Contact details for the services appear below. Please remember that, while patients can contact any of the services for information, referrals for assessment, diagnosis and treatment must be made by your GP or the professional responsible for your health care.
The details given below could change at any time, and the management regimes vary from place to place. The ME Association tries to keep the contact information up-to-date but we cannot be held responsible for the consequences of any inadvertent errors or delays in updating this information.
If you spot any mistakes or wish to notify us of any omissions, please email us
The ME Association is collecting feedback on these services and we welcome comments from people who have been referred for either diagnosis or management. In the meantime, if you require further information on what sort of approach is being taken at a specific clinic you could approach the service direct or contact a local ME group.
CLINICAL NETWORK COORDINATING CENTRES
There are 11 Clinical Network Coordinating Centres (CNCCs) across England – championing the development of services and improved clinical care in their area. Each CNCC has an individual, named clinical champion or network co-ordinator. Advice to patients, GPs and carers about services is available from the Network Co-ordinator at each centre.
(North of Tyne, South of Tyne, Teesside, Durham and Darlington, Cumbria North).
Clinical champion: Dr Gavin Spickett, consultant clinical immunologist, The Newcastle upon Tyne Hospital NHS Trust, Royal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne NE1 4LP. Network co-ordinator: Louise Wilson, tel: Tel: 0191 217 2615, email: email@example.com
North, East and West Yorkshire
Clinical champion: Dr Hiroko Akagi, Consultant Liaison Psychiatrist, Leeds and West Yorkshire CFS/ME Service, Therapy Suite, First Floor, Newsam Centre, Seacroft Hospital, York Road, Leeds LS14 6WB, tel: 0113 305 6330.
Liverpool and Merseyside
Clinical champion: Dr Alistair Miller, consultant physician, Tropical and Infectious Diseases Unit, Royal Liverpool University Hospital. Tel: 0151 706 3836 Email: firstname.lastname@example.org
South Yorkshire and North Derbyshire
Fairlawns, Middlewood Primary Health Care Centre, 621 Middlewood Road, Sheffield S6 1TT.
Service manager and lead occupational therapist: Anne Nichol. Tel: 0114 229 2937 Fax: 0114 229 2922
Network co-ordinator: Rehabilitation, Level 1, Royal Derby Hospital, Uttoxeter Road, Derby DE22 3NE. Tel: 01332 786657
North London/Essex/Sussex and Hertfordshire
Joint clinical champions: Professor Peter D White, Professor of Psychological Medicine at Barts and the London School of Medicine and Dentistry, and Dr Maurice Murphy, consultant in immunology and HIV medicine.
ME/CFS Service, St Bartholomew’s Hospital, P O Box 8108, William Harvey House, 61 Bartholomew Close, London EC1A 7BE).GPs refer to Pat Baker, tel: 020 3465 5974, other enquiries to Pauline Stone, tel: 020 3465 6941).
South West London/Surrey (Sutton)
Clinical champion: Dr Amolak Bansal, Department of Immunology, St Helier Hospital, Wrythe Lane, Carshalton, Surrey SM5 1AA. Tel: 0208 296 4152
Dorset/Hampshire and Isle of Wight
Clinical champion: Dr Selwyn Richards, consultant rheumatologist, Poole Hospital NHS Trust, Longfleet Road, Poole, Dorset BH15 2JB). Tel: 01929 557560
Avon, Wiltshire, Gloucestershire, Somerset
Clinical champion: Dr Hazel O’Dowd, clinical psychologist, Sherston Building, Southmead Hospital, Southmead Road, Westbury-on-Trym, Bristol BS10 5NB. Tel: 0117 414 7365.
South London and Maudsley NHS Trust
Chronic Fatigue Research and Treatment Unit, Mapother House, De Crespigny Park, London SE5 8AZ. Tel: 0203 228 5075. Fax: 0203 228 5074
Our multidisciplinary team includes psychiatrists, psychologists, physiotherapists, psychotherapists, doctors and researchers. Director: Professor Trudie Chalder. We offer evidence-based treatment that is routinely evaluated. Our aim is to increase the person’s functioning and reduce the severity and impact of their symptoms. We also offer assessment and treatment for people with fatigue associated with chronic diseases like rheumatoid arthritis, multiple sclerosis, HIV or cancer. We offer diagnostic specialist assessment, routine blood tests, CBT and Graded Exercise Therapy Eligibility: 10+ years (we work in conjunction with our child and adolescent service), long lasting fatigue, profound disability, disturbed sleep pattern. We accept referrals from consultant psychiatrists, community mental health teams, CAMHS, GPs and GP consortia from all over the UK apart from those areas which have their own local adult services.
Royal Free Hospital
The Fatigue Service, Department of Infection and Immunity, Royal Free Hospital, Pond Street, London NW3 2QG. Tel: 020 7599 1712
Consultant: Dr Gabrielle Murphy (part-time).
Areas covered: Barnet, Camden, Enfield, Haringey and Islington.
Royal London Hospital for Integrated Medicine
Adult Chronic Fatigue Service, Royal London Hospital for Integrated Medicine (formerly the Royal London Homeopathic Hospital), 60 Great Ormond Street, London WC1N 3HR. Tel: 020 3448 2000/2001/2002 Fax: 0203 448 2004.
Consultants: Dr Saul Berkovitz, Dr Helmut Roniger and Dr Christian Hasford.
This is the adult service for University College Hospital, London as a whole. Although physically based within the RLHIM, it is not a homeopathic service but offers all interventions recommended by the National Institute for Health and Clinical Excellence in their ME/CFS Guideline – including consultant physician assessment, activity management, exercise and psychological interventions including medical hypnosis, autogenic training and CBT. Clinical lead: Dr Saul Berkovitz. The team consists of three consultant physicians, a senior nurse practitioner, occupational therapist, physiotherapist and dietitian. The team also can advise on appropriate complementary medicine interventions and, in some cases, provide them – such as acupuncture for chronic widespread muscle pain. Referrals through the patient’s GP or NHS hospital consultant]
St Bartholomew’s Hospital
The Chronic Fatigue Syndrome/ME Service, William Harvey House, 61 Bartholomew Close. London EC1A 7BE (see information under ‘Clinical Network Coordinating Centres’).
For referrals, tel: 0203 465 5974. For network/web inquiries, tel: 0203 465 6941.
