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January 13, 2017 From Molecular Biosystems, 23 December 2016. Metabolic profiling of a myalgic encephalomyelitis/chronic fatigue syndrome discovery cohort reveals disturbances in fatty acid and lipid metabolism Arnaud Germain(a), David Ruppert(b), Susan M....

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UK ME/CFS Biobank team contribute editorial on dangers of conflicting case definitions | Fatigue: Biomedicine, Health & Behavior | 8 January 2017

January 10, 2017 From Fatigue: Biomedicine, Health and Behavior, 8 January 2017. EDITORIAL Differing case definitions point to the need for an accurate diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome Luis Nacul, Caroline C...

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How to take care of yourself if you have a winter cough and cold | 8 January 2017

January 8, 2017 A Daily Mail news report correctly points out there are an awful lot of people suffering from a nasty viral infection at the moment that can cause a prolonged period...

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You smashed it! But our Christmas Appeal will stay open – and here’s why | 6 January 2016

January 6, 2017 Story by Sarah Staples The ME Association’s Christmas appeal to fund groundbreaking research – which hit its £50,000 target in less than four weeks – is to stay open, with...

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TGI Friday! Our weekly round-up of recently published research abstracts | 6 January 2017

January 6, 2017 From Molecular Biosystems, 23 December 2016 Metabolic profiling of a myalgic encephalomyelitis/chronic fatigue syndrome discovery cohort reveals disturbances in fatty acid and lipid metabolism Arnaud Germain(a), David Ruppert(b), Susan M...

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Our latest website poll | give us your views on the NHS hospital-based services for people with ME/CFS | 3 January 2016

January 3, 2017 Scroll down the page to find our monthly 'Quick Survey' (middle column)

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TGI Friday! Our weekly round-up of recently published research abstracts | 30 December 2016

December 30, 2016 From the Journal of Advanced Nursing, 21 December 2016. Full text available. Exploring the potential role of the Advanced Nurse Practitioner within a care path for patients with Chronic Fatigue...

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Seasonal greetings and good news from the UK’s only ME/CFS Biobank | 29 December 2016

December 29, 2016 Dr Charles Shepherd, chairman of the biobank steering group, passes on this message from the biobank principal, Dr Luis Nacul: The UK ME/CFS Biobank would like to share our significant...

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TGI Friday! Our weekly round-up of recently published research abstracts | 23 December 2016

December 22, 2016 Immunosignatures, countering "aspersions", sleep quality & inflammation, metabolic profiling.

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New study on pathological mechanisms in ME from Bergen research group | Kavli Trust newsletter | 22 December 2016

December 22, 2016 From Kavlifondet | 22 December 2016 A new study, partly funded by the Kavli Trust, suggests that the PDH enzyme is inhibited in ME/CFS patients, which may explain both energy...

MEA to fund new research into biomarkers and markers of disease activity in people with severe ME/CFS | 20 December 2016

December 20, 2016 Professor Elisa Oltra, who has landed a £50,000 MEA research grant for this exciting study.

Upbeat end-of-year message from the UK ME/CFS Biobank | 20 December 2016

December 20, 2016 Pictured - Public health consultant Dr Luis Nacul and his team at the London School of Hygiene and Tropical Medicine.

Forward ME Group | Professor Holgate answers questions about the MEGA project | posted here 20 December 2016

December 20, 2016 FORWARD ME GROUP: Minutes for the meeting held in at the House of Lords on 7 December 2016 This meeting included a presentation from Professor Stephen Holgate on the MEGA...

TGI Friday! Our weekly round-up of recently published research abstracts | 16 December 2016

December 15, 2016 Three studies this week – from PACE re-analysis to phone-delivered CBT and heart rate feedback.

‘Sometimes it’s even too painful to brush my hair’ | The Newsletter, Northern Ireland | 12 December 2016

December 15, 2016 From The Newsletter, Northern Ireland, 12 December 2016. Story by Joan McParland On 13th October 1999 my life became unrecognisable. I went from being fit and healthy, able to work...

