International ME/CFS Organisations

 

America

International Association CFS/ME (IACFSME)

Contact:
Address: IACFSME, 27 N Wacker Drive Suite 416, Chicago, IL 60606, USA.
Email: admin@iacfs.net
Website: www.aacfs.org/
Telephone: +(847) 258 7248 or +(847) 579 0975

 

Massachusetts CFIDS/ME & FM Association

Contact:
Address: Massachusetts ME/CFS & FM Association, P.O. Box 690305, Quincy, MA 02269-0305, USA
Helpline: +(617) 471-5559
Website: https://www.massmecfs.org/
Email: https://www.massmecfs.org/contact-us-form

 

New Jersey ME/CFS Association, Inc

Contact:
Address: NJCFSA, PO Box 477, Florham Park, NJ 07932.
Website: https://www.njmecfsa.org/
Email: helpdesk@njcfsa.org

 

P.A.N.D.O.R.A., Inc.

Contact:
Telephone: (231) 360-6830
Email: https://pandoraorg.net/contact
Website: https://pandoraorg.net/home

 

Solve ME/CFS Initiative
(Formerly The CFIDS Association of America)

Contact:
Address: Solve ME/CFS Initiative, 5455 Wilshire Blvd, Ste 1903, Los Angeles, CA 90036-0007
Telephone: 704-364-0016
Email: solvecfs@solvecfs.org
Website: www.solvecfs.org/

 

Australia

Emerge Australia Inc (formerly ME/CFS Victoria)

Contact:
Address: PO Box 120, Prahran, VIC 3181, Australia.
Telephone: (03) 9791 3100 (office), (03) 9791 2199 (support).
Email: information@emerge.org.au
Website: http://www.emerge.org.au

Emerge Australia Inc advocates for, educates about, and provides information on, Myalgic Encephalomyelitis (ME) more commonly known as Chronic Fatigue Syndrome (CFS). Established in 1980, Emerge Australia has been working with people affected by ME/CFS for over 34 years.

We believe that until a cure is found, people affected by ME/CFS can lead better lives by being understood and supported by the medical and general communities. Our role is to make sure that anyone affected by ME/CFS has the access they need to the support, education and advocacy that empowers them to make their lives more liveable.

With members and supporters Australia-wide, Emerge Australia works to improve the quality of life for anyone affected by this debilitating condition.

 

ME/CFS Association of Australia Ltd

Contact:
Address: c/o ME/CFS Victoria, 23 Livingstone Close, Burwood VIC 3125, Australia.
Email: mecfs@mecfs.org.au
Website: www.mecfs.org.au/
Telephone: +(03) 9888 8991 or +(03) 9888 8981

 

ME/CFS Australia (SA) Inc.

Contact:
Address: PO Box 28, Hindmarsh, SA 5007, Australia.
Email: sacfs@sacfs.asn.au
Website: www.sacfs.asn.au/
Telephone: (08) 8346 3237 (Country callers 1300 128 339).
Office hours: Wednesdays 10am-3pm, Adelaide time

 

ME/CFS Society of NSW Inc

Contact:
Address: Suite 305A, Level 3, 282 Victoria Avenue, Chatswood, NSW 2067, Australia.
Email: office@me-cfs.org.au
Telephone: (02) 9904 8433

 

ME/CFS Society of Western Australia

Contact: The Niche, 11 Aberdare Road, Nedlands, Perth, Western Australia 6009.
Email: info@mecfswa.org.au
Website: www.mecfswa.org.au/
Telephone: 08 9346 7477 or 08 9346 7534
Office hours: 11am – 2.00pm on Mondays (except holidays)

The ME/CFS Society of Western Australia has recently launched its new website which we hope adds usefully to both available information and debate regarding ME/CFS. Visitors will note our unequivocal support for the diagnostic definition and treatment philosophy contained in the Canadian Guidelines 2003 and the early demise of the term CFS and its related vague diagnostic criteria and inappropriate treatments.

