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March 24, 2017 From BMC Medical Genetics (open access), 16 March 2017 Clinically proven mtDNA mutations are not common in those with chronic fatigue syndrome Elizna M. Schoeman (1, ^), Francois H. Van Der Westhuizen (2,...

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‘How a study about Chronic Fatigue Syndrome was doctored, adding to pain and stigma’| The Conversation | 23 March 2017

March 23, 2017 From The Conversation, a blog which proclaims it is all about ‘Academic rigour, journalistic flair’, 23 March 2017. Written by Steven Lubet, Williams Memorial Professor of Law, Northwestern University. The...

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Thanks to the MEA, you can now read the whole independent re-analysis of the PACE Trial recovery paper | 22 March 2017

March 22, 2017 The independent re-analysis of the PACE Trial recovery paper emerged from behind the publisher’s paywall today – after the ME Association paid US$2,000 for open access to the paper so...

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‘Moving Toward Answers in ME/CFS’ | NIH Director’s Blog | 21 March 2017

March 21, 2017 Blog written by Dr Francis Collins (director of US National Institutes of Health) and Dr Walter Koroshetz (director of the National Institute of Neurological Disorders and Stroke). Imagine going to...

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If you lived through the M.E. outbreak in Cumbria in 1955, please get in touch | 21 March 20187

March 21, 2017 The village of Dalston - centre of the 1955 M.E. outbreak

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A new and improved ESA50 form is about to launch for UK benefits applicants | 18 March 2017

March 18, 2017 An ESA50 form - the current version is pictured.

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‘Getting it wrong on Chronic Fatigue Syndrome’ | New York Times ‘Sunday Review’ | published online 18 March 2017

March 18, 2017 From the New York Times Sunday Review, 18 May 2017. Words by Julie Rehmeyer and David Tuller. What are some of the treatment regimens that sufferers of chronic fatigue syndrome...

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TGI Friday! Our weekly round-up of recently published research abstracts | 17 March 2017

March 17, 2017 Staff working for the UK ME/CFS Biobank at the London School of Hygiene and Tropical Medicine have had another paper published in a peer-reviewed journal.   Here, the team –...

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Manchester report reveals that many people with ME/CFS don’t trust their GPs | Healthwatch Trafford survey | 17 March 2017

March 17, 2017 More than half of people in the UK with ME/CFS said they wouldn’t trust their GP to give them information on their condition, a new report claims today. Healthwatch Trafford...

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Mast Cell Disorders and ME/CFS | note from Dr Charles Shepherd following last night’s BBC programme | 16 March 2017

March 16, 2017 We have been receiving a lot of inquiries about an item in a BBC TV programme last night that covered Mast Cell Disorders and a possible link to ME/CFS. The...

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Could you help this postgrad student with your experiences of complementary and alternative therapies? | 15 March 2017

March 15, 2017 Fiona Cox, a health psychology postgraduate at the University of the West of England in Bristol, is conducting a survey into the use of complementary and alternative therapies (CAM) by...

Call for retraction of PACE publication | Centre for Welfare Reform | 13 March 2017

March 14, 2017 From The Centre for Welfare Reform, 13 March 2017. An open letter to the editors of the journal Psychological Medicine, calling for the retraction of the 2013 article “Recovery from...

UK ME/CFS Biobank team urge resolution of long-standing disputes | Journal of Health Psychology | 10 March 2017

March 10, 2017 Staff working for the UK ME/CFS Biobank at the London School of Hygiene and Tropical Medicine have had another paper published in a peer-reviewed journal. Here, the team – whose running...

TGI Friday! Our regular round-up of recently published research abstracts | 10 March 2017

March 10, 2017 From The Annals of Internal Medicine, Original Research, 7 March 2017. To read the comments of Dr Charles Shepherd, medical adviser to the ME Association, please click HERE. Cytokine Inhibition...

Go Blue – Mark 2 – during ME Awareness Week in May 2017 | 9 March 2017

March 9, 2017 Please join us Going BLUE for ME in M.E. Awareness Week – which takes place from May 8 to 14.

