July 22, 2014 The Neurological Alliance have launched an online survey to collect information about the experiences people have had with their care.


TGI Friday! Our weekly round-up of recently published research abstracts and related items | 18 July 2014

July 18, 2014 From the European Journal of Neuroscience, 5 July 2014/ Induction of interleukin-1β by activated microglia is a prerequisite for immunologically induced fatigue Masataka Ifuku(1), Shamim M. Hossain(1), Mami Noda(2) and...


Ahead! One million miles of travel as Foggy the Dog begins his world tour | 16 July 2014

July 16, 2014 My name is Foggy the Dog and I want to raise lots of money for The ME Association. The aim of this year long campaign is for me to travel...

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Five videos featuring talks by leading UK ME/CFS researcher Professor Julia Newton | 1 July 2014

July 16, 2014 Professor Julia Newton heads the ME/CFS research group at Newcastle University.

Andy Beaumont

‘Ball with no bounce’ | song now streaming to raise money for the ME Association | 15 July 2014

July 15, 2014 If you want someone to tear a strip off a psychiatrist for belittling your illness, get them to play Andy Beaumont’s magical little song ‘Ball with no bounce’ – now...


Let’s stitch together a ‘Memory Quilt’ for Severe ME Day on 8 August 2014

July 11, 2014 For some of us, the chance to lie around in bed all day would be a real treat. But for many ME Sufferers, it is a real drag. Spending day...


TGI Friday! Our weekly round-up of recently published research abstracts | 11 July 2014

July 11, 2014 One study only for your attention this week - from that ME/CFS centre of research excellence on Australia's Gold Coast.


Acclaimed County Durham doctor banned from prescribing vitamin B12 | The Journal, Newcastle | 8 July 2014

July 10, 2014 Dr Joseph Chandy banned from prescribing vitamin B12 for fatigue syndrome


Forward-ME meeting and the NICE Guideline on ME/CFS | statement by the ME Association | 10 July 2014

July 10, 2014 Mark Baker (pictured) admits NICE ME/CFS Guideline is failing patients – but decision out of NICE's hands


Forward-ME Group | Minutes of meeting at House of Lords | 25 June 2014

July 9, 2014 Present: Countess of Mar (Chairman) Dr Charles Shepherd (MEA) Sonya Chowdhury (AFME) Janice Kent (reMEmber) Bill Kent (reMEmber) Sue Waddle (ME Research UK) Christine Harrison (BRAME) Dr Paul Worthley (ME...


Professor Lipkin to guest at special London seminar on September 3 | how to get tickets

July 7, 2014 We are delighted to announce that leading US-based researcher Professor Ian Lipkin will be guest speaker at a seminar being held jointly by Action for M.E. and the ME Association...

Minutes of the APPG on ME meeting and the AGM | 1 July 2014

July 4, 2014 Minutes of AGM held on Tuesday, 1 July, at 1pm, in Room N, Portcullis House, Westminster Present Parliamentarians Annette Brooke MP – Chair Ian Swales MP – Joint Chair Countess...

TGI Friday! Our weekly round-up of recently published research abstracts | 4 July 2014

July 4, 2014 From Frontiers in Neurology, 23 June 2014. Full text available Original Research ARTICLE Sleep disturbances and autonomic dysfunction in patients with postural orthostatic tachycardia syndrome Julia Mallien(2), Stefan Isenmann(2), Anne...

Health services research + Meridian News report | NHS failing people severely affected by ME/CFS | 1 July 2014

July 2, 2014 Easy-to-collect information but little by way of provision in this NHS survey of 49 adult ME/CFS services

Our ‘Purple Booklet’ | clear clinical guidance and the latest research – all wrapped up in 52 pages

July 1, 2014 The latest edition of the ME Association’s ‘Purple Booklet’ has been flying off the shelf since it came out in the middle of 2013 – with over 7,000 copies being sent...

Discussing the new law that allows a ‘named person’ for every child in Scotland | BBC 1 ‘Sunday Politics’ | 29 June 2014

June 30, 2014 Lesley Scott puts the Tymes Trust case against - in this well-argued programme on BBC Scotland

We need your views on how the DWP can help people with ME/CFS get back into work – if they want to do so | 27 June 2014

June 27, 2014 We can't do a Homer! Dr Shepherd needs some good ideas for his DWP meeting on July 3.

TGI Friday! Our weekly round-up of recently published ME/CFS research abstracts and related items | 27 June 2014

June 27, 2014 One report this week - a marathon runner's internal injury misdiagnosed as chronic fatigue syndrome.

Parliamentary Question | are ME/CFS patients being denied their own choice of consultant? | 24 June 2014

June 25, 2014 The Countess of Mar rejoined the ME/CFS 'awkward squad' when she asked this corker of a question.

Essex CFS Service apologise for letter to the BMJ | ‘naive’ of authors not to consider wider implications| 20 June 2014

June 20, 2014 This just in – in response to our complaint sent earlier today. Dear Dr Shepherd Thank you for your email. The article you refer to has not been sanctioned by...

Blue Sunday tea party put forward for award | Stamford Mercury | 20 June 2014

June 20, 2014 From the Stamford Mercury, 20 June 2014 (Story by Kerry Coupe – transcription, no weblink yet available). A woman who battles an incurable illness has been put forward for an...

‘Shock, anger and concern from people with ME/CFS’ | we write to the Essex CFS service | 20 June 2014

June 20, 2014 Letter expressing concern about views that appeared in the British Medical Journal this week.

ESA sickness benefit is ‘failing’, government documents say | BBC News | 20 June 2014

June 20, 2014 From the BBC News website, 20 June 2014. The key sickness benefit is helping fewer people get jobs, while its rising cost is a big financial risk for the UK,...

TGI Friday! Our weekly round-up of recently published research abstracts and related items | 20 June 2014

June 20, 2014 From Journal of Health Psychology, 8 June 2014 (E-published before print). Participant attributions for global change ratings in unexplained chronic fatigue and chronic fatigue syndrome. Fred Friedberg(*), Janna Coronel, Viktoria...

Parliamentary Question | have there been discussions about potential improvements? | 17 June 201

June 20, 2014 Have there been discussions with the BMA and the Royal Colleges about potential treatments?

All Party Parliamentary Group on ME | notice of AGM to be held on 1 July 2014

June 19, 2014 Notice of the obligatory meeting to enable the APPG to be kept alive on the Parliamentary register.

The debate about an ME/CFS post-mortem and tissue bank rumbles on | BMC Research Notes | 18 June 2014

June 19, 2014 From BMC Research Notes, 18 June 2014. Download of full paper available HERE. Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome:...

Dublin Marathon – join our runners Jonny and Gareth in this great event on 27 October 2014.

June 18, 2014 We've got one guaranteed place left – it could be yours for a £30 registration fee and promise to raise at least £300.

‘ME: one third of patients ‘wrongly diagnosed’ | Daily Telegraph | 17 June 2014

June 17, 2014 Today's page 1 story from the Daily Telegraph, a link to the report in BMJOpen and comment from us.

Free entry to the patients’ session at the Research Collaborative conference – thanks to the MRC

June 16, 2014 Wills Hall in Bristol – venue for the patients' session on September 1.