February 23, 2018 All Party Parliamentary Group (APPG) on Disability Summary of a meeting at the House of Lords on Wednesday 21st February 2018 By Dr Charles Shepherd, Hon. Medical Adviser, ME...
Fundraising Feature: From bed to Ben Nevis – Emma’s 20-year recovery from severe M.E. | 22 February 2018
February 22, 2018 Emma Jenkins has had M.E. for around 20 years. She tells us that her journey of recovery is far from over, but she’s much better than she was. Hers is another inspiring tale of patience, courage, and a determination not to be beaten.
Former businesswoman hosts Valentine dance for people who might otherwise be alone | 21 February 2018
February 21, 2018 Supporters who twirled the evening away during a Valentine dance at the Heacham public hall on Saturday night fulfilled a dream for the event’s organiser.
Government-funded ME/CFS trial ‘one of greatest medical scandals of 21st century’ | 20 February 2018
February 20, 2018 A controversial medical trial part-funded by the Department of Work of Pensions will emerge as “one of the greatest medical scandals of the 21st century” an MP today claimed.
February 20, 2018 We review what we know of NHS Personal Health Budgets and ask whether people with M.E. are making use of what appears to be a very useful resource.
February 20, 2018 A HUGE thank you to everyone who has kindly supported Lauren Childs’s call for knitted squares for her All about ME Knitathon project. Her aim now is to exhibit the blankets she has been making…
February 19, 2018 This is an A-Z index of the most important research studies (and selected key documents and articles), listed by subject matter, that have been published on ME/CFS.
Pernicious Anaemia: symptoms, diagnosis, Vitamin B12, ME/CFS and the NICE guideline review | 16 February 2018
February 16, 2018 There is an overlap in symptom presentation between Pernicious Anaemia and M.E. and the lack of routine testing in the current NICE guideline for ME/CFS has now been challenged.
Stanford Scope: Exercise elevates blood signature difference between people with, without ME/CFS | 16 February 2018
February 16, 2018 A new study suggests that a blood test following exercise may be a very good way to differentiate between people who have ME/CFS and people who don't.
February 16, 2018 NICE has also confirmed the next steps in the development of the new guideline, starting with a further workshop with stakeholder organisations on 25 May to discuss the scope of the guideline.
February 14, 2018 This authoritative article appears in the current issue of Family Doctor and was written by Mary Dimmock, Susan Levine, MD, and Terri L. Wilder, MSW.
MEA Summary Review: Elevated BNP levels in ME/CFS associate with cardiac dysfunction | 14 February 2018
February 14, 2018 A recent study from a research group at Newcastle University has found that patients with ME/CFS have significantly higher levels of a hormone called BNP in their blood and that this also correlated with significantly lower cardiac volumes.
People living with M.E and Carers Wanted for Contributions to a Postgraduate Health Psychology Programme at GCU | 14 February 2018
February 14, 2018 Glasgow Caledonian University's Postgraduate Health Psychology programme, is looking for a few local volunteer patients and carers to help develop the practical understanding of trainee psychologists.
Westminster Hall Debate: The PACE trial and its effect on people with M.E. – A meeting with Carol Monaghan MP | 08 February 2018
February 8, 2018 Dr Charles Shepherd and Dr William Weir, met with Carol Monaghan MP yesterday, to discuss and advise on the Westminster Hall debate on the PACE trial that is taking place on 20th February.
Forward ME – Discussion of NICE guideline review, Royal College of GPs conference, and Westminster Hall debate on ME/CFS | 06 February 2018
February 6, 2018 Minutes of meeting held in January, where charity members discussed plans for NICE workshop, RCGP conference, and Westminster Hall debate on ME/CFS.
February 6, 2018 If you are thinking about hosting Unrest in your local community, we hope that our tips and experiences will help you in planning and preparing for your own event.
February 5, 2018 My name is Lee Stammers, a-soon-to-be 40-year-old with M.E. I’m going BLUE for the whole of February (FeBLUEary) to raise awareness about the reality and seriousness of this cruel illness.
February 5, 2018 We want to include images of real people with M.E. on our website, in our blogs, and across our social media, and so we are asking you to send us quality digital photographs in whatever situations or activities you consider most representative of your life with M.E.
January 30, 2018 Jennifer Brea, the director of an award-winning film about the difficulties of living with ME, will join the calls for enhanced care during an event at the Scottish Parliament this evening.
January 29, 2018 The new ME Association guide to ESA and PIP Reconsiderations and Appeals takes you through every step of the process, and aims to demystify it.
January 24, 2018 An ME Association research summary that explains the autonomic nervous system, recent research findings, and provides some self-help tips for symptom relief.
January 23, 2018 Fundraising for the ME Association doesn’t have to be physical. And you don’t even have to leave your own home to do it.
January 19, 2018 The ME Association is teaming up with Just Walk to offer this unique opportunity to walk for M.E. on the 12th May which is ME Awareness Day.
MedPage Today: An interview with Francis Collins, Director of the NIH in America, about the priorities for ME/CFS | 18 January 2018
January 18, 2018 The National Institutes of Health is trying hard to bring real hope — not false hope — to patients with ME/CFS, NIH director Francis Collins, MD, PhD, said during an exclusive interview with MedPage Today.
January 18, 2018 Forward ME Minutes of the Meeting held in the House of Lords Tuesday 5 December 2017, 2.00 pm Present: Countess of Mar (Chairman), Janice Kent (reMEmber), Bill Kent (reMEmber), Clare Ogden (AFME), Dr Charles Shepherd...
Reviewing the NICE guideline for ME/CFS: The Stakeholders Engagement Workshop – A Report by Dr Charles Shepherd | 17 January 2018
January 17, 2018 Dr Charles Shepherd summarises the key points to emerge from the NICE Stakeholders Engagement Workshop that took place on Tuesday 16th January 2018.
January 17, 2018 Unrest is being shown at an event for MSPs at the Scottish Parliament on 30th January 2018. If you live in Scotland, this is an incredible opportunity to make a concerted impact on decision makers.
January 7, 2018 A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken seriously by doctors.
“It has taken my life” – Sheringham woman speaks out about living with the debilitating disease ME | 06 January 2018
January 6, 2018 “I was fit, I went rambling and went to the gym,” she said. “But ME has taken my whole life and any fulfilment I might have had.”
January 4, 2018 This is an excellent feature article that focuses on the developing research situation in America, but also includes items relevant to the situation here in the UK.
Website survey: What do you think should be our research funding priorities for 2018? | 04 January 2018
January 4, 2018 We believe it is important to obtain regular feedback from people with M.E. as to what they regard as the most important priorities for UK research.