Dr Charles Shepherd, Hon. Medical Adviser, ME Association
Following the House of Commons chamber debate in January, Carol Monaghan MP has now secured a meeting with Justin Tomlinson – Minister for Disabled People, Health and Work – to discuss problems relating to all aspects of claims and medical assessments for state benefits. I will also be attending this meeting, along with the Countess of Mar.
The ME Association already has a large amount of evidence from our members and supporters that relate to individual benefit problems and we are therefore well aware of all the key issues that need to be raised.
| What would be helpful at this point is to hear of any specific problems (i.e. within the past year or so) that you have had with a claim for employment support allowance (ESA) or personal independence payment (PIP). |
This needs to be in the form of a very short, one or two sentence statement, that can be used during the meeting. The deadline for your comments is Friday, 14th June.
I’ve included some examples below – all of which are problems that we are regularly contacted about:
- My GP said he would charge a fee to provide supportive medical evidence
- I no longer have any contact with doctors – so cannot provide supportive medical evidence
- My request for an assessment at home was refused – I have severe ME and am largely housebound
- The assessment procedure did not ask about several symptoms that would affect my ability to work – e.g. constant pain and flu like feelings
- The small number of points that I scored do not reflect the severity of my condition
You can leave your comments/experiences here on the ME Association website and/or Facebook page, or contact us directly via email (firstname.lastname@example.org) Please respond no later than Friday 14th June and let us know if you are happy for your name to be included.
- If you require help with benefits information, completing applications or preparing for reconsiderations and appeals, then please visit the website shop and review the leaflets that are available
There will not be time unfortunately to raise complex individual problems relating to DWP assessments and appeals at this meeting – so I just need very short, bullet point examples of problems that have been experienced recently.
The ME Association
Real People. Real Disease. Real M.E.
We are a national charity working hard to make the UK a better place for people whose lives have been devastated by an often-misunderstood neurological disease.
If you would like to support our efforts and help ensure we can inform, support, advocate and invest in biomedical research, then please donate today.
Just click the image opposite and visit our JustGiving page for one-off donations, to establish a regular payment or to create your own fundraising event.
Or why not join the ME Association as a member and be part of our growing community? For a monthly (or annual) subscription you will also receive our exclusive ME Essential magazine.
ME Association Registered Charity Number 801279