NHS ME/CFS Specialist Services

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NHS Diagnosis and Illness Management for ME/CFS

Most of the NHS specialist services for people with ME/CFS will base their management programme on the recommendations made in the NICE clinical guideline for ME/CFS.

The guideline suggests a personalised individual approach to management and the use of cognitive behaviour therapy (CBT) and/or two differing approaches to activity/energy management known as graded exercise therapy (GET) and Pacing.

We suggest that you download the ME Association report on CBT, GET and Pacing, before deciding if a referral would be helpful in your situation and discussing your options with your GP in the first instance.

You could also take a copy of the summary of the ME Association report to the clinic if you have any questions or concerns about the sort of management programme that is being offered.

The NICE clinical guideline

The NICE clinical guideline on ME/CFS is an important document that has a lot of influence over NHS service provision. It is very clear about informed consent and shared decision making. For example:

  • Healthcare professionals should be aware that – like all people receiving care in the NHS – people with CFS/ME have the right to refuse or withdraw from any component of their care plan without this affecting other aspects of their care, or future choices about care. 1.1.1.3
  • Healthcare professionals should recognise that the person with CFS/ME is in charge of the aims and goals of the overall management plan. The pace of progression throughout the course of any intervention should be mutually agreed. 1.1.1.4
  • Healthcare professionals should provide diagnostic and therapeutic options to people with CFS/ME in ways that are suitable for the individual person. This may include providing domiciliary services (including specialist assessment) or using methods such as telephone or email. 1.1.1.5

The guideline is also quite clear about the kind of support and the provision of care that should be expected from the NHS. For example:

  • To facilitate effective management of the condition, healthcare professionals should aim to establish a supportive and collaborative relationship with the person with CFS/ME and their carers. Engagement with the family is particularly important for children and young people, and for people with severe CFS/ME. 1.1.2.1
  • A named healthcare professional should be responsible for coordinating care for each person with CFS/ME. 1.1.2.2
  • Healthcare professionals should provide accurate information to people at all stages of CFS/ME, starting from when a diagnosis is first being considered. This should be tailored to the person’s circumstances, including the stage and duration of the condition, symptoms experienced and relevant personal and social factors. 1.1.2.3
  • Healthcare professionals responsible for caring for people with CFS/ME should have appropriate skills and expertise in the condition. 1.1.3.1
  • Every person diagnosed with CFS/ME should be offered:
    • information about the illness (see section 1.1.2)
    • acceptance and understanding
    • assistance negotiating the healthcare, benefits and social care systems
    • assistance with occupational activities including work and education if appropriate (see section 1.4.5). 1.1.3.2
  • An individualised management plan should be developed with the person with CFS/ME, and their carers if appropriate. The plan should be reviewed and changes documented at each contact. It should include:
    • relevant symptoms and history
    • plans for care and treatment, including managing setbacks/relapses
    • information and support needs
    • any education, training or employment support needs
    • details of the healthcare professionals involved in care and their contact details.

The NICE clinical guideline explains the general management strategies that are recommended for people with ME/CFS in section 1.4. These include:

  • Symptom management (1.4.1),
  • Function and quality of life management (1.4.2),
  • Diet (1.4.3),
  • Equipment to maintain independence (1.4.4),
  • Education and employment (1.4.5),
  • Strategies that should not be used for ME/CFS (1.4.6),
  • Complementary and supplementary therapies (1.4.7).


Referral to a specialist ME/CFS service

In sections 1.5 and 1.6, the NICE guideline deals with referrals to a specialist service and what a patient can expect by way of management advice, ongoing care and support. It also provides guidance on the use of cognitive behavioural therapy (CBT), graded exercise therapy (GET), and activity management:

1.5.1.1 Any decision to refer a person to specialist CFS/ME care should be based on their needs, the type, duration, complexity and severity of their symptoms, and the presence of comorbidities. The decision should be made jointly by the person with CFS/ME and the healthcare professional.

1.5.1.2 Referral to specialist CFS/ME care should be offered:

– within 6 months of presentation to people with mild CFS/ME

– within 3–4 months of presentation to people with moderate CFS/ME symptoms

– immediately to people with severe CFS/ME symptoms.

1.6.2.1 An individualised, person-centred programme should be offered
to people with CFS/ME. The objectives of the programme should be to:

  • sustain or gradually extend, if possible, the person’s physical, emotional and cognitive capacity
  • manage the physical and emotional impact of their symptoms.

1.6.2.2 The rationale and content of the different programmes, including their potential benefits and risks, should be fully explained to the person with CFS/ME. Healthcare professionals should explain that no single strategy will be successful for all patients, or during all stages of the condition.

1.6.2.3 Healthcare professionals should recognise that the person with CFS/ME is in charge of the aims of the programme. The choice of the programme, its components, and progression throughout the programme should be mutually agreed and based on:

  • the person’s age, preferences and needs
  • the person’s skills and abilities in managing their condition, and their goals (such as improvement or treatment of deterioration of symptoms, prevention of relapse or maintenance)
  • the severity and complexity of symptoms
  • physical and cognitive functioning.

1.6.2.4 Cognitive behavioural therapy (CBT) and/or graded exercise therapy (GET) should be offered to people with mild or moderate CFS/ME and provided to those who choose these approaches, because currently these are the interventions for which there is the clearest research evidence of benefit.

1.6.2.5 If a full CBT or GET programme is inappropriate or not available, components of CBT or GET should be offered, either individually or more effectively in combination with:

  • activity management strategies (see 1.6.2.22)
  • sleep management (see 1.4.2.1–3)
  • relaxation techniques (see 1.4.2.6).

1.6.2.6 The choice of programme, its components and progression through it should be reviewed regularly, taking into account the goals and abilities of the person with CFS/ME, and other approaches agreed as necessary.

1.6.2.7 Healthcare professionals should advise people with CFS/ME to contact them if they experience an increase in symptoms that lasts for longer than a few days after starting the specialist programme, or if symptoms are severe or distressing.

Read more:

In September 2017, Sir Andrew Dillon, Chief Executive of NICE announced that the ME/CFS guideline would be reviewed and updated with a new version published in December 2020.

As stakeholders in the process, and as a co-opted member of the guideline development group, the ME Association will continue to work with NICE to try and ensure the new guideline better reflects the actual experience of people with this disease, and that NHS services where necessary, are improved.

Dr Charles Shepherd is working as an expert witness on the NICE Guideline Development Group.

Read more about the NICE guideline review.

Contact details for NHS ME/CFS specialist services

Please remember that while patients can contact any of the services for information, referrals for assessment, diagnosis, and treatment, must be made by your GP or the professional responsible for your healthcare.

If you don’t have an NHS specialist service in your area, or would like to be referred to one of your choosing, then you need to speak with your GP in the first instance. It is possible to be referred to a service outside of your area but this could involve more travel which may not be conducive to your health.

NHS Complaints Advocacy
The NHS complaints advocacy service can help if you, or someone you know, has not had the care or treatment you expect to receive from your NHS services and you want to complain.
Advocacy is there to help you understand and go through the complaints process. Advocates will support you until you receive a satisfactory conclusion or until you no longer want advocacy support.
Advocacy is a free and confidential service. Advocates are independent to the NHS. Read more…

While we try to keep the contact information up-to-date the ME Association cannot be held responsible for the consequences of any errors. If you do happen to notice any mistakes, then please contact our website content manager and we will ensure the necessary corrections are made as soon as practicable.

Page Contents

Click the headings below to jump to each section on the page:

Part 1: Adult NHS ME/CFS Specialist Services in England

Part 2: Young People’s NHS ME/CFS Specialist Services in England

Part 3: NHS ME/CFS Specialist Services in Northern Ireland

Part 4: NHS ME/CFS Specialist Services in Scotland

Part 5: NHS ME/CFS Specialist Services in Wales

Part 6: NHS ME/CFS Specialist Services in Isle of Man


The ME Association Clinical and Research Guide

  • The 11th edition of our clinical and research guide is a must-have for anyone who has been affected by – or has an interest in – ME/CFS/PVFS.
  • This authoritative publication represents the most comprehensive, evidence-based summary currently available and contains everything that health professionals and patients need to know about this devastating neurological disease.
  • It has been written by Dr Charles Shepherd, Hon. Medical Adviser to the ME Association and Dr Abhijit Chaudhuri, Consultant Neurologist, from the Essex Centre for Neurosciences.
  • To purchase your copy, visit our website shop, or click the image opposite. The guide is also available as a Kindle e-Book!

Free copy available for health professionals!
We are pleased to offer a free hard-copy of the guide to healthcare professionals in the UK. Contact head office (telephone: 01280 818963, weekdays from 9.30am-3.00pm or via email) for more information and to place an order.

Part 1:

Adult NHS Specialist Services in England


Bedfordshire

East London NHS Foundation Trust
Website: Bedfordshire CFS Service

Address: Disability Research Centre, Poynters House, Poynters Road, Dunstable, Bedfordshire LU5 4TP
Telephone: 01582 470918
Email: beds.cfs@nhs.net
“Bedfordshire Chronic Fatigue Service provides multi-disciplinary assessment, diagnosis and treatment for people living in Bedfordshire with medically unexplained fatigue as their main symptom. For people registered with Luton GPs, referrals can only be accepted once funding has been agreed.” 
“We help clients to understand and manage their symptoms so that they can have a better quality of life and engage in activities which are most meaningful to them. For those who do not receive a diagnosis of chronic fatigue syndrome, the team will we offer advice and signpost to more appropriate services. This service offers NICE recommended Cognitive Behaviour Therapy (CBT) and Graded Exercise Therapy (GET).”

Berkshire

Berkshire Healthcare NHS Foundation Trust
Website: NHS Berkshire HealthMakers

Address: Berkshire Healthcare NHS Foundation Trust, Fitzwilliam House, Skimped Hill Lane, Bracknell, Berkshire RG12 1BQ
Telephone: 01344 415 947
Email: HealthMakers@Berkshire.nhs.uk
Facebook: HealthMakers UK
Available free to anyone living with a long term health condition in East Berkshire (Ascot, Bracknell, Maidenhead, Sandhurst, Slough and Windsor).
“The HealthMakers self-management course teaches you how to manage your long term health condition. Through a series of interactive workshops, you’ll cover a range of topics, including: the benefits of good self management and how it can improve your quality of life, anxiety management, goal setting, living with a long term condition, developing a good and effectively relationship with your healthcare professionals.
“The course, which was was commissioned by the NHS, is run by two fully qualified facilitators.”
Note: This is not a specialist ME/CFS service but the course and telephone consultations might be helpful for learning to manage your condition.

