M.E. is a complex disease that has a devastating impact on quality of life…
Over 250,000 people struggle to live with Myalgic Encephalopathy/Encephalomyelitis (or M.E.) every day in the UK. It affects people of all ages, all nationalities, and from all walks of life.
M.E. affects people’s ability to function in different ways, but it can be as disabling as multiple sclerosis and is often very isolating. It can leave a person bed-bound, in extreme pain, unable to walk, to tolerate light, noise, or touch, and be wholly dependent on the care and support of others.
Images from the 2018 Real M.E. campaign help us to see that M.E. affects people of any age and from all walks of life…
A person might be housebound, in need of a wheelchair and help to get about, the support of carers, and be reliant on welfare. Or perhaps is able to manage better, with less severe and more stable symptoms, and can work part- or even full-time, but is unable to pursue a social life, and crashes at weekends.
- Factsheet: What you need to know about M.E.
- Research: What do we know about the causes of M.E.?
- Medical Management: Choose from an extensive range of leaflets by Dr Charles Shepherd.
We support, inform, advocate and invest in biomedical research…
There is no effective treatment, and no known cure for M.E. at the present time, but the ME Association supports, informs, and advocates, on behalf of people who are unable to do so themselves.
We help improve lives while we invest in biomedical research, but we need your help to ensure that we can be there to give people with M.E. the long-term support and hope they desperately need.
We do not receive government grants or other outside assistance, and rely solely on the generosity of our members, donors and fundraisers.
Fundraising not only raises money, but provides the opportunity to raise awareness…
There are now far too many to show on a single image like this, but you get the idea. It’s a fundraising community to be proud of.
Thanks guys – you were all superstars! We really appreciate all you did, and what many of you are still doing, for the ME Association.
Help support the work we do by getting involved…
From as little as £1.50 a month (£18 a year), you can become a full member of the ME Association.
You’ll enjoy access to the latest community news and exclusive articles with ME Essential – our members magazine – and know that your subscription is helping to keep us doing what we do best.
Your donation will help to make a real difference where it is most needed, for example:
- in our ongoing efforts to ensure early and accurate diagnosis,
- to help improve healthcare access and specialist provision,
- information about best management approaches,
- guidance with welfare entitlements,
- investing in much needed biomedical research.
Just click the button below to visit our JustGiving page where you can make a one-off donation or establish a regular payment:
Gift Aid and Payroll Giving
If you are a UK taxpayer, you can boost the amount of any donation – at no extra cost to you – through gift aid. And, if you are employed, you can arrange for a regular donation to come from your salary, with payroll giving.
There are many ways that you can challenge yourself to fundraise for the ME Association and have some fun at the same time – whatever your ability.
If you don’t have M.E., or have sufficiently recovered, and want to raise money to help this community; it’s often the unusual physical challenges that catch the imagination, and prove attractive to potential sponsors.
And for those who cannot or should not be pushing themselves physically, we have a host of creative ideas to help you get involved.
Leave a Legacy
It is never too early to write a will, and including a legacy to the ME Association means that we can continue with our work, helping others, and investing in biomedical research to pursue effective treatments and a cure.
Death isn’t a subject any of us like to think about. It means that we must face up to the idea that we won’t be around forever: that one day we won’t be here anymore.
But thinking about what happens afterwards, about the legacy you want to leave, and about the difference you could still make, can be a very positive experience.
ME Awareness Week – Going Blue for M.E. in 2019!
ME Awareness Week will run from 6th to 12th May 2019 with many activities focused on ME Awareness Day itself (Sunday 12th May).
How you GO BLUE is entirely up to you… Just do what you can, where you can, to raise awareness and inform others of the issues faced by this community.
Just do what you can, where you can, and have some fun at the same time. We will be here to support you, every step of the way!
ME Awareness Week 2018 – Events Gallery
We had more people getting involved and more events than ever before.
The following page celebrates all events, large and small, that took place in that crazy week.
Thank you to everyone who did something, anything, to raise awareness of M.E. in 2018.
Frequently asked questions (FAQs)
Donating money and fundraising can seem daunting at first. We’ve compiled a list of answers to often asked questions that we hope will help. But, if you need more support, then please contact Helen Hyland, Fundraising Manager for the ME Association.
How you choose to help the ME Association is entirely up to you, and we are incredibly grateful for any support you can provide.
Helen Hyland, our Fundraising Manager, is here to help with whatever you decide to do. You can contact Helen by email or by phone (01280 838964).
Other pages in this section:
- Join Us
- Leave a Legacy
- ME Awareness Week
- ME Awareness Week 2018 – Events Gallery
- Help and Support
ME Association Registered Charity Number 801279