(for people living in North London, Essex, Sussex and Hertfordshire).
Hillingdon Hospital, Uxbridge
Greenacres Centre, Hillingdon Hospital, Field Heath Road, Uxbridge UB8 3NB, tel: 01895 279 374/049
Service administrator: Renuka Mahabeer.
Referrals are accepted from GPs and NHS specialists for people living in the London boroughs of Hillingdon, Harrow, Hounslow, Hammersmith & Fulham, Ealing, Brent, Kensington & Chelsea and Westminster. The service is centrally funded so GPs and other referees are not charged for making the referrals.
Bath and Wiltshire
Bath Centre for Fatigue Services (formerly known as Adult Fatigue Management or Bath and Wiltshire CFS/ME Service), Royal National Hospital for Rheumatic Diseases, Upper Borough Walls, Bath, Somerset BA1 1RL.Tel: 01225 473456 Fax 01225 473411 Email: email@example.com
Our ME/CFS service provides a local, regional and national service for adults with ME/CFS and acts in a specialist advisory capacity for professionals working with adults with the condition. We are a specialist team committed to delivering evidence-based quality services for people with fatigue. All treatment plans are agreed jointly with our patients based on their individual needs. We work closely with service users to review, develop and deliver our services. We currently have eight service users as expert educators who input to our group treatment programmes. Our service provides specialist assessment clinics and treatment based on the National Institute for Health and Clinical Excellence (NICE) guidelines for the management of ME/CFS. We provide group programmes or individual sessions if required.
Bedfordshire and Luton
The Disability Research Centre, Poynters House, Poynters Road, Dunstable, Bedfordshire LU5 4TP
This is a pilot service – established within wider neurological services – and was opened in April 2013. New patients attend for assessment on Thursdays. The service is provided for adult patients (16+) who have already been diagnosed with ME/CFS or have a suspected diagnosis of ME/CFS.
The service’s web page reads:
NICE recommends Graded Exercise Therapy (GET) and Cognitive Behaviour Therapy (CBT) as treatments of choice for chronic fatigue syndrome. This is based on the available evidence to date from randomised controlled research trials (RCT’s). There may be lots of other recommendations which can be found online or from other sources, but for now, these are the only treatments with enough evidence behind them to warrant the NHS providing them. Our team may recommend a combination of both recommended treatments or a course of either one. A course of treatment is typically 12-20 sessions.
Prior to participation in graded exercise therapy a full assessment will be undertaken by our physiotherapist.
In addition to these treatments, where appropriate, our occupational therapist will carry out an assessment of individuals’ functional ability in relation to their self-care, home and work environments; offering practical advice and interventions to improve daily function and support individuals to work towards their goals. Occupational interventions may include work rehabilitation, improving community access and increasing leisure/social activities.
If there are any needs that fall outside of our treatment capabilities we coordinate referral to the appropriate services, in order to offer individuals a streamlined service. We are continuing to work on building links with other service providers, and already work closely with agencies that offer nutritional and financial advice.
Bolton and Bury
The Breightmet Health Centre, Breightmet Fold Lane, Breightmet, Bolton BL2 6NT, tel: 01204 462 765, fax: 01204 462 768.
Principal service lead: Simon Crozier. Manager: Michelle Wardle.
The appointments are at Breightmet Health Centre if in Bolton or the Prestwich Walk-In Centre if you live in Bury.
The aim of the service is to offer group and individual therapy and a domiciliary service for the housebound, in Bury and Bolton.
Principal service lead: Simon Crozier. Manager: Michelle Wardle.
Birmingham and Solihull
Queen Elizabeth Hospital, The Barberry, 35 Vincent Drive, Edgbaston, Birmingham B15 2FG.
Tel: 0121 301 2280. Email: firstname.lastname@example.org
The service, led by a consultant neuropsychiatrist, offers diagnosis and rehabilitation programme mostly delivered by occupational therapists and specialist nurses.
Bristol, North Somerset and Gloucestershire
Sherston Building, Southmead Hospital, Southmead Road, Westbury-on-Trym, Bristol BS10 5NB. Tel: 0117 414 7365.
The service is led by Dr Hazel O’Dowd, a clinical psychologist, who is also the regional clinical champion for ME/CFS.
The Local Multidisciplinary Team (LMDT) based here includes Occupational Therapists, Physiotherapists, Clinical Psychologists, a Counsellor, and a Specialist General Practitioner. The LMDT offers an outpatient service to people living in Bristol, North Somerset, and Gloucestershire. We offer a combination of telephone and face-to-face contact, and a telephone counselling service is available for people who have been assessed by the Service. Part of our role will be to advise and support other Health Care Professionals in the clinical management of people with this condition. The Service is part-time, running on a Tuesday and Wednesday and can be contacted on those days.
Buckinghamshire Chronic Pain and Fatigue Management Service, Rayners Hedge, Croft Road, Aylesbury, Bucks HP21 7RD, tel: 01296 393319 (ext 24). Fax: 01296 392480. Email: email@example.com
Clinical lead: Dr John Pimm, consultant clinical neuropsychologist. Interdisciplinary service offering cognitive behaviour therapy, graded exercise therapy and self-management outpatient programmes looking at physical, practical and psychological strategies for managing ME/CFS. The service has been running for 10 years. Referrals need to come through a medical practitioner or allied health professional e.g. GPs, hospital consultants, physiotherapists. If people live outside the area then out-of-area funding needs to be applied for.
Cambridgeshire and Peterborough
Botolph Bridge Community Health Centre, Sugar Way, Woodston, Peterborough PE2 9QBTel: 01733 774583
Nurse specialist: Barbara Boyden
This service is based in Peterborough but we understand efforts are being made to open another clinic in the Cambridge area.
There are no specialist ME/CFS services in Cheshire.
Cornwall and Isles of Scilly
ME/CFS Service, Wellbeing Centre, Royal Cornwall Hospital, Truro, Cornwall TR1 3LJ, tel: 01872 252 935 fax: 01872 256401, email: firstname.lastname@example.org
Clinics in Truro, Bodmin, Camborne/ Redruth, Helston, Penzance, Stratton and Liskeard.
The service offers an outpatient and community-based service for patients from the age of 16 who are suspected of having CFS/ME. It provides diagnosis, assessment, and a clinical management plan to enable long-term rehabilitation, sharing care with the GP and returning the patient to primary care following re-enablement. The team – led since April 2010 by occupational therapist Carol Wilson – comprises four occupational therapists, clinical health psychologist Dr Cristina Lopez-Chertudi and two GPs with a special interest.
