Minolta DSC

February 26, 2015 Participants enjoy a class with Sheffield Yoga for ME/CFS – the scene from a special event some years ago.

'You and Yours' featured image

Work capability assessments: “One million disability checks planned” | BBC News | 24 February 2015

February 26, 2015 From the BBC News website, 24 February 2015. Story by Carolyn Atkinson, disability reporter, ‘You and Yours’ programme. A new company given the contract to assess disabled people for a...

general-election-2015-what-you-need-know-100-days-go-before-polling-day

It’s time to write to your General Election candidates | 23 February 2015

February 23, 2015 The General Election takes place on May 7, and we know that people may want to contact their local parliamentary candidates to inform them about issues of key national concern...

Ramsay Book covers 2012 copy

In all this talk about the ‘Name Change Report’, here’s where we came in… | 20 February 2015

February 20, 2015 With reference to all the current discussion on the new IoM name (SEID) and the possible use of Ramsay’s Disease instead, a reminder about an important source of information from...

featured image - website copy

‘The Lancet’ and their take on the ‘Name Change Report’ controversy | 20 February 2015

February 20, 2015 EDITORIAL: WHAT’S IN A NAME? SYSTEMIC EXERTION INTOLERANCE DISEASE On Feb 10, 2015, the US Institute of Medicine (IOM) published a landmark report, renaming chronic fatigue syndrome and myalgic encephalomyelitis...

nhs_ict

TGI Friday! Our weekly round-up of recently published research abstracts | 20 February 2015

February 20, 2015 From the Cochrane Library, 10 February 2015. http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD003200.pub3/abstract (full text available). Intervention Review: Exercise therapy for chronic fatigue syndrome Lillebeth Larun(1,*), Kjetil G. Brurberg(1), Jan Odgaard-Jensen(2), Jonathan R Price(3) 1)...

-1

‘We’re not lazy – Chronic Fatigue Syndrome is a real disease after all’ | Bolton News | 19 February 2015

February 19, 2015 From the Bolton News | 15 February 2015 | Words by Vickie Scullard. AFTER decades of being branded ‘lazy’ and ‘over tired’, sufferers of chronic fatigue syndrome (CFS) have finally...

01_NH15IDS_1129608k

‘Universal credit helps jobless find work faster, says IDS’ | The Sunday Times | 15 February 2015

February 15, 2015 The new Universal Credit benefit is rolled out across the UK tomorrow – initially to single people

nhs_ict

TGI Friday! Our weekly round-up of recently published research abstracts (and related items) | 13 February 2015

February 13, 2015 From Frontiers in Neurology, 5 February 2015 Opening section appears below. To read the full article, please click on this link. REVIEW ARTICLE Biopersistence and brain translocation of aluminum adjuvants...

featured image - website copy

Name change committee report | Comments by Dr Charles Shepherd, medical adviser, ME Association | 11 February 2015

February 11, 2015 Institute of Medicine Report: Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Redefining an illness Like any report produced by a committee, some of whom may have very differing views, this one...

Unknown

Expert US and British opinion on the ‘Name Change’ Report recommendations | 12 February 2015

February 11, 2015 Russell Fleming and Tony Britton have compiled this list of reactions by medical experts to the ‘Name Change Committee’ recommendation from news reports, websites and blogs. ‘SCIENCE’MAGAZINE –’SCIENCE INSIDER’ BLOG...

‘Chronic Fatigue Syndrome gets a new name’ | New York Times blogs | 10 February 2015

February 10, 2015 New York Times blogs, report by David Tuller, 10 February 2015. The Institute of Medicine on Tuesday proposed a new name and new diagnostic criteria for the condition that many...

Second anti-cancer drug now being investigated in Norway for treatment of ME/CFS | 10 February 2015

February 10, 2015 Dr. Øystein Fluge: listed on the project descriptor as the lead investigator for the project

Useful archive material for people with ME/CFS involved in insurance disputes | APPG on ME meeting, December 2004

February 7, 2015 We have been trying, without success up until now, to find the Minutes of an APPG on ME meeting held in December 2004 which discussed insurance-related issues. This was for...

US report on redefining the illness to be released on February 10 | Comment by Jennie Spotila

February 7, 2015 From Jennie Spotila’s Occupy CFS blog, 6 February 2015. On February 10th, the Institute of Medicine committee will release its report Beyond ME/CFS: Redefining an Illness. The release event will...

