Biobank 3

October 21, 2014 The deadline for the receipt of pledges to our online Christmas Appeal to safeguard the future of the UK ME/CFS Biobank has been extended to October 31. So far 70...

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NICE guideline – over to NHS England | but swift action to correct their classification of ME/CFS | 18 October 2014

October 18, 2014 The Forward ME Group of charities held a meeting with Professor Mark Baker from NICE at the House of Lords on 25 June 2014. The Minutes for this meeting can...

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TGI Friday! Our weekly round-up of recently published research abstracts and related items | 17 October 2014

October 17, 2014 From Quality of Life Research, 11 October 2014 [Epub ahead of print]. Assessment of recovery status in chronic fatigue syndrome using normative data. Matthees A. P.O. Box 6483, East Perth,...

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Griffith researcher awarded $1.85m grant to accelerate diagnosis, treatment for CFS | Medical News website | 14 October 2014

October 14, 2014 Team led by Professor Sonya Marshall-Gradisnik (pictured) wins the award.

Latest Lenny Jason video

Professor Leonard Jason discusses treatment and management | latest video release by Dutch group | 12 October 2014

October 12, 2014 The latest in the series of educational videos about ME/CFS made for worldwide release by the Dutch group, ME/CVS Vereniging, appeared online this week. This one – No 54 – features Leonard...

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Spend a day soaking up the ME/CFS research news | Newcastle, Tuesday 4 November 2014

October 10, 2014 The main campus at the University of Newcastle – where Professor Julia Newton and her team are based.

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Your views wanted on musculoskeletal services in Buckinghamshire | 10 October 2014

October 10, 2014 To take part in their online survey, click on the following link: https://www.surveymonkey.com/s/XC7DNFB

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TGI Friday! Our weekly round-up of recently published research abstracts | 10 October 2014

October 10, 2014 From the Journal of Applied Physiology, 2 October 2014 Phenylephrine Alteration of Cerebral Blood Flow During Orthostasis; Effect on N-Back Performance in Chronic Fatigue Syndrome. Medow MS(1), Sood S(2), Messer...

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£15,230 now received in pledges for our UK ME/CFS Biobank Appeal | 8 October 2014

October 8, 2014 We have today received received another £200 – bringing the total amount of pledges received to £15,230. Pending the arrival of any further last-minute pledges, this is the amount now...

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ME Association complaints lead to banning of two internet ads | 8 October 2014

October 8, 2014 An internet advertisement for something called “The M.E. Cures PIONEERS OF THE SMILE M.E. CURES PROGRAMME” has today been banned by the Advertising Standards Authority (ASA) following a complaint by...

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Our medical adviser to speak at The Circle, 33 Rockingham Lane in Sheffield on October 15

October 7, 2014 Dr Charles Shepherd will be guest speaker at the AGM of the Sheffield ME Group.

Petition handed in for dedicated M.E. clinic in South Wales | Barry and District News | 1 October 2014

October 3, 2014 From Barry and District News, 1 October 2014. A petition calling for a dedicated clinic for ME sufferers in south Wales has been presented to the Welsh Assembly by an...

TGI Friday! Our weekly round-up of recently published research extracts | 3 October 2014

October 3, 2014 Just one study to look at this week. And how Norway counts ME/CFS numbers on a nationwide basis.

Answer some questions about the illness for this award-winning production team | 1 October 2014

October 1, 2014 An actress and voice coach has teamed up with an award-winning BBC documentary film producer-director to work on an exciting multi-media production about living with M.E. Both of them filmed...

UK CFS/ME Research Collaborative, conference report | 30 September 2014

September 30, 2014 The ME Association will not be producing a separate report of the conference. Instead, the official record will include contributions later from our medical adviser Dr Charles Shepherd and MEA...

’40 families reported to social services after GP disputes’ | The Sunday Times | 28 September 2014

September 28, 2014 From The Sunday Times, 28 September 2014. Story by James Gillespie. UP TO 40 families have been investigated by child protection officers because they disagreed with doctors about the diagnosis...

