June 3, 2020 Rest, Nutrition and Sleep – should be new norm working with patients with PVFS, physios urged.
June 3, 2020 Up the Blues! This family came together during lockdown – despite living miles apart.
June 3, 2020 For people with ME/CFS going back to work. Discusses the Returning to Work Risk Assessments.
Researchers warn covid-19 could cause debilitating long-term illness in some patients | Washington Post | 30 May 2020
May 31, 2020 Two key figures in worldwide ME advocacy – Brian Vastag and Beth Mazur – review the latest evidence.
May 29, 2020 Hannah Collins – there's good cheer in that right good cuppa!
May 29, 2020 There were two new research publications this week, and we've updated the MEA Research Index.
May 29, 2020 "Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E..."
ME Awareness: “Ted Hughes once said: ‘Poetry needs a reason’. It would appear ME is my reason to write,” by Ffion | 29 May 2020
May 29, 2020 "Everyone is talking to everyone else and, with so many good people on our side, things will change for us."
A Marathon at snail’s pace and a Face Mask challenge – more tales from our fundraising frontline | 28 May 2020
May 28, 2020 Two more fundraising champions who are desperate for the ME Association to survive.
ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020
May 27, 2020 The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.
May 26, 2020 "There is abundant evidence that ME/CFS can follow apparently infectious illnesses of uncertain cause, or a clearly diagnosed infectious illness..."
ME Awareness: “What you need,” he said, “is a job harvesting cabbages,” by Ruth Rookledge | 25 May 2020
May 25, 2020 "For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real..."
ME Awareness: “These lost years have been a grieving process; a loss of a past life that seems so far away,” Naomi Gilchrist | 24 May 2020
May 24, 2020 "I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E."
ME Awareness: “I was living in a darkened room with my eyes shut for many long years,” Cheryl Russell | 23 May 2020
May 23, 2020 "It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20's and 30's to this illness."
ME Awareness: “I would have been a terrific husband and father if not for ME,” by Russell Fleming | 22 May 2020
May 22, 2020 "Without doubt my biggest regret has been that I have not been able to have my own family."
May 22, 2020 The research bulletin highlights 2 of 4 new studies about ME/CFS published in the last week.
ME Awareness: “I have had symptoms of ME since I was a teenager – over 50 years ago,” by Ann Jones | 22 May 2020
May 22, 2020 "My husband has taken on housework, shopping, cooking and the garden so is effectively my carer."
May 22, 2020 Helen Leonard-Williams and Helen McLean entered the Headshave Hall of Fame after they let the scissors loose during ME Awareness Week.
ME Awareness: “I was training for the London Marathon, when I felt I’d got a virus that I couldn’t quite shift,” by Tracey Barraclough | 21 May 2020.
May 21, 2020 "It’s been a long two years coming to terms with M.E. and it’s still a work in progress."
ME Awareness: “I went to my GP to be told that M.E. did not exist as a recognised illness!” by Wend Jordan | 20 May 2020
May 20, 2020 "There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction."
May 20, 2020 A north Somerset couple have been swimming the length of the English Channel at home to help save a charity that supports their daughter.
May 20, 2020 "I am reading materials about pacing and CFS/ME and listening to the CFS/ME community." Prof. Paul Garner.
May 19, 2020 We are launching a new leaflet and an update to add to the range that we have published since the very beginning of the pandemic and national lockdown.
May 19, 2020 We provide support, reliable information, a voice when needed, and funding for medical research.
ME Awareness: The Lost Years: Missionary forced to give up vocation to do battle with ME | 18 May 2020
May 18, 2020 "I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips."
ME Awareness Press Release: Mum of tragic teen with devastating illness speaks out about years lost in lockdown | 18 May 2020
May 18, 2020 “My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time."
ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020
May 17, 2020 "I'm struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years."
ME Awareness: “While in many ways it was a relief to finally have a diagnosis, both I and my husband were devastated,” by Carolyn White | 17 May 2020
May 17, 2020 "I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007."
ME Awareness: “I suffered without help for so long, we went to every doctor and agency without answers,” by Ellyn Gould | 16 May 2020
May 16, 2020 "M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with."
ME Awareness: “If only I could experience consistent nights of restorative sleep, my life in general might be better,” by Russell Fleming | 16 May 2020
May 16, 2020 "The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting."
May 15, 2020 "What I am suggesting is that, however people refer to M.E., however people experience it, chronic fatigue is not the same thing."