Monthly Archives: May 2019

ME Awareness: What has changed since my daughter Merryn died from ME? Clare Norton | 05 May 2019

“It is time for egos to be put aside, for the science to be listened to, for patients to be listened to and the Hippocratic Oath to be remembered – first, do no harm.” Clare Norton.

ME Awareness: Bridgwater mum explains how ‘painful’ ME makes her feel like ‘a prisoner’ in her own body | 05 May 2019

“I now live my life mainly housebound. The same four walls day in, day out, drain any positivity you can try and muster.” Hayley Date.

ME Awareness: Social Services Can Threaten Families of Children with Chronic Fatigue | 05 May 2019

“One of the most heartbreaking cases I’ve dealt with was an eight-year-old girl who was forced to have GET. Her parents were told that if they didn’t comply, she’d be taken away,” Dr Nigel Speight.

ME Awareness: Woman with ME says she feels like a ‘100-year-old trapped inside a young person’s body’ | 05 May 2019

“At my worst it didn’t feel like much of a life – just an existence waiting for a cure.” Hannah Grundy.

ME Awareness: ‘Winter Hill’ Film Premiere in ME Awareness Week! | 03 May 2019

“Winter Hill is a personal and powerful documentary short film by filmmaker Lee Gray.” FilmsShort.

Eastern Daily Press: ‘I have a devastating illness, so why do doctors doubt my struggles?’ | 03 May 2019

“All we, the ME community, want is fair treatment and a chance for a future.” Jo Moss

ME Awareness: ‘Just for ME’ A Fast-moving Adventure Story by John Martin | 02 May 2019

John Martin has written 3 children’s books and Just for ME is his first novel. His daughter has suffered from M.E. for 26 years and was his inspiration.

ME Association April Summary of ME/CFS Published Research | 01 May 2019

We’ve updated our central Research Index and feature 15 ME/CFS research studies from April 2019.

MEA Website Survey: What does ME Awareness Week mean to you? | 01 May 2019

What does this special week mean to you? What issues do you believe should be the focus of ME Awareness Week?

Fundraising: Art Auction: Invisible – A New Look At M.E. by Anne Nicholls | 01 May 2019

“My M.E. pictures reflect the experience of so many of us. I want us to be visible. Don’t you?”

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