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September 28, 2016 Yesterday was #MillionsMissing – round 2, the day of protest about the invisibility of the illness played out in 26 cities round the world. The ME Association helped publicise the...

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ME affects four times as many women as men. Is that why we’re still disbelieved? | ‘Comment is free’, The Guardian | 27 September 2016

September 28, 2016 From The Guardian ‘Comment is free’ section, 27 September 2016. Words by Nathalie Wright (pictured). Today friends and families of people with myalgic encephalopathy (ME) are taking to the streets...

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#MillionsMissing –  round 2 today | Note about ME Association radio and TV interviews | 27 September 2016

September 27, 2016 BBC interviews about the #MillionsMissing demonstrations were recorded at our office in Buckingham yesterday for BBC Oxford Radio and for BBC TV South and that they should be broadcast today....

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Rows of empty shoes will represent Chronic Fatigue Syndrome sufferers at Millions Missing | Oxford Mail | 26 September 2016

September 27, 2016 From The Oxford Mail, 26 September 2016. Story by Pete Hughes. MORE than a hundred pairs of shoes will be lined up outside the Radcliffe Camera in Oxford tomorrow to...

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From one old codger to one young running star – well done, mate! You’re almost there…| 23 September 2016

September 23, 2016 Eighteen-year-old Tom Hunt, who is running all the way from Land’s End to John O’Groats – the equivalent of running 38 marathons back-to-back in 30 days – will complete his...

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‘PACE trial shows why medicine needs patients to scrutinise studies about their health’ | Simon McGrath on BMJ blogs | 22 September 2015

September 23, 2016 From BMJ blogs, 2 September 2016. Words by Simon McGrath. Like all patients, what I want most from clinical research is treatments that work, not ones that merely look good...

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Progesterone, infections, lung disease and the role of female hormone status in ME/CFS | 22 September 2016

September 22, 2016 Some interesting new research is being reported on how progesterone – a hormone that forms part of the contraceptive pill – plays a role in the response to infection, as...

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Preliminary independent analysis of PACE Trial recovery figures published today | 21 September 2016

September 21, 2016 From Vincent Rancaniello’s Virology blog, 21 September 2016. No ‘Recovery’ in PACE Trial, New Analysis Finds Last October, Virology Blog posted David Tuller’s 14,000-word investigation of the many flaws of...

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We’re out and about on BBC Radio Nottingham this morning | 19 September 2016

September 19, 2016 Our medical adviser Dr Charles Shepherd will be appearing on BBC Radio Nottingham’s Mark Dennison Show this morning (Monday, September 19). Also on the show will be Hannah Grundy –...

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Former teacher takes court action over insurance firm ‘spying’ on her | The Irish Times | 14 September 2016

September 17, 2016 From The Irish Times, 14 September 2016. Story by Aodhan O’Faolain. A former secondary school teacher and her children were “spied on” after she brought a legal action against insurance...

TGI Friday! Our weekly round-up of recently published research abstracts | 16 September 2016

September 16, 2016 Just the one study this week – on cognitive behaviour therapy.

Parliamentary Question | what steps are being taken to encourage research into ME? | 13 September 2016

September 14, 2016 Alex Chalk, Conservative MP for Cheltenham, asked the Secretary of State for Business, Energy and Industrial Strategy what steps he has taken to encourage research into myalgic encephalomyelitis? In a...

Parliamentary Question | what medical evidence is required for PIP claims? | 12 September 2016

September 14, 2016 Kevin Foster, Conservative MP for Torbay, asked the Secretary of State for Work and Pensions: “What forms of medical evidence his Department accepts for personal independence payments claims from a...

MEA welcomes new report that supports wider use of medicinal cannabis | 13 September 2016

September 13, 2016 The ME Association has today welcomed the publication of a new report that supports the wider use of cannabis for medicinal reasons. Our medical adviser, Dr Charles Shepherd, said that...

QMUL announce they comply with the PACE Trial Tribunal decision | 9 September 2016

September 9, 2016 Statement: Disclosure of PACE trial data under the Freedom of Information Act Statement from Queen Mary University of London (QMUL): A Tribunal has concluded by a 2:1 majority that certain...

