The ME Association and ME Awareness Week: The Lost Years, Symptoms and The Coronavirus | 25 March 2020


Russell Fleming, Content Manager, ME Association.

ME Awareness Week will take place from Monday 11th to Sunday 17th May and we would really appreciate hearing about your life with M.E.

Getting your stories out there is one of the best ways to raise awareness about M.E. and improve understanding. We would very much welcome your stories and photos around our two central themes for ME Awareness in May:

  • The Lost Years:
    The things you have missed out on and the things you have had to adapt to because of M.E.
  • A Focus on Symptoms:
    The M.E. symptoms you particularly struggle with and/or the ones you have found ways to manage together with any tips or advice you’d like to pass on to others.

To the many who have sent in their stories already, we are very grateful for your support and will be featuring them online in May, with our main focus still on ME Awareness Week.

ME Essential magazine: Spring Issue.

For members of the ME Association, a bumper edition of ME Essential magazine should be received during the first week of April. It features some of our themed stories, together with samples of the posters and graphic designs we will be making available to everyone in May.

We will be continuing with our very popular fundraising theme – Go Blue 4 ME – although fundraising events are now of course restricted and will be held online where possible. For details and support, please contact our fundraising manager, Tony Britton (Phone: 07946 760811).

Coronavirus stories

ME Awareness in May will obviously be affected by the coronavirus and the Government restrictions like social distancing and self-isolation.

Community events are cancelled but we can still try to make our voices heard during this special time of ME Awareness particularly as more people are now at home and online using social media.

Sample: Lost Years Poster

With the news media now so focused on coronavirus and likely to be for some time to come, we think that we stand a better chance of getting your stories and our message onto their platforms and reaching even more people, if they contain something about the virus and how it is affecting your ability to continue with normal life.

We are therefore extending the Symptoms theme to include stories from people with M.E. affected by the coronavirus itself and/or the Government restrictions:

  • Have you experienced the coronavirus infection? How were you able to manage?
  • How have the restrictions affected your ability to manage M.E.?
  • Have the restrictions affected your M.E. symptoms?
  • What tips or advice do you have for others affected by M.E. in these difficult times?
  • What are your main concerns as a disabled person?
  • Are you able to source groceries and medications?
  • Has it affected your reliance on carers?
  • How have you had to adapt daily life to adopt the restrictions now in place?
  • Is life today any different to the life you lead normally as someone with M.E.?

Extended deadline

We are extending the deadline for all stories relating to our central themes for ME Awareness in May: The Lost Years, Symptoms, The Coronavirus.

Sample: Focus on Symptoms Poster

If you do have a story you would like to share, then please send it to us via email (Feedback@meassociation.org.uk) no later than Friday, 10th April.

This will give us time to ensure your story is shown on our website and social media and we will do our best to get it in the news media as well.

  • We will also feature a selection of stories in the Summer issue of ME Essential magazine which is published in July. If you want a little more time to write your story, then please send to: cavey@meassociation.org.uk no later than Friday 22nd May.

Your stories should be between 500-1500 words and we will need some personal photographs. We require some personal background, where you live in the country, how long you have had M.E. and the main content should be in keeping with one of our themes (above).

Thank you.

The ME Association

Please support our vital work

We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.

If you would like to support our efforts and ensure we are able to inform, support, advocate and invest in biomedical research, then please donate today.

Just click the image opposite or visit our JustGiving page for one-off donations or to establish a regular payment. You can even establish your own fundraising event.

Or why not join the ME Association as a member and be part of our growing community? For a monthly (or annual) subscription you will also receive ME Essential – quite simply the best M.E. magazine!


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