Members of the ME Association receive a quarterly magazine – ME Essential – delivered straight to their door. It features exclusive interviews, keeps them up-to-date with medical and scientific developments and includes stories about how people cope with the disease.
|“Hello everyone and welcome to this extended spring issue of ME Essential. It’s been a busy few months as we’ve been planning ahead for ME Awareness Week (hence the 60-page bumper edition!) and you’ll see that there are lots of stories in this issue to tie in with this very important week.”
Caroline Cavey, Editor, ME Essential.
“I know how very fortunate I am to afford a holiday and that for some it remains a dream. But for those, like me, who fear leaving home, a cruise can make a holiday possible, giving you a taste of what it is like to be normal again. And that taste is simply wonderful.”
Research news and updates about ME/CFS
Five Minutes With…
Rick Osman, Vice Chairman of the ME Association
Cognitive Dysfunction with Dr Charles Shepherd
ME Awareness Week Special: Featuring stories and photos from the Real M.E. campaign…
“ME Awareness Week (6th to 12th May 2019) is the most important part of our year. It’s when we all work our hardest to tell the world that M.E. is indeed both Real and Physical. And we don’t do it alone. We know that you, our amazing M.E. Community, will be using your precious spoons to come forward too, doing something, anything, to raise awareness of M.E.”
We would not be able to do our work without the amazing support from our donors and fundraisers. In the three months to March you have provided over £58,000 and we are incredibly grateful for every penny that has been received.
The ME Show with Gary Burgess
“It’s fair to say I was completely overwhelmed by the response to series one. Messages from near and far, from every continent on the planet, letting me know that people with M.E, or with an interest in it, had taken the time to listen. It still fills me with such gratitude that people give up their valuable time to do so.”
My M.E. with Detective Chief Superintendent Colin Paine
“Much has been written in recent years on the value of time management, but this has taught me that it is energy management that is paramount.”
Real Lives: How to swap one brick wall for another with Heather Campbell
“When M.E. was finally diagnosed my mother and daughter “went ballistic”. Apparently I was putting it on to get out of doing things for them.”
Real Lives: How it feels to be exhausted 24 hours a day with Joseph Luke
“I became disabled overnight after I came down in November 2016 with a fever and viral symptoms from which I’ve never recovered.”
How to Survive University with ME
Emily Bailey continues with the second in her series on university life with M.E: Disabled Students’ Allowance, Social Care and University Applications.
Life and Living: A Candid and Quirky Approach with Ev Francis
“I wanted to touch base on a few things that have got nothing to do with chronic illness, fatigue or doctors. Why? Well, our lives are filled with this illness, so let’s discuss something else for a change.”
Loving from the Soul: Learning to Live with Long-term M.E. by Sarah Caddick
“Even though my life was still so limited, and I had symptoms daily, as I slowly made small improvements I appreciated everything so much. Other people would be complaining about the rain, and I’d think “Wow this is my third time out this week; how wonderful to feel the rain on my face!”
Lifestyle – Books, music and readers’ poetry
Diet and Nutrition with Healthy Living James
“What happens when a seriously athletic young man is suddenly struck with M.E? James Wythe experienced just that during his sports science degree course. Eight years later, three of which were bedbound, James changed his diet to help. His recipes are designed to be healthy, quick and requiring little energy to produce.”
Physiotherapy for M.E.? Natalie Hilliand explains…
“My job as a physio is to help all my patients to be as independent as possible within the limitations of their condition or illness. My job is NOT about pushing someone through their pain limits, through their fatigue or through their sickness. Therefore, my opinion about GET is that it is wholly inappropriate, and it should not have its place within the management and treatment of M.E, as recommended in the current NICE guidelines.”
We have a huge regular response to our New Friends column and it’s wonderful being able to put you in touch with others who understand M.E.
The Last Word with Haty Hayfield…
“Life delivers some hard lessons. When someone knowingly chooses to ignore facts, withdraw friendship and turn their back, there is only one thing you can do – walk away. With M.E. our energy is precious – so save it for those who really do deserve it.”
|“I am writing to say how much I enjoy ME Essential magazine. You have made such a change both in looks and content – So much content! You have also managed to make it feel more personal as well as amazingly informative.”
“M.E./CFS is such a lonely illness and the magazine helps us to feel we are not alone, that there are others going through the same journey as ourselves.”
Yvonne, Your Letters, Spring 2019.
To receive a regular copy of our magazine you will need to be a member of the ME Association. To read more about the benefits of membership and to make an application, please visit our membership page.
You can join or renew membership online, or complete a Membership Application Form (especially if you would like to pay by annual standing order and receive £10 worth of free leaflets), and return it to our head office in the post.
And Don’t Forget…
A 2019 Edition of the ME Association Clinical and Research Guide is now available from Amazon in Kindle format!
The Kindle version comes with a fully interactive contents page, and embedded links to external information and to all our main leaflets. This makes it much easier to locate the information you need and to download leaflets from our website shop.
Hard copies will still be made available for order via the website shop or direct from head office, and we will continue to send free copies to nominated health professionals.
ME Essential Frequently Asked Questions Index
In every issue of ME Essential magazine, Dr Shepherd answers questions from members on a whole variety of subjects relating to life with M.E. that together provide a useful source of reference.
You can view or download our latest index and then find answers from your own back-copies of our magazine, or contact head office who should be able to assist.
The ME Association
Please help us to continue with our vital work
We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.
Just click the image opposite to visit our JustGiving page for one-off donations or to establish a regular payment.
ME Association Registered Charity Number 801279