Category Archives: News

ME Association Factsheet – What you need to know about M.E. | 22 April 2018

The Factsheet is available as a free download, and it also appears as such in our online shop if you wanted to make it part of an order, for example.

Forward ME – Meeting with Dr Diane O’Leary about possible WHO coding changes | 21 April 2018

  Forward ME Notes of meeting held on Wednesday 28 March 2018 1. Apologies Hannah Clifton ME Trust, Dr Paul Worthley ME Trust, Dr Gareth Tuckwell ME Trust, Bill and Janice Kent ReMEmber, Cath…

With its’ Focus on ME Awareness Week, the Summer Issue of ME Essential is one you’ll want to read! | 20 April 2018

50 pages, packed full of interesting stories, news, research, campaigns, fundraising and medical information. There is nothing quite like ME Essential!

‘I mourn the life Mag could have led. Missing her has only just begun.’ A Personal Tribute to Mag Friel by Marion Michell | 19 April 2018

Marion Michell talks about her friend Meg, who took her own life after a long battle with severe M.E.

ME Awareness Week – Events Guide | 19 April 2018

Please let us know what events you are hosting for ME Awareness Week (7th – 13th May), and we’ll feature them on our website and social media.

Liverpool Echo: Devastating ME leaves teen girl “unable to leave the house” | 16 April 2018

Rosie first suffered ME symptoms at the age of nine when she contracted a viral infection, but failed to recover from it.

Huffington Post: I Am Stuck In The Prison That Is ME | 13 April 2018

Have you ever laid in bed and felt so ill that you truly thought you were going to die?

The countdown to ME Awareness Week begins today and we’re focusing on issues relating to work and to education | 12 April 2018

The ME Association is going BLUE for ME Awareness Week 2018 and we’re also focusing on issues relating to employment and education.

Advertising Standards Uphold Complaint Against Gupta Programme for ME/CFS and Fibromyalgia | 11 April 2018

The ASA has today upheld a complaint on three issues relating to claims made by the Gupta Programme in relation to ME/CFS and Fibromyalgia.

ME Association March Summary of ME/CFS Published Research | 09 April 2018

The monthly summary of ME/CFS research publications for March 2018.

Forward ME to Science Media Centre ‘Retract and replace your factsheet on CFS/ME’ | 05 April 2018

The Countess of Mar writes on behalf of Forward ME to the Science Media Centre asking for a retraction of inaccuracies in their ‘factsheet’ on ME/CFS.

‘Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture’ | 02 April 2018

Merryn Crofts died on May 23 last year, 10 days after her 21st birthday.

Trinity College: New research network will bolster our understanding of Chronic Fatigue Syndrome | 31 March 2018

There are substantial gaps in our knowledge of the impact of this complex disease, but the new ‘European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome mission is to address these.

We need your help to exhibit the ME Knitathon in Coventry Cathedral during ME Awareness Week | 29 March 2018

Lauren hopes to display the completed blankets in Coventry Cathedral during ME Awareness Week before donating them to people with severe M.E.

The GETSET Trial: Letters to The Lancet and a response from the authors | 26 March 2018

A total of five letters have now appeared in the Lancet critiquing elements of the GETSET trial, and the authors have now issued a response to all of them.

Forward ME Letter to The Times: Patients with ME/CFS ‘are not simply “deconditioned” as claimed by many psychiatrists’ | 23 March 2018

“Forced exercise above very low levels characteristically incapacitates most patients.”

ME Association Press Release: Reanalysis of the PACE trial finds impressive claims are ‘not statistically reliable’ | 22 March 2018

“The message is clear – CBT and GET are not effective ways of treating a serious neuroimmune disease. The sooner this message gets across to health professionals the better.”

Frontiers Press Release: Chronic fatigue syndrome possibly explained by lower levels of key thyroid hormones | 20 March 2018

Dr Shepherd: ‘This new research demonstrates a defect in thyroid hormone activity rather than actual thyroid gland disease.’

The BACME Conference 2018: A summary report from Joan Crawford of Chester MESH | 16 March 2018

Members of the South Sefton ME/CFS Support Group and Chester MESH were were able to hand out leaflets and copies of the ME Association guide to clinical issues to attendees.

ME Association Press Release: People with M.E. ‘measurably more disabled’ than people with Multiple Sclerosis | 16 March 2018

“For people with ME/CFS, this is a very important piece of research involving clinical data collected by the ME Biobank.” Dr Charles Shepherd.

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