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August 24, 2016 From the BBC News website, 24 August 2016. Words by James Gallagher, Rachael Buchanan and Andrew Luck-Baker. Listen to the programme ‘The Inflamed Mind’ on BBC Radio 4 tonight at...

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Teenager Tom aims to break a world record – running from Lands End to John O’Groats | 23 August 2016

August 23, 2016 Super fit teenager Tom Hunt is hoping to race into the Guinness Book of Records by becoming the youngest person to run from Land’s End to John O’Groats – as...

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Tribunal orders university to release data from PACE chronic fatigue study | BMJ news hub | 22 August 2016

August 23, 2016 From The BMJ news hub, 22 August 2016. Story by Ingrid Torjesen. A tribunal has ruled that Queen Mary University of London must release data from a trial looking at...

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ME Association to make six annual medical student awards this year | 23 August 2016

August 23, 2016 The ME Association is keen to encourage medical students to develop a clinical or research interest in ME/CFS at an early stage in their careers. Over the years we have...

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ME Association challenges Pulse Learning’s classification of ME/CFS as a mental health disorder | 21 August 2016

August 21, 2016 The ME Association has today asked the medical education website Pulse Learning to stop classifying Chronic Fatigue Syndrome (CFS) as a mental health disorder. Pulse Learning has just published a...

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Major breakthrough on PACE Trial | Centre for Welfare Reform | 19 August 2016

August 19, 2016 From The Centre for Welfare Reform, 19 August 2016. In a major breakthrough for people with ME/CFS a judge has rejected a university’s £200,000 attempt to prevent release of data...

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ME sufferer steps up in charity challenge | Worthing Herald | 18 August 2016

August 18, 2016 From the Worthing Herald, 18 August 2016. Story by Isabella Cipirska. (Online link not found). A former teaching assistant, who suffers from a debilitating illness that has at times left...

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US Federal agency downgrades its advice on CBT and GET | Occupy M.E. website | 16 August 2016

August 16, 2016 From the Occupy M.E. website, 16 August 2016. Words by Jennie Spotila. In response to requests by U.S. patient organizations and advocates, the U.S. Agency for Healthcare Research and Quality...

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Tribunal orders release of PACE Trial data (courtesy of Valerie Eliot Smith) | 16 August 2016

August 16, 2016 From Valerie Eliot Smith’s blog, 16 August 2016. QUEEN MARY UNIVERSITY OF LONDON v INFORMATION COMMISSIONER AND ALEM MATTHEES The First-Tier Tribunal judgment in this case (click on that link...

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Supermum refuses to give up on studies |Midlothian Advertiser | 11 August 2016

August 15, 2016 Gillian Quinn and her daughter Melissa.

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Woman with severe M.E. ‘pans for poverty’ | Tearfund website | 25 July 2016

August 7, 2016 From the Tearfund website, 25 July 2016. Story by their website editor, Ben Cohen. A bedbound woman has helped to build toilets for some of the world’s poorest people –...

TGI Friday! | Our weekly round-up of recently published research abstracts | 5 August 2016

August 5, 2016 One piece this week - Keith Geraghty in the 'British Journal of General Practice'.

Healthwatch Trafford reopen their ME/CFS survey (and launch one on fibromyalgia) | 4 August 2016

August 4, 2016 The results of a major survey into the health needs of people with ME/CFS, and how patients are being treated by GPs and hospitals – launched by Healthwatch Trafford last...

Melbourn man wades through water to support ME sufferers like wife Sarah | Royston Crow | 29 July 2016

August 2, 2016 From the Royston Crow in Hertfordshire, 29 July 2016. A Melbourn man undertook a wading challenge to raise awareness of ME or Chronic Fatigue Syndrome to support sufferers such as...

TGI Friday!| Our weekly round-up of recently published research abstracts | 29 July 2016

July 29, 2016 From the Journal of Psychosomatic Research, published online 19 July 2016. Enhanced psychological flexibility and improved quality of life in chronic fatigue syndrome/myalgic encephalomyelitis Sarah Densham(1), Deborah Williams(2), Anne Johnson(2),...

