“It is time for egos to be put aside, for the science to be listened to, for patients to be listened to and the Hippocratic Oath to be remembered – first, do no harm.” Clare Norton.
Monthly Archives: May 2019
ME Awareness: Bridgwater mum explains how ‘painful’ ME makes her feel like ‘a prisoner’ in her own body | 05 May 2019
“I now live my life mainly housebound. The same four walls day in, day out, drain any positivity you can try and muster.” Hayley Date.
“One of the most heartbreaking cases I’ve dealt with was an eight-year-old girl who was forced to have GET. Her parents were told that if they didn’t comply, she’d be taken away,” Dr Nigel Speight.
ME Awareness: Woman with ME says she feels like a ‘100-year-old trapped inside a young person’s body’ | 05 May 2019
“At my worst it didn’t feel like much of a life – just an existence waiting for a cure.” Hannah Grundy.
“Winter Hill is a personal and powerful documentary short film by filmmaker Lee Gray.” FilmsShort.
Eastern Daily Press: ‘I have a devastating illness, so why do doctors doubt my struggles?’ | 03 May 2019
“All we, the ME community, want is fair treatment and a chance for a future.” Jo Moss
John Martin has written 3 children’s books and Just for ME is his first novel. His daughter has suffered from M.E. for 26 years and was his inspiration.
We’ve updated our central Research Index and feature 15 ME/CFS research studies from April 2019.
What does this special week mean to you? What issues do you believe should be the focus of ME Awareness Week?
“My M.E. pictures reflect the experience of so many of us. I want us to be visible. Don’t you?”