TGI Friday! Our weekly round-up of recently published research abstracts | 9 September 2016

September 9, 2016 This week - just one item based on a population-wide study in Norway.

Kaye Adams gets stuck into M.E. on her BBC Radio Scotland show this morning | 7 September 2016

September 7, 2016 Kaye Adams, the TV and radio presenter best known for her appearances on the popular daytime TV show ‘Loose Women’, really got stuck into M.E. on her BBC Radio Scotland...

Tom runs from one end of the country to the other | Tunbridge Wells Times | 7 September 2016

September 7, 2016 From the Tunbridge Wells Times, 7 September 2016. Crowborough teenager Tom Hunt is aiming to become the youngest person to run from Land’s End to John O’Groats – and raise...

‘I would wake up more tired than when I went to bed’ | Swindon Advertiser | 6 September 2016

September 6, 2016 From The Swindon Advertiser, 6 September 2016. One day, a fit and active Les Gubbins was struck down by a crippling tiredness. Here, he tells MARION SAUVEBOIS how he has...

‘My life got taken away from me’ – what it’s really like to suffer from Chronic Fatigue Syndrome | Telegraph Online | 5 September 2016

September 5, 2016 From the Online Daily Telegraph (women’s page), 5 September 2016. Words by Hannah Radenkova. On hearing the news that Chronic Fatigue Syndrome (CFS) is finally being recognised by doctors as...

SOS from the Worcestershire M.E. Support Group – help us or we go under! | 3 September 2016

September 3, 2016 The future of the Worcestershire M.E. Support Group – will it thrive for the foreseeable future or be forced to close because of an acute shortage of volunteers willing to take...

It’s time to find out if people are successfully applying for PIP | why we’re running this month’s ‘Quick Survey’ | 2 September 2016

September 2, 2016 Personal Independence Payment (PIP) is a state benefit for people who are having problems with care and/or mobility. The payments can be made at lower and higher levels for both...

TGI Friday! Our weekly round-up of recently published research abstracts | 2 September 2016

September 2, 2016 Includes the metabolite study by Prof Ron Davis's group that appeared in PNAS.

Travelling abroad? MEA medical adviser Dr Charles Shepherd comments on the latest Lariam alert | 31 August 2016

August 31, 2016 Lord Dannatt (pictured) said his son became "extremely depressed" after taking Lariam.

‘We wanted good science – not this unseemly spectacle’ | MEA chairman on the PACE Trial débacle | 30 August 2016

August 30, 2016 In the latest edition of our quarterly magazine ME Essential, which was delivered to members today, MEA chairman Neil Riley writes: We are delighted that, despite the best efforts of...

Marion Michell – BBC Woman’s Hour uncover a little bit of treasure | 30 August 2016

August 30, 2016 Marion Michell told her own severe M.E. story on BBC Woman’s Hour last Thursday (August 25). So far, it just hasn’t been picked up by the social media. But the...

‘Chronic fatigue syndrome could be the body trying to hibernate’ | The Times | 30 August 2016

August 30, 2016 From The Times, 30 August 2016. Story by Tom Whipple, Science Editor. Online link to full story not available. Chronic fatigue syndrome may be caused by the body mistakenly going...

‘Tribunal was right to order release of chronic fatigue trial data’ | The Conversation | 27 August 2016

August 27, 2016 From The Conversation blog, 27 August 2016. Words by Professor Jonathan Edwards, Professor Emeritus, University College London. After nearly four months deliberation a tribunal has dismissed an appeal.PDF) made by...

TGI Friday! Our weekly round-up of recently published research abstracts | 26 August 2016

August 26, 2016 From the Journal of Psychosomatic Research, published online 17 July 2016. A UK-based review of recommendations regarding the management of chronic fatigue syndrome. Mallet M(1), King E(1), White PD(2). 1)...

Depression – a revolution in treatment? | BBC News website | 24 August 2016

August 24, 2016 From the BBC News website, 24 August 2016. Words by James Gallagher, Rachael Buchanan and Andrew Luck-Baker. Listen to the programme ‘The Inflamed Mind’ on BBC Radio 4 tonight at...