Category Archives: News

New meet-up group in Glasgow

For details about this informal and friendly group, which started in Glasgow just before Christmas, please click here

APPG on ME – minutes of last meeting (Nov 2006)

Minutes of the meeting of the All Party Parliamentary Group on M.E. Held 1.30pm, Thursday 16th November 2006 Committee Room 17, House of Commons

NICE chairman to attend next APPG on ME

Sir Michael Rawlins, Chairman, National Institute for Health and Clinical Excellence, will appear before the next All-Party Parliamentary Group on M.E.

National ME organisations respond to DWP guidance

STATEMENT BY NATIONAL ME ORGANISATIONS ON DWP CFS/ME GUIDANCE DOCUMENT (VERSION 9) We are pleased that the DWP has acknowledged that there has been a 'black hole' with ME/CFS, resulting…

AGM/EGM reminder for ME Association members

As already notified to members in our ME Essential quarterly magazine, we shall be holding our Annual General Meeting on 17 February 2007.

NICE confirms guideline publication delay until August 2007

MAY BE REPOSTED The ME Association has just received this communication from NICE

Dr Nigel Speight’s evidence to the Gibson Inquiry

MAY BE REPOSTED Following a request from the Gibson Inquiry secretariat, The ME Association has forwarded a copy of the transcript and Powerpoint slides used by Dr Nigel Speight, Paediatric…

Letter to The Financial Times from The ME Association

SUBMITTED FOR PUBLICATION Dear Sir, "Gently does it" says Edi Smockum on advising us about exercise when ill. Tiredness, muscle aches, chills and swollen lymph glands require rest. What excellent…

Financial Times, January 19 (recovery from flu)

Gently does it By Edi Smockum There is no more challenging time to keep to a fitness regime than during an illness. Those with less than total commitment to training…

The Times, January 22 (ME research update)

From The Times, 22 January 2007 ‘Fatigue Syndrome is not all in the mind’ – by Peta Bee

Angie Flack – a first tribute

It is with great regret that we heard last night of the death of Mrs Angela Flack, a trustee of the Board of The ME Association. 

The Gibson Enquiry – next meeting

The next meeting of the Group for Scientific Research into ME has been set for 6 February 2007 Further to the publication of the Group's Report at the end of…

Parliament, January 18 (NICE guideline development)

There was a written answer in Parliament regarding the NICE guidelines

NICE can’t please all the people all the time

The Chairman of the National Institute for Clinical Excellence (Nice) has said that the outfit cannot cater to all parties needs and must sometimes make tough decisions.

Occupational therapy lecture – Oxford – March 3rd

Saturday, 3 March, Kidlington Community Education Centre, Oxford, 2.30pm Lecture by Mary Black, occupational therapist with the PACE Trial "Occupational Therapy and CFS/ME". Lecture organised by Oxfordshire ME Group for…

Letter to The Mail on Sunday

INTENDED FOR PUBLICATION Re: Healthnotes / 14 January 2007 /p63 Representatives from ME/CFS charities have tried unsuccessfully to ensure that new medical guidance to be issued by the Department of…

More support for people with ME in Eastleigh, Hants

Hampshire Friends with ME have set up a new area branch in Eastleigh, a few miles to the north of Southampton. Local people wishing to make contact can phone Jackie…


Welcome to The ME Association, also registered as The ME Society. We provide information, support and practical advice for people who are affected by ME/CFS/PVFS (Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral…

New DWP medical guidance in full

This is the medical guidance which will be made available in February to Department for Work and Pensions decision-makers adjudicating on claims from people with ME/CFS for Disability Living Allowance…

Katharine voted into the London Triathlon Academy

In a people's vote, The ME Association's entrant in last year's London Triathlon – Katharine Vile – has won a place in the elite Triathlon Academy where she will receive…

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