June 3, 2020 Rest, Nutrition and Sleep – should be new norm working with patients with PVFS, physios urged.

ME Awareness: Lockdown never kicked this ‘Go Blue for ME’ family into touch | 3 June 2020

June 3, 2020 Up the Blues! This family came together during lockdown – despite living miles apart.

New ME Association Guidance: Key points on Employment, ME/CFS and the Coronavirus | 3 June 2020

June 3, 2020 For people with ME/CFS going back to work. Discusses the Returning to Work Risk Assessments.

Researchers warn covid-19 could cause debilitating long-term illness in some patients | Washington Post | 30 May 2020

May 31, 2020 Two key figures in worldwide ME advocacy – Brian Vastag and Beth Mazur – review the latest evidence.

You can take the girl out of Yorkshire – you can’t take Yorkshire out of the girl! | 28 May 2020

May 29, 2020 Hannah Collins – there's good cheer in that right good cuppa!

The ME Association End of Week Research Round-up and Research Index Update | 29 May 2020

May 29, 2020 There were two new research publications this week, and we've updated the MEA Research Index.

ME Awareness: Living with ME, Self-isolation and Severe Asthma, by Leanne Swift | 29 May 2020

May 29, 2020 "Worse is the fear of getting this nasty coronavirus. I know if I get it I could be in serious trouble, especially with the Asthma, but even with M.E..."

ME Awareness: “Ted Hughes once said: ‘Poetry needs a reason’. It would appear ME is my reason to write,” by Ffion | 29 May 2020

May 29, 2020 "Everyone is talking to everyone else and, with so many good people on our side, things will change for us."

A Marathon at snail’s pace and a Face Mask challenge – more tales from our fundraising frontline | 28 May 2020

May 28, 2020 Two more fundraising champions who are desperate for the ME Association to survive.

ME Awareness: ‘Dialogues for a neglected illness’ a Wellcome Project by Natalie Boulton and Josh Biggs | 27 May 2020

May 27, 2020 The project comprises a series of highly recommended films. The latest video is about Severe and Very Severe ME/CFS.

ME Awareness: Columbia University: Will there be a Post-COVID-19 form of ME/CFS? | 26 May 2020

May 26, 2020 "There is abundant evidence that ME/CFS can follow apparently infectious illnesses of uncertain cause, or a clearly diagnosed infectious illness..."

ME Awareness: “What you need,” he said, “is a job harvesting cabbages,” by Ruth Rookledge | 25 May 2020

May 25, 2020 "For about the next year or so I thought I must just be imagining an illness, that it was my fault, it wasn’t real..."

ME Awareness: “These lost years have been a grieving process; a loss of a past life that seems so far away,” Naomi Gilchrist | 24 May 2020

May 24, 2020 "I hope that one day I will be able to use my lost years to help others by raising awareness of the plight of those living with M.E."

ME Awareness: “I was living in a darkened room with my eyes shut for many long years,” Cheryl Russell | 23 May 2020

May 23, 2020 "It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20's and 30's to this illness."

ME Awareness: “I would have been a terrific husband and father if not for ME,” by Russell Fleming | 22 May 2020

May 22, 2020 "Without doubt my biggest regret has been that I have not been able to have my own family."

The ME Association End of Week Research Round-Up | 22 May 2020

May 22, 2020 The research bulletin highlights 2 of 4 new studies about ME/CFS published in the last week.

ME Awareness: “I have had symptoms of ME since I was a teenager – over 50 years ago,” by Ann Jones | 22 May 2020

May 22, 2020 "My husband has taken on housework, shopping, cooking and the garden so is effectively my carer."

ME Awareness: Two More Fundraisers Join The ME Association’s Headshave Hall of Fame! | 22 May 2020

May 22, 2020 Helen Leonard-Williams and Helen McLean entered the Headshave Hall of Fame after they let the scissors loose during ME Awareness Week.

ME Awareness: “I was training for the London Marathon, when I felt I’d got a virus that I couldn’t quite shift,” by Tracey Barraclough | 21 May 2020.

May 21, 2020 "It’s been a long two years coming to terms with M.E. and it’s still a work in progress."

ME Awareness: “I went to my GP to be told that M.E. did not exist as a recognised illness!” by Wend Jordan | 20 May 2020

May 20, 2020 "There is still such a stigma attached to M.E. that I rarely talk about it even if people ask – I’m worried by their reaction."

Press Release: Couple swim length of English Channel at home for the ME Association | 20 May 2020

May 20, 2020 A north Somerset couple have been swimming the length of the English Channel at home to help save a charity that supports their daughter.

British Medical Journal Opinion: Covid-19 and fatigue – a game of snakes and ladders | 20 May 2020

May 20, 2020 "I am reading materials about pacing and CFS/ME and listening to the CFS/ME community." Prof. Paul Garner.

ME Association Guidance: Reducing the risk of Covid-19 and PVFS/ME/CFS | 19 May 2020

May 19, 2020 We are launching a new leaflet and an update to add to the range that we have published since the very beginning of the pandemic and national lockdown.

The ME Association: We Support, Inform, Advocate and Invest in Biomedical Research | 19 May 2020

May 19, 2020 We provide support, reliable information, a voice when needed, and funding for medical research.

ME Awareness: The Lost Years: Missionary forced to give up vocation to do battle with ME | 18 May 2020

May 18, 2020 "I guess my Christian faith sustains me even though a lot of the time I feel like I’m just holding on with my fingertips."

ME Awareness Press Release: Mum of tragic teen with devastating illness speaks out about years lost in lockdown | 18 May 2020

May 18, 2020 “My daughter is so ill she has had to disengage with her education. She has been house-bound for three years and bed-bound for the majority of this time."

ME Awareness: Failure to accurately diagnose can lead to lifetime of misery and suffering by Debbie Mckno | 17 May 2020

May 17, 2020 "I'm struggling to come to terms with the fact I was not diagnosed for so long, and am angry that I suffered needlessly for 24 years."

ME Awareness: “While in many ways it was a relief to finally have a diagnosis, both I and my husband were devastated,” by Carolyn White | 17 May 2020

May 17, 2020 "I didn’t complete my degree but received sufficient qualifications to be ordained in September 2007."

ME Awareness: “I suffered without help for so long, we went to every doctor and agency without answers,” by Ellyn Gould | 16 May 2020

May 16, 2020 "M.E. still affects every aspect of my life. Attending school was a huge hurdle for me and one I still struggle with."

ME Awareness: “If only I could experience consistent nights of restorative sleep, my life in general might be better,” by Russell Fleming | 16 May 2020

May 16, 2020 "The most frustrating aspect of sleep is the frequent inability to enter deep sleep. It feels like I only ever dream, and it is exhausting."

ME Awareness: Why Chronic Fatigue is not M.E. by Joanne Hunt | 15 May 2020

May 15, 2020 "What I am suggesting is that, however people refer to M.E., however people experience it, chronic fatigue is not the same thing."

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