Tag Archives: News

Questions in Parliament: notifiable illness in schools and funding for biomedical research

Parliamentary questions about making ME/CFS a notifiable illness in schools and the level of Government funding for biomedical research into illness in the 2008-9 financial year were answered in the…

XMRV and blood donation – update following letter to the Chief Medical Officer

The ME Association wrote to Sir Liam Donaldson, Chief Medical Officer at the Department of Health, on Tuesday 27 October about XMRV research.  In particular, we raised the situation regarding people with ME/CFS…

Wales health services – new ME/CFS ‘Task and Finish Group’ set up

Edwina Hart, Minister for Health and Social Services in Wales, has set up a "Task and Finish Group" to work on a new framework for NHS services for people with…

MEA statement on retrovirus XMRV and ME/CFS

RETROVIRUS XMRV and ME/CFS:  WHAT DO WE KNOW SO FAR?  AND WHAT DON’T WE KNOW? BACKGROUND   On Friday 9 October, the front page of the UK Independent newspaper carried…

Cross-party pressure for a new Northern Ireland ME/CFS service

The politics to secure a replacement ME/CFS service in Northern Ireland seem to be falling into place following the closure of the Windsor House clinic at Belfast City Hospital in…

Is a virus the cause of fatigue syndrome?

From the New York Times, 12 October 2009 (writer: Denise Grady) A study published last week in the journal Science suggested that might be the case, reporting that many patients…

Eric Smart reaches Adelaide – he’s cycled 14,386 miles to get there

ME Association fundraiser Eric Smart reached Adelaide in south Australia yesterday (Saturday 10 September 2009) – at the end of a 14,386-mile cycle ride from his home town in Aberdeen.

MEA website – four million pages read and counting

Four million pages have been read at this website since we started counting on 7 May 2007. This morning we notched up this figure – while at the same time…

Has science found the cause of ME?

Lead story in The Independent, 9 October 2009, by science editor Steve Connor Scientists say they have made a dramatic breakthrough in understanding the cause of chronic fatigue syndrome –…

ME virus discovery raises hopes

From BBC Online, 9 October 2009 US scientists say they have made a potential breakthrough in understanding what causes the condition known as chronic fatigue syndrome (CFS) or ME.

Our condolences to Gill Briody on the loss of Robin | 24 September 2009

Everyone at the ME Association – staff, trustees and volunteers – have this week been passing on their condolences to Gill Briody on the sad loss of her partner Robin,…

£200 winner in the MEA ‘Great Weather Lottery’

We had a £200 winner in our ‘Great Weather Lottery’ today. Congratulations to Mrs C Nicholson, who also collected one of the more common £2 prizes in the draw– which…

Red sandstorms in Australia – part of cycle trip’s ‘rich tapestry’ for Eric

They’re holding a private disco in Aberdeen this weekend to help replenish the bank balance of Eric Smart, the 44-year-old cyclist who is riding from Aberdeen to Adelaide, Australia, in…

Northern Ireland’s only ME clinic closes down

From BBC News online, Friday 18 September 2009 The only treatment centre for ME sufferers in Northern Ireland has closed down.

Summary of MEA Board of Trustees meetings held on 7th and 8th September 2009

This is a summary of key points to emerge from two meetings of The ME Association Board of Trustees. These meetings took place at our Head Office in Buckingham on…

ME Association join in 9/11 commemoration event

Pictured: BGC trader Tim Cross with MEA medical adviser Dr Charles Shepherd (left) and our chairman Neil Riley. Photo by Charlie Gray. The ME Association joined in a commemoration of…

Dr Betty Dowsett – progress report and Happy Birthday!

Vivienne Mills, from the Colchester ME Support Group, recently visited Dr Betty Dowsett in her Nursing Home.

Announcement from the Swedish National Association for ME patients about a treatment for ME/CFS

The ME Association has been discussing this immunological treatment, and ways of advancing this research, with Professor Lars Lagerstrand (Karolinska University Hospital, Stockholm) and he has asked if we could…

Minutes of the Medical Research Council expert panel on ME/CFS – 15 December 2008

The minutes of the first meeting of the Medical Research Council’s expert panel on ME/CFS have now been published on the MRC’s website. The meeting was held on 15 December…

Inside our ME Essential magazine – Autumn 2009

The Autumn 2009 edition of ME Essential magazine – delivered to all members of the ME Association – has Amazon adventurer Ed Stafford on the front cover. He’s raising money…

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