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September 19, 2014 Our medical adviser, Dr Charles Shepherd, writes: I am in the process of preparing a new MEA Management File on the prescription-only pain-killing drug called Lyrica/pregabalin. I would be interested...

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TGI Friday! Our weekly round-up of recently published research abstracts | 19 September 2014

September 19, 2014 From Neuroendocrinology Letters, 30 June 2014 [Epub ahead of print]. Clinical endocannabinoid deficiency (CECD) revisited: Can this concept explain the therapeutic benefits of cannabis in migraine, fibromyalgia, irritable bowel syndrome...

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Calls for medicinal cannabis to be legalised for pain relief | features man with ME | ITV Central News, 16 September 2014.

September 17, 2014 Also contains brief interview with Norman Baker MP, Home Office minister for crime prevention

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Invictus medallist: “To anyone with ME, I’d encourage them to try archery…” | Bath Chronicle | 16 September

September 17, 2014 From The Bath Chronicle, 16 September 2014. Sam Livy (pictured) went to the inaugural Invictus Games as an archer – and left them as a double rowing champion. And there...

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‘Cuts forcing English councils to limit social care’ | BBC News | 15 September 2014

September 15, 2014 95-year-old Cyril Gillam no longer gets home help visits

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TGI Friday! Our weekly summary of recently published research abstracts | 12 September 2014

September 12, 2014 From The Journal of Pain, 14 February 2014. E-published 11 December 2012. Low-dose vaporized cannabis significantly improves neuropathic pain. Wilsey B, Marcotte T, Deutsch R, Gouaux B, Sakai S, Donaghe...

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Ending the stigma of ME/CFS | new Professor Leonard Jason video | 10 September 2014

September 10, 2014 The Dutch ME/CFS group, ME/CVS Vereniging, continue to astound with their series of short and well-targeted educational films about the illness for which they have received a grant from the...

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‘The state may threaten but a parent knows when a child is sick’ | Sunday Times, News Review | 7 September 2014

September 10, 2014 Words by Camilla Cavendish, Associate Editor. Contains ME/CFS content.

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Parliamentary Question | fibromyalgia statistics and Department of Health guidance | 5 September 2014

September 9, 2014 Andrew Bingham MP – he asked for the fibromyalgia stats and for details of NHS support for sufferers.

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Welcome to John Rutter CBE, a new patron for The ME Association | 8 September 2014

September 8, 2014 We are delighted to announce that the eminent British composer and conductor, John Rutter CBE, has accepted our invitation to become a new patron of The ME Association. Mr Rutter,...

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TGI Friday! Our weekly round-up of recently published research abstracts | 5 September 2014

September 5, 2014 From Behaviour Research and Therapy, 26 August 2014. Prevalence and predictors of recovery from chronic fatigue syndrome in a routine clinical practice Elisabeth Flo(a,b), Trudie Chalder(c) a) Norwegian Competence Center...

Sue Luscombe joins our medical panel as diet and nutrition adviser | 4 September 2014

September 4, 2014 We are delighted to announce the appointment of Mrs Sue Luscombe as the ME Association’s official adviser on diet and nutrition matters. Sue – who will be joining the panel...

UK ME/CFS Research Collaborative conference and Lipkin seminar | our first impressions | 3 September 2014

September 3, 2014 CATCH UP FROM OUR MEDICAL ADVISER DR CHARLES SHEPHERD I am only just back from London where Ian Lipkin (pictured left) gave an excellent presentation to a patient meeting at...

Professor Lenny Jason discusses his interest in M.E. on Dutch group’s YouTube Channel | 2 September 2014

September 2, 2014 Professor Lenny Jason, from DePaul University, Chicago, talks about his involvement with ME and some huge prevalence studies, in this latest short film from Dutch group, ME/CVS Vereniging. It’s part...

We’re now into September – so a reminder about our big event in Oxford on the 27th

August 31, 2014 The ME Association has joined forces with local group OMEGA to host our annual ME Question Time at Wolfson College, Linton Road, Oxford OX2 6UD, at 2pm on Saturday, September...