Birmingham and Solihull

Birmingham and Solihull Mental Health NHS Foundation Trust
Website: Birmingham and Solihull CFS Service

Address: Neuropsychiatric Department, The Barberry, 25 Vincent Drive, Birmingham B15 2FG
Telephone: 0121 301 2002/2207
“Our service offers triage appointments and a person-centred approach. This means that when you are referred to the Chronic Fatigue Syndrome service, you will be assessed by a health professional who will assess your needs.
“We work with the ethos of a person-centred approach as people who suffer with chronic fatigue are all unique, and therefore all treatments should be unique to the individual. There are various options which can be discussed with you. We ensure you are involved in all decisions about which options are offered.
“Once you have had your triage appointment and your needs have been assessed, you will be involved in formulating an individual care plan to help support you with the condition. There would be on-going evaluations throughout the treatment process ensuring your needs are met.”

Bristol

North Bristol NHS Trust
Website: Bristol CFS/ME Service

Address: The Lodge, Cossham Hospital, Lodge Road, Bristol, BS15 1LF
Telephone: 0117 4145192
Email: CFS.NHS.Bristol@nbt.nhs.uk
“Bristol CFS/ME Service is a specialist NHS Service for people with Chronic Fatigue Syndrome/ME which has been offering evidence-based care since 2004.
“We offer an outpatient service to people living in Bristol, North Somerset, and Gloucestershire. We can offer a combination of telephone and face-to-face contact, and part of our role is to advise and support other Health Care Professionals in the clinical management of people with CFS/ME.
“The clinical team includes Occupational Therapists, Physiotherapists and Psychologists, as we offer a multidisciplinary team approach. We do not currently employ a medic as there are no evidence-based medications for CFS/ME which cannot be prescribed by a GP. We maintain close links with other hospital specialties within North Bristol NHS Trust and at United Bristol Hospital NHS Foundation Trust.”

Buckinghamshire

Buckinghamshire Healthcare NHS Trust
Website: Bucks Chronic Pain and Fatigue Management Service

Address: Rayners Hedge, Croft Road, Aylesbury, Bucks HP21 7RD
Telephone: 01296 393319
Email: buc-tr.buckscpfms@nhs.net
‘The service provides chronic fatigue management programmes (CFMPs) at Rayners Hedge in Aylesbury. The CFMPs are led by members of the interdisciplinary team and each group has up to 10 participants and meets weekly for 2.5 hours for 10 weeks.
“All participants are offered an individual review following completion of the programme and a follow up at six months.
‘The groups use cognitive-behavioural principles and methods. Each session has explicit objectives, with topics including pacing, relaxation, coping with thoughts and feelings, work/leisure, communication and relationships, sleep and medical management.
“The format of the group is interactive, participants are encouraged to share their experiences and strategies for coping. Information about chronic pain/fatigue and techniques for managing it are taught.”

Cambridgeshire

Cambridgeshire and Peterborough NHS Foundation Trust
Website: Cambridgeshire CFS/ME Service

Address: Administration Hub, 1 Commerce Road, Lynch Wood, Peterborough, PE2 6LR
Telephone: 0330 726 0077
Email: cpm-tr.cfsme@nhs.net
“The team consists of a Neuro Conditions Clinical Manager, Specialist Nurse Practitioner and three Specialist Occupational Therapists who specialise in the management of CFS/ME.  The team will aim to establish a supportive and collaborative relationship with the person with CFS/ME and their family/carers.
“The occupational therapists are specialist CFS/ME clinicians who have a wide range of skills and experience in the management of CFS/ME. They will support you to self-manage the condition in a way that is appropriate to you, providing you with the necessary skills and strategies to sustain or gradually extend, if possible, your physical, emotional and cognitive capacity and manage the physical and emotional impact of CFS/ME symptoms.”

Cornwall and the Isles of Scilly

Royal Cornwall Hospitals NHS Trust
Website: Cornwall & IoS CFS/ME Service

Address: Royal Cornwall Hospital, Truro, TR1 3LJ
Telephone: 01872 252935
Email: rch-tr.CFSME@nhs.net
“We offer an outpatient and community ­based service for patients who live in Cornwall and are suspected of having Chronic Fatigue Syndrome, which is also known as Chronic Fatigue Syndrome/ME.
“Our specialist team offers diagnosis and assessment, and works with patients and their GPs to develop a clinical management plan and help them with their long­term rehabilitation.
“The service provides assessment, diagnosis and therapeutic pathways. These can be either one-to-one or groupwork programmes. Depending on your clinical needs, you can be seen at home, in a GP surgery, in a hospital clinic or receive telephone consultations. You will be offered an assessment appointment with any one member of the team followed by the option to discuss various care pathways and treatment interventions.”

County Durham and Darlington

County Durham and Darlington NHS Foundation Trust
Website: Durham & Darlington CFS/ME Service

Address: Building 9, Bishop Auckland General Hospital, Cockton Hill Road, Bishop Auckland, DL14 6AD
Telephone: 01388 455200
“Clinic locations are Shotley Bridge Community Hospital, Healthworks at Easington, Chester-le-Street Community Hospital, University Health Centre at Green Lane Durham, Pioneering Care Centre at Newton Aycliffe and Sedgefield Community Hospital.
“It is the aim of the service to provide a responsive and high quality service to patients who present with CFS/ME, aiming to empower patients and carers to manage the problems of the illness in everyday life. 
“Where necessary the service will work with partner organisations who are involved with the patient or may need to become involved. This includes providing expert reports for any associated bodies such as DWP or Occupational Health.
“Treatment response is variable between patients. Typically patients will receive a maximum of 12 therapy sessions. Some of these sessions may include telephone consultation, by mutual agreement.  
“End of treatment will be mutually planned. All patients (barring change of circumstances) will be then offered six month and one year reviews to revisit the end of treatment outcome and to ensure the patient is still empowered to manage their condition.”

Cumbria

North Cumbria Integrated Care NHS Foundation Trust
Website: Persistent Physical Symptoms Service

Address: Voreda, Portland Place, Penrith, CA11 7SZ
Telephone: 01768 245954
Patient information: PPS Service Information
“We are a rehabilitation service designed to support people in understanding and managing their symptoms, with the aim of improving both their day to day activities of daily living as well as improving their mood.
“The people we support may experience chronic (or persistent) pain or they may have been given a diagnosis such as Fibromyalgia, Chronic Fatigue Syndrome/ ME, Functional Neurological Symptoms (including Non-Epileptic Attacks) or Medically Unexplained Symptoms.
“Our team provide a combination of physical and psychological interventions and includes clinical psychologists and practitioners, physiotherapists, CBT therapists, rehabilitation assistants and assistant psychologists.”

South Cumbria
Website: See South Cumbria CFS/ME Service

Contact details as above for the PPS Service.
Patient information: CFS/ME Service Information
“If you and we agree that the CFS/ME service is appropriate for your needs, we will offer you a combination of two evidence-based treatments: Cognitive behaviour therapy (CBT) and Graded exercise treatment (GET).
“We treat most patients in groups tailored to your needs. Our patients tell us they find group work beneficial and supportive. They learn from talking to their fellow group members. The health professionals running the group will offer their expertise to help you manage your condition and reduce the negative impact on your life.
“If we decide together at the assessment that working in a group does not suit you, we will talk about other options with you.”

Derbyshire

University Hospitals of Derby and Burton NHS Foundation Trust
Website: Derbyshire CFS/ME Service

Address: University Hospitals of Derby and Burton, Specialist Rehabilitation, London Road Community Hospital, London Road, DE1 2QY
Telephone: 01332 258 255
“Patients will be seen by the most appropriate professional to meet their needs including trained therapists in the field of CFS/ME. They will follow a specialist CFS/ME pathway which includes specialist assessment, therapy interventions and self-management advice for adults (aged 16 and above) who have been diagnosed with chronic fatigue syndrome/ME. (Children and young people should be referred to a paediatrician).
“Patients can choose either one to one or group therapy treatment. The team consists of occupational therapists, physiotherapists, a cognitive behavioural psychotherapist and consultants in rehabilitation medicine.
“Patients who are severely affected can be seen at home. Referrals are accepted from GPs or consultants.”

Devon

Royal Devon and Exeter NHS Foundation Trust
Website: CFS/ME Service Exeter Community Hospital

Address: Exeter Community Hospital, Hospital Lane, Exeter EX1 3RB
Telephone: 01392 405479
“The service is for people 18 and over, and based at the Exeter Community Hospital delivering assessment and treatment and then interventions on an outpatient basis primarily. For a patient who is bedbound or completely housebound a home assessment can be arranged providing the GP confirms that this is the case.
“It provides a specialist service for patients with Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) and supports local clinicians in the continued management of the condition, where this proves appropriate.
“Primary care, social care/ employment/ housing or benefits services should continue to be involved whilst the patient is seen within the specialist service to ensure continuity of care and a seamless service upon discharge.”

Plymouth
Sentinel Health and Wellbeing
Website: Plymouth CFS/ME Service

Address: Sentinel Healthcare Southwest CIC, Express Diagnostics & Treatment Centre, Plymouth Science Park, Derriford, Plymouth PL6 8BU.
Telephone: 01752 435205.
Email: SHS.SentinelCFS@nhs.net
“This is a part-time service operating from: 08:30 am – 4:30 pm on Monday, Tuesday and Wednesday.
“Sentinel Healthcare Southwest CIC is commissioned to provide treatment based on The National Institute of Clinical Excellence (NICE) guidelines.
“The treatment may focus on the following goals: to restore a balance between rest and activity in a multi-tasking lifestyle; to improve sleep patterns and dietary intake; to overcome difficulties with concentration, memory and information processing; to develop problem solving and goal setting techniques; to increase participation in valued social activity; to provide advice related to employment or education; to develop strategies to prevent relapse. However this is tailored to the individual needs of each patient.”

