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Long Covid: ‘Cytokine Storm’

What is a ‘cytokine storm’? I keep reading about this in relation to COVID-19. Is it related to the cytokine abnormalities that have been found in ME/CFS? And could it help to explain why some people are developing Long COVID, which seems to have very similar symptoms to ME/CFS.

Long Covid: ‘Cytokine Storm’ Read More »

What is a ‘cytokine storm’? I keep reading about this in relation to COVID-19. Is it related to the cytokine abnormalities that have been found in ME/CFS? And could it help to explain why some people are developing Long COVID, which seems to have very similar symptoms to ME/CFS.

Prevalance: Population Estimates

The MEA always uses a figure of around 250,000 when you refer to the number of people in the UK who have ME/CFS. But where does that figure come from? And how accurate is it?

Prevalance: Population Estimates Read More »

The MEA always uses a figure of around 250,000 when you refer to the number of people in the UK who have ME/CFS. But where does that figure come from? And how accurate is it?

The News Media

I appreciate all the work that you are doing in getting stories about ME (and Long COVID) into the media. But please could you do something about the headlines and photographs that are used to accompany these items, and some of ’the facts’ about ME that are often boxed into these items. For example, the BBC news item that I’ve just been watching on the overlap with Long COVID has a slide covering common ME symptoms – the top one being ‘extreme tiredness’. This is not helping to educate the public about ME!

The News Media Read More »

I appreciate all the work that you are doing in getting stories about ME (and Long COVID) into the media. But please could you do something about the headlines and photographs that are used to accompany these items, and some of ’the facts’ about ME that are often boxed into these items. For example, the BBC news item that I’ve just been watching on the overlap with Long COVID has a slide covering common ME symptoms – the top one being ‘extreme tiredness’. This is not helping to educate the public about ME!

Symptom: Sore Throat

Like many people with ME I have more than my fair share of sore throats – sometimes accompanied by enlarged neck glands. I’ve read the MEA guidance on the self-help management of sore throats and I know that there’s usually no point in going to the doctor to ask for antibiotics. But having had a really nasty attack this winter, which did result in my GP prescribing a course of antibiotics, it would be helpful if you could clarify when we do need to consult a doctor.

Symptom: Sore Throat Read More »

Like many people with ME I have more than my fair share of sore throats – sometimes accompanied by enlarged neck glands. I’ve read the MEA guidance on the self-help management of sore throats and I know that there’s usually no point in going to the doctor to ask for antibiotics. But having had a really nasty attack this winter, which did result in my GP prescribing a course of antibiotics, it would be helpful if you could clarify when we do need to consult a doctor.

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