Parliamentary Question | ATOS and the use of CBT for people with ME/CS | 5 February 2015

February 6, 2015 Charlotte Leslie, MP for Bristol North West, tabled a question that asked the Secretary of State for Work and Pensions what assessment he had made of the efficacy of ATOS’s...

TGI Friday! Our weekly round-up of recently published research abstracts | 6 February 2015

February 6, 2015 From Acta Paediatrica, 31 January 2015. Study findings challenge the content validity of the Canadian Consensus Criteria for adolescent chronic fatigue syndrome Tarjei Tørre Asprusten(1), Even Fagermoen(2,3), Dag Sulheim(4,5), Eva...

Regulator shuts down GcMAF production at unlicensed facility in Cambridge | MHRA press release | 3 February 2015

February 5, 2015 The Medicine and Healthcare products Regulatory Agency has shut down production of an unlicensed medicine called GcMAF at a site in Cambridge and urged those who have bought the product...

North American journal reports link between early menopause and CFS | 4 February 2015

February 4, 2015 From science news agency EurekAlert, 4 February 2015. A link between chronic fatigue syndrome and early menopause was reported online today in Menopause, the journal of The North American Menopause...

TGI Friday! Our weekly round-up of recently published research abstracts | 30 January 2015

January 30, 2015 From Molecular Neurobiology, 20 January 2014 [Epub ahead of print]. The Neuro-Immune Pathophysiology of Central and Peripheral Fatigue in Systemic Immune-Inflammatory and Neuro-Immune Diseases. Morris G(1), Berk M, Galecki P,...

The eyes could have it! | ME/CFS volunteers being recruited for sight study at Leicester | 29 January 2015

January 29, 2015 Two sight loss charities are about to pay for research at the University of Leicester that may show a clear link between eye problems that often affect people with ME/CFS...

MEA report on the first sleep disturbance study of its type in the UK | 28 January 2015

January 28, 2015 The first team in the UK to explore whether there is a link between night-time sleep disturbances and daytime physical and mental functioning in ME/CFS recently published a paper on...

‘Knowing M.E., Knowing You” | Huffington Post blog | 26 January 2015

January 27, 2015 From ‘Huffington Post’ Lifestyle, 26 January 2015 (words by Stephen Tudor). Fifteen years ago I came down with the flu that turned into a prolonged post-viral thingy which was eventually...

TGI Friday! Our weekly round-up of recently published research abstracts | 23 January 2015

January 23, 2015 A polysomnograph of slow wave sleep – such as might have been used in this particular Belgian study.

I’d sooner have cancer than chronic fatigue syndrome!” | Mail Online | 22 January 2015

January 22, 2015 One of the images that Jenny Andrews uses in her campaigning work

Two parliamentary meetings on ME/CFS | 20 January 2015

January 19, 2015 On Tuesday morning the All Party Parliamentary Group on ME will be discussing medical education on ME/CFS at the House of Commons. On Tuesday afternoon at the House of Lords,...

After hated Atos quits, will Maximus make work assessments less arduous? | TheGuardian.com | 18 January 2015

January 19, 2015 Poacher turned campaigner? Vocal campaigner Sue Marsh now has a high profile job with Maximus.

Life is hard for us ME sufferers – and simplistic news reports don’t help | The Guardian ‘Comment is Free’ | 16 January 2015

January 16, 2015 'Chronic fatigue syndrome is misunderstood by the public, and the media must take some of the blame'.

Do you want your plans to return to work to be filmed? | Disability Rights UK | 16 January 2014

January 16, 2015 Interesting chance to tell YOUR story in this media project from one of Britain's leading disability charities/

Doctors finally solve mystery of woman’s crippling illness – a 20-year-old tick bite | BT.com | 16 January 2015

January 16, 2015 In 20 years, Joanna Baskett has undergone 26 operations and tried 32 different medications .

TGI Friday! Our weekly round-up of recently published research abstracts | 16 January 2015

January 16, 2015 From Fatigue: Biomedicine, Health & Behavior, 7 January 2014 (epublished before print). Long-term follow-up of multi-disciplinary outpatient treatment for chronic fatigue syndrome/myalgic encephalopathy Amalia Houlton(a,*), Marilyn M. Christie(a), Bozena Smith(b)...