 

Belgium

ME Vereniging CVS

Contact:
Address: Dorp 73, 3221 Nieuwrode, Belgium.
Telephone: 016 57 09 83
Email: me.vereniging@belgacom.net
Website: www.me-cvs.be/

 

Canada

National ME/FM Action Network

Contact:
Address: 512 – 33 Banner Road, Nepean, ON K2H 8V7, Canada.
Telephone: (613) 829 6667
Email: mefminfo@mefmaction.com

Website: www.mefmaction.net

 

Denmark

ME Foreningen

Contact:
Chairman: Rebecca Hansen Vice chairman: Cathrine Engsig
Address: Rådhustorvet 1, 2.sal, 3520 Farum, Denmark.
Telephone: +45 (0) 4495-9700
Email: sekretariat@me-foreningen.dk
Website: http://me-foreningen.dk/

 

Finland

The Finnish Association of CFS

Contact:
Secretary General: Sanna Pohjaniemi
Telephone: +358 40 969 2237
Email: suomencfs@gmail.com
Website: http://www.cfsmery.fi

 

France

Association Française du Syndrome de Fatigue Chronique

Contact:
Address: ASFC Maison des Associations Nice Centre 3, bis rue Guigonis 06300 Nice France.
Email: contact@asso-sfc.org
Telephone: 04 42 53 05 59 Thursday mornings
Website: http://www.asso-sfc.org/

 

Germany

Deutsche Fibromyalgie-Vereinigung (DFV) e.V.

Contact:
Address: Postfach 1140, 74741 Seckach, Germany.
Telephone: 00 62 92 / 92 87 58 or 00 62 92 / 92 87 61
Email: fibromyalgie-fms@t-online.de
Website: www.fibromyalgie-fms.de/

 

Italy

CFS Italia

Contact:
Email: amministrazione@cfsitalia.it
Website: www.cfsitalia.it/

 

Associazione Malati di CFS Onlus

Contact:
Address: via Luigi Marangoni, 35, 27100 Pavia.
Email: amcfs.onlus@gmail.com

 

Japan

The Japan ME Assocation

Contact:
Address: Saimei-biru 2B, 3-11-12 Takanodai, Nerima-ku, Tokyo, 177-0033 Japan.
Telephone: 81-3-6915-9281
Email: cfsnon@gmail.com
Website: https://mecfsjapan.com/

 

Malta

ME/CFS & Fibromyalgia Alliance (Malta)

Contact: Ruth Debono, President
Address: 15. “Aurora” Flat 2, Triq Madre Tereza, Il-Mosta, MST 2413, Malta.
Email: me.cfs.fmalliance@gmail.com

To act as a support group and advocate for patients with ME/CSF & Fibromyalgia and to help individuals achieve a diagnosis and to offer advice on personal needs.

To participate in the larger network of international organisations of ME/CSF & Fibromyalgia and other patient groups as deemed necessary from time to time.

To promote ongoing public awareness and support professional development in the area of ME/CSF & FM.

 

New Zealand

Associated New Zealand ME Society (ANZMES)

Contact: Debbie Cleland, Administrator/Secretary
Address: P O Box 36-307, Northcote, North Shore City 0748, New Zealand.
Telephone: +64 9269 6374
Email: 
infoanzmes@gmail.com
Website: www.anzmes.org.nz/

 

Norway

Norges ME-forening

Contact: Olav Osland
Address: Norges ME-forening, Nedre Slottsgate 4, 0157 Oslo, Vi holder til i 3. etg.
Telephone: (+47) 21 68 81 50
Email: post@me-forening.no
Website: http://www.me-foreningen.no/

 

South Africa

ME/CFS Foundation South Africa NPC

Contact: Retha Viviers
Address: PO Box 21489, 1733 Helderkruin, South Africa.
Email: info@mecfssa.org
Website:
https://www.mecfssa.org/
Facebook: The ME CFS Foundation South Africa
Twitter: https://twitter.com/mecfs_sa

 

Sweden

Riksforeningen for ME-patienter

Contact:
Address: RME – National Association for ME patients, Mellangatan 1, 413 01 Gothenburg.
Telephone: 031-15 58 99
Email: info@rme.nu
Website: www.rme.nu/