ME is a disease that has a devastating impact on quality of life…
Over 250,000 people struggle to live with Myalgic Encephalopathy/Encephalomyelitis (or M.E.) every day in the UK. It affects people of all ages, all nationalities, and from all walks of life.
M.E. affects people’s ability to function in different ways, but it can be more disabling than multiple sclerosis and is often very isolating. It can leave a person bed-bound, in extreme pain, unable to walk, to tolerate light, noise, or touch, and be wholly dependent on the care and support of others.
The Real M.E. campaign has helped others see that M.E. affects people of any age and from all walks of life…
A person might be housebound, in need of a wheelchair and help to get about, the support of carers, and be reliant on welfare. Or perhaps is able to manage better, with less severe and more stable symptoms, and can work part- or even full-time, but is unable to pursue a social life, and crashes at weekends.
|Learn More About M.E.|
ME Factsheet: What you need to know about M.E.
ME Research Summary: Explains the research developments
Medical Management: Choose from an extensive range of leaflets written by Dr Charles Shepherd.
We support, inform, advocate and invest in biomedical research…
There is no effective treatment, and no known cure for M.E., but the ME Association supports, informs, and advocates, on behalf of people who are often unable to do so themselves.
We help improve lives while we invest in biomedical research, but we need your help to ensure that we can be there to give people with M.E. the long-term support and hope they desperately need.
We do not receive government grants or other outside assistance, and rely solely on the generosity of our members, donors and fundraisers.
Fundraising not only raises money, but raises awareness…
Pictured opposite are just some of the wonderful people who have raised funds for the ME Association in the past.
There are now far too many to show on a single image like this, but you get the idea. It’s a fundraising community to be proud of.
Thanks guys – you were all superstars! We really appreciate all you did, and what many of you are still doing, for the ME Association.
Help support the work we do by getting involved…
From just £2.00 a month you can help support others affected by M.E. and will receive the excellent and exclusive ME Essential magazine delivered straight to your door.
“The ME Association has been there since I first became ill and given support when all else has failed. Its continuing presence is very important to me.”
We recognise that your personal endorsement of our cause is important and we will do all that we can to support the needs of our members.
Real people. Real disease. Real M.E.
We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.
If you would like to support our efforts – particularly during ME Awareness Week – and help ensure we can continue to inform, support, advocate and invest in biomedical research, then please donate today.
Just click the image opposite and visit our JustGiving page for one-off donations, to establish a regular payment or to create your own fundraising event.
Gift Aid and Payroll Giving
If you are a UK taxpayer, you can boost the amount of any donation – at no extra cost to you – through gift aid. And, if you are employed, you can arrange for a regular donation to come from your salary, with payroll giving.
There are many ways that you can challenge yourself to fundraise for the ME Association and have some fun at the same time – whatever your ability.
If you don’t have M.E., or have sufficiently recovered, and want to raise money to help this community; it’s often the unusual physical challenges that catch the imagination, and prove attractive to potential sponsors.
And for those who cannot or should not be pushing themselves physically, we have a host of creative ideas to help you get involved.
Leave a Legacy
It is never too early to write a will, and including a legacy to the ME Association means that we can continue with our work, helping others, and investing in biomedical research to pursue effective treatments and a cure.
Death isn’t a subject any of us like to think about. It means that we must face up to the idea that we won’t be around forever: that one day we won’t be here anymore.
But thinking about what happens afterwards, about the legacy you want to leave, and about the difference you could still make, can be a very positive experience.
ME Awareness Week 2020
Centred around ME Awareness Day on May 12th, ME Awareness Week is a time when everyone we know puts all their valuable energy into telling the world that M.E. is a real and physical disease.
We are currently working on our campaign for 2020 and will let you know all about it as soon as we can. In the meantime you might like to consider previous events and begin to plan what you might do next year.
ME Awareness Week 2019
It was another incredibly busy and fulfilling week back in May for the supporters of the ME Association and our community in general.
We had so many people getting involved – faces old and new… And from the looks of it, a great time was had by all!
This page celebrates many – but not all – of the events, large and small, that took place in that crazy week. We’ve included a selection of photographs just to give you a flavour of all that took place.
Thank you to everyone who did something, anything, to raise awareness of M.E. during our special week.
Frequently asked questions (FAQs)
Donating money and fundraising can seem daunting at first. We’ve compiled a list of answers to often asked questions that we hope will help. But, if you need more support, then please contact Helen Hyland, Fundraising Manager for the ME Association.
Help and Support
How you choose to help the ME Association is entirely up to you, and we are incredibly grateful for any support you can provide.
We are here to help with whatever you decide to do.
Contact our Fundraising Manager, Tony Britton, if you want to discuss any fundraising ideas or require support for your event. Telephone: 01406 370293 or 07946 760811 or via Email.
Other pages in this section:
- Join Us
- Leave a Legacy
- ME Awareness Week
- ME Awareness Week 2019 – Events Gallery
- Help and Support
ME Association Registered Charity Number 801279