January 30, 2015 From Molecular Neurobiology, 20 January 2014 [Epub ahead of print]. The Neuro-Immune Pathophysiology of Central and Peripheral Fatigue in Systemic Immune-Inflammatory and Neuro-Immune Diseases. Morris G(1), Berk M, Galecki P,...


The eyes could have it! | ME/CFS volunteers being recruited for sight study at Leicester | 29 January 2015

January 29, 2015 Two sight loss charities are about to pay for research at the University of Leicester that may show a clear link between eye problems that often affect people with ME/CFS...

Woman in bed

MEA report on the first sleep disturbance study of its type in the UK | 28 January 2015

January 28, 2015 The first team in the UK to explore whether there is a link between night-time sleep disturbances and daytime physical and mental functioning in ME/CFS recently published a paper on...


‘Knowing M.E., Knowing You” | Huffington Post blog | 26 January 2015

January 27, 2015 From ‘Huffington Post’ Lifestyle, 26 January 2015 (words by Stephen Tudor). Fifteen years ago I came down with the flu that turned into a prolonged post-viral thingy which was eventually...


TGI Friday! Our weekly round-up of recently published research abstracts | 23 January 2015

January 23, 2015 A polysomnograph of slow wave sleep – such as might have been used in this particular Belgian study.

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I’d sooner have cancer than chronic fatigue syndrome!” | Mail Online | 22 January 2015

January 22, 2015 One of the images that Jenny Andrews uses in her campaigning work


Two parliamentary meetings on ME/CFS | 20 January 2015

January 19, 2015 On Tuesday morning the All Party Parliamentary Group on ME will be discussing medical education on ME/CFS at the House of Commons. On Tuesday afternoon at the House of Lords,...


After hated Atos quits, will Maximus make work assessments less arduous? | TheGuardian.com | 18 January 2015

January 19, 2015 Poacher turned campaigner? Vocal campaigner Sue Marsh now has a high profile job with Maximus.

'I want to be able to walk and go shopping. But I also know the physical suffering I feel after pushing myself too hard.'

Life is hard for us ME sufferers – and simplistic news reports don’t help | The Guardian ‘Comment is Free’ | 16 January 2015

January 16, 2015 'Chronic fatigue syndrome is misunderstood by the public, and the media must take some of the blame'.


Do you want your plans to return to work to be filmed? | Disability Rights UK | 16 January 2014

January 16, 2015 Interesting chance to tell YOUR story in this media project from one of Britain's leading disability charities/


Doctors finally solve mystery of woman’s crippling illness – a 20-year-old tick bite | BT.com | 16 January 2015

January 16, 2015 In 20 years, Joanna Baskett has undergone 26 operations and tried 32 different medications .

TGI Friday! Our weekly round-up of recently published research abstracts | 16 January 2015

January 16, 2015 From Fatigue: Biomedicine, Health & Behavior, 7 January 2014 (epublished before print). Long-term follow-up of multi-disciplinary outpatient treatment for chronic fatigue syndrome/myalgic encephalopathy Amalia Houlton(a,*), Marilyn M. Christie(a), Bozena Smith(b)...

ME Association challenges ‘Lancet’ claim about fear of exercise leading to its avoidance in ME/CFS | 14 January 2015

January 14, 2015 The ME Association has challenged a claim made in a leading psychiatric journal today that it is fear of exercise leading to its avoidance that makes the most compelling case...

Recruiting for a sleep study at Hammersmith Hospital, London | 12 January 2015

January 12, 2015 From the Imperial College London website. The SAFFE Study – Slow Wave Sleep And Daytime Functioning in Chronic Fatigue Syndrome Principal Investigator: Professor David Nutt   Investigators: Dr Claire Durant, Dr...

Chronic Fatigue Syndrome: wrong name, real illness | Medscape Rheumatology |8 January 2015

January 12, 2015 From Medscape Rheumatology, 8 January 2015. Words by Miriam E. Tucker Sufferers of what has been called chronic fatigue syndrome (CFS) are challenging patients, presenting with complaints of postexertional malaise,...

