists, Physiotherapists and Occupational Therapists, and is led by Professor Esther Crawley, one of the few consultant paediatricians specialising in CFS/ME in the country.’
‘Professor Crawley and her team see over 450 children with CFS/ME a year and provide a specialist service for the assessment, diagnosis and treatment of any child or young person who has CFS/ME and needs help.’
‘We have particular expertise in helping and supporting children who are severely affected, as well as children whose case may be complicated by more than one problem. The outlook for children with CFS/ME who access appropriate treatment is excellent, with most making a good or complete recovery. We therefore aim for recovery.’

South of Tyne and Wear
Department of Paediatrics, City Hospitals Sunderland NHS Foundation Trust, Kayll Road, Sunderland SR4 7TP, Tel: 0191 5656256 ext: 42899 Fax: 0191 5699219 Email: neil.hopper@chsft.nhs.uk
Clinical lead: Dr Neil Hopper, consultant paediatrician. We see which sees children and young people up to the age of 18 with CFS. We cover Sunderland, South Tyneside and Gateshead and comprise two paediatricians, one paediatric physio and one psychologist.

Suffolk
See Adult Services ‘Suffolk’ above.

Sussex
Paediatric CFS/ME Service for Brighton and Hove, Seaside View Child Development Centre, Brighton General Hospital, Elm Grove, Brighton BN2 3EW
Telephone: 01273 265 780
Email: SC-Tr.BGH-seasideview@nhs.net
Team members: Dr Victoria Thornton (clinical psychologist), Julia Krikman (occupational therapist), Claire Neyland (team administrator). The team meets together only once a week on Wednesdays so it may take a few days to return phone calls.

Yorkshire and North Derbyshire
See Sheffield entry under Yorkshire in ‘Adult Services’.

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Part 3:

NHS ME/CFS Specialist Services in Northern Ireland

The care pathways for people with ME/CFS in Northern Ireland are not well established and there is no specialist service for people with ME/CFS in the Province.

But it seems that progress is being made, albeit slowly.

A key figure in local negotiations – Mrs Joan McParland, of Hope4MEandFibro Northern Ireland– wrote to us on 30 August 2019:

“The outcome of many years of meetings and negotiations was the launch of a new care pathway for fibromyalgia in 2016. Interviews then took place for a new ME Clinical Lead in late 2018.

One of our committee members received specialist training, to enable her to sit on the interview panel for the ME Lead post. Although strict confidentiality was observed during this process, having a very trusted charity representative on the interview panel does encourage much hope of a suitable person being chosen to take on this new role to serve the estimated 7000 N.I. ME patients.
 
We attended a meeting with the Health and Social Care Board in July 2019 and we were informed they were doing all they could to hurry up the complicated process of setting up the new ME service to cover all N.I. Trusts. The good news was that severely affected patients would be top priority for home visits but it is still unclear as to when GPs will be able to refer patients for consultations with the new ME Clinical Lead.

One of the roles of the Clinical Lead, will be to educate other professionals on M.E. and ultimately form specialist services in all N.I. Trusts. We were also assured that patients would be included in the future decision making process.
 
Although things are going in the right direction, albeit it slowly, there is much work yet to be done – one of the most important being services for children and young people with M.E.”

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Part 4:

NHS ME/CFS Specialist services in Scotland

We want to build up a picture of specialist NHS services for adults and children with M.E. in Scotland.

If you know of any good services, please let us know. If you have any tried any services, your feedback will be most welcome.

Edinburgh
ME/CFS Clinic, Department of Clinical Psychology, Astley Ainslie Hospital, 133 Grange Loan, Edinburgh EH9 2HL. Tel: 0131 537 9139 (open Thursday and Friday).
This is a Lothian-wide clinic for patients with a diagnosis of ME/CFS, who are well enough to attend the service. It is based in the hospital’s pain management service and is run by specialist physiotherapy and applied psychology staff. Please see your GP for a referral or phone the clinic for more information.
Ms. Sheena Muir, acting general manager provides managerial support for the service.  Professional supervision to the psychology team is provided by Dr Caroline Cochrane, Consultant Clinical Psychologist.

Fife
Scotland’s only specialist nurse-led service for patients with ME/CFS is at the LadyBank Clinic, Commercial Road, Ladybank, Fife KY15 7JS, tel: 01337 831 940. It is run by Keith Anderson, a qualified psychotherapist and CBT therapist. Mr Anderson recently gave a talk to Edinburgh ME Self Help Group; to download a short report of this talk, please click HERE.

Glasgow
The NHS Centre for Integrative Care, on the Gartnavel Hospitals site, offers people with long term conditions a wide range of opportunities to enhance their health and quality of life. Most patients referred to the Centre are experiencing chronic pain, chronic low energy, and/or chronic low mood or anxiety. However, any patient with a long term condition may benefit from the care provided here.
Referrals
The centre accepts referrals from all health care professionals in exactly the same way as all other hospitals and clinics. Normally your GP will refer you, but you may also seek a referral from another hospital specialist, a specialist nurse, or specialist physiotherapist. All patients are offered an appointment within nine weeks of the referral letter being received.

Stornaway, Western Isles
A Fatigue Management Programme was opened in May 2011 at the Western Isles Hospital in Stornoway to help people with fatigue to explore the reasons for the fatigue and equip them with the techniques to manage the problem better. A video link to Uist and Barra Hospital may be set up, if there is a demand for it. The Western Isles, with a population of about 26,000 people, has no specialist ME/CFS service. To inquire about joining the programme, please contact Elaine Smith, Occupational Therapy Department, tel: 01851 708287, or email elaine.smith1@nhs.net who will send you an application form.

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Part 5:

NHS ME/CFS Specialist Services in Wales

The hospital-based referral services listed below are essentially general management and rehabilitation services for people with fatigue and/or pain, which accept people with ME/CFS.

If you have been to any of these clinics/services feedback would be appreciated – so we can build up a better picture of the situation in Wales.

Brecon
Pain and Fatigue Management CentreBronllys Hospital, Brecon, Powys LD3 0LU. Telephone: 01874 712 499.
For referrals or more information, contact  the office manager. People wanting to go on the residential programme would first be required to have a consultation with a clinical member of staff and have attended some short courses.

Conwy
CFS/ME Service, Betsi Cadwaladr University Health Board, Cartref, Cartref, Ysbyty Bryn y Neuadd, Conwy, LL33 0HH
Telephone: 01248 682 843 (Clinic answerphone 01248 682 874)
Clinical lead: Dr Helen Lyon Jones, consultant clinical psychologist.

Deeside
CFS/ME Service, The Quay Clinic, Fron Road, Connah’s Quay, Deeside CH5 4PJ.
Callers to the building should press the option for ‘Bloods/Reception’ and ask for the ME/CFS Clinic.
Telephone: 01244 813 486 Fax: 01244 830883
This service takes referrals from the east of North Wales.
Staff: Simon Neal, clinical psychologist; Penny Cowley, head of dietetics; Chris Watson, superintendent physiotherapist.

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Part 6:

NHS ME/CFS Specialist Services in Isle of Man

Douglas
At the moment (August 2019), ME/CFS cases are referred the adult community health service at the Community Health Centre, Westmoreland Road, Douglas, Isle of Man, tel: 01624 686313. But there is a commitment from the Health Minister to have a dedicated ME/CFS service in place soon.



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The ME Association

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