Torbay and South Devon NHS Foundation Trust
Website: Torbay & South Devon CFS/ME Service

Address: 4th Floor, Union House, Union Street, Torquay, TQ1 3YA.
Telephone: 01803 219859.
Contact Form: CFS/ME Service.
“The Torbay and South Devon CFS/ME Service is dedicated to the diagnosis, assessment and treatment of patients with CFS/ME. The team also provide training, education and support to other professionals who are working with people with CFS/ME. We hope that this video will provide you with a useful introduction to our services and how we can help.”

Dorset

Dorset Healthcare University NHS Foundation Trust
Website: Dorset CFS/ME Service

Address: Wareham Hospital, Streche Road, Wareham, BH20 4QQ
Telephone: 01929 557560
Email: dhc.dorset.cfsme@nhs.net
“For adults: CFS/ME diagnostic/review clinics are held bi-monthly at Wareham Hospital.
“For children and young people: a diagnostic/review clinic is held monthly at Poole Hospital for families based in the East of the county. A patch paediatrician system operates in West and North Dorset.
“We provide specialist diagnosis, assessment, treatment and review for people with CFS/ME. We are focused on recovery, and work with patients to help them lead healthy, independent and fulfilling lives.
“The service is available across Dorset, with specific support for both adults and children. Our team includes GPs, rheumatologists, occupational therapists, consultant paediatricians and psychologists.
“If you, or your loved one, would like to access this service, please speak to your GP or other healthcare professional.”

Essex

Southend University Hospital NHS Foundation Trust
Website: The Essex CFS Service

Address: Rehabilitation Department, Southend University Hospital, Prittlewell Chase, Westcliff-on-Sea, Essex, SS0 0RY
Telephone: 01702 385247
Email: cfsservice@southend.nhs.uk
“The Essex Chronic Fatigue Service (CFS) is a county-wide service run by Southend University Hospital, with outpatient assessments and therapy sessions held throughout Essex.
“We believe that the best care possible involves making an accurate diagnosis. We assess our patients using an integrated approach, and then decide with the patient what approach has the best chance of restoring their health.
“Our treatment aims to work with you towards recovery and management of your symptoms. Treatments offered by us are based on evidence from research into CFS (also known as Myalgic Encephalomyelitis) and the National Institute for Health and Clinical Excellence (NICE) guidelines which are set for patient care by the government.”

Barking, Havering and Redbridge University Hospitals NHS Trust
Website: Chronic Fatigue Outpatient Service

Address: Queens Hospital, Neurology Department, Queen’s Hospital
Rom Valley Way, Romford, Essex, RM7 0AG
Telephone: 01708 503542
Administrator: Catherine Cruise
Email: Catherine.cruise@nhs.net
Neurology Consultant: Dr Abhijit Chaudhuri
Highly Specialist Occupational Therapist: Amelia Goldsmith Lister
Specialist Counsellor: Karen Crowe
“You will be seen for a joint intake assessment with the consultant and the occupational therapist. If diagnosed with Chronic Fatigue Syndrome (CFS), you will then have treatment sessions with the occupational therapist. There will also be sessions with the counsellor and/or the physiotherapist if needed.
“Our service provides joint medical occupational therapy assessment, counselling and physiotherapy. We also provide follow-up after the completion of treatment. Our approach is based on principles of Cognitive Behavioural Therapy and Graded Activity/Exercise Therapy.
“There is an outpatient clinic three times a month and a telephone clinic once a month. But please contact the clinic for more information.”

Gloucestershire

The Bristol CFS/ME Service covers Gloucestershire.

Hampshire and the Isle of Wight

NHS Funded Service
Website: South Coast Fatigue

Address: Lancaster Court, 8 Barnes Wallis Road, Fareham, Hampshire, PO15 5TU.
Telephone: 01489 668109
Email: fran.hill@nhs.net
“South Coast Fatigue has been supporting the NHS since April 2014 by providing an outpatient Chronic Fatigue Syndrome/ME Service. We also provide a bespoke domiciliary programme to individuals diagnosed with severe CFS/ME funded by Individual Funding Request (IFR).
“In accordance with current NICE guidelines, South Coast Fatigue runs two alternative programmes to meet the different needs of those individuals who are mild to moderately affected by CFS/ME and those that are severely affected.”

Hertfordshire

Hertfordshire Community NHS Trust
Website: Herts CFS & Chronic Pain Management Service

Address: Kingsway Health Centre, Unit 18, Stevenage Leisure Park, Stevenage, SG1 2UA
Telephone: 01438 847512
“The Service is available to patients aged 18 years and over who are registered with a Hertfordshire GP in Stevenage, North Herts, Welwyn & Hatfield, Lower Lea Valley, Upper Lea Valley and the Stort Valley.
“It is comprised of a specialist, multidisciplinary team of clinicians, highly experienced in working with patients who have Chronic Fatigue Syndrome and/or chronic pain.
“Following acceptance of your referral, you will be assessed by our multidisciplinary team. This team is made up of physiotherapists, occupational therapists and clinical psychologists.
“After you have been assessed, an individualised care plan will be produced and agreed. This will take into account your physical, psychological and social needs.” See also: Additional Information for Patients.

NHS Funded Service – Herts Valleys
Website: Connect Health

Telephone: 01442 913 356
“From the 15th January 2018 the contract for the CFS Service for Herts Valleys Clinical Commissioning Group was awarded to an organisation called Connect Health.
“For people living in Hertfordshire with a GP registered under Herts Valleys Clinical Commissioning Group, they will be able to access the service provided via a referral from their GP.
“Connect Health has grown from a single private clinic established in 1989 to being the largest provider of community musculoskeletal (MSK) physiotherapy services in the UK, with over 350 clinical experts in MSK and occupational physiotherapy.”
Note: There does not appear to be a specialist ME/CFS service now in this area but you can read more about the Integrated Musculoskeletal Service that is provided.

Kent

Kent and Medway NHS and Social Care Partnership Trust
Website: Kent CFS/ME Service

Address: Neuropsychology Medway Admin Hub, Disablement Services Centre, Medway Maritime Hospital, Gillingham, Kent ME7 5NY
Telephone: 01634 833937
“The service offers multidisciplinary assessment and treatment programmes for adults from 18 years with Chronic Fatigue Syndrome or Myalgic Encephalopathy.
“The emphasis of our service is on self-management and rehabilitation and draws on principles of cognitive behavioural therapy.
“Treatment is a collaborative process and the focus is always based on your needs and capabilities. The treatment programme aims to help you develop problem solving techniques so you can discover the most useful ways to manage and overcome your illness.”

Lancashire

Central Lancashire and South Cumbria NHS Trust
Website: CFS/ME Service

Part of the Central Lancashire ‘Moving Well‘ Service.
Main Address: Minerva Health Centre, Lowthorpe Road Preston, PR1 6SB
Telephone: 01772 520900 (select option 4)
The service also operates from: Chorley Health Centre, Collisson Avenue, Chorley PR7 2TH
“This service is available for people who are registered with a GP Practice in Greater Preston, Chorley or South Ribble.
“The service aims to help people deal with and reduce the difficulties that are associated with CFS/ME. Following a referral and initial assessment, the specialist team will work with you to create an individual management plan to help you lessen the impact of CFS/ME, and gradually improve. The team will also work closely with your GP and any other health professionals who may be involved in your care.
“We aim to provide supportive, holistic patient centred advice to aid acceptance, education and self-management for adults with mild or moderate CFS/ME in Lancashire. Sessions are run on a one to one basis in clinics across Lancashire and cover topics such as pacing, activity management, sleep regularisation and relaxation.”

Lincolnshire

Lincolnshire Partnership NHS Foundation Trust
Website: The Lincolnshire CFS/ME Service

Address: Ward 14a, Grantham Hospital, 101 Manthorpe Road, Grantham 
Lincolnshire NG31 8DG
Telephone: 0303 123 4000
Email: lpn-tr.LincsCFS-MEService@nhs.net
“The CFS/ME service is a small, multidisciplinary team consisting of a consultant clinical psychologist, a specialist occupational therapist, a senior rehabilitation assistant, a specialist physiotherapist and an assistant psychologist. Our administrative base is Grantham and District Hospital, but clinical staff are community based covering Lincolnshire.
“We aim to offer specialist assessment and teach the evidence based adaptive coping strategies known to enable individuals to learn to manage the condition more effectively and ultimately improve their health.
“We take a patient centred approach to care and work collaboratively with other health care professionals and services in responding to the needs of this patient group. Our further primary function is to offer advice, education and support to other healthcare professionals, employers, education authorities, patients, and their carers on CFS/ME.”

Liverpool

The Royal Green and Broadgreen University Hospitals NHS Trust
Website: Liverpool CFS/ME Service

Address: Broadgreen Hospital, Thomas Drive, Liverpool, L14 3LB
Telephone: 0151 2826185
“The service is a regional centre accepting referrals from all over the North West of England.”
“It comprises a specialist multi-disciplinary team of consultant physician, specialist physician, nurses, occupational therapists, a clinical psychologist and therapy assistant, along with administration support.”
“It provides a self-management rehabilitation programme, beginning with one group session, a triage call and two workshops over several months. Finally, a one to one review assesses the patient’s individual needs. The patient may then go on to have tailored therapy sessions.”

London

Central and North-West London NHS Foundation Trust
Website: Hillingdon Chronic Fatigue Service

Address: Greenacres Centre, Hillingdon Hospital, Pield Heath Road,
Middlesex, UB8 3NN
Telephone: 01895 279374
Email: hillingdoncfsme.cnwl@nhs.net
“This service is delivered by a multidisciplinary team which includes a clinical psychologist, occupational therapist and physiotherapist, and supported by an assistant psychologist and service administrator. Medical diagnostic screening appointments are offered by a consultant neurologist on a locum basis.”

