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May 26, 2017 From The British Journal of Psychiatry, 2 May 2017. Controversy over exercise therapy for chronic fatigue syndrome: key lessons for clinicians and academics Alex J Mitchell Professor of Psycho-Oncology and...

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ME sufferer Anna to hold tea party | Rutland and Stamford Mercury | 19 May 2017

May 19, 2017 From the Rutland and Stamford Mercury, 19 May 2017. Story by Kerry Coupe. Online link not available. The inspirational founder of an annual online tea party is planning her fifth...

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Paediatricians apologise but they don’t identify the “muppet” who came up with title for today’s conference | 18 May 2017

May 18, 2017 The apology was immediate and obviously sincere – but it failed to answer two key questions: who was the “muppet” who designed the programme (to the left) for today’s paediatric...

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‘Outrageous interference’ with rule of law as DWP sets 80% benefit appeal rejection target | politics.co.uk | 16 May 2017

May 17, 2017 From politics.co.uk, 16 May 2017. Story by Natalie Bloomer. The Department for Work and Pensions (DWP) has set staff a target of upholding 80% of the benefit decisions that they...

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Peterhead youngster completes charity cycle for nan | The Press and Journal, Aberdeenshire | 16 May 2017

May 16, 2017 From The Press and Journal, Aberdeenshire, 16 May 2017. Story by Jamie Ross. A north-east youngster, who cycled more than 60 miles to raise funds for his sick grandmother, has...

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‘With M.E. – don’t judge this book by its cover’ | M.E. Awareness Week opinion piece by Kieran Moon | 13 May 2017

May 13, 2017 KEIRAN MOON, 33, a former Registrar, was diagnosed with ME in 2011 having never fully recovering from viral meningitis and glandular fever as a teenager. Here, he writes about how –...

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Extended discussion about M.E. on BBC Radio Scotland this morning, listen again facility | 12 May 2017

May 12, 2017 Stephen Jardine - who hosted the discussion on BBC Radio Scotland

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“Change won’t happen through one country…” | ME Awareness Day interview with Jennifer Brea | 12 May 2017

May 12, 2017 American filmmaker Jen Brea is fast becoming a global voice for those with ME. For ME Awareness Day, she talks to the ME Association’s SARAH STAPLES about the success of...

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TGI Friday! Our weekly round-up of recently published research abstracts | 12 May 2017

May 12, 2017 From BMC Family Practice (open access), 5 May 2017. Health care resource use by patients before and after a diagnosis of chronic fatigue syndrome (CFS/ME): a clinical practice research datalink...

It’s ME Awareness Day – with special thanks to everyone who is Going Blue for ME | 12 May 2017

May 12, 2017 Good luck – and thank you to all our wonderful BLUE fundraisers. The drive, determination and imagination of our amazing fundraisers never, ever fails to amaze us. And never more...

Kaye Adams Programme, BBC Radio Scotland, here we come… again! | 11am, 12 May 2017

May 11, 2017 It’s M.E. Awareness Day tomorrow (May 12) and just before the big #MillionsMissing ’empty shoe’ demonstration outside the Scottish Parliament there will be a big discussion about M.E. on BBC...

Watch the video of the Scottish Parliament debate on M.E. this afternoon | 11 May 2017

May 11, 2017 There was a 30-minute debate to mark International ME Awareness Day in the Scottish Parliament this afternoon. The debate was moved by Gail Ross, Caithness, Sutherland and Ross, Scottish National...

Stereotyping still prevents ME from being taken seriously | The Scotsman, 11 May 2017

May 11, 2017 A generation of Scots learned about ME through the fate of fomer Celtic player Davie Provan.

@Firestormmer – The ‘Twitter King’ who can’t find his fingers when it comes to texting | 11 May 2017

May 11, 2017 Russell Fleming aka @Firestormmer a former editor and author from the PhoenixRising ME/CFS forums. . He tells SARAH STAPLES about the benefits – and pitfalls – of social media for...

During ME Awareness Week, we revisit the toxic legacy of McEvedy and Beard | 10 May 2017

May 10, 2017 A paper written by two psychiatrists in 1970 has influenced medical, public and media perceptions of ME as an illness for decades. For ME Awareness Week, SARAH STAPLES argues it’s a story...

Speak up for ME/CFS during the General Election campaign! | 9 May 2017

May 9, 2017 The General Election takes place on Thursday June 8, and we know that people may want to contact their local parliamentary candidates to inform them about issues of key national...