Our annual ‘ME Question Time’ | come and join us in Oxford on Saturday, September 27

September 26, 2014 The ME Association has joined forces with local group OMEGA to host our annual ME Question Time at Wolfson College, Linton Road, Oxford OX2 6UD, at 2pm on Saturday, September...

TGI Friday! Our weekly round-up of recently published research abstracts and related items | 26 September 2014

September 26, 2014 From PLoSONE, 19 September 2014. High-Throughput Sequencing of Plasma MicroRNA in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Ekua W. Brenu(1,2,*), Kevin J. Ashton(3), Jana Batovska(3), Donald R. Staines(2, 4), Sonya M. Marshall-Gradisnik...

Newcastle PhD student dumps shoes to raise Chronic Fatigue Syndrome awareness | Newcastle Chronicle | 24 September 2014 |

September 25, 2014 From the Newcastle Chronicle, 14 September 2014. Story by John Lowdon. A Newcastle PhD student is raising awareness of a medical syndrome by casting aside his shoes and walking the...

Three videos featuring Professor Leonard Jason on Dutch group’s YouTube Channel | 23 September 2014

September 23, 2014 Professor Leonard Jason, from DePaul University, Chicago, talks about his involvement with ME studies over the last 20 years in these short films from Dutch group, ME/CVS Vereniging. They’re part...

‘Painful proof that one thyroid test does not fit all’ | The Telegraph | 23 September 2014

September 23, 2014 From The Telegraph, 23 September 2014. Written by Audrey Snee. Audrey Snee says that doctors are failing to diagnose thyroid disease and that many sufferers are missing out on treatment...

New Minister for Disabled People sets out his priorities | Access magazine | September 2014

September 22, 2014 Mark Harper MP, the recently appointed Minister for Disabled People.

Feedback requested for an MEA leaflet on the use of Lyrica/pregabalin | 19 September 2014

September 19, 2014 Our medical adviser, Dr Charles Shepherd, writes: I am in the process of preparing a new MEA Management File on the prescription-only pain-killing drug called Lyrica/pregabalin. I would be interested...

TGI Friday! Our weekly round-up of recently published research abstracts | 19 September 2014

September 19, 2014 From Neuroendocrinology Letters, 30 June 2014 [Epub ahead of print]. Clinical endocannabinoid deficiency (CECD) revisited: Can this concept explain the therapeutic benefits of cannabis in migraine, fibromyalgia, irritable bowel syndrome...

Calls for medicinal cannabis to be legalised for pain relief | features man with ME | ITV Central News, 16 September 2014.

September 17, 2014 Also contains brief interview with Norman Baker MP, Home Office minister for crime prevention

Invictus medallist: “To anyone with ME, I’d encourage them to try archery…” | Bath Chronicle | 16 September

September 17, 2014 From The Bath Chronicle, 16 September 2014. Sam Livy (pictured) went to the inaugural Invictus Games as an archer – and left them as a double rowing champion. And there...

‘Cuts forcing English councils to limit social care’ | BBC News | 15 September 2014

September 15, 2014 95-year-old Cyril Gillam no longer gets home help visits

TGI Friday! Our weekly summary of recently published research abstracts | 12 September 2014

September 12, 2014 From The Journal of Pain, 14 February 2014. E-published 11 December 2012. Low-dose vaporized cannabis significantly improves neuropathic pain. Wilsey B, Marcotte T, Deutsch R, Gouaux B, Sakai S, Donaghe...

Ending the stigma of ME/CFS | new Professor Leonard Jason video | 10 September 2014

September 10, 2014 The Dutch ME/CFS group, ME/CVS Vereniging, continue to astound with their series of short and well-targeted educational films about the illness for which they have received a grant from the...

‘The state may threaten but a parent knows when a child is sick’ | Sunday Times, News Review | 7 September 2014

September 10, 2014 Words by Camilla Cavendish, Associate Editor. Contains ME/CFS content.

Parliamentary Question | fibromyalgia statistics and Department of Health guidance | 5 September 2014

September 9, 2014 Andrew Bingham MP – he asked for the fibromyalgia stats and for details of NHS support for sufferers.