Raising Awareness of Severe ME – A Call for Case Studies | 10 July 2019


Pippa Stacey, Social Media Manager, ME Association.

In the run-up to Severe M.E. Day (8th August), we’re looking for people with Severe M.E. who would like to tell their stories.

We want to talk about the key issues that affect arguably the most neglected section of our community, and plan on raising awareness throughout the week commencing Monday, 5th August.

We’re particularly interested in hearing from people with Severe M.E. and their experiences of the UK benefits system, which might include any problems encountered while trying to obtain the help they deserve.

We’re also keen to share stories of how benefit awards have positively influenced people’s lives or helped them to better manage their condition, to show how much of a lifeline these payments can be.

If you or your carer would like to be involved, you must be comfortable sharing your identity and photographs in either the news-media (newspapers) and on the ME Association website and social media platforms.

If interested, please get in touch by Wednesday 24th July, and provide the following information:

  • Your name, age, where you live, and confirm that you have or have had Severe M.E.
  • A short summary of your story and experiences: in no more than 200 words. 
  • Attach good quality photographs of yourself that you feel best represents your current circumstances. 
  • Title your email ‘Severe ME Campaign’ and send to: feedback@meassociation.org.uk

Even if your story is not selected as a case study for the press, we hope to be able to share it on our website and social media, in a similar way to the successful Real M.E. campaign and reach beyond our immediate community.

Your feedback about welfare benefits will also be used to help inform continuing discussions with the DWP and Minister of State for Disabled People, Health and Work and the future meetings with Atos, Maximus and Capita that we hope will constructively influence the assessment process. 

Thank you in advance.

The ME Association

Real People. Real Disease. Real M.E.

We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.

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