Ewan Dale, Trustee, ME Association.
The Scottish Health Council (SHC), which is part of Healthcare Improvement Scotland, has been commissioned by the Scottish Government to conduct a lived experience survey of people living with Myalgic Encephalomyelitis (ME). All adults living with ME in Scotland are invited to take part in this survey.*
Healthcare Improvement Scotland is part of NHS Scotland and has multiple directorates focusing on improvement, scrutiny, and evidence within the NHS in Scotland. SHC supports healthcare providers to engage with people and communities in the design and delivery of services.
If you wish to take part, follow this link which will also provide full details about the survey. The closing date is Tuesday, 17th March 2020.
Alternatively, you can complete the survey by phone or in person. Telephone: 01595 741260 which is the Shetland office of the Scottish Health Council for more information.
Please consider taking part in this survey if you are able. The results will be shared in the form of a report back to the Scottish Government about what good care for people with ME would look like. Your input can have a great impact!
All submissions will be anonymous and you can pause the survey and return to it later if you require a rest. The survey site will ask for your e-mail address in order for you to continue later, but this will not be shared with SHC.
*The survey is aimed at adults but SHC does note that if you are a young person transitioning from children’s services to adult services, you can take part. Unfortunately, children with ME are not included at this stage.
The ME Association
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We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.
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