Young people’s charity brands council survey a ‘Big Brother invasion of privacy’ | Ardrossan and Saltcoats Herald | 28 August 2014

August 29, 2014 From the Ardrossan and Saltcoats Herald, 28 August 2014. A CHARITY that helps young people with Chronic Fatigue Syndrome – or ME – has branded the Council’s doorstep survey on...

Teenage artist passes GCSEs despite missing five years of schooling through illness | Gloucester Citizen | 27 August 2014

August 28, 2014 From The Gloucester Citizen, 27 August 2014 (Story by Laura Churchill). TEENAGER Georgia Watkins became so ill at the age of just nine she spent years not being able to...

This Christmas, we shall be trying to raise £100,000 for the UK ME/CFS Biobank | could you be a sponsor of our appeal?

August 26, 2014 For our Big Give Christmas Challenge this year, the ME Association will be trying to raise £100,000 to help develop the UK’s only ME/CFS Biobank – held at the University...

Invitation to Stockholm seminar on paediatric ME/CFS | 12 November 2014

August 26, 2014 Drs Nigel Speight, Peter Rowe and Amolak Bansal scheduled to speak, and there will be a child's perspective. Most of the lectures will be in English.

‘Boot camp instructor Alan puts his ME struggle to good use’ | Inverness Courier | 23 August 2014

August 26, 2014 From The Inverness Courier, 23 August 2014. HEALTHY food and lifestyle changes helped a Dalneigh fitness instructor turn his life around after nearly two decades of battling illness. At its...

‘New Lord Lieutenant of Belfast Fionnuala Jay-O’Boyle is a force to be reckoned with’ | Belfast Telegraph | 26 August 2014

August 26, 2014 From The Belfast Telegraph, 26 August 2014. When a devastating attack of ME cut short her promising singing career at only 21, the Londonderry soprano fought back to become a...

‘St Cleer student gets top grades despite battling ME’ | Cornish Guardian | 21 August 2014

August 22, 2014 For the last six years, Georgia has been suffering with ME.

TGI Friday! Our weekly round-up of recently published research abstracts | 22 August 2014

August 22, 2014 From Clinical Infectious Diseases, 12 August 2014 (E-published before print). Irritable bowel syndrome and chronic fatigue six years after Giardia infection: a controlled prospective cohort study. Hanevik K(1), Wensaas KA(2),...

We’ve 13 places on offer | run a brilliant BUPA London 10k for us next May

August 20, 2014 We need your help to find runners for our guaranteed places in the BUPA London 10k next May.

Have you got your ME/CFS alert card yet? £2 for a couple at our online shop

August 20, 2014 You might feel a little safer if you are carrying our ME/CFS alert card. Buy two of these for your wallet or purse for just £2. They are free to...

Still a few places left for Professor Lipkin’s seminar in London on September 3

August 20, 2014 There are still a few places left for Professor Ian Lipkin’s seminar in London next month. The ME Association is co-hosting the event.

Could this be yours? We’ve one place left in the Dublin Marathon on October 27

August 20, 2014 If you are already a strong runner, or if you know of someone who is, then the Dublin Marathon is the run for you on 27 October this year. Join...

‘Baby joy for Martine McCutcheon after health problems’ | BT.com news | 18 August 2014

August 18, 2014 From BT.com news, 18 August 2014 Actress Martine McCutcheon has revealed she is to be a mum after thinking she may never have children after health problems. Actress Martine McCutcheon...

TGI Friday! Our weekly round-up of recently published research abstracts and related items | 15 August 2014

August 15, 2014 From European Psychiatry, 1 August 2014. Abstract presented to the 22nd European Congress of Psychiatry in Munich, 1-4 March 2014. EPA-0907 – Perceived illness risk in chronic fatigue syndrome (CFS/ME)...

Charities express deep unease about Government response to proposed improvements to the WCA | 14 August 2014

August 14, 2014 Deep unease with the way the Department for Work and Pensions responded to an evidence-based review (EBR) of proposals to improve the Work Capability Assessment has been expressed this week...