The Royal Free London NHS Foundation Trust
Website: Fatigue Service

Address: The Royal Free Hospital, Pond Street, London NW3 2QG.
Telephone: Patient and GP enquiries: 020 7317 7529
Email: rfh-tr.fatigueservice@nhs.net
“The Royal Free London fatigue service provides assessment and treatment for people experiencing fatigue symptoms. Fatigue can present in different ways and the team is involved with the care and rehabilitation for people with:

  • Chronic fatigue syndrome
  • Myalgic encephalomyelitis (ME)
  • Post viral fatigue
  • Fatigue due to other health conditions 

“Chronic fatigue syndrome (CFS) is also known as myalgic encephalitis (ME). The extreme fatigue brought about by this condition is persistent, often overwhelming, and is associated with other symptoms, such as aching muscles, sore throats, deteriorated short-term memory and an increased sensitivity to noise and light.
“We do not know the cause of CFS/ME, but the Royal Free London fatigue service can address the factors that cause fatigue symptoms to persist, and reduce their impact on everyday life.”

South London and Maudsley NHS Foundation Trust
Website: Chronic Fatigue Service

Address: Mapother House, Maudsley Hospital, Denmark Hill, London, SE5 8AZ
Telephone: 020 3228 5075
Director: Professor Trudie Chalder
“Our service provides assessment and treatment programmes for people with chronic fatigue syndrome. We offer evidence-based treatments that are routinely evaluated. Our goal is to increase the person’s functioning and reduce the severity of their fatigue. We offer a 20 day programme of either CBT or GET.”

University College London Hospitals NHS Foundation Trust
Website: Chronic Fatigue Syndrome Service

Address: Royal London Hospital for Integrated Medicine, 3rd floor, 60 Great Ormond Street, London, WC1N 3HR
Telephone: 020 3448 2000
Email: uclh.enquiry.rlhim.patients@nhs.net (not for referrals)
Service Manager: Loretta Chinwokwu
“The specialist team consists of Doctors, Nurses, Occupation therapists, Physiotherapists, Cognitive Behavioural Therapists and a Dietitian. They offer clinical assessments, Cognitive Behavioural Therapy, activity management therapy, Graded Exercise Therapy, stress management, Relaxation techniques, Sleep management and Dietary advice.”

Manchester

Manchester University Hospitals NHS Foundation Trust
Website: Expert Patients Programme

Telephone: 0161 371 2105
Email: mft.epp@nhs.net
“Staying well with a long-term health condition – a free NHS course for anyone who lives with (or cares for) a long-term health condition. Learn to:

  • Manage physical and emotional difficulties
  • Develop a partnership with your healthcare professionals
  • Plan ahead with support from the team
  • Increase your motivation and feel more positive

“The programme is run by trained tutors – people with experience of self-managing a long term condition. It takes place over six weekly sessions which are once a week for 2.5 hours at local venues throughout Manchester.”

Greater Manchester Mental Health NHS Foundation Trust
Website: Living with Pain and Fatigue Service

Address: Rusholme Health Centre, Walmer Street, Manchester, Manchester, M14 5NB
Telephone: 0161 271 0801
“The service (formerly known as Chronic Fatigue Programme) offers a supported self-management programme for individuals who have a confirmed diagnosis of a long term physical health condition where persistent fatigue and/or pain are the main problems (onset of more than six months).
“For example, Chronic Fatigue Syndrome/ME, Fibromyalgia, Rheumatoid Arthritis, Osteoarthritis, Musculoskeletal Conditions, Chronic Pain.
“The programme supports individuals to build skills and confidence to manage and adapt to living with fatigue and pain, and is tailored to the individual’s goals, values, lifestyle and roles.
“The service can offer an assessment appointment and up to five individual sessions initially, followed by an eight week mindfulness course, if appropriate, specifically orientated towards living with pain and illness.
“We are a small team of Occupational Therapists and accept referrals for people with a diagnosis of CFS/ME who are registered with a Manchester GP. We offer:

  • A personalised approach to management
  • A combination of individual sessions (up to 5) and an 8 week mindfulness for health course
  • We can provide support with building skills and confidence in:
  • Grading activity, activity management, and pacing
  • Relaxation and quality rest
  • Sleep hygiene
  • Managing setbacks and relapses
  • Learning to relate differently to thoughts, emotions and physical sensations experienced through the practice of mindfulness

“Following the course, individuals can opt-in to attending a monthly drop-in for 12 months and have a telephone review at six months and 12 months, followed by discharge from the service.”

Salford Royal NHS Foundation Trust
Website: The CFS/ME Service

Address: Department of Clinical Health Psychology, Clinical Sciences Building, Salford Royal NHS Foundation Trust, Stott Lane, Salford, M6 8HD
Department
Telephone: 0161 206 5588
“Salford Royal’s CFS/ME Service is a specialist NHS Service aimed at meeting the needs of people from 18 years of age who have a diagnosis of Chronic Fatigue Syndrome (CFS), also referred to as Myalgic Encephalomyelitis (ME). There is a multidisciplinary team based here at Salford Royal that includes:

  • Counselling Psychologist
  • Clinical Psychologist
  • Assistant Psychologist
  • Specialist Medical Consultants
  • Physiotherapists

“Once you have been referred to the service we will invite you to attend for a comprehensive assessment looking at all biological, psychological and social aspects.  This will usually be over two 45 minute sessions, normally one session with a psychologist and one session with an assistant psychologist. After the assessment we will discuss further treatment options with you.”

Stockport NHS Foundation Trust
Website: Stockport CFS/ME Service

Address: Marple Clinic, Memorial Park, Marple, Stockport, SK6 6BA Telephone: 0161 835 6684
Email: snt-tr.mecfs@nhs.net
Monday to Friday 9am-5pm.
“Welcome to the Stockport Chronic Fatigue Syndrome/ME Service. We are a specialist multidisciplinary team who offer guidance and support to people 16 years and over with Chronic Fatigue Syndrome/ME.
“The Stockport Chronic Fatigue Syndrome/ME Service is available to adults who have a diagnosis of Chronic Fatigue Syndrome/ME and are registered with a GP in the Stockport and Tameside & Glossop areas. We aim to support people to self-manage their condition and adapt our treatment plan to individual needs.
“Our team consists of nurses, an occupational therapist, physiotherapists and a CBT Therapist who have specialist knowledge of CFSME and experience of working with all levels of severity.”

Wrightington, Wigan and Leigh NHS Foundation Trust
Website: The CFS/ME Service

Address: Golborne Clinic, Lowton Road, Golborne, WA3 3EG
Telephone: 01942 483680
“The Chronic Fatigue Syndrome/Myalgic Encephalomyelitis service provides specialist assessment, treatment, advice and support for adults who have a diagnosis of CFS/ME.
“Our interventions and approaches are aimed at helping the person concerned engage in education about the condition, understanding and accepting it and implementing strategies to best manage symptoms which predominantly involves the following:

  • Managing energy more effectively by learning how to pace and grade all daily activities including the Cognitive, Emotional, Social and Physical demands of the same
  • Learning to punctuate the day with qualitative rest
  • Learning to communicate with oneself and others in a way that does not result in pushing beyond available energy levels
  • Advice about disturbed sleep
  • Dietary considerations
  • Environmental assessment where identified as a need
  • Pharmacological intervention where identified
  • Engaging in graded exercise
  • Support to return to the workplace and or education
  • Support and advice to carers and other agencies including other health professionals
  • Relapse management
  • Onward referrals to other agencies where identified as a need.

“The Team adopts various approaches in the delivery of the above which predominantly involves the use of:

  • Activity analysis
  • Cognitive Behavioural Strategies
  • Person centred counselling skills
  • Facilitation of normal movement and the use of compensatory strategies where identified.

“The team values the views of clients regarding service provision and development.”

Norfolk

NHS Funded Service
Website: East Coast Community Health ME/CFS Service

Address: Hamilton House, Battery Green Road, Lowestoft, Suffolk
NR32 1DE
Telephone: 01493 809977
Opening hours: 7.00am – 8.00pm
Opening Days: Monday to Sunday (including bank holidays)
“We are a specialist NHS service that seeks to meet the needs of people who have a diagnosis of Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) in Norfolk and Suffolk.
“We offer an outpatient service via face to face appointments, email, telephone and, in a small number of cases, home visits.
“The team is made up of GP’s with specialist interest and knowledge of ME/CFS (GPwSI) and specialist therapists including Occupational Therapists and Physiotherapists.
“In treating patients, we focus on working with you to find strategies that will help you achieve improvement in your condition and establish and maintain a quality of life.
“We currently run outpatient clinics at Great Yarmouth, Lowestoft, Halesworth, Stowmarket, Kings Lynn and Norwich. Your follow-up appointments will be at one of these locations and can also be done via telephone. The method of your follow up appointments will be something you can discuss with your specialist therapist at your initial assessment.”

Nottinghamshire

The Nottinghamshire specialist service (formally based at the Mobility Centre at Nottingham City Hospital) was closed following a service review by Greater Nottingham Clinical Commissioning Groups in 2016-2017.

In March 2017, following an engagement campaign, it was decided that the ME/CFS specialist service would be decommissioned and that needs would be met in the community (see PICS below).

The CCGs have said the situation will be reviewed again when the new NICE clinical guideline for ME/CFS is published in December 2020.

NHS Funded Service Primary Integrated Community Services (PICS)
Website: Persistent Pain and Chronic Fatigue Syndrome Service

Address: Unit H4 Ash Tree Court, Nottingham Business Park, Nottingham NG8 6PY.
Telephone: 03000 830 000 option 1 for Pain Management service or option 5 for the Chronic Fatigue Syndrome service. 
Email: pics.enquiries@nhs.net
Provided for people registered to GP practices within, Nottingham West, Nottingham North and East, Rushcliffe, Newark and Sherwood, and Mansfield and Ashfield Clinical Commissioning Groups.
“An innovative community pathway where a multidisciplinary team of specialist clinicians help patients with spinal and other persistent pain conditions as well as patients with chronic fatigue syndrome (CFS) to get the right diagnosis and treatment, manage their symptoms better and improve their quality of life.
“For more information, please read the PICS community CFS/ME leaflet.”

