June 25, 2017 Published in BMC Neurology, 20 June 2017. Dr Charles Shepherd comments on this latest study from the UK ME/CFS Biobank team: These are the results from another one of the...

The NICE guideline saga: how we got to where we are | 24 June 2017

June 24, 2017 Last week ME/CFS stakeholders – including the ME Association – received a letter from NICE informing us that the consultation period for consideration of a review of the current NICE...

‘Very helpful and constructive meeting’ with RCGP representatives at House of Lords | 24 June 2017

June 24, 2017 This is a brief update from MEA medical adviser, Dr Charles Shepherd, who was one of the charity representatives meeting with members of the Royal College of General Practitioners. The meeting...

No increased risk of chronic fatigue syndrome after HPV vaccination | 24 June 2017

June 24, 2017 Source: Norwegian Institute of Public Health, 23 June 2017. Girls receiving one or more doses of HPV vaccine have no greater risk of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) than unvaccinated...

Mixed response to GETSET from Science Media Centre experts | 23 June 2017

June 23, 2017 From science media centre, 22 June 2017. Expert reaction to study on guided self-help graded exercise therapy as a treatment for chronic fatigue syndrome (CFS) Researchers publishing in The Lancet present...

The Telegraph: Exercise can help chronic fatigue syndrome, study shows | 23 June 2017

June 23, 2017 From The Telegraph, Science, 22 June 2017. By Sarah Knapton, science editor 22 JUNE 2017 • 11:30PM Increasing exercise each day can help patients with Chronic Fatigue System to feel less...

ME Association to fund student bursaries for CMRC research conference | 22 June 2017

June 22, 2017 The ME Association is keen to encourage undergraduate and postgraduate medical and science students to develop a clinical or research interest in ME/CFS at an early stage in their careers....

Invitation to the Foggy ‘PAW-TY’ in Portsmouth and Live on Facebook | 21 June 2017

June 21, 2017 Helen Hyland writes, Foggy is about to start globetrotting again – raising awareness of ME by travelling to the places in the world that his ‘owner’ Sally Callow can only...

Scottish Parliament debate on Lyme Disease | 21 June 2017

June 21, 2017 Lyme Disease We are very much aware of the recognised cross-over in symptom presentation with people who were diagnosed with Lyme Disease but for whom antibiotic treatment of the initial...

BBC Radio 4 – File on 4: Children with ME to be broadcast next Tuesday at 8pm | 21 June 2017

June 21, 2017 This is a radio programme that ME Association medical adviser Dr Charles Shepherd has been liaising with the BBC about over the past few months. It will be broadcast next...

New and updated! ME Association guide to completing your ESA application | 21 June 2017

June 21, 2017 One of the ME Association’s most sought-after guides – the one that helps you complete the complicated application for Employment and Support Allowance (ESA) – is back on sale after...

Preliminary results from UK ME/CFS Biobank study presented at immunology conference in Chicago | 20 July 2017

June 20, 2017 Insights into the Immunology of Chronic Fatigue Syndrome Professor Eleanor Riley was representing the UK ME/CFS Biobank at a major immunology conference in Chicago last week. Other key speakers were Vicky...

ME/CFS Diagnosis and Management in Young People: A Primer | 20 June 2017

June 20, 2017 Published by, frontiers in pediatrics | neuropediatrics, 19 June, 2017. Open Access Review Article Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer Peter C. Rowe1, Rosemary...

What’s on? Your guide to local events for the next seven days | 19 June 2017

June 19, 2017 Taken from the ME Association Events Calendar.               Wednesday, June 21 Bunny Hill Customer Service Centre, Hylton Later, Town End Farm, Sunderland SR5 4BW,...

Meeting with Royal College General Practitioners at House of Lords | 17 June 2017

June 17, 2017 Dr Charles Shepherd will be at a meeting with representatives from the Royal College of General Practitioners (RCGP) on Thursday morning (22nd June) at the House of Lords. The meeting...

The ME Association to remain with the CFS/ME Research Collaborative | 16 June 2017

June 16, 2017 MEA Board of Trustees Statement The MEA has no intention of leaving the CMRC at the present time. Trustees have considered the limited evidence from the recent lecture given by Prof. Crawley...

Spotlight Sutton Hospital CFS/ME specialist service management seminar | 16 June 2017

June 16, 2017 We quite often receive feedback from people who are referred to CFS/ME specialist services and we would like to begin what we hope might become a series of articles canvassing...

