August 18, 2017   There has been a lot of talk recently about a new research paper from Stanford University concerning cytokine signatures and disease severity. In this review, we hope to break...

CMRC 2017 Update: Look who’s flying-in to present at the ME/CFS research conference next month! | 18 August 2017

August 18, 2017   “I am very excited to attend the CMRC conference and welcome the chance to talk about our research with other researchers from around the world. M.E./CFS can turn a...

BBC Radio Norfolk: An epic seven-year battle with local commissioning groups for suitable healthcare for M.E. sufferers | 17 August 2017

August 17, 2017   This was the breakfast show broadcast on BBC Radio Norfolk which ran for well over three hours. M.E. was featured throughout the programme with local group M.E. Support Norfolk and their unstinting...

The Daily Mail: Why are doctors and patients still at war over M.E.? | 15 August 2017

August 15, 2017   From Mail Online, by Jerome Burne, 15 August 2017. This article also made the hard copy edition of The Daily Mail. How the best treatment for the debilitating condition...

Caring for Mam: ‘I am functioning through a crisis’ writes Emma Hayes | 13 August 2017

August 14, 2017 Published in thejournal.ie, 13 August 2017 I CAN COUNT on one hand the amount of people I have shared my troubles with. Intensely private and protective of my mother, I...

NICE Guideline Review: We hear back from NICE about the identity of ‘topic experts’ | 13 August 2017

August 13, 2017 The ME Association learns that NICE consulted with a patient representative, two neurology experts, three psychiatry experts, and one paediatric expert over the recommendation to take ‘no action’ in the...

Top scientists gather at Stanford to share insights into ME/CFS | 13 August 2017

August 13, 2017 From The Mercury News, 12 August 2017. Stanford: Scientist searches for answer to his son’s devastating condition As a renowned Stanford scientist, Ron Davis has a deep appreciation for the...

Chief Medical Officer for England responds to MEA Petition against NICE guideline | 08 August 2017

August 8, 2017   Dame Sally Davies, the Chief Medical Officer for England, today responded to our petition – supported by over 15,000 people – calling on the National Institute for Care and...

Severe ME Day – A time to reflect and to consider what we want to change | 08 August 2017

August 8, 2017 By Russell Fleming, Content Manager, ME Association. Severe ME Day is generally regarded as a time of remembrance for those who had been members of our community but were taken...

Buzzfeed News – This Is Why I Quit Exercise Therapy | 07 August 2017

August 7, 2017 By Camilla Maxted, 06 August 2017. When it comes to my illness, I’ve learned to listen to my symptoms, trust my body, and give it the one thing it really...

Stanford symposium to highlight new ME/CFS research | 07 August 2017

August 7, 2017 From Palo Alto Online, 05 August 2017. A community symposium with world researchers of one of the world’s most puzzling diseases will take place at Stanford University on Aug. 12....

The Times: Behind the story – A battle of prescriptions | 01 August 2017

August 1, 2017 By Oliver Moody and Tom Whipple, The Times, 01 August 2017. One lot of scientists is mocked as stooges of a free-market conspiracy to dismantle the welfare state. The other stands...

The Times: Scientists trade insults over myalgic encephalomyelitis (ME) study | 01 August 2017

August 1, 2017 The Times, 01 August 2017. An acrimonious scientific row has broken out after a £5 million publicly funded study investigating treatments for chronic fatigue syndrome was condemned as “deeply flawed”...

Stanford researchers identify biomarkers associated with chronic fatigue syndrome severity | 31 July 2017

July 31, 2017 The following is a press release from Stanford Medicine that had been subject to an embargo until 8pm UK-time. Researchers at the Stanford University School of Medicine have linked chronic...

Journal of Health Psychology: Special Issue on the PACE Trial – Introduction by David Marks | 31 July 2017

July 31, 2017   In Saturday’s blog we featured a press release from the Journal of Health Psychology (The Pace Trial – The Making of a Medical Scandal). Today the Journal has published its...

Euromene: New European ME/CFS Biomarker database project | 31 July 2017

July 31, 2017 Last week, an inaugural review was published that presented a biomarker database initiative by EUROMENE, and will lead to better collaboration between ME/CFS research groups across Europe. The review also highlighted...