Oxfordshire

Oxford Health NHS Foundation Trust
Website: The Oxfordshire CFS/ME Service

Address: Windrush House, Windrush Industrial Estate, Witney, Oxfordshire OX29 7DX. 
Telephone: 01865 903 757
Email: cfs@oxfordhealth.nhs.uk 
Office hours: Mon-Thurs 9.00am-5.00pm
“The Oxfordshire CFS/ME Service comprises of a highly specialised practitioner/clinical lead and two specialist CFS/ME therapists.
“We can also refer people to clinicians at Talking Space Plus for a programme cognitive behaviour therapy (CBT).
“Our service aims to offer: 

  •  individualised, person-centred programmes that aim to sustain or gradually extend, if possible, the person’s physical, emotional and cognitive capacity
  • support in managing the physical and emotional impact of symptoms – as recommended by NICE, the National Institute for Health and Care Excellence

“The service also acts as a specialist resource to clinicians in health and social care to increase understanding and awareness of CFS/ME.”

Oxford University Hospitals NHS Foundation Trust
Website: The Chronic Fatigue (CFS/ME) Service

Address: Churchill Hospital, Old Road, Headington, Oxford OX3 7LE. 
Telephone: 01865 225218
Email: chronicfatigueclinic@ouh.nhs.uk
“In the first place you will normally be seen by one of our Infectious Disease Consultants to help diagnose your condition.
“The OUH Fatigue Service provides specialist diagnosis in the Infectious Diseases Department, by a medical consultant and outpatient treatment at the Churchill Hospital.
“Following diagnosis, the Infectious Diseases doctors can refer you for assessment for Graded Exercise Therapy (GET) and/or Cognitive Behavioural Therapy (CBT) at the Churchill.
“GET and CBT can only be accessed at the OUH Fatigue Service once you have seen the Infectious Diseases consultant; self-referrals are not accepted.
“We are a specialist multidisciplinary clinical service that delivers treatment based on the NICE guidelines for CFS/ME for Oxfordshire and surrounding counties.
“Our team includes medical consultants, a psychologist and physiotherapist.”

Shropshire

Shropshire Community Health NHS Trust
Website: The Community Neuro Rehabilitation Team (CNRT)

Address: Shropshire Rehabilitation Centre, Lancaster Road, Harlescott, Shrewsbury SY1 3NJ
Telephone: 01743 453600
Email for general inquiries: shropcom.cnrt@nhs.net
“The Community Neuro Rehabilitation Team (CNRT) is a clinically-led neurorehabilitation service for those with an acquired brain injury, stroke, neurological condition or confirmed diagnosis of chronic fatigue syndrome.
“The Community Neuro Rehabilitation Team provides the following service to patients:

  • Individual assessment and therapy on an outpatient basis
  • Specialist assessments of function, cognition, speech and language, swallowing, psychological adjustment, mobility
  • Group programmes for chronic fatigue syndrome
  • Group programme called “Regaining Confidence after Stroke”
  • Other groups include upper limb group, balance group, cognitive rehabilitation, baking group and fatigue management for multiple sclerosis. Patients access these in line with their goals
  • Multidisciplinary case management through key workers to ensure coordinated care
  • Support and training for relatives and carers
  • Follow-up support for those admitted to hospital following a head injury
  • Consultancy

“Patients can be referred to the service by their GP, medical consultant, other health professionals, social worker, external agencies or charities. Patients can self-refer unless they have a diagnosis of CFS which requires a medical referral to ensure that the diagnosis has been confirmed.”

Somerset

NHS Royal United Hospitals Bath NHS Foundation Trust
Website: Bath Centre for Fatigue Services

Address: RNHRD & Brownsword Therapies Centre, Royal United Hospital Bath, Combe Park, Bath, BA1 3NG
Telephone: 01225 473456
Email: ruh-tr.RNHRDAdminBCFS@nhs.net
“We are a national service providing outpatient based specialist services for adults experiencing longstanding fatigue linked to a variety of illnesses.
“People referred to our service might have Chronic Fatigue linked to a neurological or other long standing condition, such as joint hypermobility syndrome, Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME) or Cancer Related Fatigue (CRF).
“The ethos of our service is based on supported self management. This approach enables people to better manage their conditions and regain some control over day to day activities and routines.
“Services are provided in a variety of locations in Bath and Wiltshire and via a variety of media including SKYPE where appropriate.”

Somerset Partnership NHS Trust
Website: Wells CFS/ME Service

Address: Priory House, Priory Health Park, Glastonbury Road, Wells BA5 1XL
Telephone: 01749 836703
Email: CFSME@sompar.nhs.uk
“The service helps adults with mild to moderate CFS/ME to better manage their condition so that their overall quality of life is improved.
“The majority of patients who have used the service report an improvement in their symptoms and that their quality of life is now better or much better.
“The team has many years of experience of helping people live as well as possible with the condition.”

Suffolk

NHS Funded Service
Website: East Coast Community Health ME/CFS Service

Address: Hamilton House, Battery Green Road, Lowestoft, Suffolk
NR32 1DE
Telephone: 01493 809977
Opening hours: 7.00am – 8.00pm
Opening Days: Monday to Sunday (including bank holidays)
“We are a specialist NHS service that seeks to meet the needs of people who have a diagnosis of Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) in Norfolk and Suffolk.
“We offer an outpatient service via face to face appointments, email, telephone and, in a small number of cases, home visits.
“The team is made up of GP’s with specialist interest and knowledge of ME/CFS (GPwSI) and specialist therapists including Occupational Therapists and Physiotherapists.
“In treating patients, we focus on working with you to find strategies that will help you achieve improvement in your condition and establish and maintain a quality of life.
“We currently run outpatient clinics at Great Yarmouth, Lowestoft, Halesworth, Stowmarket, Kings Lynn and Norwich. Your follow-up appointments will be at one of these locations and can also be done via telephone. The method of your follow up appointments will be something you can discuss with your specialist therapist at your initial assessment.”

Please Note:
The Suffolk Specialist ME & CFS Service was suspended in April 2019. A statement from Suffolk Clinical Commissioning Group (CCG) and related information can be found here. The CCG is committed to reinstating the service once a replacement for Dr Nacul can be found.

Surrey

Epsom and St Helier University Hospitals NHS Trust
Website: The South West London and Surrey Chronic Fatigue Service

Address: Epsom and St Helier University Hospitals Trust, Sutton Hospital, Cotwold Road, Sutton, Surrey, SM2 5NF
Telephone: 020 8296 3940
“The Service bases its advice on management on the NICE guidelines for CFS/ME (2007) which are currently under review and due to be updated in 2020.
“The multidisciplinary team includes a clinical lead, Dr Stanimira Lazarova, clinical nurse specialists, clinical psychologists and a physiotherapist.  The Service is based at the Malvern Centre on the old Sutton Hospital site.
“As there is currently no cure for chronic fatigue syndrome, treatment is presently based on the management of symptoms to improve function and quality of life.
“We use a combined bio-psycho-social and cognitive behavioural therapy models in teaching you to manage your symptoms and provide one-to-one consultations, lifestyle management and education groups.”

Sussex

Sussex Community NHS Foundation Trust
Website: The Sussex-wide CFS/ME Service

Address: Haywards Heath Health Centre, Heath Road, Haywards Heath, West Sussex, RH16 3BB
Telephone: 01444 475799 Fax: 01444 475743
Monday to Friday 9am to 5pm.
Email: SC-TR.CFSMESussex-WideService@nhs.net
Opening Hours: Monday to Friday 9.00am – 5.00pm
“We are the Sussex-wide CFS/ME Service. Our service is for people with mild to moderate CFS/ME. We provide outpatient treatment at several locations across Sussex.
“We will help you with learning self-management strategies. The service is aimed at assisting with diagnosis, assessment, therapy and treatment (where possible) for adult patients diagnosed with mild to moderate CFS/ME, using evidence based treatment programmes following NICE guidelines.”

Tyne and Wear

The Newcastle upon Tyne Hospitals NHS Foundation Trust
Website: Newcastle Chronic Fatigue and ME Service

Address: Molineux Street NHS Centre, Newcastle upon Tyne, NE6 1SG
Telephone: 0191 213 8823
Email: healthpsychology@nuth.nhs.uk
Office hours: 8.15am – 4.15pm, Wednesday and Thursday; 9.00am – 12.45pm Friday.

“Our team provides individualised care for patients to:

  • sustain or gradually extend their physical, emotional and mental capacity
  • manage the physical and emotional impact of symptoms and loss of physical capacity.

“We offer Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET) to people with CFS/ME. The team working with CFS/ME patients in our area has a range of experience, and includes:

  • consultants in immunology, and infectious and tropical medicine
  • clinical psychologists who carry out the initial psychological assessment, and  works with patients whose condition has impacted on their physical and psychological wellbeing
  • cognitive behavioural therapists
  • physiotherapists.

“We offer every person diagnosed with CFS/ME:

  • acceptance and understanding
  • help to negotiate the healthcare, benefits and social care systems
  • help with occupational activities, including work and education.

“All residents in Newcastle, North Tyneside and Northumberland can use the CFS/ME therapy service.”

Warwickshire

George Eliot Hospital NHS Trust
Website: The Chronic Fatigue Syndrome Therapy Service

Address: George Eliot Hospital NHS Trust, College Street, Nuneaton,  Warwickshire, CV10 7DJ
Telephone: 024 7686 5159
General Email: enquiries@geh.nhs.uk
“The Chronic Fatigue Syndrome Therapy Service offers assistance in managing patterns and levels of activity and rest to maximise function, but avoid increases in symptoms. Graded Exercise Therapy (GET) is used during therapy as this is the most up to date evidenced based practice.
“The service can offer patients advice and guidance on the following; graded exercise therapy, rest/relaxation, sleep management, work/educational advice and help with managing relapses and setbacks.
“The aim is to provide patients with the knowledge of how to create the best conditions for recovery to occur, and for patients to become an expert in managing their own condition. 
“This service is led by a senior Occupational Therapist.”