‘Behind Perceptions’ – a photographic re-imagining of ME/CFS | Bristol, until January 28

January 9, 2015 Hamilton House, Bristol - the venue for Bonnie Thomas' photo exhibition about ME/CFS

TGI Friday! Our weekly round-up of recently published research abstracts | 9 January 2015

January 9, 2015 Just one study found this week - an Australian overview of paediatric diagnosis and management.

Countess of Mar tells House of Lords that people with ME/CFS are treated “abominably” by caring professions | Lords debate | 7 January 2015

January 8, 2015 The Countess of Mar, who chairs the Forward ME Group of ME charities, made the following contribution during a short debate on NHS: Medical Competence and Skill in the House...

Poor face higher council tax bills, warns Local Government Association | Welfare Weekly | 6 January 2014

January 8, 2015 From Welfare Weekly, 6 January 2014. Low-income working families and people in receipt of social security benefits may have to pay higher council tax bills, warns the Local Government Association...

Is depression a kind of allergic reaction? | The Guardian | 4-5 January 2015

January 7, 2015 From The Guardian, on line on 4 January and in print (G2 section) 5 January 2015. Story by Caroline Williams. Barely a week goes by without a celebrity “opening up”...

ME Association gives a guarded welcome to the US Pathways to Prevention (P2P) Report | 5 January 2014

January 5, 2015 An important report was published in the USA just before Christmas that was designed to a) identify research gaps in ME/CFS, b) identify methodological and scientific weaknesses, c) suggest research...

Has anyone with severe ME/CFS obtained exemption from NHS prescription charges for inability to go out without help? | 4 January 2015

January 4, 2015 As people are probably aware, ME/CFS is not on the list of specific medical conditions that entitle people to free NHS prescriptions. However, one of our members has asked if...

Why our January quick survey asks about cold hands and feet | 2 January 2014

January 2, 2015 Our quick survey for January is about cold hands and feet and it has attracted considerable interest so far. The survey deals with a common and sometimes very disabling symptom...

Leonard Jason wins major award from American Psychological Association | 30 December 2014

December 30, 2014 A research psychologist has won the American Psychological Association’s Award for Distinguished Professional Contributions to Applied Research for work that includes a huge volume of well-respected studies into the origins,...

‘Don’t let chronic fatigue stop you going to university’ | The Guardian student blogs | 29 December 2014

December 30, 2014 From The Guardian ‘Blogging students’, 29 December 2014 Living with ME is tough but you can succeed if you pace yourself carefully – and ask for the adjustments you need....

Vikki George honoured by Prime Minister for charity work | Leatherhead Advertiser | 25 December 2014

December 29, 2014 A Point of Light - Vikki George, who set up the Post Pals charity

TGI Friday! Our weekly round-up of recently published research abstracts | 26 December 2014

December 26, 2014 A mixed bag of studies show up in our weekly summary of research abstracts and related items.

Becki’s ‘giving’ legacy lives on with fundraising Santa dash |Bedford Today | 22 December 2014

December 24, 2014 From Bedford Today,22 December 2014. Pals donned Santa suits and braved wind and rain during a run for mental health charity MIND in memory of campaigner Becki Luscombe. Tragically Becki,...

Thank you to all our wonderful fundraisers of 2014!

December 22, 2014 Where would we have been without you all? To discuss next year, please email Helen.Hyland@meassociation.org.uk

Access to Work disability scheme ‘not reaching people’ |BBC News | 19 December 2014

December 19, 2014 From BBC News, 19 December 2014. Substantial numbers of disabled people are missing out on government support to help them into work, MPs have said. The government’s Access to Work...

‘Operation Meet The Street’ TV show highlights a young marriage blighted by M.E. | 18 December 2014

December 19, 2014 Kate (centre) and husband Chris – enjoying an afternoon break from her illness in Ammanford.