October 2, 2015 If they are able finally to pull it off, a remarkable collaboration between patients and the NHS will produce what is being hailed as a transformational new service for people...


TGI Friday! Our weekly round-up of recently published research abstracts | 2 October 2015

October 2, 2015 The following study – a collaboration between research groups in Germany and Norway – is an important contribution to our understanding as to which people may or may not respond to...


Our annual M.E. Question Time is at Kingston-upon-Thames tomorrow | 3 October 2015

October 2, 2015 This year, we're teaming up with the Richmond and Kingston ME Group at the Tiffin School. Free entry – just turn up on the day!


M.E. sufferer’s battle back to health | The Argus, Brighton | 29 September 2015

September 30, 2015 From The Argus, Brighton, 29 September 2015. Story by Siobhan Ryan. A MAN who battled the debilitating condition ME for more than 20 years has spoken of his long fight...

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MEA survey cited in Dutch doctor’s investigation into loss of his own muscle power after exercise | Neurology and Neurobiology | 10 September 2015

September 28, 2015 From the Journal of Neurology and Neurobiology, 10 September 2015. Full text available. The Aerobic Energy Production and the Lactic Acid Excretion are both Impeded in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...


Unlicensed blood drug GcMAF still for sale | BBC 5 Live | 27 September 2015

September 28, 2015 From the BBC News website. Story by Ruth Evans, for BBC 5 Live, 27 September 2015. An unlicensed blood product which claims to treat cancer and autism is still being...

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New study sheds more light on why some people with ME/CFS may respond to rituximab | 26 September 2015

September 26, 2015 Prof Jonathan Edwards: "There is a lot more work to do but this is very promising".


TGI Friday! Our weekly round-up of recently published research abstracts | 25 September 2015

September 25, 2015 This week – rintatolimod (Ampligen), natural killer cell activity and an activity pacing RCT.

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Head above the clouds – Ewan Ross reaches the summit of Cayambe | 24 September 2015

September 24, 2015 Ewan Ross wasn’t going to let a little thing like a volcano erupting disrupt his plans to climb another high peak in South America to raise money for the ME...


Forward-ME Group | Minutes of meeting held on 15 July 2015

September 23, 2015 MINUTES OF THE MEETING HELD IN THE TELEVISION INTERVIEW ROOM, HOUSE OF LORDS WEDNESDAY 15 JULY 2015, 2pm These Minutes can also be found at www.forward-me.org.uk/15th%20July%202015.htm Present: Countess of Mar...


Depressed man killed himself as a direct result of DWP’s ‘fit to work’ ruling, coroner finds | Independent on Sunday | 20 September 2015

September 22, 2015 From the Independent on Sunday, 20 September 2015. Cahal Milmo reports. A coroner has concluded for the first time that a man with severe mental illness killed himself as a...

Could you sponsor our big campaign for early and accurate diagnosis? | 22 September 2015

September 22, 2015 An early launch for our Big Christmas Appeal – as we look for sponsors for our 'Diagnose it quickly' campaign!

A Manx Diary | Dr Shepherd writes up his four red letter days on the Isle of Man | 21 September 2015

September 21, 2015 'Thank you' – Dr Shepherd holds painting with Phil Gawne, Sharon Watterson and Celia Marshall.

TGI Friday! Our weekly round-up of recently published research abstracts | 18 September 2015

September 18, 2015 This week – immunology, impacts of HPV vaccination, activity pacing and post-exertional fatigue.

ME Association bursaries will support four students at next month’s research conference in Newcastle | 14 September 2015

September 14, 2015 We announce the names of the students who have been awarded the bursaries.

Our £60,000 rituximab fund is still available to be put towards a full-scale clinical trial | 12 September 2015

September 12, 2015 Øystein Fluge and Olav Mella – they're running the rituximab trials in Norway.

ME Association beefs up its bursaries to medical students going to Newcastle conference | 11 September 2015

September 11, 2015 More medical students going - and value of assistance package increased to up to £350 each.

Ecuadorian volcano trek is back on for Ewan Ross | Bracknell News | 11 September 2015

September 11, 2015 Adventurous Ewan Ross – seen during a climb in 2009 to Everest base camp.

Two major sponsors throw their weight behind the next ME/CFS research conference | Newcastle, 13-14 October 2015

September 11, 2015 Wellcome Trust & Arthritis Research UK back the UK CFS/ME Research Collaborative conference.

TGI Friday! Our weekly round-up of recently published research abstracts | 11 September 2015

September 10, 2015 This week – Milnacipran in fibromyalgia; Dutch study on cognitive functioning in adults.

Jessica Taylor nominated for a ‘Pride of Britain’ award | ITV Meridian News | 10 September 2015

September 10, 2015 Jessica Taylor, founder of the ‘Share a Star’ charity, has been nominated for fundraiser of the year in the ITV ‘Pride of Britain’ Awards, ITV Meridian News reported today. This...

Could you be a sponsor of our Early and Accurate Diagnosis campaign? | 8 September 2015

September 8, 2015 Don't worry if this is too big an ask! There will be an opportunity to donate smaller amounts in December.

Tony Blair’s former bodyguard faces jail for benefits fraud | Daily Mail | 3 September 2015

September 4, 2015 From the Daily Mail, 3 September 2015. Story by Stephanie Linning for Mail OnLine. A former protection officer for Tony Blair is facing jail after he was found guilty of...

Our latest website poll | why we are asking how long it takes to get a firm diagnosis of ME/CFS? | 31 August 2015

August 31, 2015 The reason we are asking this question is because the results will link in with this year’s Big Give Christmas Challenge. This will be raising money to support an MEA...

It was a good week for American ME/CFS research funding | 31 August 2015

August 31, 2015 Microbiome study gets $776k; Microbe Discovery Project gets $220k; OMF 'Big Data' study gets $350k.

‘It is time for us to take M.E. seriously’ | Letter to the Hereford Times | 21 August 2015

August 28, 2015 From the Hereford Times, 21 August 2015/ WELL done, Tony and Pat Adams for highlighting the plight of sufferers of ME and fibromyalgia in Herefordshire (No county facility for these...

TGI Friday! Our weekly round-up of recently published research abstracts | 28 August 2015

August 28, 2015 This week - one mitochondrial study and a mito hypothesis, and a Belgian weight endurance test for females.

Phase 3 trial of duloxetine/Cymbalta for fibromyalgic pain may show benefit for some patients with ME/CFS | 27 August 2015

August 27, 2015 The results of a phase 3, Japanese trial of duloxetine/Cymbalta for pain in patients with Fibromyalgia have been published in the journal Arthritis Research and Therapy. Our medical adviser, DR...

East Sussex man calls for much more biomedical research into M.E. | BBC South East | 26 August 2015

August 26, 2015 An East Sussex man, who changed from being a fit and active head of maths at a leading Kent School 10 years ago to someone who nowadays has to summon...

IDS calls for urgent ESA overhaul as part of drive to cut down welfare costs |Independent on Sunday |24 August 2015

August 24, 2015 From The Independent on Sunday, 23 August 2015. Story by Andy McSmith. Disabled people and those too sick to work will be the next group feeling the impact of the...

Bracknell man’s hike up Cotopaxi in jeopardy after Ecuadorian volcano erupts | Bracknell News | 21 August 2015

August 22, 2015 Picture shows Ewan Ross on a recent expedition – at Everest Base Camp.