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April 27, 2017 Experts in neurovirology, imaging and orthostatic intolerance will take the lead for the fourth annual UK CFS/ME Research Collaborative (CMRC) conference, being held in Bristol in September. Established in 2013,...

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‘Gut bacteria linked to chronic fatigue’ (full article and link to published study) | The Times | 26 April 2017

April 26, 2017 From The Times, 26 April 2017. Story by Tim Whipple, Science Editor. Chronic fatigue syndrome has been linked to changes in the gut’s bacteria in the latest research showing that...

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Forward-ME Group | ‘Vital that the new WHO classification continues to provide a bulwark against medical mismanagement of M.E.’ | 21 April 2017

April 22, 2017 The Forward ME-Group has responded to the latest proposals to update the classification of M.E. and CFS in the World Health Organisation’s next version of the International Classification of Diseases...

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TGI Friday! Our weekly round-up of recently published research abstracts | 21 April 2017

April 21, 2017 From BMC Medical Genomics (open access), 23 February 2017. Epigenetic modifications and glucocorticoid sensitivity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Wilfred C. de Vega(1,2), Santiago Herrera(1), Suzanne D. Vernon(3) and Patrick O. McGowan(1, 2, 4, 5) 1....

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Ninth edition of our clinical and research masterwork now available | 19 April 2017

April 19, 2017 We'd like to send free copies to your GP or healthcare professional. Email their names and addresses to admin@meassociation.org.uk

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Scottish student’s short M.E. film to compete for Cannes festival prize | 14 April 2017

April 14, 2017 Our medical adviser, Dr Charles Shepherd, has been interviewed for a Sky News report about this film later this evening.

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TGI Friday! Our weekly round-up of recently published research abstracts | 14 April 2017

April 13, 2017 From BMC Medical Genomics (open access), 23 February 2017. Epigenetic modifications and glucocorticoid sensitivity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Wilfred C. de Vega(1,2), Santiago Herrera(1), Suzanne D. Vernon(3) and Patrick O. McGowan(1,2,4,5) 1. Department of Biological...

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Five years after going down with M.E., Sophie’s on top of the world (well, England’s highest peak) | 13 April 2017

April 13, 2017 Sophie Atkinson (right) – her walk up Scafell Pike was the stuff that M.E. dreams are made of!

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‘It’s time for an independent review of the PACE Trial methods and results’ | Dr Charles Shepherd, Journal of Health Psychology | 10 April 2017

April 10, 2017 Publication of different perspectives about the PACE Trial continues apace in the Journal of Health Psychology – with a contribution from ME Association medical adviser Dr Charles Shepherd appearing yesterday....

Draft Minutes of the UK CFS/ME Research Collaborative Executive Board Meeting |21 March 2017

April 7, 2017 Present: Stephen Holgate (SH) Esther Crawley (EC) Mark Edwards – EMIG (ME) Mike Dalrymple (MRCT) Sonya Chowdhury (SC) Gabrielle Murphy (GM) Charles Shepherd (CS) Ed Sykes (ES) Jan McKendrick (JM)...

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TGI Friday! Our weekly round-up of recently published research abstracts | 7 April 2017

April 7, 2017 From Translational Psychiatry (open access), 4 April 2017. Immune network analysis of cerebrospinal fluid in myalgic encephalomyelitis/chronic fatigue syndrome with atypical and classical presentations M Hornig(1,2), C G Gottschalk(3), M L Eddy(1), X Che(1),...

UK ME/CFS Biobank clears first hurdle in major bid to secure outside funding | 4 April 2017

April 4, 2017 Pictured: staff at the UK ME/CFS Biobank, led by Dr Luis Nacul, a public health specialist at the London School of Hygiene and Tropical Medicine.

Why are we asking about the thyroid gland and thyroid function tests in our ‘Quick Survey’ this month | 1 April 2017

April 1, 2017 We are asking these questions because: * Some of the symptoms of low thyroid function/hypothyroidism overlap with ME/CFS – so this is a condition that MUST be excluded before a...

TGI Friday! Our weekly round-up of recently published research abstracts | 31 March 2017

March 31, 2017 From Pain Physician (open access). March/April 2017. This study is funded by the MEA Ramsay Research Fund. We commented on it HERE. The Role of Autonomic Function in Exercise-induced Endogenous...

