“I am devastated to learn of Jen’s passing. There are tears flowing down my face as I type. Jen was such a force for good in our community.” Helen Hyland, ME Association.
Monthly Archives: May 2019
“It is very hard to keep faith in a system which has failed to deliver meaningful support,” Phil Gawne.
Three ME patients reveal the accusations they have endured during their battle with the crippling condition | 24 May 2019
“I strongly believe that if I’d received different treatment from doctors, I would not be as ill as I am today,” Jennifer Chittick
“I want to get better and lead a normal life. I didn’t choose to be ill like this.” Helen Wood.
“Research is the only way to get sufferers back on track and have the life they deserve.” Baz Hornsby
ME Awareness: Teen says teacher’s fake illness claim over ME saw her spiral towards self-harm | 10 May 2019
“You think about the person you could be but can’t. It is almost like losing your personality, losing yourself.” Milly Lowsley.
“This debate helps highlight how existing behavioural approaches and treatments are failing patients.” Carolyn Wilshire.
“Sometimes I feel like M.E. is all I am. But I am also a sister, a friend, a daughter, a partner, a colleague, a graduate and a police officer.” Stephanie.
“I have shied away from anything that would remind me of that time, that illness; and I am absolutely terrified that my children will suffer with it.” Gabby Coles.
ME Awareness: Cambridge woman reveals the truth about living with a debilitating illness | 08 May 2019
“I now have no regular social life to speak off and have lost contact with most, if not all, of my friends from my old life.” Gemma Corvalan.
ME Awareness: Liverpool woman’s honeymoon ruined after “hidden condition” meant she slept through the trip | 08 May 2019
“We kept our vows short, just a quick ‘I do’ really.” Emma Donnelly.
“I’ve had ten years of missing out on so many experiences, but also experiencing (enduring?) more than most people ever will.“ Jennifer Chittick.
“My mind is always foggy – once I forgot my own birthday. If you could feel death, I’d say it is living with this.” Milly Lowsley.
ME Awareness: ‘Hard to cope’ Mum-of-two with chronic fatigue says condition is triggered by her noisy kids | 07 May 2019
“It’s like having flu, tying lead weights to your limbs and attempting to do an Ironman.” Katy Beardsworth.
“My lovely Hanna-Lisa’s energy levels have gradually reduced over time due to her condition and she is now unable to work,” Kristian Legg.
ME Awareness: Fit, football-mad Birmingham mum left unable to make it to the loo after devastating diagnosis | 06 May 2019
“Living with ME is like waking up with the worst flu and hangover combined you’ve ever had in your life, every single day.” Nicola Ingram.
“Sometimes the inevitable pain and fatigue is just the price I have to pay to get things done.” Rog Warner.
Helen is doing the best she can to still live her best life. It can be frustrating, upsetting and overwhelming at times, but she’s trying.
ME Awareness: ‘My daughter, 21, who died weighing 5 1/2 stone, had ME on her death certificate – yet some still say it’s not real’ | 06 May 2019
“A neurologist even said “ME is not a real disease.” The medics made her doubt herself and feel ashamed.” Clare Norton.
“We want to tell the world about the Real People that suffer because of this Real Disease – day after day, week after week, year after year, and in some of the cruellest cases, decade after painful decade.”