Services for children: There is a separate service for children and young people affected, run within paediatrics, up to the age of 18. Transition is managed jointly.
Update provided by service manager on 16 December 2014: Cornwall & IoS CFS/ME Service has been commissioned by NHS Kernow to provide NICE Evidenced therapeutic interventions for children under 16. Medical care of these patients is with the Pediatrician involved. All referrals for this pathway must come via a Pediatrician to the Adults (over-16) Service at RCHT.
North Cumbria CFS/ME Service, Keswick Community Hospital, Crosthwaite Road, Keswick, Cumbria CA12 5HP.
Tel: 01768 724699 Email:email@example.com
The service is led by Dr Gavin Spickett, Consultant Immunologist and CFS/ME Clinic Champion for the North of England.
The Therapy Team comprises Heather Garry (Occupational Therapist), Stephen Atkinson (Physiotherapist), and Anne Smith (Administrator).
We offer initial medical assessment with Dr Spickett. Therapy clinics are held in Keswick, and once a month in Carlisle.
Cumbria (South) – See entry for Lancashire and South Cumbria
Tel: 01332 786657
Clinical lead: Bozena Smith, occupational therapist, Rehabilitation Centre, Royal Derby Hospital, Uttoxeter Road, Derby DE22 3NE.
Exeter and East, Mid and North Devon ME/CFS Service
The Arlington Centre, Whipton Hospital Site, Exeter EX1 3RB
Service cordinator: Julie Lawry, tel: 01392 208614.
The team comprises two consultants, Dr Mike Jeffrys and Dr Sean Lynch, three occupational therapists and the co-ordinator.
South and West Devon ME/CFS Service
Torbay Care Trust, Castle Circus Health Centre, Abbey Road, Torquay TQ2 5YH Tel: 01803 217721
Fax: 01803 217799
Team members: Lyn Hunter consultant Occupational Therapist and service lead clinician; Kirsty Penman, specialist Occupational Therapist and deputy service lead; Dr Jo Gosling and Dr Isabel Ewart, Clinical Psychologists; Dr Robert Gardner, GP with a special interest. There is also physician support in clinical immunology, endocrinology, and liaison psychiatry. GP referrals only from Plymouth, South Hams and West Devon, Teignbridge and Torbay.
Tel: 01929 557560
This service is provided through an outpatient clinic at Wareham Community Hospital, Streche Road, Wareham, Dorset BH20 4QQ. The service – which has been suported throughout by the Dorset ME Group – celebrated its tenth anniversary in 2009. The clinical lead is Dr Selwyn Richards, a consultant rheumatologist.
Durham and Darlington
CFS/ME Service, Merrington House, Merrington Lane, Spennymoor, County Durham DL16 7UT, Tel: 01388 825700 Fax: 01388 819718 Email: cd-pct.CFSME@nhs.net
The service only accepts referrals from GPs in Durham and Chester-le-Street, Derwentside, Dales, Darlington, and Sedgefield.
Managed from Southend Hospital NHS Foundation Trust, Prittlewell Chase, Westcliff on Sea, SS0 0RY, with most of the therapy services being provided at The Tyrells Health Wing, Benfleet, Essex.
Service administrator: Jenny Livemore. Tel: 01702 385 247 Fax: 01702 385 904
This service offers a consultant assessment for diagnosis, and therapy services including Graded Exercise, Pacing and Activity Management and CBT. These sessions are available at Colchester Primary Care Centre, Broomfield Hospital in Chelmsford and in Harlow. Access to the service is via GP referral.
Essex: Queen’s Hospital, Romford
Tel: 01708 504147
There is a weekly NHS outpatient clinic – for new patients only – at the Queen’s Hospital. Funding must be obtained by the referring GP. At the moment, Outer North East London PCT is not agreeing funding but it is hoped that this will change in the near future. GPs should address referrals to Dr A Chaudhuri. Professor L J Findley is seeing follow-up patients only at a monthly clinic.
Hampshire and the Isle of Wight
The NHS service in Southampton closed in April 2014. An NHS referral service, South Coast Fatigue (see below), is now taking referrals for mild to moderately ill patients from Hampshire at least until the end of March 2015.
South Coast Fatigue
South Coast Fatigue, Lancaster Court, 8 Barnes Wallis Road, East Segensworth, Fareham, Hampshire PO15 5TU. Tel: 01489 668 109 Email: firstname.lastname@example.org.
Director and Specialist Occupational Therapist, Fran Hill.
This is an NHS referral service offering an Interim NHS Mild to Moderate Outpatient Service to patients in West Hampshire, Fareham and Gosport, Southampton City, North Hampshire and South Eastern Hampshire. This interim service is being offered until the end of March 2015 when Fran Hill hopes there will be a new procured service in place. GPs can refer directly to South Coast Fatigue and all surgeries have a copy of the referral form. At present, once the referral has been received and screened, the pathway starts with a telephone assessment followed by a face-to-face consultation, then a mixture of telephone reviews and face-to-face appointments to go through the programme.
As part of the interim service, people can access Mindfulness Groups and Physio and dietician sessions.The Isle of Wight is not part of this interim arrangement so the service has to advise people to ask their GP to apply for an Individual Funding Request.
The service also has a bespoke severe service which is for people who are house/bedbound and this has to be applied for via an IFR which the GP does.
Portsmouth Chronic Fatigue Syndrome Service
The Beeches, St James Hospital, Locksway Rd, Portsmouth, Hampshire, PO4 8LD
Administration supervisors: Caroline McKeever and Kerry Pritchard.
The Chronic Fatigue Syndrome service offers treatment programmes for people diagnosed with Chronic Fatigue Syndrome or Myalgic Encephalomyelitis (ME). This is a community-based service for adults aged 16 years and over. The team consists of a Specialist Practitioner and an Occupational Therapist. The service offers assessments to help GPs confirm diagnosis and treatment programmes aim to improve the self-management of symptoms, increase functioning and improve quality of life.
Harrogate, North Yorkshire
CFS/ME service, Briary Wing, Harrogate District Hospital, Lancaster Park Road, Harrogate HG2 7SX.
Tel 01423 553526 Fax: 01423 553586.
