ME Awareness: “I was living in a darkened room with my eyes shut for many long years,” Cheryl Russell | 23 May 2020


The Lost Years by Cheryl Russell.

“I’ve had to cut back on activity and resorted to using a walking stick as my right leg keeps giving way.”

I was diagnosed with myalgic encephalomyelitis (M.E.) in 1994. I was in my early 20’s.

It should have been the beginnings of my life instead it was the other way around. I was to lose all my 20’s and 30’s to this illness.

It devastated my life which effectively ended. I became progressively worse until I was bedbound, unable to do anything for myself.

I was living in a darkened room with my eyes shut for many long years.

I had lived in care which was a nightmare as I was abused by several carers and then disbelieved by social services and the police. I nearly lost the care over it. I now have PTSD as a result of all I went through.

I’m 2013 life changed. I started improving and was very slowly able to build up activity. This was a slow process as my muscles were so weak from not being used. I eventually had my life back, exercising and being independent again. 

Fast forward to 2020 and my health has taken a downward turn. After blood tests all normal I heard those dreaded words ‘M.E. is back’ and trying to wreak havoc on my life again.

I’ve had to cut back on activity and resorted to using a walking stick as my right leg keeps giving way.

Cheryl Russell is an author:

“I was bedbound with ME for many years. It was during this awful time that I had loads of ideas for novels I could write. I spent many happy hours lying in bed thinking about details of books I would one day write.

“It was only last year when I started being able to put pen to paper as it were, and the ideas flowed. I have been thinking about ideas for writing about my life with severe ME and my healing,” Cheryl Russell via Amazon.

ME Awareness Month – May 2020

Read the stories and announcements from ME Awareness Month.

The Lost Years

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