September 22, 2017   By Helen Hyland, Fundraising Manager, ME Association. This weekend’s fundraising for MEA is the story of two cities….. And some very determined women. Sinead and Lynette in London Sinead...

MEA Fundraising Feature: “I ran the Bristol Half Marathon last weekend for my boyfriend LorI” | 21 September 2017

September 21, 2017   By Helen Hyland, Fundraising Manager, ME Association. “I am running in the Bristol Half Marathon for the ME Association because I want to raise awareness for those affected by ME.”...

The SMILE trial is published – with press release, science media centre ‘expert reactions’, and media coverage | 21 September 2017

September 21, 2017   Note: This blog has been updated at 9.24pm on 21 September, with details of tomorrow (Friday) morning’s possible interview with Dr Shepherd on BBCR4 Today Programme, and the more...

Breaking News: NICE decides to Fully Update its guideline on ME/CFS! | 20 September 2017

September 20, 2017   Following the stakeholder consultation, NICE have this morning announced they will now commence a FULL REVIEW of the guideline for ME/CFS, effectively overturning previous expert advice not to update...

ME Association Summary Report of the 4th Annual CMRC Research Conference in Bristol | 20 September 2017

September 20, 2017   By Dr Charles Shepherd, Hon. Medical Adviser to the ME Association Introduction This is a summary report of what I felt were the highlights and main points to emerge...

ME Association Statement: Lightning Process and SMILE trial in young people with ME/CFS | 19 September 2017

September 19, 2017   The ME Association has spoken out robustly and campaigned against the Specialist Medical Intervention and Lightning Evaluation (SMILE) trial since first learning of the launch of its pilot in...

MEA Fundraising stories: Trying to strike the right balance | 16 September 2017

September 16, 2017   Our fundraisers are all striving to raise money to support people with M.E. and when we report their stories, we are also honouring their efforts. Fundraisers can be people...

MEA Fundraising: The Beaumont Brothers – have a listen to some “great music” and raise funds for M.E. research | 15 September 2017

September 15, 2017   By Helen Hyland, Fundraising Manager, ME Association. “Great music” was how the reviewers described the new CD released by the Beaumont Brothers. And, if this clip is anything to...

Ask your MP to sign the early day motion against the NICE guideline for ME/CFS and invite them to watch Unrest | 13 September 2017

September 13, 2017   M.E. patient Sarah Reed has done incredibly well to obtain an early day motion that could lead to a debate in parliament about the inadequacies of the NICE guideline...

Weekend fundraising roundup: Giving their all for M.E. | 11 September 2017

September 11, 2017   By Helen Hyland, Fundraising Manager. We had fundraising events taking place across the country this last weekend. And in all kinds of weathers – from bright sunshine to downpours...

Forward ME respond to NICE consultation on new guideline for suspected neurological conditions | 11 September 2017

September 11, 2017   Forward-ME submission to NICE suspected neurological conditions consultation. There is a new guideline being considered by NICE (National Institute for Health and Care Excellence) that has a direct bearing on...

The ME Association teams up with Gamesessions to help promote M.E. awareness with free copy of Mechanic Escape | 09 September 2017

September 9, 2017   Press Release, 09 September, 2017. GameSessions, the company behind many game giveaways and trials, today announces a new programme to support charities. Over the next few months, they will...

MEA Featured Fundraiser: Mary Corbett is joined by Tour de France legend | 06 September 2017

September 6, 2017   Written by Helen Hyland, Fundraising Manager, ME Association. IF ALL GOES TO PLAN….. ….is how Mary Corbett starts all her blogs about her adventures as a Tandem Tart cyclist...

MEA Featured Fundraiser: Jo Hardstaff is kick scooting her way round the south coast of England | 04 September 2017

September 4, 2017   Written by Helen Hyland, MEA Fundraising Manager It is such a joy working with our fundraisers over the years. The people who keep coming back for more, and more....

Dr Mark Vink and Dr Simin Ghatineh review the Dutch and UK FITNET Trials for CBT in adolescent ME/CFS | 04 September 2017

September 4, 2017   Published in Behavioural Sciences, 11 August 2017. In November last year, when it was announced that the UK would be conducting a £1.1million internet-based trial of cognitive behavioural therapy...