Nicki remembers when her family’s life changed for ever – and when staying quiet was no longer an option | 9 May 2017

May 9, 2017 Nicki Strong with her children Lara and Jamie – when they were younger.

Here’s what the #MillionsMissing campaigners are doing in ME Awareness Week | 8 May 2017

May 8, 2017 Taken from one of the #MillionsMissing Facebook pages. On May 11, 12 and 13th, #MillionsMissing campaigners will be protesting to demand health equality and treatment for all M.E. sufferers. Who...

Free leaflets from the ME Association – for ME Awareness Week only | 8 May 2017

May 8, 2017 In addition to our ME Awareness BLUE poster (pictured) The ME Association is releasing FREE downloads of TWO invaluable leaflets.Explaining M.E. to other people and Just diagnosed: we’re here to...

M.E. Awareness Week starts today | please use ‘Go Blue for ME’ twibbon | 8 May 2016

May 8, 2017 Keiran Moon and his wife and displaying our twibbon on their social media profiles.

Video of Jessica Taylor-Bearman on her wedding day | 6 May 2017

May 6, 2017 VIDEO OF JESSICA TAYLOR-BEARMAN ON HER WEDDING DAY https://m.facebook.com/story.php?story_fbid=10155017364115659&id=228735667216 Well done, Jess! You look gorgeous.

Award-winning ‘Unrest’ film documentary about M.E. on its way to premiere in the UK | 6 May 2107

May 6, 2017 FILM REVIEW FROM ‘NOW’ MAGAZINE IN TORONTO – AND WE’RE TOLD THE BRITISH PREMIERE OF JENNIFER BREA’S FILM WILL BE HELD IN SHEFFIELD ON SUNDAY, JUNE 11 (MORE DETAILS BELOW)...

Liaison psychiatrist says that Cochrane Review on exercise therapy in CFS was heavily influenced by controversial PACE Trial| 6 May 2017

May 6, 2017 From The British Journal of Psychiatry, 2 May 2017. Controversy over exercise therapy for chronic fatigue syndrome: key lessons for clinicians and academics COMMENTARY ON… COCHRANE CORNER Alex J Mitchell...

M.E. debate scheduled to take place in the Scottish Parliament on Thursday (May 11) | 5 May 2017

May 5, 2017 This motion will be discussed in the Scottish Parliament on Thursday, May 11 – immediately after Questions to the First Minister. It is scheduled for 15 minutes of discussion beginning...

TGI Friday! | Our weekly round-up of recently published research abstracts | 5 May 2017

May 5, 2017 From PLOSone, 28 April 2017 Vitamin and mineral status in chronic fatigue syndrome and fibromyalgia syndrome: A systematic review and meta-analysis Monica L. Joustra(1) , Isidor Minovic(2), Karin A. M....

PLOSone issues ‘Expression of Concern’ about PACE Trial cost-effectiveness analysis | 2 May 2017

May 3, 2017 From PLOSone, 2 May 2017. Expression of Concern: Adaptive Pacing, Cognitive Behaviour Therapy, Graded Exercise, and Specialist Medical Care for Chronic Fatigue Syndrome: A Cost-Effectiveness Analysis THE PLOSone EDITORS Several...

Our latest ‘Quick Survey’ | How much do you currently spend on vitamins, minerals and health supplements per month? | 3 May 2017

May 3, 2017 Why are we asking this question? Firstly, because many people with ME/CFS believe that minerals, vitamins and supplements can be a helpful part of their management programme – despite the...

TGI Friday! Our weekly round-up of recently published research abstracts | 28 April 2017

April 28, 2017 From Microbiome (open access), 26 April 2017. Fecal metagenomic profiles in subgroups of patients with myalgic encephalomyelitis/chronic fatigue syndrome Dorottya Nagy-Szakal(1)†, Brent L. Williams(1)†, Nischay Mishra(1), Xiaoyu Che(1), Bohyun Lee(1), Lucinda Bateman(2), Nancy G. Klimas(3,4), Anthony L. Komaroff(5), Susan Levine(6), Jose G. Montoya, Daniel L. Peterson(7),...

Fourth annual conference of the UK CFS/ME Research Collaborative | Bristol, 13-14 September 2017

April 27, 2017 Experts in neurovirology, imaging and orthostatic intolerance will take the lead for the fourth annual UK CFS/ME Research Collaborative (CMRC) conference, being held in Bristol in September. Established in 2013,...