Cannabidoil (CBD) and cannabis use for medical purposes | 15 June 2017

June 15, 2017 This update follows several recent questions from people contacting us via our MEA Facebook page. We know that a small but significant minority of people with ME/CFS use cannabidoil (CBD) or...

What’s on? Your guide to local events for the next seven days | 12 June 2017

June 12, 2017 Taken from the ME Association Events Calendar. Tuesday, June 13 Wylye Room, Salisbury Medical Practice, Fisherton House, Fountain Way, Wiltshire, Wilton Rd, Salisbury SP2 7FD, 11am-12.30pm Monthly ME/CFS café, held...

TGI Friday! Our weekly round-up of recently published research abstracts | 09 June 2017

June 9, 2017   BMC Health Services Research, 02 June 2017. Adult patients’ experiences of NHS specialist services for chronic fatigue syndrome (CFS/ME): a qualitative study in England Jessica Broughton, Sarah Harris, Lucy Beasant, Esther Crawley and Simon M Collin. Abstract Background Few...

CFS/ME Research Collaborative Annual Science Conference – 13th and 14th September | 09 June 2017

June 9, 2017 Experts in neurovirology, imaging and orthostatic intolerance will take the lead for the fourth annual UK CFS/M.E. Research Collaborative (CMRC) conference, which will this year be held in Bristol on...

M.E. sufferer receives double apology from PIP contractor Atos and maximum award | 08 June 2017

June 8, 2017 From Disability News Service, 07 June 2017. A disabled teacher has told how a government contractor apologised to him for a dishonest benefit assessment, and then had to apologise again...

Living with M.E. – Expressing emotions through ceramic art | 08 June 2017

June 8, 2017 Ember Vincent – like many who experience a devastating illness – found having a creative outlet to express her emotions was therapeutic. After 18 years of M.E. she was finally able to...

Fermanagh ME Sufferer Michelle, wants people to see a witty side to disability | 06 June 2017

June 6, 2017 The Impartial Reporter (Northern Ireland), 05 June, 2017. By Katie Dickie. Michelle Cowan (pictured left) from Tamlaght has started a blog called Witshelly, having suffered from ME (Myalgic Encephalomyelitis) since...

Bedford M.E. sufferer hits out at 35-mile round trip for disability assessment | 05 June 2017

June 5, 2017 From Bedfordshire on Sunday, 04 June, 2017. A YOUNG disabled woman is calling for a disability benefits assessment centre to be reinstated in Bedford after learning she would face a...

Research: Adult patients’ experiences of NHS specialist services for CFS/ME: a qualitative study in England | 05 June 2017

June 5, 2017   BMC Health Services Research, 02 June 2017. Jessica Broughton, Sarah Harris, Lucy Beasant, Esther Crawley and Simon M Collin. Received: 17 August 2016 Accepted: 26 May 2017 Published: 2 June 2017 Abstract Background Few studies have explored patients’ experiences of treatment for CFS/ME. This study aims to...

Our Quick Survey for June: Prescribing Experimental and Speculative Drug Treatments | 05 June 2017

June 5, 2017 MEA Quick Survey for June – Why are we asking about experimental and speculative drug treatments? Despite some significant research advances in our understanding of the underlying disease process in...

TGI Friday! Our weekly round-up of recently published research abstracts | 02 June 2017

June 2, 2017 From Physical Therapy Reviews, 25 May, 2017. Narrative Review Understanding severely affected chronic fatigue syndrome (CFS): the gravity of the situation Victoria Strassheim, Robert Ballantine, Katie L. Hackett, James Frith &...

ME and me: making films about disability to raise awareness | 31 May 2017

May 31, 2017 Disabled writer and actor Thom Jackson-Wood, who has ME, talks to Disability Horizons about his films, Awaken and The Black Box, both of which are about disability. Written after frustrations at...

Undiscovered – Sick and Tired: The PACE Trial | 30 May 2017

May 31, 2017 A new podcast from Science Friday. When researchers publish a new study on chronic fatigue syndrome, a group of patients cry foul—and decide to investigate for themselves. Written by Lauren...

TGI Friday! Our weekly round-up of recently published research abstracts | 26 May 2017

May 26, 2017 From The British Journal of Psychiatry, 2 May 2017. Controversy over exercise therapy for chronic fatigue syndrome: key lessons for clinicians and academics Alex J Mitchell Professor of Psycho-Oncology and...