Day after day this fragile hope is crushed, shattered, ground down like broken glass. Monotony, drudgery, despair! How can I escape?
Category Archives: News
The impact of these last three decades of attempts to bury the serious disease M.E. under a sea of unrelated and vague “fatigue conditions” has been catastrophic for patients.
MEA Press Release: Severe ME Day – M.E. sufferers hit out at ‘humiliating’ DWP benefit assessments | 08 August 2019
“Many only succeed in obtaining the benefits they should be entitled to after going through a long and stressful appeal process.” Dr Charles Shepherd.
We are delighted that Gary Burgess has recorded a special episode that considers the Real impact of Severe M.E. with Jo Moss and Ann Innes.
Navigating the benefits system can be very challenging with M.E. We hope that this resource will improve your chance of a successful outcome.
They don’t see the days spent in tears from being in so much pain and the frustration of not being able to spend time with them.
Wales Online: The frail teenager set to spend all of her summer holidays in her bedroom by Mark Smith | 07 August 2019
“Most days she is in bed, but we try to make life as normal as it can be for her. We have to stay strong for her.”
There’s No Point in me having a Netflix subscription or an Audible account by Anna Wood | 07 August 2019
Cognitive symptoms are common for everyone who has M.E., but it is the cognitive fatigue which disables me the most.
This ombudsman decision shines a light on the difficulty that some people with M.E. face in obtaining social care.
Zoe was put under surveillance – monitors, lights on constantly, nurses watching her eat and humiliatingly insisting on escorting her to the loo…
This year marks 10 years of M.E for me. With 6 1/2 of those being severe, I wanted to write a little something that might help others cope.
Instead of using easyfundraising when buying things on Amazon, you now need to register with Amazon Smile.
NCS Stamford have set themselves an ambitious 3-day target and we wish them all the best of luck.
We’ve updated the central Research Index and feature 13 ME/CFS research studies from July 2019.
This month we’re asking about your level of illness severity and for a discussion around definitions.
It is Severe ME Day on Thursday, but we think people severely affected deserve to have a full week dedicated to raising awareness.
Sarah Bascombe will be travelling to the Lake District on Saturday to scale the highest mountain in England.
New Technology Should Help Make Education More Accessible to People with Chronic Illnesses – by Anna Wood | 01 August 2019
Anna explores how technology can help to include more chronically ill students in education.
John has never tackled anything quite like it before, but was inspired to do something to show support for his daughter Elaine.
This latest article continues to shine an uncritical spotlight on an issue that we really don’t think stands up to scrutiny…