Julie Robinson, occupational therapist (Team Leader).
The service was set up by North Yorkshire and York Primary Care Trusts and covers Harrogate, Ripon, Skipton and surrounding areas. It hopes to expand in the future.
Hertfordshire CFS/ME service, Maple Therapy Unit, St Albans City Hospital, Waverley Road, St Albans Hertfordshire AL3 5PN Tel: 01727 897542
Hull and East Yorkshire
Tel: 01482 675376 Email: email@example.com
Contact Gill Paddock, Department of Psychological Medicine, 220-236 Anlaby Road, off Gladstone Street, Hull HU3 2RW.
This is a multi-disciplinary service for adult clients with a diagnosis of Chronic Fatigue Syndrome (CFS) in Hull and the East Riding. The team’s consultant physician is based at Hull Royal Infirmary and the therapy aspect of the service is based at the Department of Psychological Medicine. The team consists of a consultant physician, a consultant psychiatrist, two chronic fatigue therapists, physiotherapy services and a secretary. The service provides assessment, treatment, education and information for clients with a diagnosis of CFS. The team aims to enable the service user to manage their symptoms independently and improve their own quality of life through the use of evidence-based interventions including pacing and graded activity, occupational therapy, cognitive behavioural therapy, cognitive analytical therapy, mindfulness techniques and physiotherapy.
Isle of Man
Community Health Centre, Westmoreland Road, Douglas (The old Noble’s Hospital site). Therapist-led service set up in 2007.
Kent and Medway
George Villa, Hermitage Lane, Maidstone ME16 9PH, and satellite clinics in the west of Kent.
Tel: 01622 723816
Clinical lead: Dr Mario Vergara-Williamson, consultant clinical psychologist and pain management specialist. Other professionals include: Consultant physician, CBT Therapist, Occupational Therapist. The service comes under the umbrella of the St Bartholomew’s Hospital Clinical Network Coordinating Centre.
Lancashire and South Cumbria
Minerva Health Centre, Lowthorpe Road, Deepdale, Preston PR1 6SB. Tel: 01772 777022
Lancashire (Ashton, Wigan and Leigh)
ME/CFS Service, Golborne Clinic, Lowton Road, Golborne WA3 3EG, tel: 01942 483 680, fax: 01942 483 679.
Team members: Dr Tarek Gaber, consultant in rehabilitation medicine; Wilma Hudson, occupational therapist/team lead; Danielle Cooper, occupational therapist; Mary Derbyshire, therapy assistant; Donna Millard, team administrator.
Leeds and West Yorkshire
Leeds and West Yorkshire CFS/ME Service, Therapy Suite, First Floor, Newsam Centre, Seacroft Hospital, York Road, Leeds LS14 6WB, tel: 0113 855 6361, email: firstname.lastname@example.org
Service lead: Dr Hiroko Akagi, liaison psychiatrist.
Clinical lead: Deborah Taylor, occupational therapist.
Disciplines of other team members include a GP with Special Interest, Dietetics, Occupational Therapy, Physiotherapy, Cognitive Psychotherapists and Nursing.
The service has been running since the early 1990s jointly between medical and rehabilitation specialists together with liaison psychiatry – enabling us to offer a holistic assessment of individuals and treatment that takes into account individual needs as far as possible. The medical component has moved from Infectious diseases to Immunology and currently resides with a GP.
Patients referred to the service are asked to have had their initial medical assessment and investigations carried out through their own GP to exclude other causes for chronic fatigue and other symptoms. Following an initial assessment in this service, the treatment options will be discussed with the person where the diagnosis is confirmed. This includes : group programmes covering sessions on understanding the condition, treatment approaches to manage the condition and aim for improvement; or individual sessions tailored to cover the areas most relevant to the person.
We may also offer further assessment within our team where the person’s difficulty is more complex, in order to ensure that we take into account as much of the person’s individual needs and strengths in planning treatment.
For outpatients, we currently have arrangements to see patients from Leeds and West Yorkshire from the age of 16 upwards. We see a number of other patients from a wider area across the country where the referral is supported by their GP and Clinical Commissioning Group. We offer some follow-up appointments by telephone or video conferencing where possible.
For those more severely affected patients who are unable to attend as outpatients, we provide assessment and treatment at home, providing home is within 30 miles of Seacroft Hospital, Leeds. We will request in depth information about the person’s difficulties beforehand from their GP, patient questionnaire and carer, before planning the length and format of contact, to ensure that the approach is individualised.
We run Supporters Events where family members and friends as well as patients are invited to a half-day event covering common issues such as understanding of the condition and impact on families, which have been fully subscribed and highly-rated by the attendees. We offer an extensive range of resources for self-management to supplement our evidenced-based treatment approaches covering sleep strategies, mindfulness, CBT and living better with pain. We are also encouraging some past patients and experts through experience to get involved in service developments and group work.
We are collaborating in research into the condition and treatment approaches. Currently, we are recruiting for a project exploring the immunological mechanism underlying fatigue (funded by ME Research UK) and evaluating the quality of the service (NIHR funding for Simon Collin from National Outcome Database).
Leicestershire and Rutland
Referrals are currently being directed to the Brandon Unit at Leicester General Hospital, where the clinical lead is Dr Trevor Friedman, a liaison psychiatrist: Brandon Unit, Gwendolen Road, Leicester LE5 4PW, tel: 0116 225 6193 (As at December 2012, we are informed that it was agreed that patients with M.E. were to be dealt with via neurology at the Leicester Royal Infirmary but that there are no current services available there. We suggest that patients discuss the services available with the local support group in the area – click on this link to find our local support group contacts page.)
Chronic Fatigue Syndrome/ ME Team, Grantham Hospital (14a) 101 Manthorpe Road, Grantham, Lincs NG31 8DG. Tel: 01476 464046 Fax: 01476 464889 Email: alison.taylor2@ULH.nhs.uk
Clinical lead: Lynsey Woodman, occupational therapist. Other team members: Anne Cossins, physiotherapist; Shelley McGill, senior rehabilitation assistant; Bridget Goard, assistant psychologist. The service sees severe and very severe sufferers in their own homes, but the waiting time for the first appointment is about 18 months. View Lynsey Woodman’s presentation to a trust public meeting in Boston on 19 August 2013 by clicking HERE.
