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February 9, 2016 Can you help this BSc Psychology in Education student with her CBT survey?

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ME Association writes in support of FoI request relating to release of PACE Trial data | 9 February 2016

February 9, 2016 The ME Association has today written to Queen Mary University London to support the release of data from the PACE trial that has been requested under the Freedom of Information...


Safety alert on products containing St John’s Wort | BBC News | 8 February 2016

February 8, 2016 From BBC News, 8 February 2016. Packets of St John’s Wort tablets are being recalled in the UK as a safety precaution after six batches were found to be contaminated...


Midsomer Murders gets a Norfolk twist in new Cluedo board game | Eastern Daily Press | 31 January 2016

February 5, 2016 Hannah Radenkova takes a break from her M.E. to become a new character in the board game, Cluedo.


TGI Friday! Our weekly roundup of recently published research abstracts | 5 February 2016

February 5, 2016 This week - results of a online survey sent to 11 expert ME/CFS clinicians (from IACFS/ME journal).


‘Nearly 14,000 disabled people have mobility cars taken away’ | BBC News | 3 February 2016

February 4, 2016 From BBC News, 3 February 2016 (Story by Nikki Fox, disability correspondent). Nearly 14,000 disabled people who rely on a specialist motoring allowance have had their cars taken away from...


‘File on 4’ tonight – an exploration of the rare occasions when vaccines go wrong | 2 February 2015

February 2, 2016 ‘File on 4’ on BBC Radio 4 at 8pm this evening will explore what happens on the rare occasions when things go wrong with the UK’s vaccination programme. The programme,...

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How good might volunteering be as a way to get you back into paid work? | tell Work4ME in confidence | 2 February 2016

February 2, 2016 Work4ME, the Glasgow-based co-operative which aims to help people with long-term and chronic illnesses get back into employment, is conducting a confidential survey of people’s opinions of the challenges and...


How long did it take for you to obtain a diagnosis for your ME/CFS? | take part in our on-line survey for February 2016

February 1, 2016 In our ‘quick survey’ this month, we are asking people how long it took for them to obtain their diagnosis of ME/CFS – because we would like some up-to-date figures...


‘Agony uncle’ Graham Norton writes about M.E. in today’s ‘Daily Telegraph’ | 30 January 2016

January 30, 2016 From the ‘Daily Telegraph’, Lifestyle section, 30 January 2016. Dear Graham Norton: I have M.E. and can’t stop being jealous of friends I’m in my mid-30s, and I have M.E....

Gargunnock presentation

Little village Gargunnock shows its big heart for the ME Association | Stirling Observer | 29 January 2016

January 29, 2016 While the village of Gargunnock may be small, its residents have proved to be big-hearted when it comes to charity. Over the festive season, locals helped raise the sum of...

Could you run for us in the BUPA London 10k event on May 30? | 29 January 2016

January 29, 2016 We have places for this year’s BUPA London 10k run in London on May 20. Of course it’s NOT the London Marathon but, if you think of all the famous...

TGI Friday! Our weekly round-up of recently published research abstracts | 29 January 2016

January 29, 2016 This week - that controversial study in 'Pediatrics', microgenderome game-changer, dental amalgams.

Government told to restrict gabapentin and pregabalin availability | Pulse | 26 January 2016

January 28, 2016 From Pulse, 26 January 2016. Story by Caroline Price. The prescription drugs gabapentin and pregabalin could soon be more tightly regulated in the UK, after Government advisors called for them...

Tories defeated in Lords over plans to cut ESA by £30 a week | The Guardian | 27 January 2016

January 28, 2016 Lord Low: "...things can encourage disabled people into work but cutting their benefits is not one of them."

‘Managing chronic fatigue is all about pace — do not go for boom or bust’ | Dr Mark Porter in ‘The Times’ | 26 January 2016

January 27, 2016 From The Times, 26 January 2016. New research suggesting that chronic fatigue syndrome is more common in teenagers than previously thought is bound to move the condition up the NHS...

Benefit cap on full-time carers for adult relatives to be scrapped | The Guardian | 26 January 2015

January 27, 2016 Charities hail major victory as it emerges that those who spend more than 35 hours a week caring will be exempt from the cap.

Can you host the ME Association’s Autumn Roadshow this year? | 26 January 2016

January 26, 2016 Our M.E. Question Time – when it was held at Wolfson College, Cambridge, in 2014.

‘Chronic fatigue syndrome on the rise among 16-year-olds’ | BBC News | 25 January 2016

January 25, 2016 From BBC News, 25 January 2016. Chronic fatigue syndrome is more common than previously thought, particularly among girls at the age of 16, research by the University of Bristol suggests....

‘Woman whose life has been ruined by mystery illness for 16 years is finally diagnosed with Lyme Disease’ | Press Association | 8 January 2016

January 24, 2016 carried this item from the Press Association on 8 January 2016. A woman who has battled a string of debilitating illnesses for more than a decade has discovered it...

‘Employment and Support Allowance should not be cut – campaigners’ | BBC News + Petition | 23 January 2016

January 24, 2016 SIGN THE DISABILITY RIGHTS UK PETITION HERE From BBC News, 23 January 2016. Disability groups have written an open letter to Work and Pensions Secretary Iain Duncan Smith, urging him...

We would like to hear from people who have been on this ME/CFS diploma course | 22 January 2016

January 22, 2016 An online awareness course in ME/CFS, with a diploma offered on completion, is being offered by an organisation called The Centre of Excellence Online. Details can be found here:

UK ME/CFS Research Collaborative | Minutes of the executive committee meeting held on 15 January 2016.

January 22, 2016 Topics covered included a 10,000-person "Grand Challenge', this year's conference and a Code of Conduct for Communications.

TGI Friday! Our weekly round-up of recently published research abstracts | 22 January 2016

January 22, 2016 This week – case definition (Jason & Newton), cytokine analysis (Hornig & Lipkin), mitochondria (Hanson).

Help benefits campaigners build a picture of what is happening to PIP claims | 21 January 2016

January 21, 2016 The Disability Benefits Consortium is running a survey to record the experiences of people who have applied for Personal Independence Payment (PIP). It should take about 20 minutes to complete...

Chronic fatigue syndrome – rituximab revisited | Science-based Medicine blog | 19 January 2016

January 19, 2016 Harriet Hall – writing frankly about some of the applications of this drug so far.

Could you help launch a new local ME/CFS group in Hertfordshire? | 19 January 2016

January 19, 2016 St Albans Market on a quiet day – Maxine Ellis, who wants to set up the group, lives in the town.

Reactions to latest PACE Trial follow-up | letters published in The Lancet Psychiatry | 18 January 2016

January 19, 2016 Letters published in The Lancet Psychiatry today. FROM DR CHARLES SHEPHERD, MEDICAL ADVISER TO THE ME ASSOCIATION PATIENT REACTION TO THE PACE TRIAL The long-term follow-up of the PACE trial(1),...

TGI Friday! Our weekly round-up of recently published research abstracts | 15 January 2016

January 15, 2016 This week - walking test in women, CFS and EBV case study, heart rate in response to orthostatic challenge

More round the world adventures for Foggy the M.E. Dog | Evening News, Portsmouth | 15 January 2016

January 15, 2016 Sally Callow's Foggy the M.E. Dog is about to embark on a new set of round-the-world adventures tomorrow.

Parliamentary Questions | adequacy of provision, proportion referred to specialist within 3 months | 13 January 2016

January 14, 2016 Daniel Zeichner, Labour MP for Cambridge and Shadow Transport Minister, tabled two questions for the Department of Health which were answered yesterday by Jane Ellison, the Minister for Public Health....