The independent re-analysis of the PACE Trial recovery paper emerged from behind the publisher's paywall today – after the ME Association paid US$2,000 for open access to the paper so that academics and clinicians can read it in full.
We used funds in our Medical Education Programme to enable this exercise in transparency to take place.
The analysis was entitled Can patients with chronic fatigue syndrome really recover after graded exercise or cognitive behavioural therapy? A critical commentary and preliminary re-analysis of the PACE trial.
It was written by New Zealand academic Carolyn Wilshire, Irish ME/CFS Association information officer Tom Kindlon, Australian ME/CFS patient Alem Matthees (who mounted a successful legal challenge last year which led to the publication of anonymised data from the PACE Trial) and science writer Simon McGrath.
The full paper – published online in Fatigue: Biomedicine, Health & Behavior on 14 December last year – can now be read using the following link: www.tandfonline.com/doi/full/10.1080/21641846.2017.1259724
A downloadable pdf of the re-analysis paper can be found here: www.tandfonline.com/doi/pdf/10.1080/21641846.2017.1259724?needAccess=true
Thank you MEA for making the payment needed to make this available to all. Will be making it available to my GP – she is kind and helpful, I think she will be pleased to read it. Best wishes from Liverpool!
Thanks again.
Typo: Tom not Tim Kindlon
Lets not forget the PACE trial cost £5 million, how much of that money spent helped people with ME?
How much money were the people with ME such as Tom Kindlon pwme paid for their exceptional service to ME, to provide a critical commentary and re-analyse the PACE trial data?
Thank-you to MEA for allowing open access to this paper which will now be shared with many ‘professionals’ we regularly come across who are still ignorant and uninformed about ME.