Liverpool Chronic Fatigue Syndrome Service, Ward 10, Alexander Wing, Broadgreen Hospital, L14 3LB. Tel: 0151 282 6185. Fax: 0151 282 6188. Clinical lead: Dr Alistair Miller, consultant physician, Tropical and Infectious Diseases Unit, Royal Liverpool University Hospital. Email for Dr Miller: email@example.com
A service for adults with ME/CFS is being developed and co-ordinated in East Manchester. The service is offered to Stockport Primary Care Trust, Oldham Primary Care Trust and NHS Manchester. The multi-disciplinary team aims to: promote early diagnosis and appropriate management of ME/CFS; provide assessment, management advice and support to patients aged 16-65 empowering them to self-manage their illness; tailor treatment to individual needs using a variety of methods including cognitive behavioural therapy, graded activity, physiotherapy and psychological therapy; provide a home-visiting service where appropriate; support carers, partners and parents; offer a specialist resource to other health professionals. The team is managed by Cheryl Madeley and includes a co-ordinator (Grace Higgins), an OT and mental health practitioner (Penny Young), another OT (Kate Reed), a physiotherapist (Tina Betts), a specialist nurse (Una McLoughlin) and a second administrator (Wendy Morse). In 2011, Grace Higgins was named as NHS Stockport’s ‘Employee of the Year’ for her work developing networks to support this service.
Contact: The Administrator, CFS/ME Service, 9th Floor, Regent House, Heaton Lane, Stockport SK4 1BS
Tel: 0161 426 5481.
The Tees ME/CFS Specialist Service
This is based in the Centre for Clinical Infection, The James Cook University Hospital, Middlesbrough TS4 3BW. The main switchboard number is 01642 850850. The service has been funded to offer active rehabilitation to all Tees patients with a medical diagnosis of ME/CFS. There are three Consultant Physicians (Infectious Diseases) who lead a small team of a Specialist Nurse, Clinical Physiotherapist and Clinical Psychologist. The service has dedicated webpages offering service and patient information, referral guidance for GPs and rehabilitation advice for health professionals, patients and the public to access at any time (click on the highlighted link above to red them).
Norfolk and Suffolk
GP referrals to ME/CFS Service, Herbert Matthes Block, Northgate Hospital, Northgate Street, Great Yarmouth, Norfolk NR30 1BU. Fax: 01493 809970. Senior Occupational Therapist: Jo Wiggins.
Clinics at: Kirkley Mill Healthcare Centre, Lowestoft; Nelson Medical Centre, Great Yarmouth; Bowthorpe Medical Practice, Norwich; Patrick Stead Hospital, Halesworth; Stow Lodge, Stowmarket; St James Medical Practice, Kings Lynn.
We offer an outpatient service throughout Norfolk and Suffolk, providing assessment, diagnosis, management, advice, education and support for people who have a diagnosis of CFS/ME. The team comprises of GP’s with specialist interest (GPwSI) and knowledge of CFS/ME and Specialist Occupational Therapists (OT) and physiotherapists (PT) who are supported by administrative staff. This is via face to face appointments, email and telephone. In a small number of cases, home visits.
North West Fatigue Clinic
North West Fatigue Clinic 55-57, Garstang Road, Preston, Lancashire PR1 1LB Tel: 01772 285155 email: firstname.lastname@example.org
Directors & Specialist Occupational Therapists: Joanne McLoughlin & Lesley Pickering
This service provides assessment and treatment programmes for people over 18 years with Chronic Fatigue Syndrome CFS/ME based on the National Institute for Health and Clinical Excellence (NICE) guidelines for the management of CFS/ME. With an emphasis on self-management, patients are taught strategies and techniques aiming to manage and reduce their symptoms. The evidence-based interventions used include activity management, pacing, flexible graded exercise, fatigue management, sleep hygiene, relaxation techniques, goal setting and managing setbacks, using a cognitive behavioural therapy approach.
The service is mainly for outpatient appointments as group programmes or individuals sessions, but community visits may be possible on request. The service offers assessments to help GPs to confirm a diagnosis of CFS/ME, and education and information seminars for both health professionals and patients. The team consists of occupational therapists, clinical psychologists and physiotherapists. Please send a self-referral via our website: www.northwestfatigueclinic.co.uk or telephone 01772 285155.
North Yorkshire (excluding Harrogate)
Yorkshire Fatigue Clinic, Business Centre , Tower Court, Clifton Moor, York, YO30 4XL
Tel: 01904 557148 e:mail: email@example.com Clinical Lead: Dr Sue Pemberton, Occupational Therapist. Other team members: Joe Bradley and Kelly Morgan, Occupational Therapists.
This is a specialist NHS-referral rehabilitation service for adults and young people over 13 years old. There is an outpatient clinic based in York and the service also provides home-based rehabilitation for severely affected and those unable to travel. The service is provided on the NHS to Vale of York, Scarborough, Rydale, Hambleton, Richmondshire and Whitby areas. Referrals for other areas may be accepted with prior agreement from the local Clinical Commissioning Unit. Arrangements can be made for Immunology, dietetic and psychology involvement if needed.
Tel: 0115 969 1169 (ext 59878) or 0115 993 6628
Nottingham CFS/ME Service, Mobility Centre, Hucknall Road, Nottingham NG5 1PJ.
Service lead: Sue Brennan, occupational therapist.
George Eliot Hospital, College Road, Nuneaton, Warwickshire, CV10 7DJ.
Tel: 024 7686 5212
ME/CFS service clinic days, Friday afternoons. Waiting time for initial appointment, 13 weeks. Lead clinician, Dr Vinod Patel, with multi-disciplinary team comprising occupational therapist, physiotherapist, nurse and psychologist. Dr Patel is a consultant physician in diabetes and endocrinology and Reader in Clinical Skills at Warwick Medical School. To read an interview with Dr Patel conducted in 2010 for the ‘ME Positive’ online newsletter, click HERE.
Oxfordshire CFS/ME Service
Office only: Orchard Health Centre, 5A Cope Road, Banbury OX16 2EZ
Tel: 01295 819191 Fax: 01295 819111 Email: firstname.lastname@example.org
Team members: Hilly Quigley and Rachael Rogers, Specialist Occupational Therapists; Glenwys Wormald, Specialist Physiotherapist; Dr. Jean Bailey, GP with special interest in CFS/ME; Hélène Bush, administrator. Referrals should be made through GPs.