BBC Norfolk: How I fought chronic fatigue syndrome through art | 31 July 2017

July 31, 2017 Published online by BBC Norfolk, 29 July 2017. An artist diagnosed with chronic fatigue syndrome says painting helps her cope. Jasmine Farrow, 37, was diagnosed with chronic fatigue syndrome, also...

The PACE Trial: The Making of a Medical Scandal | 29 July 2017

July 29, 2017 Press release, Journal of Health Psychology, 28 July 2017. Journal of Health Psychology Special Issue on The PACE Trial, Vol. 22, No 9, Aug. 2017. A Special Issue of the...

Inspirational Exeter woman with ME gives hopes to others with illness | 28 July 2017

July 28, 2017 From DevonLive.com, 25 July, 2017. Like most people, “life and soul of the party” Mary Cousins took her good health for granted until she began experiencing excruciating stomach pains. In...

What is the prognosis for someone severely affected by M.E.? | 28 July 2017

July 28, 2017 We received the following questions from someone severely affected by M.E. – who has made no progress and is desperate to know if her health will improve – and thought...

The NICE guideline consultation: UK stakeholder submissions | 27 July 2017

July 27, 2017 NICE issued its surveillance proposal document two weeks ago and asked registered stakeholders to respond. The deadline for these submissions has now passed – though we understand at least one...

‘No confidence’: Charities reject NICE ‘no update’ proposal for ME/CFS guideline | 26 July 2017

July 26, 2017 Published online in Vada magazine, By Adam Lowe 26 July, 2017. Charities in the UK have delivered a resounding vote of ‘no confidence’ to NICE, the body which sets clinical guidelines for doctors...

Feedback requested on proposed relocation of Bath Mineral Hospital CFS/ME service for adults | 26 July 2017

July 26, 2017 This blog was first published 12 July 2017 We have been contacted by Bath NHS Foundation Trust who advised us of the Royal United Hospital’s proposal to relocate the adult CFS/ME...

ME Association petition represents biggest expression of no confidence in a NICE guideline ever recorded | 26 July 2017

July 26, 2017   The ME Association petition calling for a complete review of the NICE guideline for ME/CFS has been supported by 15,180 people. We understand it represents the biggest expression of...

Review: People with ME/CFS are more functionally impaired than people with multiple sclerosis | 19 July 2017

July 19, 2017   Insights into biomedicine, 12 June 2017. This was the main finding from an online study that compared people with ME/CFS with those suffering from multiple sclerosis – a disease...

ME Association to fund six student bursaries for CMRC research conference | 18 July 2017

July 18, 2017 The ME Association is keen to encourage undergraduate and postgraduate medical and science students to develop a clinical or research interest in ME/CFS at an early stage in their careers....

ME Association Guide to ME/CFS Symptom Management – Part Three | 17 July 2017

July 17, 2017   This is the third and final part in our short series on symptom management. Part 1 of this guide covered symptoms A to F, while Part 2 covered symptoms H...

Forward ME Group – Meeting with RCGP representatives leads to increased GP education opportunities | 14 July 2017

July 14, 2017 On 22nd June 2017, Dr Charles Shepherd – representing the ME Association – and other members including the Countess of Mar, met with representatives from the Royal College of General Practitioners...

ME Association provide new research grant to Dr Keith Geraghty to examine two controversial ME/CFS treatments recommended by NICE | 13 July 2017

July 13, 2017 ME Association trustees have approved a new research grant that will critically examine the theoretical basis that underlies the use of Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET)...

ME Association Guide to ME/CFS Symptom Management – Part Two | 13 July 2017

July 13, 2017 This is the second in our short series on symptom management. Part 1 of this guide covered symptoms A to F and can be read, here. The complete guide has...

CDC removes CBT and GET as recommended treatments for ME/CFS | 11 July 2017

July 11, 2017 In America, the Centers for Disease Control and Prevention (CDC) has updated its website information for ME/CFS, improving diagnostic criteria and removing previous recommended treatments – CBT and GET. While...

RSS
Facebook
Facebook