A preliminary re-analysis of the PACE trial | Fatigue: Biomedicine, Health & Behavior | 14 December 2016

December 14, 2016 From Fatigue: Biomedicine, Health & Behavior, 14 December 2016 Can patients with chronic fatigue syndrome really recover after graded exercise or cognitive behavioural therapy? A critical commentary and preliminary re-analysis...

Why our Christmas Appeal got personal for MEA medical adviser Dr Charles Shepherd | 13 December 2016

December 13, 2016 Story by Sarah Staples Our Christmas appeal, Make ME Better, has reached its target of raising £50,000 to fund pioneering biomedical research into the illness. The ME Association’s medical adviser,...

‘ME campaigners don’t ignore CBT and GET… but they do challenge the science’ | Dr Phil Hammond in Private Eye | 10 December 2016

December 10, 2016 In his second consecutive ‘Medicine Balls’ column in Private Eye, Dr Phil Hammond returns to a subject in which he has a close professional interest – the medical care of...

High Court action over insurance company’s ‘spying’ settled | The Irish Times | 9 December 2016

December 10, 2016 From The Irish Times, 9 December 2016. Story by Aodhan O’Faolain. A retired secondary school teacher who was followed by private detectives acting for Zurich Life Assurance has settled her...

Correspondence between BBC Director-General and the Countess of Mar about the FITNET-NHS Trial | 9 December 2016

December 9, 2016 Contains the latest - 8 December – letter to the BBC Director-General.

TGI Friday! Our weekly round-up of recently published research abstracts | 9 December 2016

December 9, 2016 Just one item this week – a philosophical approach to resolving patients' feelings of injustice

Mind the Gap: Ethical Failures in the Treatment of Chronic Fatigue Syndrome | BMJ Blogs | 6 December 2016

December 6, 2016 From the BMJ Blogs, 6 December 2016. Guest Post: Charlotte Blease & Keith Geraghty Article in the Journal of Medical Ethics : Epistemic injustice in healthcare encounters: Evidence from chronic...

Make ME Better! | Our Christmas Appeal is within striking distance of achieving its target | 2 December 2016

December 2, 2016 We've hit well over 99% of our target – over £49,700 – in under a month. Thanks for your support!

Applications to join Patient Advisory Group of MEGA project extended by one week | 2 December 2016

December 2, 2016 From the MEGA project website, 1 December. Words by Sonya Choudhury. We have been contacted by a number of people asking if it’s possible to extend the deadline for applications...

Jennifer Brea’s film to have world premiere at Sundance Festival in January | 30 November 2016

November 30, 2016 Press release issued by the production team. The feature documentary Unrest – formerly known as Canary in a Coalmine – has been selected as one of the highly anticipated narrative documentaries...

The Countess challenges the ‘Mr Magoo approach’ to benefits assessments | in Parliament | 30 November 2016

November 30, 2016 Story by Tony Britton So who’s right? Are benefits assessments one of the toughest, most merciless tests that people with ME/CFS have to endure or has the Department for Work...

The PIP process – “just like a slap in the face” for her constituent, says MP | in Parliament | 30 November 2016

November 30, 2016 Story by Tony Britton The process of claiming one of the government’s disability benefits was “just like a slap in the face” for one of her constituents who has a...

Newcastle University experts in hunt for “smoking gun” of chronic fatigue syndrome ME | The Northern Echo | 29 November 2016

November 30, 2016 From The Northern Echo, 29 November 2016. Story by Tony Kearney, News Editor (North Durham). University scientists are leading research to develop a simple blood test for the chronic fatigue...

Parliamentary ME/CFS Questions | Luton North MP piles pressure on government over PACE, NICE, treatment strategy and direction of research | 25 November 2016

November 25, 2016 In some of the fiercest parliamentary questioning about ME/CFS ever, Labour MP Kelvin Hopkins (Luton North) has tabled a stream of questions about the PACE Trial, the National Institute of...

‘ME cluster bomb’ | Medicine Balls column, Private Eye | 25 November 2016

November 24, 2016 Written by ‘M.D.’, the nom de guerre of Dr Phil Hammond MD’s greatest regret as a junior doctor was not to take the time to understand ME (myalgic encephalopathy). As...