Oxford University Hospitals Fatigue Service, Churchill Hospital, Old Road, Headington, Oxford OX3 7LE.
Tel: 01865 225218
Members of the team: Dr Daniel Zahl, clinical psychologist; Dr Charlie Winward, clinical specialist physiotherapist. The therapists offer NICE (National Institute for Health and Clinical Excellence) recommended treatment for ME/CFS. These are Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT). These treatments focus on helping you to develop the tools to overcome your difficulties.
Peterborough and Cambridgeshire
Tel: 01733 774583
Nurse specialist: Barbara Boyden
Botolph Bridge Community Health Centre, Sugar Way, Woodston, Peterborough PE2 9QB
In Salford, the ME/CFS Service comes under the wing of the Department of Endocrinology at Salford Royal Hospital and can be reached on this phone number 0161 206 5153.
The address is CFS Service, Department of Endocrinology, Salford Royal NHS Foundation Trust, Stott Lane, Salford M6 8HD.
Sheffield (South Yorkshire and North Derbyshire)
Lyndhurst Road, Nether Edge, Sheffield S11 9BJ
Service manager and lead occupational therapist: Anne Nichol. Tel: 0114 226 3232 Fax: 0114 354 0124
Access will be via the same entrance as the Assessmentand Rehabilitation Centre (ARC)
Postal address only: CFS/ME Service for South Yorkshire and North Derbyshire, Michael Carlisle Centre, 75 Osborne Road, S11 9BF.
The adult team has a part-time physiotherapist (Mark Adams), with input from occupational therapy, clinical psychology and a GP with a special interest in ME/CFS. Adult referrals are accepted from GPs within South Yorkshire and North Derbyshire. GPs are required to make the diagnosis of CFS/ME prior to referral and to have completed a number of investigations.
Community Neuro Rehabilitation Team, Shropshire Rehabilitation Centre, Lancaster Rosd, Harlescott, Shrewsbury SY1 3NJ.
Email for General Inquiries: email@example.com
We have Occupational Therapists, Physiotherapists, Psychologists, Speech and Language Therapists, Rehab Assistants and a Dietitian. The named contact for the team is Dr Emma Lawrence (consultant clinical neuropsychologist and acting manager of the Community Neuro Rehabilitation Team), tel: 01743 453 600.
Based at Priory House, Priory Health Park, Glastonbury Road, Wells BA5 1XL. Contact Karen Butt, tel: 01749 836703, fax: 01749 836543. Email: CFSME@somerset.nhs.uk
This service is provided by a small team based in Wells and uses strategies endorsed in the NICE Clinical Guideline for ME/CFS. The service offers assessment and treatment based on activity management which includes pacing setting baselines and relaxation. Following assessment we offer up to four individual appointments with a practitioner held in Wells or a group programme of six sessions which are held in a number of venues across the county including Bridgwater, Taunton and Yeovil. Telephone appointments and e-mail contact are also available. A number of additional sessions covering particular topics such as memory and concentration, are also provided and a conference is held each year. The Service is open to adults aged 18 and over and a transition clinic is available for young adults currently treated by the Paediatric Service and needing to transfer to the Adult Service. Referrals are made by a general practitioner (GP) and once accepted by our specialist doctor, appointments are usually offered within 10 weeks. The Service operates on Tuesdays, Wednesdays and Fridays each week.
South West London and Surrey (Sutton)
Tel: 0208 296 4152 (Clinical lead: Dr Amolak Bansal)
Tel: 01332 786657
Tel: 01543 576609 Fax: 01543 576608 (Correspondence to M. Wong)
The ME/CFS service is provided within the Department of Psychology (Physical Health Psychology and Rehabilitation), Cannock Chase Hospital, Brunswick Road, Cannock WS11 5XY
Referrals should be made to: Sussex ME/CFS Service, Sydney West Primary Care Centre, Leylands Road, Burgess Hill, West Sussex RH15 8HS. This is also where people referred to the service by their GP are medically assessed.
Tel: 01444 238 870.
The clinical lead doctor also runs clinics in Brighton. The service also offers group and individual treatments at out-patient clinics in Eastbourne. Referrals are accepted from GPs following completion of the service referral form including comprehensive blood-screening tests. The majority of patients take part in the multi-disciplinary out-patient group self-management programme. The course covers topics such as rest and activity management, sleep management, graded exercise (activity) and lifestyle management within a cognitive behavioural framework. The group is reviewed after three months.
Swindon and Wiltshire CFS/ME Service
Eldene Health Centre, Eldene, Swindon SN3 3RZ.
This service has a GP with a special interest as the clinical lead. Others in the team – all with a special interest in ME/CFS – are a physiotherapist, an occupational therapist, a psychologist and a dietitian. The service sees people 1:1 or in group sessions and offers a variety of techniques to help people with the illness manage their difficulties and improve their quality of life. Courses are held periodically through the year. Referral to the service is through GPs only.
The ME/CFS Team, Department of Infectious Diseases and Travel Medicine, James Cook University Hospital, South Tees Foundation NHS Trust, Marton Road, Middlesborough TS4 3BW, tel: 01642 835898. The team includes: Dr John Williams clinical lead/consultant physician, Dr Brendan McCarron consultant physician, Dr David R Chadwick consultant physician, Sister Amanda McGough specialist nurse, Dr Alison Woods senior clinical psychologist, Mrs Angela Park specialist physiotherapist referrals to the clinical psychologist and specialist physiotherapist can only be made by the CFS/ME team. There is no direct access to these services at present. Amanda McGough will be leaving the service at the end of June 2013 but her role will be covered by two experienced nurses.
North of Tyne
GP referral to Dr Gavin Spickett, Consultant Clinical Immunologist, Newcastle Hospitals NHS Trust, Royal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne NE1 4LP. Therapy services: Dr Angela Kelly, North of Tyne CFS/ME Service, Molineux Street Health Centre, Byker, Newcastle upon Tyne NE6 1SG.
Tel: 0191 282 5517 Email:
South of Tyne
Chester Lodge, Sunderland Royal Hospital, Kayll Road, Sunderland SR4 7TP. Tel: 0191 541 0045 Email: firstname.lastname@example.org
Wigan and Leigh
Tel: 01225 465941 (ext 202)
Castle Street Surgery, Salisbury SP1 3SP
Clinical leads: Katy McCarthy, specialist occupational therapist, and Dr Graham Jaggard, GP with a special interest.
