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Category Archives: News
The ‘Girl in the Window’ has M.E. and is housebound. From award-winning author Penny Joelson | 12 November 2018
Penny Joelson explains how her latest novel came into being.
Latest research from the ME/CFS Biobank: Hand Grip Strength as a Clinical Biomarker | 12 November 2018
New research indicates that handgrip strength may be a good diagnostic tool for ME/CFS.
ME Association Statement re: NICE ME/CFS Guideline Review and Committee Appointments | 09 November 2018
Dr Shepherd has been appointed as a co-opted member of the NICE guideline committee.
Xmas Appeal: Do you have M.E.? A review of the pioneering work of Dr Melvin Ramsay | 09 November 2018
Neil Riley reviews the contribution Dr Ramsay made to the field of M.E.
Isobel has created some rather cute characters sure to form the centrepiece of any Xmas decorations.
We’ve updated our central index and provided you with details of the 18 ME/CFS research studies published in October.
ME Association Website Survey: Why we’re asking about healthcare plans and ME/CFS | 01 November 2018
We are asking this month if you have a healthcare plan in place for ME/CFS.
Spreading joy through art. Isobel Butler has helped raise funds and a smile with her painting.
More research for M.E. in 2019. Because we believe it offers the best hope.
Last week saw a focus on Wales with the BBC feature broadcast and debate in the Welsh Assembly.
“On behalf of everyone with M.E, and their carers, I would like to thank the Countess of Mar for everything that she has done…
These are the minutes of the meeting held prior to publication of the NICE Scope report.
We are looking for a volunteer to help support our fundraising manager.
An effective way to demonstrate the hardship suffered by people with ‘invisible’ conditions.
“Our studies…confirm that patients with ME/CFS have biological abnormalities that cannot be characterized as psychosomatic.”
We don’t have any charity places for 2019 but there’s a chance in 2020, and plenty of other challenges that might appeal.
Would you like to help advise the CMRC? Applications are now available to join the Patient Advisory Group.
NICE ME/CFS Guideline Review: Publication of revised Scope, comments, and committee appointments | 16 October 2018
NICE publish the revised Scope and reveal some of the committee appointments.
Charlotte provides a summary of each presentation from the 5th CMRC research conference in Bristol.