testTubes_1411569c

April 18, 2014 From Emerging Microbes & Infections, 9 April 2014. The saga of XMRV: a virus that infects human cells but is not a human virus Maribel Arias and Hung Fan(*) -...

2674829122

Teacher with chronic fatigue syndrome asks to be struck off | Edinburgh Evening News | 15 April 2014

April 17, 2014 Teacher worked at Dirleton Primary School in East Lothian

article-2295228-18C23D5A000005DC-765_634x621

‘Love letters to the world’ | Book review | Daily Mail

April 14, 2014 A book review by Bel Mooney which appeared in the Daily Mail, 21 March 2014. ONE MILLION LOVELY LETTERS BY JODI ANN BICKLEY (Yellow Kite £14.99) The well-meaning suggestion that...

NICE

ME Association oppose NICE decision not to review their guideline on ME/CFS | 11 April 2014

April 11, 2014 Britain’s most important clinical guideline on ME/CFS – first published in August 2007 and never properly reviewed since then – has been put on a new ‘static list’ by NICE...

th

Personal independence payments are ‘a punishment of the poor and ill’ | The Guardian | 11 April 2014

April 11, 2014 Piece by leading social affairs commentator Polly Toynbee in today"s 'Guardian'

testTubes_1411569c

TGI Friday! Our weekly round-up of recently published research abstracts and reviews | 11 April 2014

April 10, 2014 From Biological Markers and Guided Therapy, Vol 1 2014. Downloads full text. Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and the Potential Role of T Cells S. L. Hardcastle(a*), E. W. Brenu(a), D.R....

580_Image_Welfare_Reform

Benefit claim assessments take ‘double time’, says Capita | BBC News Wales | 9 April2014

April 9, 2014 From BBC News Wales, 9 April 2014. The head of a company assessing people in Wales for a new disability payment has admitted they are taking “significantly longer” than predicted....

Unknown

Petition urges a new approach to ME/FM treatment in Northern Ireland | 8 April 2014

April 8, 2014 Newry and Mourne ME/Fibromyalgia Support Group call for action from local politicians.

200px-Royal_Badge_of_Wales_(2008).svg

New petition to bring ME/CFS specialist services to South Wales | 7 April 2014

April 7, 2014 The royal badge of Wales – affixed to the constitutional settlement that gave the Welsh the power to run their own health services.

Iain Duncan Smith

Civil servants deployed to help Capita clear PIP assessments backlog| The Guardian | 7 April 2014

April 7, 2014 Ian Duncan Smith: "We have now actually asked them [Atos] to go, to leave…"

Unknown

Fundraising vacancy | applications now closed | 7 April 2014

April 7, 2014 Due to the volume of applications received for the part-time post of fundraising assistant, applications have now closed. Please do not send us any more.

Now Dr Charles Shepherd has a YouTube gallery – thanks to Dutch ME organisation | 7 April 2014

April 7, 2014 A gallery of short videos featuring professional short talks by MEA medical adviser Dr Charles Shepherd are being put out by the Dutch ME organisation, ME/CVS Vereniging, who have obtained...

TGI Friday! Our weekly roundup of recently published research abstracts and related items | 4 April 2014

April 4, 2014 Three studies this week – including report on girl who became ill after HPV vaccination.

Cheltenham student to talk about her ME | ITV News West Country (E) tonight | 3 April 2014

April 3, 2014 To view this short film on the ITV Player, click HERE. A Cheltenham student wants more people to learn about ‘invisible’ illnesses, so they can recognise that not all disorders...

Housing benefit changes distress disabled people, say MPs | BBC News | 2 April 2014

April 2, 2014 From BBC News, 2 April 2014 Changes to housing benefit in England, Scotland and Wales are creating “financial hardship and distress” for disabled people, MPs have warned. The reduction of...

Dr Charles Shepherd to speak in Cheltenham on Thursday, April 3

April 2, 2014 The municipal offices in Cheltenham- where Dr Shepherd will speak on April 3 at 6pm

Public lecture about the PACE Trial | Bristol, Wednesday, 2 April 2014

April 1, 2014 Canynge Hall – the venue for the lecture by Professor Peter White.

In depth coverage of the IACFS/ME Conference in San Francisco | 20 – 23 March 2014

March 31, 2014 An excellent audio summary of the IACFS/ME San Francisco conference presented by Anthony Komaroff, MD may be found at this link: https://www.dropbox.com/s/vame7msb9h6nnfs/DrKomaroff.MP3 Dr Komaroff’s slides: https://www.youtube.com/watch?v=nyyjRdbvPj0 Report by Dr Charles...

Fundraising vacancy at the ME Association |31 March 2014

March 31, 2014 New post of 15-hours-a-week Fundraising Assistant. Closing date: April 11.

‘Misdiagnosing the unexplained’ | Letter to ‘The Psychologist’ | April 2014

March 28, 2014 Letter by Joan Crawford, chairperson of Chester ME Self-Help Group.

Atos quits £500m work capability assessment contract early | The Guardian | 27 March 2014

March 28, 2014 From The Guardian, 27 March 2014 (story by Haroon Siddique). Atos will receive no compensation and has made ‘substantial financial settlement’ to DWP for early termination of contract The contract...

The ‘CFS Patient Advocate’ muses on the future of ME/CFS research conferences | 25 March 2014

March 28, 2014 Christopher Cairns describes his feelings about the four-day IACFS/ME conference in San Francisco.

TGI Friday! Our weekly round-up of recently published research abstracts | 28 March 2014

March 28, 2014 From the Journal of Nuclear Medicine, 24 March 2014 [Epub ahead of print] Neuroinflammation in Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: An 11C-(R)-PK11195 PET Study. Nakatomi Y1, Mizuno K, Ishii...

Parliamentary Question | Equality Act records in ME/CFS child protection cases | 26 March 2014

March 27, 2014 The Countess of Mar got nowhere with this Parliamentary Question.

Parliamentary Question | appropriate treatment and guidance in cases of maladministration | 24 March 2014

March 27, 2014 Jeremy Browne (Liberal Democrat MP for Taunton Deane) tabled a question that asked the Secretary of State for Health (1) what steps he has taken to ensure that people with...

Chronic Fatigue Syndrome and Swine Flu Vaccination | BMJ, Rapid Responses | 21 March 2014

March 27, 2014 From Rapid Responses, the British Medical Journal, published online on 21 March 2014. Chronic Fatigue Syndrome after Swine Flu Vaccination Sean P J Lynch, Consultant Psychiatrist and Honorary Associate Professor),...

Belfast landmark (and three others) to be lit up blue for this year’s ME Awareness Day | 12 May 2014

March 25, 2014 Local group ME Support NI 'delighted' at council backing for the cause

John Rutter composes a reply to that awfully nice Mr Liddle | The Spectator | 22 March 2014

March 24, 2014 John Rutter – M.E. is real. I know, I had it for seven years.

TGI Friday! Our weekly round-up of recently published research abstracts | 21 March 2014

March 21, 2014 Just when you thought it was going to be an easy weekend, up pops lots of reading matter!

Successful result in fundraising campaign to bring Professor Lipkin to the UK | 20 March 2014

March 20, 2014 Professor Lipkin - he will use his visit to help energise UK biomed research into ME/CFS for years to come

Joint letter asks why PVFS, ME and CFS are missing from draft WHO reclassification | 17 March 2014

March 19, 2014 Why have these diseases been omitted from reclassification document since early 2013?