Dr Mirella Ling, Consultant Physician & Specialist in Infectious Diseases, Worcestershire Acute Hospitals NHS Trust, is the Worcestershire CFS/ME LMDT Lead Clinician. Dr Mirella Ling and Dr Mark Roberts, Consultant Physician & Specialist in Infectious Diseases, Worcestershire Acute Hospitals NHS Trust, hold Worcestershire CFS/ME Clinics at Kidderminster Hospital. These clinics are for a new diagnosis, or when further support is required.
Liz Preston, is the Infectious Disease Secretary, Kidderminster Hospital – Secretary for Dr M Ling, and Dr M Roberts. (01562 513072)
The Herefordshire & Worcestershire NHS CFS/ME Local Multi-Disciplinary Team (LMDT) was formed in April 2005 – we understand the Herefordshire CFS/ME Service closed recently, and Dr Mark Roberts no longer holds CFS/ME Clinics at Hereford.
The Worcestershire ME/CFSE Service – Camilla Ballentyne, Lead Specialist Occupational Therapist (Part time),Debbie Masson – Occupational Therapist (Part time), Sara Young – Occupational Therapist (Part time), Dr Helen Ayres – Psychologist (Part time), Claire Treleaven – Psychologist Assistant
CHILDREN AND YOUNG PEOPLE’S TEAMS
Bath Paediatric ME/CFS Service
Royal National Hospital for Rheumatic Diseases, Upper Borough Walls, Bath BA1 1RL
Tel: 01225 465 941 ext 203
Team administrator; Heather Hill
The Bath paediatric ME/CFS service provides local, regional and national assessment and treatment for over 150 children and young people each year. It is now open to the ‘choose and book’ appointment system run by the NHS. This means that children or adolescents anywhere in the country should have access to their out-patient service for advice on either diagnosis or management through a GP referral.
Cambridgeshire and Peterborough
The Children’s Community Nursing Teams Nightingale Court, Ida Darwin Fulbourn Cambridge CB1 5EE Tel: 01223 884335 Fax: 01223 884299
The lead paediatrician is Dr David Vickers. This a small community team based at the Ida Darwin unit, Fulbourn, who provide a specialist service to children and young people up to the age of 19 years with CSF/ME, who are registered with a GP and attend school in Cambridgeshire and Peterborough.The team consists of: a paediatric consultant who acts as a link consultant to paediatricians throughout the area; children’s community nurse who provides a specialist to role in developing services for children and young people with CFS/ME throughout the area, in order to promote good practice for their care; paediatric cccupational therapist who provides a specialist role to develop good practice within the local OT team and acts as a link role with OT’s throughout the area. The remit of the team is to: to improve awareness of CFS/ME and the management of the condition offered by those working with children and young people with CFS/ME in education, social services and secondary and primary care; to support local implementation of the RCPCH guidance on CFS/ME; gather information on the needs of the above children and young people and their families in order to identify gaps in local provision and support future service development; provide specialist clinics to enable children to access the service. The service provides advice and support to local services (i.e. local paediatricians, children’s nurses, local occupational therapists and GPs) who remain the key service providers. Referrals for the CFS/ME service are accepted via telephone or letter from consultant paediatricians. Referrals for the Children’s Community Nursing Teams & Special Needs School Nursing Team are accepted via telephone, faxed referral form or letter.
Clinics are run in Truro, Bodmin, Camborne/Redruth, Helston, Poltair and Stratton.
Contact information: Sharon Penhaligon, Heligan Portacabin, Royal Cornwall Hospital, Truro, Cornwall TR1 3LJ, tel: 01872-252935 fax: 01872 256401, email
The service offers an outpatient and community-based service for patients suspected of having CFS/ME, providing diagnosis, assessment, and a clinical management plan to enable long-term rehabilitation, sharing care with the GP and returning the patient to primary care following re-enablement. The team comprises a clinical immunologist, a GP with special interest, a consultant clinical psychologist, four occupational therapists and aclinical secretary/administrator.
Services for children: There is a separate service for children and young people affected, run within paediatrics, up to the age of 18. Transition is managed jointly.
Key personnel: Marc Kelly (matron), Dr Cristina Lopez-Chertudi (consultant clinical psychologist), Carol Wilson (head occupational therapist).
Children’s Community Team, Cockermouth Cottage Hospital, Isel Road, Cockermouth, Cumbria CA13 9HT
Tel: 01900 324 131 Mob: 07789 925 705
Service lead: Laura Wilson, children and young people’s CFS/ME practitioner.
Tel: 01392 208614
Royal Devon and Exeter Hospital
Paediatrician: Dr James Hart, Occupational therapist: Helga Gore.
CFS/ME Service for Children and Young People, Children’s Centre, Damers Road, Dorchester, DT1 2LB. Tel: 01305 253148 Email
Assessment and treatment is available to all children living in Dorset with appointments offered locally. Limited domiciliary visits are available if required for those unable to attend an out-patient appointment.
Referrals are accepted from GPs, school doctors and other paediatricians. Early referral is strongly recommended for children who are struggling to cope with daily activities and school attendance due to disabling fatigue.
Treatment including therapy and medical reviews, is offered by the multi-disciplinary therapy team which is made up of Team Leader/Occupational Therapist (Barbara Goodchild), Clinical Psychologist, Physiotherapist , Child Support Worker and Administrator. Medical support is provided by Consultant Paediatricians.
The service offers an individual plan of fatigue management, psychological therapy and lifestyle management, according to need, to young people and their families. School liaison, information and training are a key part of the Team’s work.
East and North Hertfordshire
East & North Herts Chronic Fatigue Syndrome Service for Children and Young People, Mulberry Bush Unit, Lister Hospital, Stevenage, Herts SG1 4AB
Tel: 01438 781235 Fax: 01438 781757 e-mail: email@example.com
Royal Liverpool Children’s Hospital
Tel: 0151 228 4811 (ext 3803)
Harrington Building, Royal Manchester Children’s Hospital, Oxford Road, Manchester M13 9WL
Contact details for referrals and inquiries:
Secretary, tel: 0161 701 4516
Co-ordinating clinician, Alexandra Woore
This multi-disciplinary team offers advice, support and individual treatment programmes for children and young people diagnosed with ME/CFS. It coordinates the many services involved in caring for these young people and their families.
