Karl and Jamie

December 2, 2016 We've hit over almost 93% of our target – over £46,400 – in 23 days. Thanks for your support!

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Applications to join Patient Advisory Group of MEGA project extended by one week | 2 December 2016

December 2, 2016 From the MEGA project website, 1 December. Words by Sonya Choudhury. We have been contacted by a number of people asking if it’s possible to extend the deadline for applications...

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Jennifer Brea’s film to have world premiere at Sundance Festival in January | 30 November 2016

November 30, 2016 Press release issued by the production team. The feature documentary Unrest – formerly known as Canary in a Coalmine – has been selected as one of the highly anticipated narrative documentaries...

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Newcastle University experts in hunt for “smoking gun” of chronic fatigue syndrome ME | The Northern Echo | 29 November 2016

November 30, 2016 From The Northern Echo, 29 November 2016. Story by Tony Kearney, News Editor (North Durham). University scientists are leading research to develop a simple blood test for the chronic fatigue...

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Parliamentary ME/CFS Questions | Luton North MP piles pressure on government over PACE, NICE, treatment strategy and direction of research | 25 November 2016

November 25, 2016 In some of the fiercest parliamentary questioning about ME/CFS ever, Labour MP Kelvin Hopkins (Luton North) has tabled a stream of questions about the PACE Trial, the National Institute of...

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BBC Director-General replies to Countess of Mar about coverage of the FITNET-NHS trial | 24 November 2016

November 24, 2016 The BBC Director-General, Tony Hall, has replied to the Countess of Mar about her complaint of bias in the corporation’s coverage of the FITNET-NHS story which was sent to him...

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‘ME cluster bomb’ | Medicine Balls column, Private Eye | 25 November 2016

November 24, 2016 Written by ‘M.D.’, the nom de guerre of Dr Phil Hammond MD’s greatest regret as a junior doctor was not to take the time to understand ME (myalgic encephalopathy). As...

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New Zealand ME/CFS doctor receives international award | The Times of New Zealand | 20 November 2016

November 21, 2016 From The Times of New Zealand, 20 November 2016 A local doctor has been recognised with an international award for work relating to Chronic Fatigue Syndrome. Dr Ros Vallings, who...

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TGI Friday! Our weekly round-up of recently published research abstracts | 18 November 2016

November 18, 2016 From Gut Microbes, 3 November 2016. Support for the Microgenderome Invites Enquiry into Sex Differences Amy Wallis(1), Henry Butt(2), Michelle Ball(1), Donald P. Lewis(3) & Dorothy Bruck (1) (1) Psychology...

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‘Chronic fatigue is not a condition of the mind’ | The Press, Yorkshire | 10 November 2016

November 11, 2016 Pictured: Bill Clayton, of www.york-me-community.com

TGI Friday! Our weekly round-up of recently published research abstracts | 11 November 2016

November 11, 2016 From Gut Microbes, 3 November 2016 Support for the Microgenderome Invites Enquiry into Sex Differences Amy Wallis(1), Henry Butt(2), Michelle Ball(1), Donald P. Lewis(3) & Dorothy Bruck (1) (1) Psychology...

How you can add extra strength to our ‘Make ME Better’ Christmas Appeal | 10 November 2016

November 10, 2016 We've hit almost 25% of our target – well over £12,400 – in the first 11 days. Only 71 days left… Thanks for your support!

Make ME Better! – 0ur biggest ever Christmas appeal starts today | 9 November 2016

November 9, 2016 We've hit almost 25% of our target – well over £12,400 – in the first 11 days. Only 71 days left… Thanks for your support!

Worcestershire’s only ME/CFS support group to close “in its present form” | 9 November 2016

November 9, 2016 The Waitrose store in Worcester - where the group's EGM will be held.

Mini-debate on ME/CFS in the Northern Ireland Assembly | 8 November 2016

November 8, 2016 Source: Northern Ireland Assembly Date: November 8, 2016 URL: www.theyworkforyou.com/ni/?id=2016-11-08.5.2#g5.3 [Oral Answers to Questions] ME: Specialist Services Thomas Buchanan (Democratic Unionist Party, West Tyrone) Mr T Buchanan asked the Minister...

