May 21, 2018 The draft scoping report sets out the parameters by which NICE will create the content for the new guideline.
May 18, 2018 Pathologist Daniel DuPlessis pointed out that Merryn had inflammation of the ganglia – gatekeepers to sensations in the brain.
May 18, 2018 A round-up of ME Awareness Week 2018. A special week that has broken all previous records.
May 18, 2018 We would particularly welcome applications from young researchers, researchers entering the field of ME/CFS, and researchers from localities where ME/CFS is under-recognised and/or research is particularly scarce.
May 17, 2018 Merryn’s family attended Millions Missing Manchester, placing a pair of her pink Doc Martens outside the Town Hall.
May 16, 2018 Liz and Helen Wood have campaigned for the awareness event for a number of years, after Helen was diagnosed with the condition in 2005.
ME Awareness Week: ‘Please stop a while and think what it would be like…’ by Mary Corbett |15 May 2018
May 15, 2018 Last week Mary took the decision to share the other side of M.E. It's a side that we all recognise, but we don't always talk about.
ME Association Ramsay Research Fund invests in new study with ME/CFS Biobank to examine dysfunctional immune system and energy metabolism | 15 May 2018
May 15, 2018 New research that will examine both immune system dysfunction in M.E. and defects in the way that energy is being produced at a cellular level.
May 14, 2018 If sufficient numbers of MSPs can be encouraged to sign the Motion then it could be used to bolster support for a full debate in Westminster.
May 14, 2018 "The way I describe it is I'm actually grieving the loss of my sister because she's not around anymore."
Stephen Kerr MP launches M.E.-friendly GP initiative in Stirling with help from the ME Association | 12 May 2018
May 12, 2018 “The ME Association are doing fantastic work in helping those coping with ME. I am happy to support them in any way I can.”
May 11, 2018 “Our staff are brilliant – we really can’t thank them enough!” Joy Patel.
May 11, 2018 Keri Johnstone spent her Bank Holiday Monday doing a Charity walk in aid of the ME Association 'Go Blue for M.E.' campaign.
May 10, 2018 "I believe that the working world is still very unaware of the symptoms caused by M.E."
ME Awareness Week: An island trek – Antje Rook is fundraising on behalf of her inspirational friend | 10 May 2018
May 10, 2018 Raising funds for M.E. research “Because I want my friend to be able to have a normal life again.”
Southern Daily Echo: ‘I count my blessings’ – Meet the woman who high-fived her daughter after being diagnosed with ME | 10 May 2018
May 10, 2018 "The worst comment I get is "I get tired too, its our age". If you don't have M.E., you honestly don't know the meaning of the word."
May 10, 2018 ME Association supporter, Sally Callow, has been writing a six-part series for her local newspaper, helping to raise awareness of M.E.
The Mirror: ‘Party animal’ young mum left unable to cook, clean or wash by disease some doctors don’t believe is real | 09 May 2018
May 9, 2018 "I was an adrenaline junkie who had done three skydives - now I can't work, spend weeks in bed and am unable to do anything,”
May 9, 2018 It is hoped that the more signatures this new EDM attracts, the greater the chance of an actual debate in parliament.
The Sun: Devastating Disease – Family of girl killed by ME reveal how they were told by doctors it was all in her head, before it robbed her of everything | 09 May 2018
May 9, 2018 Due to the stigma of the condition Merryn was “embarrassed” about having ME, and was reluctant to tell people that was what was wrong with her.
May 8, 2018 I had just finished my GCSEs when I got ill. I noticed I was getting worn out uncharacteristically quickly.
ME Awareness Week: BBC Newsbeat – Chronic fatigue syndrome treatment ‘should be withdrawn’ | 08 May 2018
May 8, 2018 Dr Shepherd says the problem with GET is that it's too rigid and pushes patients too far.
May 8, 2018 People with M.E. are demonstrating they possess the confidence to be seen and help raise awareness of M.E.
May 7, 2018 This month-end summary reveals abstracts from ME/CFS research published in April 2018.
ME Awareness Week: Focus on Employment: Employees with M.E. can still offer a great deal by Joy Devlin | 07 May 2018
May 7, 2018 “In the workplace, most managers genuinely want to help. But, due to lack of information and guidance about M.E. they can make mistakes.”
May 7, 2018 “I have done this in aid of the ME Association who do a vital job raising awareness of M.E. and supporting those with the condition.”
ME Awareness Week: Workwell Foundation – Graded exercise for ME/CFS is ‘detrimental to the health of patients and should not be recommended’ | 07 May 2018
May 7, 2018 "Graded exercise therapy mistakenly assumes that ME/CFS fatigue and disability result from inactivity and deconditioning."
ME Awareness Week: ‘Missing behind closed curtains for 12 years’ – Woman describes living with M.E. | 07 May 2018
May 7, 2018 “I was still mobile at the beginning but my health continued to deteriorate due to a lack of treatment and support,” Jo Moss.
ME Awareness Week: Please take our survey on education and M.E. and consider sharing your story | 04 May 2018
May 4, 2018 Our focus on employment and education issues continues today with a new survey on education.
May 3, 2018 This BBC Newsbeat documentary will be available on iPlayer from 6.00am on Tuesday, 8th May.
May 3, 2018 Pippa says that people simply don’t understand about living with a disability like M.E.