Children and young people up to the age of 16, with unexplained chronic fatigue can be referred to the service by a Consultant Paediatrician or a Senior CAMHS professional. Referrals for the 16 and 17 year old age group should be discussed with the team to discuss the most appropriate service. The team currently welcomes referrals for direct intervention for children/young people from Bolton, Salford, Wigan and Manchester. The team also welcomes referrals for professional consultation only from clinicians within the other areas of the Greater Manchester footprint. As the service develops, it hopes to offer direct services throughout the whole of the Greater Manchester region, and professional consultation further afield within the North West.
Great Ormond Street Hospital
Tel: 0207 813 8541
University College Hospital
235 Euston Road London NW1 2BUU
Tel: 08451 555000
Consultants: Jo Begent and Terry Segal
The UCLH adolescent ME/CFS service provides local and tertiary assessment and treatment, as in and out patients between the ages of 13 to 19 years old. The service is delivered by a multidisciplinary team which includes nurse specialist, OT, physiotherapist, psychologist and doctors.
Children’s Service, D Floor, East Block, Nottingham University Hospital, Queens Medical Centre, Nottingham NG7 2HU)
Tel: 0115 924 9924 (ext 66282)
Clinical co-ordinator: Alison McDonald.
South Yorkshire and North Derbyshire
“Fairlawns”, 621 Middlewood Road, Sheffield S6 1TT
Administrator: Christine Headford. Tel: 0114 229 2937.
There is a monthly ME/CS paediatric clinic at the Royal Alexandra Children’s Hospital, Eastern Road, Brighton BN2 5BE
Tel: 01273 696955 (switchboard)
Consultant paediatrician: Dr Kamal Patel.
North of Tyne
Dr Caroline Grayson, Community paediatrician, Newcastle Hospitals NHS Trust, Royal Victoria Infirmary, Queen Victoria Road, Newcastle upon Tyne NE1 4LP, Telephone: 0191 282 5517, Email: firstname.lastname@example.org
NHS SPECIALIST SERVICES IN SCOTLAND
We want to build up a picture of specialist NHS services for adults and children with ME in Scotland. If you know of any good services, please let us know. If you have any tried any services, your feedback will be most welcome. Email here.
We’ll publish the detail as it comes in.
Department of Clinical Psychology, Astley Ainslie Hospital, 133 Grange Loan, Edinburgh EH9 2HL. Open only on Thursdays and Fridays. Tel: 0131 537 9139.
This is a Lothian-wide service for patients with a diagnosis of ME/CFS, who are well enough to attend the service. The service was been set up as a two-year pilot starting in November 2012, is based in the hospital’s pain management service and is run by specialist physiotherapy and applied psychology staff.
Scotland’s only specialist nurse-led service for patients with ME/CFS is at the LadyBank Clinic, Commercial Road, Ladybank, Fife KY15 7JS, tel: 01337 832 123, email: email@example.com It is run by Keith Anderson, a qualified psychotherapist and CBT therapist. Mr Anderson recently gave a talk to Edinburgh ME Self Help Group; to download a short report of this talk, please click HERE.
Stornaway, Western Isles
A Fatigue Management Programme was opened in May 2011 at the Western Isles Hospital in Stornoway to help people with fatigue to explore the reasons for the fatigue and equip them with the techniques to manage the problem better. A video link to Uist and Barra Hospital may be set up, if there is a demand for it. The Western Isles, with a population of about 26,000 people, has no specialist ME/CFS service. To inquire about joining the programme, please contact Elaine Smith, Occupational Therapy Department, tel: 01851 708287, or email firstname.lastname@example.org who will send you an application form.
NHS SPECIALIST SERVICES IN WALES
We are building up a picture of specialist NHS services for adults and children with ME in Wales. If you know of any good services, please let us know. If you have any tried any services, your feedback will be most welcome. Email here.
North Wales ME/CFS Service
The Quay Clinic, Fron Road, Connah’s Quay, Deeside CH5 4PJ. Callers to the building should press the option for ‘Bloods/Reception’ and ask for the ME/CFS Clinic. Tel: 01244 813 486 Fax: 01244 830883 (This service takes referrals from the east of North Wales. Staff: Simon Neal, clinical psychologist; Penny Cowley, head of dietetics; Chris Watson, superintendent physiotherapist).
Statement from North East Wales NHS Trust (found in the link highlighted above), accessed 13 June 2013:
- We provide a group-based programme for people with an existing diagnosis of Chronic Fatigue Syndrome.
- We also provide individual Multidisciplinary assessment and treatment for people with Medically Unexplained Symptoms that include significant levels of fatigue.
- We will offer an assessment to people at any stage of the disorder, but the earlier the better.
- If your patient is failing to recover from any period of ill health and they are presenting with increasing fatigue, we will be pleased to offer them a service.
- Currently patients may be seen within 4 to 6 months of referral.
CFS Service (North Wales)
Cartref, Bryn y Neuadd Hospital, Llanfairfechan, Conwy, LL33 0HH
Tel: 01248 682843 / 682165
Pain and Fatigue Management Centre
Bronllys Hospital, Brecon, Powys LD3 0LU.
For referrals or more information, contact Margaret Davies, the office manager, tel: 01874 712 499.
The Pain and Fatigue Management Centre offers a three-week residential programme based on a biopsychosocial approach to help people who are self-caring to manage their condition. The programme is run by an interdisciplinary team consisting of nursing, physiotherapy, occupational therapy and psychology. People cannot self-refer but may be referred by their GP or any qualified clinician involved in their care.
NHS SPECIALIST SERVICES IN NORTHERN IRELAND
The care pathways for people with ME/CFS in Northern Ireland are not well established and there is no specialist service for people with ME/CFS in the Province.
We are indebted to Mrs Antoinette Christie, from ME Support in Northern Ireland, who has made available part of the text of a letter she has received in response to inquiries made to both the Minister of Health and the Assembly’s Health Committee:
“There has never been a Commissioned service for CFS/ME in the Belfast Health and social care trust. Dr Welby Henry, a consultant physician provided a CFS/ME clinic in Belfast City Hospital since at least 1986 on a special interest basis. Dr Henry has now retired.
The Belfast Trust and the health and social care board are currently discussing how best to accommodate the gap in services following Dr Henry’s retirement.”