We all owe an enormous debt of gratitude to Peter. He will be sadly missed and I will be attending his funeral on Friday 13th September in Edinburgh.
Category Archives: News
M.E. has taken Lorna out of the classroom but there’s more to an identity than a career.
We are looking to recruit someone to lead our charity fundraising efforts and public campaigns.
Emily takes us through her survival techniques and offers help and advice on how to survive at university with M.E.
M.E. charity representatives meet with Scotland’s NHS to discuss future provision | 05 September 2019
Ewan Dale reports on a recent meeting to discuss the future of healthcare in Scotland.
Changes to Blue Badge parking criteria have come into effect making it easier for people with non-visible disabilities to get one.
This month we’d like to hear from anyone who has experience of M.E. and education. What kind of support did you receive?
We’ve updated the central Research Index and feature 16 ME/CFS research studies from August 2019.
NICE is asking stakeholders for evidence to support the ongoing review. The deadline is 4th October by 5pm.
Canada invests $1.4M in biomedical research to improve the quality of life of people living with M.E. | 23 August 2019
It is estimated that more than 580,000 Canadians live with myalgic encephalomyelitis (ME), formerly known as chronic fatigue syndrome.
Relationship between physiotherapists and people with M.E. is poor but there is potential to improve | 22 August 2019
Physios 4 ME report on the results from the MEA website survey that took place in July.
Establishing Protocols to Assess Mitochondrial Function in ME/CFS by Dr Karl Morten | 21 August 2019
Dr Morten provides additional comment on the recent validation attempt of the Acumen test and we include a detailed report.
I have cared day and night for my wife who has lain in unspeakable torment, torture and agony, for twenty-six years.
The Sun: 5 signs your constant tiredness is actually chronic fatigue syndrome – as 90% of cases are missed | 15 August 2019
Dr Sarah Jarvis talks The Sun through the main signs your exhaustion could actually be a symptom of ME/CFS.
The MEA’s Welfare Rights Adviser provides her top-tips for people with M.E. when applying or renewing ESA and PIP.
The Telegraph: Narrow doors and no hoists: why disabled women can’t have life-saving cervical cancer screening with Jo Moss | 10 August 2019
All women are invited to cervical screening, and all women should be able to have access to a test.
Independent researchers determine mitochondrial test is unreliable and should not be used as test in ME/CFS | 09 August 2019
The long-awaited independent assessment of Dr Myhill’s mitochondrial function test was published earlier this week.
Anonymity is a cover for the disappointment that is only overwhelmed by the relentless exhaustion of M.E.
The Sun: TRAPPED I’ve spent six years in a dark bedroom after virus triggered ME at 16 – but docs say it’s ‘all in my head’ | 09 August 2019
Laura, now 25, has chosen to lay bare the brutal reality of life with M.E. – which affects 250,000 people in the UK.
Severe ME Day: Life in a Nursing Home, Light Sensitivity and Very Severe M.E. by Eira Stuart | 08 August 2019
The nursing home was accommodating at first. However, they didn’t have any experience caring for M.E patients and I don’t think they fully realised the extent of the situation.