Wiltshire

NHS Royal United Hospitals Bath NHS Foundation Trust
Website: Bath Centre for Fatigue Services

See ‘Somerset’ entry above (The Bath Centre for Fatigue Services covers Wiltshire as well as Somerset).

Worcestershire

Worcestershire Health and Care NHS Trust
Website: The Worcester CFS/ME Service

Address: Malvern Community Hospital 185 Worcester Road, Malvern, WR14 1EX
Telephone: 01684 612671
This is a part-time service with admin hours as follows: Tues-Wed 8.00am-1.00pm, Thurs 8.00am-12noon.
“We are a specialist part-time service that delivers support and treatment to people with CFS/ME within community settings across Worcestershire.  
“CFS/ME affects the whole person, from the physical symptoms, emotional wellbeing, the ability to function in employment, education, and with friends and family. For this reason, we work as a multi-disciplinary team with Occupational Therapists and Psychologists. 
“As a service we aim to maximise functional independence by promoting self-management, with the overall aim to enhance the individual’s quality of life.
“Once a referral has been accepted, all patients are invited to attend an two-part initial information session in Worcester. This is a chance for us to introduce our service, let our patients know what we can offer and to provide some basic information about the condition and small changes that you can make to start improving symptoms. A family member or friend is also welcome to attend.
“Following the information session, an individual assessment with an Occupational Therapist is provided to further our understanding of the patient’s difficulties and needs, and the ways in which our service can help.
“The main aspect of our treatment is our Managing Lifestyles Group programme. This offers patients the opportunity to learn more about the ways in which they can manage their condition, with the aim of improving functional independence and quality of life.”

Yorkshire

Harrogate and District NHS Foundation Trust
Website: The Harrogate and Skipton CFS/ME Service

Address: Harrogate District Hospital, Lancaster Park Road, Harrogate HG2 7SX
Telephone: 01423 553526
“We are based in Harrogate District Hospital and offer appointments on an outpatient basis. We also have an outreach clinic at Skipton General Hospital for people living in the Craven area.
“The Chronic Fatigue Syndrome Service is a specialist, non-medical service working with adults who have Chronic Fatigue Syndrome, which was previously known as ME.
“Our aim is to help people understand the nature of their condition and to manage fatigue and other symptoms effectively so they can live full lives.”

Humber Teaching NHS Foundation Trust
Website: The Hull Chronic Fatigue Syndrome Service

Address: Clarendon House, Victoria House, Park Street, Hull, HU2 8TD.
Telephone: 01482 617735
Opening Hours: 9.00am-5.00pm Monday – Friday
“The Team provides a multi-disciplinary service for adult patients with a diagnosis of Chronic Fatigue Syndrome (CFS).
“We provide assessment, treatment, education and information for adults over 18 years old. Once appropriate investigations have been completed by the GP, patients will be assessed jointly by the Consultant Physician and a member of the therapy team. Other co-existing problems can also be managed by the team, as long as they do not exclude the diagnosis of Chronic Fatigue Syndrome or do not require other specialist services. 
“We can also provide expert advice, education and support to health professionals, other organisations, families and carers as appropriate.
“Assessment clinics are held at Castle Hill Hospital and the therapy aspect of the service is based at the Department of Psychological Medicine. Referral for Physiotherapy can be made by members of the CFS team as appropriate.
“The team aims to enable patients to manage their symptoms independently and improve their own quality of life through the use of evidence-based interventions.
“It aims to work collaboratively with patients, patients’ families and their carers to establish an agreed approach to treatment and to work jointly with other services, as necessary, to meet the needs of patients holistically.”

Leeds and York Partnership NHS Foundation Trust
Website: The Leeds and West Yorkshire CFS/ME Service

Address: The Newsam Centre, Seacroft Hospital, York Road, Leeds LS14 6WB
Telephone: 0113 85 56330 / 0113 85 56331 / 0113 85 56334
Email: cfsme.lypft@nhs.net
The service operates Monday to Friday, 8.30am – 4.30pm and is based in the Therapy Suite on the first floor of The Newsam Centre.
“The Leeds and West Yorkshire CFS / ME Service is a specialist NHS service for people with Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME).
“Our service is for adults aged over 17 years. Individual treatment plans and different options for treatment help people make sense of their condition and work towards recovery.
“The aims of our service are to:

  • improve your quality of life – people say we are giving them their lives back
  • help you on a journey towards recovery
  • help you to continue in education and work if this is important to you
  • help you understand your condition
  • involve and support your carers, family and friends too

“Our service provides:

  • 90 minute assessments by a specialist team and we devote time to gain a shared understanding of your condition
  • individual or group programmes to help you recover
  • the opportunity for you to access a range of professionals, including 14 qualified NHS clinicians
  • liaison with your GP during your recovery
  • different options for treatment, including home-based rehabilitation and home visits for people whose lives are severely affected by CFS/ME
  • consultations and advice by video conferencing and telephone if needed
  • a private online forum for people who use our service
  • consistently good outcomes to improve your quality of life

“Our high patient satisfaction results show we are valued by people who use our service.”

NHS Funded Service North Yorkshire
Website: The Yorkshire Fatigue Clinic

Address: York Eco Business Centre, Amy Johnson Way, Clifton Moor, York, YO30 4AG
Telephone: 01904 479922
Email: sue@yorkshirefatigueclinic.co.uk

“We are the contracted provider for NHS assessment and rehabilitation for patients with CFS/ME in North Yorkshire, excluding adults in the Harrogate and rural area.

  • We see adults with CFS/ME or other fatigue problems where treatable medical causes have been addressed.
  • We will also provide rehabilitation advice to young people aged 13-17 years old, provided a paediatrician is involved in the care.
  • We offer specialist assessment with a Specialist Occupational Therapist, or can facilitate an assessment with a Consultant Immunologist.
  • We offer either a group based or individual treatment sessions, following the STEP Programme.
  • We can provide sessions by telephone or visual media, such as Skype.
  • We can provide training for health professionals and employers.

“Refer Yourself – if you wish to refer yourself and self fund your assessment and treatment then complete the referral form. Please contact us to find out more about the cost for assessment and treatment.
“NHS Referral – We accept direct referrals from GPs in the North Yorkshire and York area, for patients meeting criteria for the NHS pathway.
“For the Referral Guidelines for GPs click here.  For Harrogate, adults go to the Harrogate CFS Service. We need a GP referral letter with all of your medical information, including copies of your blood tests. 
“For patients under other Clinical Commissioning Groups, NHS referrals need approval through local commissioning processes before you can be seen in the clinic. Each area will have their own Exceptions Panel arrangements for consideration of funding requests. Find out more about NHS funding.”

Sheffield Health and Social Care NHS Foundation Trust
Website: The South Yorkshire and North Derbyshire CFS/ME Service

Address: Michael Carlisle Centre, 75 Osborne Road, Sheffield, S11 9BF
Telephone: 0114 2263232
Opening Hours: Monday to Friday, 9.00am – 5.00pm
“The service includes two teams – one for adults and one for children and young people. It is available to individuals who have a provisional diagnosis of CFS/ME, are registered with a GP within the region, and who have been unable to self-manage their condition with the advice and management provided from primary care.
“The service provides an initial package of care which includes an assessment, education about core self-management strategies and a review to explore options for further therapy. The aims of the interventions offered are to work collaboratively with individuals in helping them to identify how they are currently coping with their CFS/ME symptoms and then working with them to develop personalised strategies to self-manage their condition.
“The therapies offered provide a range of specialist, evidence-based, therapeutic interventions to individuals with a diagnosis of CFS/ME. The interventions provided are dependent on the severity of symptoms experienced by, and the preferred choice of, the individual.
“All interventions within the CFS/ME Service are based on core activity management strategies. This may include practical and / or psychological interventions to enable individuals to maximise their potential and make sustainable improvements.”

South Tees Hospitals NHS Foundation Trust
Website: The Middlesbrough CFS/ME Service

Address: Centre for Clinical Infection, James Cook University Hospital, South Tees NHS Foundation Trust, Marton Road, Middlesbrough TS4 3BW
Telephone: 01642 854462
“We are a multi-disciplinary team of clinicians with specialist skills, training and experience in CFS/ME. We are based in the centre for clinical infection, at The James Cook University Hospital in Middlesbrough.
“To access the CFS/ME service you will need to be referred by your GP. You must be over 18 years old and live in the Teesside or Redcar and Cleveland area. Please be aware that your GP needs to have considered other possible causes of your symptoms before referral.
“The consultants have extensive experience of assessing and making a diagnosis of CFS/ME. They will take a detailed history of your symptoms and personal circumstances. The assessment may take 45 minutes to complete.
“Usually the consultants are able to give you an outcome of your assessment on the day, but occasionally they may need to perform further tests or seek another opinion. If you receive a diagnosis of CFS/ME the consultant will discuss with you if you would like to be referred to the therapy team.

“The therapy we offer aims to:

  • Improve your understanding of CFS/ME
  • Develop your self-management skills to regulate symptoms and manage setbacks
  • Develop your coping strategies to promote well-being
  • Support you to increase activity levels in a safe and measured way
  • Empower you to manage your health independently

“We combine the evidence-based approaches of graded exercise therapy (GET) and cognitive behavioural therapy (CBT), with activity (lifestyle) management.
“We offer a maximum of 12 appointments which may take place in a group setting or individual appointments. Therapy will be delivered by a specialist CFS Therapist. You will be expected to practice the strategies you have learnt between appointments and take an active role in your therapy.”


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Part 2:

Young People’s NHS ME/CFS Specialist Services in England

In most cases, diagnosis and ongoing management for children and young people will be led by a paediatrician, but there are several specialist services who are able to provide second opinions and ongoing management advice. The NICE clinical guideline on ME/CFS states that:

1.2.2.2 A child or young person who has symptoms suggestive of CFS/ME should be referred to a paediatrician for assessment to exclude other diagnoses within 6 weeks of presentation.

1.3.1.1 A diagnosis should be made after other possible diagnoses have been excluded and the symptoms have persisted for:

  • 4 months in an adult
  • 3 months in a child or young person; the diagnosis should be made or confirmed by a paediatrician.