Where to go for help financing necessary daily needs and for disability aids and appliances? | 02 September 2017

September 2, 2017   We have a really busy and very friendly community Facebook page and encourage anyone who has a question about ME/CFS or living with this condition to contact us via...

Why are we asking about weight change in this month’s ME Association website survey? | 02 September 2017

September 2, 2017   Changes in weight – which can be upwards or downwards – are often reported by people with ME/CFS and we frequently feature questions on this subject on MEA Facebook...

MEA Review: Geraghty et al. Pacing brings about the greatest positive impact with the least negative reactions | 02 September 2017

September 2, 2017   Published in the Journal of Health Psychology, 29 August 2017. Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments:...

MEA Review: To the heart of the issue – new study on two-day CPET in M.E. and MS | 29 August 2017

August 29, 2017   Published in Clinical Physiology and Functional Imaging, 07 August 2017. The New Zealand pilot study on 2-day CPET is not the first to examine CPET results in ME/CFS, however...

MEA Review: Cytokine responses to exercise and activity in patients with chronic fatigue syndrome | 25 August 2017

August 25, 2017   Published in, Clinical and Experimental Immunology, 05 August, 2017. Cytokine responses to exercise and activity in patients with chronic fatigue syndrome: Case control study Authors: L.V. Clark, M. Buckland,...

BBC Radio: After Martine McCutcheon – an interview with Colin Barton from Sussex & Kent M.E. Society | 25 August 2017

August 25, 2017   We recently featured local radio coverage of M.E. in Norfolk and Suffolk, and on Monday, 21 August, it was Sussex and Surrey’s turn. And unlike the situation reported in...

The NICE guideline for ME/CFS is unethical – Dr Diane O’Leary, Kennedy Institute of Ethics | 23 August 2017

August 23, 2017   When Forward-ME met with Dr Diane O’Leary from the Kennedy Institute of Ethics, Washington D.C., it was with the NICE guideline very much in mind. Readers will recall that...

The 2017 Invest In ME Research Conference Report – Dr Charles Shepherd | 22 August 2017

August 22, 2017   The Invest in ME Research conference took place on Friday, 2nd June, 2017. This year’s conference was held at One Great George Street, an impressive Edwardian building located opposite St James’s...

The APPG on M.E. comes to an end. Focus of lobbying will now be via Forward-ME Group | 22 August 2017

August 22, 2017     Following this year’s general election, none of the parliamentarians (with the exception of the Countess of Mar (pictured)), wanted to stand for re-election of the All-Party Parliamentary Group for...

MEA Summary Review: Cytokine signature associated with disease severity in ME/CFS | 18 August 2017

August 18, 2017   There has been a lot of talk recently about a new research paper from Stanford University concerning cytokine signatures and disease severity. In this review, we hope to break...

CMRC 2017 Update: Look who’s flying-in to present at the ME/CFS research conference next month! | 18 August 2017

August 18, 2017   “I am very excited to attend the CMRC conference and welcome the chance to talk about our research with other researchers from around the world. M.E./CFS can turn a...

BBC Radio Norfolk: An epic seven-year battle with local commissioning groups for suitable healthcare for M.E. sufferers | 17 August 2017

August 17, 2017   This was the breakfast show broadcast on BBC Radio Norfolk which ran for well over three hours. M.E. was featured throughout the programme with local group M.E. Support Norfolk and their unstinting...

The Daily Mail: Why are doctors and patients still at war over M.E.? | 15 August 2017

August 15, 2017   From Mail Online, by Jerome Burne, 15 August 2017. This article also made it into the print edition. How the best treatment for the debilitating condition is one of...

Caring for Mam: ‘I am functioning through a crisis’ writes Emma Hayes | 13 August 2017

August 14, 2017 Published in thejournal.ie, 13 August 2017 I CAN COUNT on one hand the amount of people I have shared my troubles with. Intensely private and protective of my mother, I...

NICE Guideline Review: We hear back from NICE about the identity of ‘topic experts’ | 13 August 2017

August 13, 2017 The ME Association learns that NICE consulted with a patient representative, two neurology experts, three psychiatry experts, and one paediatric expert over the recommendation to take ‘no action’ in the...

Top scientists gather at Stanford to share insights into ME/CFS | 13 August 2017

August 13, 2017 From The Mercury News, 12 August 2017. Stanford: Scientist searches for answer to his son’s devastating condition As a renowned Stanford scientist, Ron Davis has a deep appreciation for the...