The Minister of State for Health and Social Care responds to biomedical research question.
Category Archives: News
NICE ME/CFS Clinical Guideline: Draft Scoping Report Published Ahead of Stakeholder Meeting on Friday | 21 May 2018
The draft scoping report sets out the parameters by which NICE will create the content for the new guideline.
Pathologist Daniel DuPlessis pointed out that Merryn had inflammation of the ganglia – gatekeepers to sensations in the brain.
A round-up of ME Awareness Week 2018. A special week that has broken all previous records.
We would particularly welcome applications from young researchers, researchers entering the field of ME/CFS, and researchers from localities where ME/CFS is under-recognised and/or research is particularly scarce.
Merryn’s family attended Millions Missing Manchester, placing a pair of her pink Doc Martens outside the Town Hall.
Liz and Helen Wood have campaigned for the awareness event for a number of years, after Helen was diagnosed with the condition in 2005.
ME Awareness Week: ‘Please stop a while and think what it would be like…’ by Mary Corbett |15 May 2018
Last week Mary took the decision to share the other side of M.E. It’s a side that we all recognise, but we don’t always talk about.
ME Association Ramsay Research Fund invests in new study with ME/CFS Biobank to examine dysfunctional immune system and energy metabolism | 15 May 2018
New research that will examine both immune system dysfunction in M.E. and defects in the way that energy is being produced at a cellular level.
If sufficient numbers of MSPs can be encouraged to sign the Motion then it could be used to bolster support for a full debate in Westminster.
“The way I describe it is I’m actually grieving the loss of my sister because she’s not around anymore.”
Stephen Kerr MP launches M.E.-friendly GP initiative in Stirling with help from the ME Association | 12 May 2018
“The ME Association are doing fantastic work in helping those coping with ME. I am happy to support them in any way I can.”
“Our staff are brilliant – we really can’t thank them enough!” Joy Patel.
Keri Johnstone spent her Bank Holiday Monday doing a Charity walk in aid of the ME Association ‘Go Blue for M.E.’ campaign.
“I believe that the working world is still very unaware of the symptoms caused by M.E.”
ME Awareness Week: An island trek – Antje Rook is fundraising on behalf of her inspirational friend | 10 May 2018
Raising funds for M.E. research “Because I want my friend to be able to have a normal life again.”
Southern Daily Echo: ‘I count my blessings’ – Meet the woman who high-fived her daughter after being diagnosed with ME | 10 May 2018
“The worst comment I get is “I get tired too, its our age”. If you don’t have M.E., you honestly don’t know the meaning of the word.”
ME Association supporter, Sally Callow, has been writing a six-part series for her local newspaper, helping to raise awareness of M.E.
The Mirror: ‘Party animal’ young mum left unable to cook, clean or wash by disease some doctors don’t believe is real | 09 May 2018
“I was an adrenaline junkie who had done three skydives – now I can’t work, spend weeks in bed and am unable to do anything,”
It is hoped that the more signatures this new EDM attracts, the greater the chance of an actual debate in parliament.