April 27, 2016 A big ‘Thank you’ to everyone who is planning on doing their bit in ME Awareness Week next month.


GMC impose conditions on Dr Nigel Speight’s licence to practice | 23 April 2016

April 23, 2016 The ME Association’s paediatric medical adviser Dr Nigel Speight had conditions attached to his licence to practice by a panel of the General Medical Council on Wednesday (April 20). The...


TGI Friday! Our weekly round-up of recently published research abstracts | 22 April 2015

April 22, 2016 This week - independent suicide figures analysis, Leonard Jason group case notes.

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‘The Misleading Research at the Heart of Disability Cuts’ | Huffington Post blog | 20 April 2016

April 20, 2016 From The Blog at the Huffington Post, 20 April 2016 | By Dr Simon Duffy, Director of the Centre for Welfare Reform. In the wake of the resignation of Iain...

Purple Booklet covers, 7th Edition copy

The ME Association’s ‘Purple booklet’ | apologies for late delivery | 18 April 2016

April 18, 2016 We apologise for late delivery to all those who have pre-ordered the Eighth Edition of the Shepherd/Chaudhuri masterwork: ME/CFS/PVFS: An Exploration of the Key Clinical Issues. We had to make...


‘What I’m really thinking’: the person with ME | The Guardian, 16 April 2016

April 17, 2016 From The Guardian, 16 April 2016. Anonymous contribution. I have myalgic encephalomyelitis. If you think it is hard to say, try living with it every day. Yes, I understand that...


TGI Friday! Our weekly round-up of recently published research abstracts | 15 April 2016

April 15, 2016 This week – a really mixed bag: drug review (ampligen), health services research, online forums.


‘If you think comfortable families don’t get sucked into poverty, think again’ | The Guardian | 14 April 2016

April 15, 2016 From The Guardian, 14 April 2016 (Words by Frances Ryan). It’s frightening how life can change. Over a decade ago, Thomas Hemingford, now 45, was on a comfortable wage as...

Centre for Welfare Reform copy

‘Misleading medical research underpins disability cuts’ | Centre for Welfare Reform | 14 April 2016

April 14, 2016 The Centre for Welfare Reform press release | 14 April 2015. A new report from the Centre for Welfare Reform explains how a current scientific controversy relates to the debate...


DWP ‘punishing’ low-paid full-time workers under new benefits rule | The Guardian | 14 April 2016

April 14, 2016 Helen Smith: ‘Because I was working I just didn’t understand why I was sanctioned.’

Our medical adviser on Dublin’s ‘Spin Talk’ show at 2.15pm today | 11 April 2016

April 11, 2016 A short interview about ME/CFS with ME Association medical adviser, Dr Charles Shepherd, will be broadcast on the Dublin-based music radio station this afternoon at about 2.15pm. Dr Shepherd has...

‘I’m not employed – but please recognise that I am an academic ‘ | The Guardian | 8 April 2016

April 8, 2016 From The Guardian, 8 April 2016. Words by ‘Anonymous academic’. Last week I submitted a paper to a top journal in my field. I have another two in the pipeline,...

TGI Friday! Our weekly round-up of recently published research abstracts | 8 April 2016

April 8, 2016 Diagram: Autonomic nervous system - what does it do?

Burrswood Hospital will ‘continue to take in-patient bookings until the end of 2016’ | 6 April 2016

April 6, 2016 Friends of the Burrswood Hospital near Tunbridge Wells in Kent have put out a statement this week saying that it is “business as usual” for its in-patient services – despite an...

Is chronic fatigue syndrome finally being taken seriously? | The Guardian | 4 April 2016

April 4, 2016 From The Guardian, 4 April 2016. Words by David Cox. Jose Montoya was a trainee doctor when his supervisor told him that if he continued specialising in treating chronic fatigue...

TGI Friday + Plus 1 | our weekly round-up of recently published research abstracts | 1 April 2016

April 1, 2016 This week - lay summary of cytokine study, aloe vera juice report.

TGI Friday – Plus 1 | our weekly roundup of recently published research articles | 25 March 2016

March 25, 2016 This week - pain in fibrolmyalgia and two reviews by our research assistant, Sophie Loup.

“I’d have laughed if you had told me 10 years ago that I would be studying maths” | Hannah Price in the Daily Telegraph | 24 March 2016

March 25, 2016 From the Daily Telegraph, 24 March 2016 (Words by Hannah Price). Diagnosed with chronic fatigue syndrome, Hannah Price thought university was off the cards; here she explains how she’s making...

‘How The Prince’s Trust helped me through severe disability’ | Huffington Post | 18 March 2016

March 20, 2016 From the Huffington Post, 18 March 2015. Story by Charlotte Elizabeth. I vividly remember the first time I learnt just who The Prince’s Trust were. I was in recovery from...

TGI-Plus1 Friday | Our weekly round-up of recently published research abstracts | 18 March 2016

March 18, 2016 From PLoS One, 11 March 2016. Open access. MicroRNAs hsa-miR-99b, hsa-miR-330, hsa-miR-126 and hsa-miR-30c: Potential Diagnostic Biomarkers in Natural Killer (NK) Cells of Patients with Chronic Fatigue Syndrome (CFS)/ Myalgic...

‘We need to end the stigma about M.E.’ | Candis magazine | April 2016

March 17, 2016 From Candis magazine, April 2016. Sue Hardy, 53, from Hertfordshire tells why the ME Association is campaigning for change When Sue Hardy had an operation in November 2012, she was...

ME/CFS is ‘poor relation’ of other neurological conditions say Worcestershire campaigners | Worcester News | 11 March 2016

March 12, 2016 Pictured – some of the campaigners from Worcestershire ME Support Group

More than half of appealed DWP ‘fit to work’ decisions found to be wrong at tribunal | The Independent | 10 March 2016

March 11, 2016 More than half of disabled people declared “fit to work” by the Department for Work and Pensions who appeal the decision are later found to actually be ill, departmental figures...

TGI Friday! Our weekly round-up of recently published research abstracts | 11 March 2016

March 11, 2016 This week - physical conditioning programme, immune signatures study

Parliamentary Question | how many GPs have notified cases of M.E. in the last five years? | 9 March 2016

March 10, 2016 Cat Smith, Shadow Minister for Women and Equalities and Junior Shadow Minister for Women and Equalities, asked the Secretary of State for Health how many GPs have notified cases of...

ME Association to fund fourth study into the role of the mitochondria in ME/CFS | 10 March 2016

March 10, 2016 We are pleased to announce that our Ramsay Research Fund is about to start funding another research study relating to the role of mitochondria in ME/CFS. This research grant has...

Patients, Scientists Fight Over Research-Data Access | Wall Street Journal | 7 March 2016

March 8, 2016 From the Wall Street Journal, 7 March 2016. Story by Amy Dockser Marcus. Professor Peter White, one of the principal investigators in the PACE Trial, wrote to the WSJ in...