Why we shouldn’t dismiss the role of pro-inflammatory cytokines in ME/CFS | comment on Annals of Internal Medicine paper | 8 March 2017

March 8, 2017 Commentary by Dr Charles Shepherd, medical adviser, The ME Association. There are now some fairly robust and consistent findings from a number of recent ME/CFS research studies which have looked...

Parliamentary Answer | minister responds to question about the next ICD listing for ME/CFS | 8 March 2017

March 8, 2017 The Countess of Mar, who chairs the Forward-ME Group of ME/CFS charities, tabled this written question on February 27: “To ask Her Majesty’s Government whether they will ask the Joint...

Our big Christmas appeal – the final wrap-up| 7 March 2017

March 7, 2017 Story by Sarah Staples The ME Association’s most successful ever Christmas appeal has closed for donations after raising more than £68,000. Money raised by the Make ME Better campaign will...

New ESA claimants – why you must get your application in before the end of March | 7 March 2017

March 7, 2017 With thanks for the following information to Patricia de Wolfe, hon benefits adviser for the South East London ME Support Group: New claimants for Employment and Support Allowance – it’s...

Our latest ME Essential magazine, and a little toot on our own trumpet! | 6 March 2017

March 6, 2017 Words by Tony Britton Our Spring 2017 magazine, 44 pages in all, contains stunning features about some of the research being supported by our dedicated Ramsay Research Fund. Our new...

The cloud that has a silver lining for Britain’s only ME/CFS Biobank | 6 March 2017

March 6, 2017 Every cloud has a silver lining and staff at Britain’s only ME/CFS biobank have found theirs in the peer-reviewed Open Journal of Bioresources. They’ve used the pages of the four-year-old...

Forward-ME Group | Minutes of the meeting held on 7 February 2017

March 5, 2017 FORWARD-ME: Minutes of the Meeting held in the Television Interview Room, House of Lords, Tuesday 7 February 2017, 2pm This document is also available to view at the Forward-ME website:...

TGI Friday! Our weekly round-up of recently published research abstracts | 3 March 2017

March 3, 2017 This week - from 'liminality' and the concept of wellness to the continuing search for biomarkers.

Mark’s staying sober but remains in good spirits | Kirkintilloch Herald | 1 March 2017

March 1, 2017 Mark (left) organised a whisky auction – a single bottle of Douglas Laing's 'Big Peat' raised £2,000 for the ME Association.

Why we are asking about sensory symptoms in our latest Quick Survey | 1 March 2017

March 1, 2017 There are a number of neurological symptoms involving sensation – patchy loss of sensation, increased sensitivity to touch/pain, unusual sensations/paraesthesiae/’pins and needles’ – that can occur in ME/CFS. However, it...

CFS service at Queen’s Hospital, Romford, Essex, now accepting nationwide referrals | 28 February 2017

February 28, 2017 We have received notification that the CFS service led by consultant neurologist Dr Abhijit Chaudhuri at Queen’s Hospital, Romford, Essex, is now taking nationwide referrals. Click on the image below...

Feedback required please on the Fightback4Justice website | 27 February 2017

February 27, 2017 Does anyone have experience of using this fee-paying service for help with DWP benefit applications, disputes, appeals, etc? Website: www.fightback4justice.co.uk We have received some positive reports but would like to...

Teenager faces battle with ME and The Pike | Wetherby News | 21 February 2017

February 27, 2017 In ME Association colours: the four friends who are about to scale England's highest mountain

Dr Ron Davis announces significant breakthroughs at his lab in the States | 24 February 2017

February 24, 2017 In this 18-minute film, Dr Ron Davis presents an ME/CFS research update from his lab at the Stanford Genome Technology Centre. The Centre has made significant breakthroughs towards understanding the...

Plaudits for new South African TV news documentary on M.E. | 24 February 2017

February 24, 2017 A 10-film on M.E. was shown on Carte Blanche, South Africa’s longest-running TV investigation show, on 20 February 2017. It has won plaudits round the world for its straight talking...