1.5.1.2 Referral to specialist CFS/ME care should be offered:

  • within 6 months of presentation to people with mild CFS/ME
  • within 3–4 months of presentation to people with moderate CFS/ME symptoms
  • immediately to people with severe CFS/ME symptoms.

Cambridgeshire

Cambridgeshire Community Services NHS Trust
Website: Cambridge Children’s Chronic Fatigue Service

Address: The Peacock Centre, Brookfields Campus, 351, Mill Road, Cambridge, CB1 3DF
Telephone: 01223 218064
Clinical Lead: Dr David Vickers
“The chronic fatigue service is a multi-disciplinary team providing diagnosis, day to day management of the condition and support with activity management and education for children and young people aged 0-19 years.
“We are a county wide service and hold monthly clinics in different locations around the county.  All care is given in accordance with the NICE guidelines.”

Cornwall and the Isles of Scilly

Royal Cornwall Hospitals NHS Trust
Website: Cornwall & IoS CFS/ME Service

Address: Royal Cornwall Hospital, Truro, TR1 3LJ
Telephone: 01872 252935
Email: rch-tr.CFSME@nhs.net
“We offer an outpatient and community ­based service for patients who live in Cornwall and are suspected of having Chronic Fatigue Syndrome, which is also known as Chronic Fatigue Syndrome/ME.
“Our specialist team offers diagnosis and assessment, and works with patients and their GPs to develop a clinical management plan and help them with their long-­term rehabilitation.
“The service provides assessment, diagnosis and therapeutic pathways. These can be either one-to-one or group-work programmes. Depending on your clinical needs, you can be seen at home, in a GP surgery, in a hospital clinic or receive telephone consultations.
“You will be offered an assessment appointment with any one member of the team followed by the option to discuss various care pathways and treatment interventions.
“Children under 16 have their medical care covered by Paediatrics and Child Health. However, therapy and rehabilitation is jointly managed by the Chronic Fatigue Syndrome Service and the patient’s named Paediatrician.”

Dorset

Dorset Healthcare University NHS Foundation Trust
Website: Children and Young People’s CFS/ME Service

Address: Children’s Therapy Department, Children’s Centre, Dorset County Hospital, Damers Road, Dorchester DT1 2LB
Telephone: 01305 253148
Email: Dorset.CFS@dchft.nhs.uk
“We provide specialist assessment, treatment and review for children and young people with CFS/ME. We are focused on recovery, and work with patients to help them lead healthy, independent and fulfilling lives.
“The service is available across Dorset, with specific support for children, young people and their families. Our team includes occupational therapists, consultant paediatricians and a psychologist. If you, or someone you know, would like to access this service, please speak to your GP or other healthcare professional.
“A monthly clinic is held at Poole Hospital for families based in the East of the county or at Dorset County Hospital for families based in the West. Following this, specialist occupational therapy treatment and intervention is available at satellite locations across the Dorset.”

Hertfordshire

East and North Hertfordshire NHS Trust
Website: Children and Young People’s Chronic Fatigue Service

Address: Lister Hospital, Coreys Mill Lane, Stevenage, Hertfordshire SG1 4AB
Telephone: 01438 314333 (Switchboard)
“The team works closely with GPs, the education services and school nurses and will also involve other agencies e.g. CAMHS and children’s schools and families if necessary. The child or young person will be referred from your GP to a paediatric consultant to confirm diagnosis. The consultant will then refer on to the team.
“The initial appointment will be six weeks from referral by consultant paediatrician. This will include assessment of symptoms and how they impact on day to day life. You will then have a “talking” appointment with the clinical psychologist and the specialist nurse.
“Each child will have an individualised management plan including:

  1. Baseline of activity identified – including physical, cognitive and emotional factors.
  2. Impact on education; may require a part-time timetable and support from ESTMA (Education Support Team for Medical Absence).
  3. Impact on physical activity discussed – activity plan agreed  (possible referral to Physiotherapy).
  4. Strategies identified to manage feelings.
  5. Quantity and quality of sleep explored.

“Follow up: four to six weeks, then regular review.  Regular liaison with individual schools. Email and telephone contact available for advice.”

London

University College London Hospitals NHS Foundation Trust
Website: Chronic Fatigue Syndrome Service

Address: 6th Floor central, 250 Euston Road, UCLH NHS Foundation Trust, London, NW1 2PG
Patient enquiries:
Telephone: 020 3447 5240 
Email: uclh.appointments@nhs.net
Service manager: Tracy Dowling
Telephone: 020 3447 7790
Email: tracy.dowling2@nhs.net
“Living with CFS/ME can be hard, but we are here to try and make it easier to get life back on track. The service has been successfully treating Chronic Fatigue Syndrome (CFS) and Medically Unexplained Symptoms (MUS) for the past 16 years. We are part of a teaching hospital with state-of-the-art facilities and have a specialist team of doctors, nurses, physiotherapists, occupational therapists, psychologists, dietitians and social worker.
“Our nationally recognised service helps children and young people (up to 19 years) who are living with CFS/ME, chronic pain, medically unexplained symptoms, non-epileptiform seizures and chronic headaches.

  • We work collaboratively with young people and families and plan the programme together
  • We provide advice on reversing the vicious cycle that happens when fatigue, pain and inactivity reduces the ability to do things and time away from school affects schoolwork, friendships and mood
  • We have an adolescent ward for young people struggling with CFS/ME who may need to come for regular in patient admissions for more intensive input
  • We liaise with schools and help with re-entry into school
  • Our multidisciplinary team runs adolescent clinics, groups and day care ward reviews
  • We provide tailor-made input from occupational therapy, physiotherapy or psychology
  • We have education groups for sleep, pacing and graded exercise
  • We provide advice on disordered non-refreshing sleep
  • We provide integrated specialist psychological support to young people and their families as well as psychology-run ‘coping with CFS’ groups.

“Above all, we deliver a high quality and responsive CFS service that maximises health and wellbeing for children, young people and families.”

Norfolk

NHS Funded Service
Website: East Coast Community Health ME/CFS Service

Address: Hamilton House, Battery Green Road, Lowestoft, Suffolk
NR32 1DE
Telephone: 01493 809977
Opening hours: 7.00am – 8.00pm
Opening Days: Monday to Sunday (including bank holidays)
“We are a specialist NHS service that seeks to meet the needs of people who have a diagnosis of Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) in Norfolk and Suffolk.
“We offer an outpatient service via face to face appointments, email, telephone and, in a small number of cases, home visits.
“The team is made up of GP’s with specialist interest and knowledge of ME/CFS (GPwSI) and specialist therapists including Occupational Therapists and Physiotherapists.
“In treating patients, we focus on working with you to find strategies that will help you achieve improvement in your condition and establish and maintain a quality of life.
“We currently run outpatient clinics at Great Yarmouth, Lowestoft, Halesworth, Stowmarket, Kings Lynn and Norwich. Your follow-up appointments will be at one of these locations and can also be done via telephone. The method of your follow up appointments will be something you can discuss with your specialist therapist at your initial assessment.”

Somerset

Royal United Hospitals Bath NHS Foundation Trust
Website: The Paediatric CFS/ME Treatment Service

Address: Children’s Centre, Royal United Hospital Bath, Combe Park,
Bath, BA1 3NG
Telephone: 01225 821340
Email: ruh-tr.paedscfsme@nhs.net
“Our specialist treatment service can provide assessment, diagnosis and treatment programmes for children and young people with CFS/ME anywhere in the UK.’
‘The team comprises specialist consultant paediatricians, Psychologists, Physiotherapists and Occupational Therapists, and is led by Professor Esther Crawley, one of the few consultant paediatricians specialising in CFS/ME in the country.’
“Professor Crawley and her team see over 450 children with CFS/ME a year and provide a specialist service for the assessment, diagnosis and treatment of any child or young person who has CFS/ME and needs help.’
“We have particular expertise in helping and supporting children who are severely affected, as well as children whose case may be complicated by more than one problem. The outlook for children with CFS/ME who access appropriate treatment is excellent, with most making a good or complete recovery. We therefore aim for recovery.”

Suffolk

NHS Funded Service
Website: East Coast Community Health ME/CFS Service

Address: Hamilton House, Battery Green Road, Lowestoft, Suffolk
NR32 1DE
Telephone: 01493 809977
Opening hours: 7.00am – 8.00pm
Opening Days: Monday to Sunday (including bank holidays)
“We are a specialist NHS service that seeks to meet the needs of people who have a diagnosis of Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) in Norfolk and Suffolk.
“We offer an outpatient service via face to face appointments, email, telephone and, in a small number of cases, home visits.
“The team is made up of GP’s with specialist interest and knowledge of ME/CFS (GPwSI) and specialist therapists including Occupational Therapists and Physiotherapists.
“In treating patients, we focus on working with you to find strategies that will help you achieve improvement in your condition and establish and maintain a quality of life.
“We currently run outpatient clinics at Great Yarmouth, Lowestoft, Halesworth, Stowmarket, Kings Lynn and Norwich. Your follow-up appointments will be at one of these locations and can also be done via telephone. The method of your follow up appointments will be something you can discuss with your specialist therapist at your initial assessment.”

Please Note:
The Suffolk Specialist ME & CFS Service was suspended in April 2019. A statement from Suffolk Clinical Commissioning Group (CCG) and related information can be found here. The CCG is committed to reinstating the service once a replacement for Dr Nacul can be found.

Yorkshire

Sheffield Children’s NHS Foundation Trust
Website: CFS/ME Service

Address: Lyndhurst Road, Nether Edge, Sheffield S11 9BJ
Telephone: 0114 226 3232
Email: sheffield.cfsmeservices@nhs.net
“We see patients aged up to 18 with Chronic Fatigue Syndrome (CFS)/ME and help patients and families manage their symptoms and improve.
“Our team helps families look at routines, sleep, activity and exercise, returning to school and medication.
“CFS/ME is a condition that causes long-term, disabling tiredness. No one knows why it happens or what causes CFS/ME.
“Some young people have mild symptoms, whereas others are more severe. Your doctors will have checked that there is no other explanation for your symptoms.
“The CFS/ME team at Sheffield Children’s Hospital is a specialist regional team with considerable expertise.
“The team is made up of various people including a Doctor (Consultant Paediatrician), Occupational Therapist, Clinical Psychologist and Secretary.
“Each person has a different part to play in helping you to manage your symptoms and improve.
“Your first appointment will be with two members of the team. We will work out a plan with you and your family to help you recover.”


