Dr Charles Shepherd, Hon. Medical Adviser, ME Association
The 10th edition of the ME Association clinical and research guide for ME/CFS is a thoroughly revised and updated version that can now be ordered from our website shop.
A must-have for anyone who has been affected by ME/CFS
The guide covers symptoms, assessment, diagnosis, illness management, pharmacological treatments and much, much, more. It informs, educates and helps raise awareness of this all too often misunderstood disease.
It directs readers to more detailed ME Association leaflets from our extensive online library, and summarises all relevant published research. And, it also includes over 600 references to key research papers and clinical trial results.
You can now order the 2018 Purple Book via our website shop, or by telephone to head office: 01280 818964 weekdays, between 9.30am and 3.00pm. The cost is £8.00 incl post and packing in the UK.
Everything that health professionals need to know
The ‘Purple Book’ as it has become known, also discusses the very welcome review of the NICE clinical guideline.
And it details all the research, including of the ME/CFS Biobank, that is being funded by the ME Association Ramsay Research Fund.
This 147-page authoritative publication represents the most comprehensive, evidence-based summary currently available and contains everything that health professionals and patients need to know about this devastating neurological disease.
Free copies available…
We still have funds available in our medical education budget to send free copies of the guide to health professionals.
We just need to know their name(s) and surgery/hospital address.
- Contact ME Association Head Office via email,
- Please title the email: ‘MEA Purple Book 2018’, or,
- Telephone: 01280 818964 weekdays, between 9.30am and 3.00pm.
…with accompanying letter
The clinical and research guide will then be sent with an accompanying letter from myself in which I also highlight the ongoing NICE clinical guideline review and our concerns about graded exercise therapy (GET).
In support of the ME Association’s position on GET (i.e. that it should be withdrawn as a recommended treatment from the current NICE guideline), we are also including a copy of the recent letter from Professor Mark VanNess and the Workwell Foundation research group in America.
Comments on both content and presentation of the MEA purple book are always welcome and should be sent for my attention to our head office via email.
You can read extracts from the ‘Purple Book’ on our website in the ‘What is ME?’ section. However, to read the full content, including the extensive research section, you will need to order the full guide.
You might also be interested in the Index of ME/CFS Published Research which we update monthly, and is available as a free download.