Category Archives: News

Scottish Cross Party Group on ME, January 23 – notes on discussion

Having previously been commissioned by the health department to produce guidelines on CFS/ME for Scotland but not having completed the commission, Action for ME (AfME) have received a revised commission…

APPG meeting, January 22 – revised personal summary

NB:  This revised version contains an addition to the list of MPs and national patient group representatives who were present as well as an item that came under AOB.  Apologies…

Agenda for Cross-Party Group on ME, Edinburgh, January 23

The first meeting of the reformed Cross Party Group on ME in the Scottish Parliament will be held on Wednesday, January 23 – in Committee Room 3 at the Scottish…

Ed and Luke take a walk on the wild side

From the Leicester Mercury today: story by Alison Curtis Locals along the route of explorer Ed Stafford’s next expedition have one piece of advice for the adventurer: "If you do…

Our latest magazine – it’s in the post

Picture by Matthew Charman The countryside at its misty best, with Linda Rivers enjoying a ramble in it in her wheelchair, provides the front cover picture for the latest issue…

New online fundraising site for The ME Association

The ME Association now has a new online fundraising site.

ME prayer website launch

A website has been launched to back up a pulse of prayer and meditation which takes place on the first Monday of each month – which started in September last…

Blood donation and ME/CFS/PVFS (UK)

From time to time The ME Association is asked if people with ME/CFS can donate their blood.

MEA joins Medicines and Healthcare products Regulatory Agency Panel

The ME Association has joined a new panel being set up by the Medicines and Healthcare products Regulatory Agency (MHRA) – the UK government body that monitors adverse reactions to…

ASDA gets tough on parking space abuse

ASDA announced this weekend that it would be the first retailer to fine drivers for the misuse of disabled and parent and child parking bays in its car parks.

ME Observatory – recruitment of people from minority ethnic backgrounds to help with research study

Following a meeting of the ME Observatory Steering Group on Friday 11 January the ME Association and Action for ME are circulating this announcement, which relates to the need to…

New Zealand press report: Dr Ros Vallings honour

Podcast of interview with Radio New Zealand, 31 January 2007 From the Howick and Pakuranga Times, New Zealand, 10 January 2008 FOR once it is the doctor and not her…

Agenda for the APPG on ME – January 22

Tuesday 22 January 2008 4.00pm-5.30pm Committee Room 17, House of Commons.

Southampton conference explores ME’s physical nature

The first of a number of major UK conferences which this year aim to show that the serious disabling condition ME has a real pathological basis – that it’s not…

Lightning Process on RTE radio today (Tuesday 8 January)

The Irish radio station RTE 1 should be holding a discussion on the Lightning Process at around 4pm today on The Mooney Programme.

Low-energy bulbs ‘worsen rashes’

From BBC Online, January 4 The switch to energy-saving light bulbs may put thousands at risk of painful skin reactions, health charities warn. 

Regulation of alternative therapies comes nearer

From The Times, January 5 (by Nigel Hawkes, Health Editor) Aromatherapy, homoeopathy and other popular complementary therapies are to be regulated for the first time under a government-backed scheme to…

Ampligen reviewed by UK National Horizon Scanning Centre

The news item below refers to a report on Ampligen that has been prepared by the National Horizon Scanning Centre (NHSC) at the University of Birmingham.

Dr Ros Vallings awarded the New Zealand Order of Merit | 30 December 2007

  Dr Ros Vallings, a general practitioner in Auckland and widely acknowledged as New Zealand’s leading authority on ME/CFS, has been awarded the New Zealand Order of Merit in the…

Daily Mail, letters page, December 27

‘Don’t just dismiss this link with ME and polio’.

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