The ME Association

Please support our vital work

We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.

If you would like to support our efforts and ensure we are able to inform, support, advocate and invest in biomedical research, then please donate today.

Just click the image opposite or visit our JustGiving page for one-off donations or to establish a regular payment. You can even establish your own fundraising event.

Or why not join the ME Association as a member and be part of our growing community? For a monthly (or annual) subscription you will also receive ME Essential – quite simply the best M.E. magazine!


ME Association Registered Charity Number 801279


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Part 3:

NHS ME/CFS Specialist Services in Northern Ireland

The care pathways for people with ME/CFS in Northern Ireland are not well established and there is no specialist service for people with ME/CFS in the Province. But it seems that progress is being made, albeit slowly.

A key figure in local negotiations – Mrs Joan McParland, of Hope4MEandFibro Northern Ireland – wrote to us on 30 August 2019:

“The outcome of many years of meetings and negotiations was the launch of a new care pathway for fibromyalgia in 2016. Interviews then took place for a new ME Clinical Lead in late 2018. One of our committee members received specialist training, to enable her to sit on the interview panel for the ME Lead post. Although strict confidentiality was observed during this process, having a very trusted charity representative on the interview panel does encourage much hope of a suitable person being chosen to take on this new role to serve the estimated 7000 N.I. ME patients.

“We attended a meeting with the Health and Social Care Board in July 2019 and we were informed they were doing all they could to hurry up the complicated process of setting up the new ME service to cover all N.I. Trusts. The good news was that severely affected patients would be top priority for home visits but it is still unclear as to when GPs will be able to refer patients for consultations with the new ME Clinical Lead.

“One of the roles of the Clinical Lead, will be to educate other professionals on M.E. and ultimately form specialist services in all N.I. Trusts. We were also assured that patients would be included in the future decision making process. Although things are going in the right direction, albeit it slowly, there is much work yet to be done – one of the most important being services for children and young people with M.E.”

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Part 4:

NHS ME/CFS Specialist services in Scotland

Fife

NHS Fife
Website: The Ladybank clinic

Address: Keith Anderson, Ladybank Clinic, Commercial Road, Ladybank, Fife, KY15 7JS
Telephone: 01337 832 123
Email: keithanderson1@nhs.net

“Scotland’s only specialist nurse-led service for patients with ME/CFS. After initial contact with a patient, Mr Anderson makes a written summery of the consultation and sets up an individual management plan.

“He devises appropriate therapies based on energy conservation, activity management, relaxation techniques, sleep regulation, pain relief, lifting depression and anger, and goal setting. He uses some aspects of CBT in some cases. These therapies may be given individually or in groups, at home or in a specialist clinic.

“Mr Anderson has links with the Social Work Department for the provision of useful equipment, respite care, home help, personal care etc. He can refer patients to home and community education services and to disability advisers at university or college.

“He also has contacts with the Department of Work and Pensions regarding benefits, welfare rights, jobcentres, occupational health, etc, and, importantly too, with paediatric and family support units, which has led to the development of a care pathway for children and young adults in Fife.”

Lanarkshire

NHS Greater Glasgow and Clyde
Website: The Holistic Chronic Fatigue Syndrome/ME Service

Address: 1053 Great Western Road, Glasgow, G120NR
Telephone: 0141 2111616
“This is a purely therapeutic programme and only patients who have undergone appropriate investigations and have been diagnosed with CFS/ME are usually put into the care of the CFS/ME team.
“Patients with severe fatigue associated with a long term chronic condition get a similar (integrative care) assessment but not by a member of the CFS/ME team. However they will also access a unique personal package of care as a result of the integrative care assessment.
“MBCT (Mindfulness-based Cognitive Therapy) is useful in long term chronic conditions, anxiety and depression and addiction. Our practitioners are qualified in Integrative Care approach and MBCT/MBSR.
“First there is a meeting with a member of the Holistic/CFS/ME team (up to 9 mins). During this session we discuss how the condition impacts on all areas of the patient’s life, emotional, social, spiritual, physical and financial, and produce a unique package of therapies for that individual with their input so that a timeline of care can be produced.
“For example: A patient may initially access a self-help education programme or a physiotherapy assessment, followed by one or two complementary therapies e.g. acupuncture, homeopathy and ending with a course of MBCT if the programme suitable for the candidate.
“As patients with CFS/ME can have a wide range of symptoms and depth of fatigue, one plan cannot suit every case. That is why our unique person-centred approach bases the therapy on their unique physical, mental and emotional state.”

Lothian

South East Scotland Neurological Services (SENSE)
Website: ME/CFS Rehabilitation Service

Address: Department of Clinical Psychology, Astley Ainslie Hospital, 133 Grange Loan, Edinburgh, EH9 2HL
Telephone: 0131 537 9139 (open Thursday and Friday)
“The Pilot ME-CFS Rehabilitation Service offers appointments to patients on a Thursday and Friday at the Astley Ainslie Hospital (AAH). This is a multidisciplinary service. Patients are seen individually and many may see both a physiotherapist and a psychologist during the course of their therapy.
“A collaborative, self-management lifestyle programme informed by patient centred care, based on individualised formulation. An initial assessment is undertaken and then therapy may be offered to the patient. This will be individualised, based on the patients needs and topics may be taken from the following menu:  

  • What is ME/CFS? And your story
  • Activity Management and Pacing
  • Relaxation
  • Goal setting
  • Improving Sleep
  • Stress and stress management techniques
  • Problem solving
  • Managing your Mood
  • ME-CFS and Dealing with Others
  • Relapse prevention and set back planning
  • Long term planning and keeping it going

“The service also offers a 3 month and 6 month follow-up.  There is evidence that rehabilitation approaches can be beneficial in helping some patients to manage their symptoms and can help in the recovery process, although it is true that no one treatment has been identified yet that is effective for everyone.  Positive outcomes of attending the ME-CFS service have been reported by patients.”

Western Isles

NHS Western Isles Stornoway
Website: Occupational Therapy

Address: NHS Western Isles, Comhairle nan Eileen Siar, Sandwick Road, Stornoway, Isle of Lewis HS1 2XF
Telephone: 01851 822846

Fatigue management is offered on a one-to-one basis as part of an open referral system. Patients can self-refer to occupational therapy without needing to go through their GP.


The ME Association

Please support our vital work

We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.

If you would like to support our efforts and ensure we are able to inform, support, advocate and invest in biomedical research, then please donate today.

Just click the image opposite or visit our JustGiving page for one-off donations or to establish a regular payment. You can even establish your own fundraising event.

Or why not join the ME Association as a member and be part of our growing community? For a monthly (or annual) subscription you will also receive ME Essential – quite simply the best M.E. magazine!


ME Association Registered Charity Number 801279


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Part 5:

NHS ME/CFS Specialist Services in Wales

Conwy

NHS Wales, Betsi Cadwaladr University Health Board
Website: CFS/ME Service

Address: Betsi Cadwaladr University Health Board, Cartref, Ysbyty Bryn y Neuadd, Conwy, LL33 0HH
Telephone: 01248 682847 (Clinic answerphone)
Clinical lead: Dr Helen Lyon Jones, Consultant Clinical Psychologist.
The service operates part-time with a consultant clinical psychologist and physiotherapist providing diagnostic evaluation and management advice.
The service aims to cover GP referrals originating from Gwynedd, Anglesey and Conwy.

Deeside

NHS Wales, The Quay Health Centre
Website: CFS/ME Service

Address: The Quay Health Centre, Fron Rd, Connah’s Quay, Deeside CH5 4PJ
Callers to the building should press the option for ‘Bloods/Reception’ and ask for the ME/CFS Clinic.
Telephone: 01244 813486
Clinical Lead: Dr Simon Neal, Consultant Clinical Psychologist.
This service takes referrals from those regions not mentioned in the Conwy service description above, and the clinic operates on Friday’s only.

Powys

NHS Wales, Powys Teaching Health Board
Website: The Pain and Fatigue Management Service

Address: Bronllys Hospital, Brecon Road, Bronllys, Powys, LD3 0LU
Telephone: 01874 712499
Email: Powys.Geninfo@wales.nhs.uk
“The team at the Pain and Fatigue Management Service provide help to people who want to live life more fully but are hindered in doing so by persistent pain or chronic fatigue.
“Programmes have been run by the Health Board since 1994 and the team have a wealth of experience of working with people for whom their health problems effect the physical, psychological and social aspects of their lives.
“The service is based at Bronllys Hospital but runs from a variety of locations throughout Powys and also offers services via Skype.
“Our programmes:

“The residential programme is suitable for people with a wide range of conditions including; fibromyalgia, chronic fatigue syndrome, myalgic encephalopathy, post-viral fatigue syndrome, complex regional pain syndrome and myofacial pain syndrome.
“The programme incorporates cognitive behavioural therapy (CBT), acceptance and commitment therapy, graded exercise, activity management and mindfulness.
“In order to attend the programme you need to have had a consultation with a clinical member of the Pain and Fatigue Management Service and attended some of our short courses first.”

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Part 6:

NHS ME/CFS Specialist Services in Isle of Man

Douglas

ME/CFS cases are referred the adult community health service:
Address: The Central Community Health Centre, Westmoreland Road, Douglas, Isle of Man IM1 4QA
Telephone: 01624 686313
There was a commitment from the Health Minister to have a dedicated ME/CFS service in place soon.

^ Return to Top

The ME Association

Please support our vital work

We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.

If you would like to support our efforts and ensure we are able to inform, support, advocate and invest in biomedical research, then please donate today.

Just click the image opposite or visit our JustGiving page for one-off donations or to establish a regular payment. You can even establish your own fundraising event.

Or why not join the ME Association as a member and be part of our growing community? For a monthly (or annual) subscription you will also receive ME Essential – quite simply the best M.E. magazine!


ME Association Registered Charity Number 801279


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