MEA Ramsay Research Fund | Further results from study into the role of the autonomic nervous system and the cause of pain in ME/CFS | 29 March 2017

March 29, 2017 One of the most consistent neurological abnormalities to be reported in ME/CFS involves what is called the autonomic nervous system (ANS). This is a part of the nervous system that...

Latest update from the MEGA project and the Patient Advisory Group | 29 March 2017

March 29, 2017 From the website of the ME/CFS Epidemiology and Genomics Alliance, 29 March 2017. Blog by Sonya Chowdhury. Note from MEA medical adviser Dr Charles Shepherd: I am not a member...

PACE trial commentaries in the ‘Journal of Health Psychology’ made open access – thanks to the MEA! | 29 March 2017

March 29, 2017 People wanting to read a new and wide-ranging collection of critiques about the PACE Trial are no longer banging their heads against an academic journal’s paywall. That’s because – thanks...

Biological underpinnings of chronic fatigue syndrome begin to emerge | Nature | 28 March 2017

March 28, 2017 Dr Ronald Davis holds the printed circuit he and his team developed to test for chronic fatigue syndrome.

TGI Friday! Our weekly round-up of recently published research abstracts | 24 March 2017

March 24, 2017 From BMC Medical Genetics (open access), 16 March 2017 Clinically proven mtDNA mutations are not common in those with chronic fatigue syndrome Elizna M. Schoeman (1, ^), Francois H. Van Der Westhuizen (2,...

‘How a study about Chronic Fatigue Syndrome was doctored, adding to pain and stigma’| The Conversation | 23 March 2017

March 23, 2017 From The Conversation, a blog which proclaims it is all about ‘Academic rigour, journalistic flair’, 23 March 2017. Written by Steven Lubet, Williams Memorial Professor of Law, Northwestern University. The...

Thanks to the MEA, you can now read the whole independent re-analysis of the PACE Trial recovery paper | 22 March 2017

March 22, 2017 The independent re-analysis of the PACE Trial recovery paper emerged from behind the publisher’s paywall today – after the ME Association paid US$2,000 for open access to the paper so...

‘Moving Toward Answers in ME/CFS’ | NIH Director’s Blog | 21 March 2017

March 21, 2017 Blog written by Dr Francis Collins (director of US National Institutes of Health) and Dr Walter Koroshetz (director of the National Institute of Neurological Disorders and Stroke). Imagine going to...

If you lived through the M.E. outbreak in Cumbria in 1955, please get in touch | 21 March 20187

March 21, 2017 The village of Dalston - centre of the 1955 M.E. outbreak

A new and improved ESA50 form is about to launch for UK benefits applicants | 18 March 2017

March 18, 2017 An ESA50 form - the current version is pictured.

‘Getting it wrong on Chronic Fatigue Syndrome’ | New York Times ‘Sunday Review’ | published online 18 March 2017

March 18, 2017 From the New York Times Sunday Review, 18 May 2017. Words by Julie Rehmeyer and David Tuller. What are some of the treatment regimens that sufferers of chronic fatigue syndrome...

TGI Friday! Our weekly round-up of recently published research abstracts | 17 March 2017

March 17, 2017 Staff working for the UK ME/CFS Biobank at the London School of Hygiene and Tropical Medicine have had another paper published in a peer-reviewed journal.   Here, the team –...

Manchester report reveals that many people with ME/CFS don’t trust their GPs | Healthwatch Trafford survey | 17 March 2017

March 17, 2017 More than half of people in the UK with ME/CFS said they wouldn’t trust their GP to give them information on their condition, a new report claims today. Healthwatch Trafford...

Mast Cell Disorders and ME/CFS | note from Dr Charles Shepherd following last night’s BBC programme | 16 March 2017

March 16, 2017 We have been receiving a lot of inquiries about an item in a BBC TV programme last night that covered Mast Cell Disorders and a possible link to ME/CFS. The...

Could you help this postgrad student with your experiences of complementary and alternative therapies? | 15 March 2017

March 15, 2017 Fiona Cox, a health psychology postgraduate at the University of the West of England in Bristol, is conducting a survey into the use of complementary and alternative therapies (CAM) by...

Call for retraction of PACE publication | Centre for Welfare Reform | 13 March 2017

March 14, 2017 From The Centre for Welfare Reform, 13 March 2017. An open letter to the editors of the journal Psychological Medicine, calling for the retraction of the 2013 article “Recovery from...