MEA medical adviser called back to appear on BBC Radio Scotland this morning | 7 November 2016

November 5, 2016 There was an hour-long discussion about ME/CFS on the Kaye Adams Show, BBC Radio Scotland, this morning. Click on the following link to find the replay, which will be available...

TGI Friday! | Our weekly round-up of recently published research abstracts | 4 November 2016

November 3, 2016 One item this week - Dr Keith Geraghty's full-on demolition of the PACE Trial narrative.

Children with chronic fatigue get therapy online | The Times | 2 November 2016

November 2, 2016 From The Times, 2 November 2016. Story by science editor Tom Whipple. A mixture of cognitive behavioural therapy and exercise treatment seemed to be effective for two thirds of ME...

‘I got ME and thought: ‘This is the end’ | The Times | 2 November 2016

November 2, 2016 From The Times, 2 November 2016. Story by Janet Eastham. Midway through London Fashion Week in 2014, Emma Franklin, a 23-year-old aspiring fashion journalist, realised she was seriously unwell. She...

Online CBT is trialled for children with chronic fatigue syndrome | BMJ | 1 November 2016

November 1, 2016 From the BMJ news section | 1 November 2016 | Story by Nigel Hawkes A UK trial launched on 1 November will seek to establish whether cognitive behavioural therapy (CBT)...

Why we are asking about the NICE guideline on ME/CFS in our website Quick Survey this month | 1 November 2016

November 1, 2016 Why are we asking about the PACE trial re-analysis and revision of the 2007 NICE guideline on ME/CFS in this month’s MEA website Quick Survey? The ME Association has consistently...

ME Association comments on today’s news reports about the online CBT Trial for children | 1 November 2016

November 1, 2016 The ME Association position on CBT, GET and Pacing is made very clear in the summary of the MEA ‘patient evidence’ report on CBT, GET and Pacing: www.meassociation.org.uk/how-you-can-help/introduction-to-our-cbt-get-and-pacing-report/ In particular,...

‘Landmark chronic fatigue trial could treat two-thirds’ | BBC News | 1 November 2016

November 1, 2016 From BBC News, 1 November 2016. Story by James Gallagher, health and science reporter, BBC News website. A therapy that successfully treats two-thirds of children with chronic fatigue syndrome is...

‘Young people to get ME treatment in trial after success in Netherlands’ | The Guardian | 1 November 2016

November 1, 2016 There will be an item about this story on the BBC Radio 4 ‘Today’ programme later this morning. From The Guardian, 1 November 2016. Story by Sarah Boseley, health editor....

Our colleague, Dr Neil Abbot, retires from ME Research UK today | 28 October 2016

October 28, 2016 Dr Neil Abbot, research and operations director at ME Research UK (MERUK), is retiring today after 15 years service. Neil (pictured standing to the right of Alex Fergusson MSP at...

TGI Friday! | Our weekly round-up of recently published research abstracts | 28 October 2016

October 28, 2016 English translation of an article published in Socialmedicinsk tidskrift, Stockholm, 28 September 2016 Studies on Cognitive Behavioral Therapy and Graded Exercise Therapy for ME/CFS are misleading Sten Helmfrid Assoc. Prof....

NICE takes a dim view of foreign research into ME/CFS | Robin Ellis Freedom of Information request | 24 October 2016

October 24, 2016 Story by Tony Britton The main supplier of England’s drugs and treatment guidelines, the National Institute for Health and Clinical Excellence (NICE), tends not to take foreign research into account...

PIP Medical Assessments with CAPITA | meeting at House of Lords next Tuesday | 21 October 2016

October 21, 2016 I will be at a House of Lords meeting with the Countess of Mar on next Tuesday (Octoberr 25) where there will be a representative from CAPITA attending to give...

TGI Friday! Our weekly round-up of recently published research abstracts | 21 October 2016

October 21, 2016 Just one this week – more work on the mitochondria, with an unexpected twist.

Micro ME care agency wins ‘outstanding’ commendations from Care Quality Commission | 20 October 2016

October 20, 2016 Story by Tony Britton A micro care agency in Taunton, Somerset, that supplies services to just two people with ME has won ‘outstanding’ commendations in two out of five categories...