Category Archives: News

ITV News: “How I’ve learnt to live with an invisible illness,” Gary Burgess| 06 June 2019

“Being diagnosed with ME was like a grieving process, grieving for the old me.” Gary Burgess.

MEA Website Survey: Loneliness and Social Isolation | 06 June 2019

We would like to hear about how you deal with loneliness and social isolation.

Tartan pride: the Moran family take the Kiltwalk in their stride | 2 June 2019

They’ve been raising money since 2006 – to honour Jim’s wife Maureen who’s had ME for 30 years.

Rest in Peace Jennifer Chittick. ME sufferer, campaigner, beloved daughter and sister | 24 May 2019

“I am devastated to learn of Jen’s passing. There are tears flowing down my face as I type. Jen was such a force for good in our community.” Helen Hyland, ME Association.

Isle of Man: We desperately need to be able to diagnose ME at earliest stage | 24 May 2019

“It is very hard to keep faith in a system which has failed to deliver meaningful support,” Phil Gawne.

Three ME patients reveal the accusations they have endured during their battle with the crippling condition | 24 May 2019

“I strongly believe that if I’d received different treatment from doctors, I would not be as ill as I am today,” Jennifer Chittick

ME Awareness: The hidden illness mum and daughter want you to know about | 11 May 2019

“I want to get better and lead a normal life. I didn’t choose to be ill like this.” Helen Wood.

ME Awareness: Baz takes his petition to Downing Street… | 10 May 2019

“Research is the only way to get sufferers back on track and have the life they deserve.” Baz Hornsby

ME Awareness: Teen says teacher’s fake illness claim over ME saw her spiral towards self-harm | 10 May 2019

“You think about the person you could be but can’t. It is almost like losing your personality, losing yourself.” Milly Lowsley.

ME Awareness: The PACE Trial: How a Debate Over Science Empowered a Whole Community | 09 May 2019

“This debate helps highlight how existing behavioural approaches and treatments are failing patients.” Carolyn Wilshire.

ME Awareness: The ME Show Special – The Real M.E. – Transcribed | 09 May 2019

“Sometimes I feel like M.E. is all I am. But I am also a sister, a friend, a daughter, a partner, a colleague, a graduate and a police officer.” Stephanie.

ME Awareness: The Real ME – Recovery and Me – Gabby’s Story | 09 May 2019

“I have shied away from anything that would remind me of that time, that illness; and I am absolutely terrified that my children will suffer with it.” Gabby Coles.

ME Awareness: Cambridge woman reveals the truth about living with a debilitating illness | 08 May 2019

“I now have no regular social life to speak off and have lost contact with most, if not all, of my friends from my old life.” Gemma Corvalan.

ME Awareness: The Real ME – Ten Year Challenge with Severe ME – Jennifer’s Story | 08 May 2019

“I’ve had ten years of missing out on so many experiences, but also experiencing (enduring?) more than most people ever will.“ Jennifer Chittick.

ME Awareness: Seven things people with ME want you to know | 07 May 2019

“My mind is always foggy – once I forgot my own birthday. If you could feel death, I’d say it is living with this.” Milly Lowsley.

ME Awareness: ‘Hard to cope’ Mum-of-two with chronic fatigue says condition is triggered by her noisy kids | 07 May 2019

“It’s like having flu, tying lead weights to your limbs and attempting to do an Ironman.” Katy Beardsworth.

ME Awareness: The Real ME – The Things People Do – Kristian’s Story | 07 May 2019

“My lovely Hanna-Lisa’s energy levels have gradually reduced over time due to her condition and she is now unable to work,” Kristian Legg.

ME Awareness: Fit, football-mad Birmingham mum left unable to make it to the loo after devastating diagnosis | 06 May 2019

“Living with ME is like waking up with the worst flu and hangover combined you’ve ever had in your life, every single day.” Nicola Ingram.

ME Awareness: The Real ME – How This Disease Affects Me – Rog’s Story | 06 May 2019

“Sometimes the inevitable pain and fatigue is just the price I have to pay to get things done.” Rog Warner.

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