‘Dr Paul’ to quit Burrswood after a 24-year career there but he could be back! | 28 July 2016

July 28, 2016 Dr Paul Worthley, fourth from left, at a recent gathering at Burrswood Hospital.

Tymes Trust succeeds in its outcry about the Scottish ‘Named Persons’ scheme | 28 July 2016

July 28, 2016 Part of the earlier outcry against the Scottish 'Named Persons' scheme.

38 marathons in 31 days – can you put Tom up for a night (or two)? | 26 July 2016

July 26, 2016 Tom Hunt hopes to get into the record books – AND to raise funds for The ME Association this autumn. He aims to become the youngest person to run between...

Channel 4 apprenticeships – anyone interested? | 25 July 2016

July 25, 2016 Creative Pioneers London is pleased to be working with C4 on this new apprenticeship project. Channel 4 are recruiting 12 new apprentices. Successful candidates will gain a 12-months paid contract...

TGI Friday! | Our weekly round-up of recently published research abstracts | 22 July 2016

July 22, 2016 This week - six studies or reviews and they're a real mixed bag!

MEA comment on new public health advice about Vitamin D supplements | 21 July 2016

July 21, 2016 The BBC and other media outlets are reporting new official guidance issued by Public Health England today urging everyone to take a vitamin D supplement during the autumn and winter...

On Manx Radio tomorrow (Thursday) – a long discussion about M.E. | 20 July 2016

July 20, 2016 There will be a lengthy discussion about M.E. on Manx Radio tomorrow (Thursday, July 21) – in the Women Today programme between 2 and 3pm. Our thanks to Celia Marshall,...

‘Investigating unexplained fatigue in general practice with a particular focus on CFS/ME’ | review paper by Dr Amolak Bansal | 20 July 2016

July 20, 2016 From BMC Family Practice (open access), 19 July 2016. Investigating unexplained fatigue in general practice with a particular focus on CFS/ME Amolak S Bansal Department of Immunology and Allergy, St....

If you are claiming Personal Independence Payment, the DWP now has a website checker to help you | 20 July 2016

July 20, 2016 We are currently dealing with a lot of queries and news items about the Personal Independence Payment (PIP), including the difficulties people are facing when transferring from DLA to PIP....

Neuromuscular Strain Increases Symptom Intensity in Chronic Fatigue Syndrome | John Hopkins study | 18 July 2016

July 19, 2016 From PLoS One (open access), 18 July 2016. Neuromuscular Strain Increases Symptom Intensity in Chronic Fatigue Syndrome Peter C. Rowe(1), Kevin R. Fontaine(2), Megan Lauver(1), Samantha E. Jasion(1), Colleen L....

Fresh evidence points to a cause and possible treatments for chronic fatigue syndrome | The Pharmaceutical Journal | 15 July 2016

July 19, 2016 From The Pharmaceutical Journal, published by the Royal Pharmaceutical Society, 15 July 2016. Feature written by Janna Lawrence, on Twitter as @JannaNadine. Chronic fatigue syndrome, or myalgic encephalitis, has been...

TGI Friday! | Our weekly round-up of recently published research abstracts | 15 July 2016

July 15, 2016 This week - MAGENTA trial protocol, mito discussion, spectroscopy study, HBO therapy in fibromyalgia.

Parliamentary Question | home assessments for people with ME/CFS | 13 July 2016

July 13, 2016 Further clarification sought by The Countess of Mar, chair of the Forward ME Group

Forward ME group | Minutes of meeting held on 24 May 2016

July 12, 2016 The Countess of Mar’s Forward ME Group have today published the Minutes of their last meeting – which was held in the Television Interview Room at the House of Lords...

MEA place to go for details of NHS specialist services, says Government minister | 12 July 2016

July 12, 2016 The ME Association website has been named in Parliament as the place to go for information about NHS specialist services in the UK for people with ME/CFS. The Minister for...