October 19, 2017   A recent study reported differences in brain structure in people with chronic fatigue syndrome (ME/CFS). This was not the first paper to report such aberrations, but it was the first...

MEA Review: The SMILE trial – a lesson in how not to conduct clinical trials in people with ME/CFS | 12 October 2017

October 12, 2017   The SMILE trial was an attempt to determine the efficacy of the Lightning Process® when delivered in addition to specialist medical care in the treatment of ME/CFS for children...

Fundraising Feature: “Who knew that raising funds for such a great cause could be so uplifting?” | 11 October 2017

October 11, 2017   By Helen Hyland, Fundraising Manager, ME Association. “I am only doing a tiny thing, the only thing I can think of and it helps to actually be able to...

Fundraising feature: David is not about to let a ‘little trip’ stop him from achieving his goal | 06 October 2017

October 6, 2017   By David Fardon. “When we first met, Sandra and I loved long country walks together. Then about 8 years ago,  Sandra became ill. This cruel illness (M.E) leaves her...

The Flu and M.E. – all you need to know about the 2017/18 flu vaccine | 04 October 2017

October 4, 2017 As there is no simple answer as to whether you should have a flu vaccine if you have ME/CFS, we want to give you all the information we can to help you make an informed choice.

‘People are obsessed with ModCloth’s latest Instagram featuring a model in a wheelchair’ | 04 October 2017

October 4, 2017   From Yahoo Lifestyle, 02 October 2017. With one photo, vintage clothing company ModCloth has done a significant amount to push for more inclusive representation in fashion. On Sunday, the company posted...

Breaking News! UK ME/CFS Biobank team receives largest ever grant to continue biomedical research project | 03 October 2017

October 3, 2017   By Russell Fleming, Content Manager, ME Association. ME Association trustees and staff were over the moon when we heard that the CureME team at the London School of Hygiene...

Why are we asking about Melatonin and sleep disturbance in this month’s website survey? | 02 October 2017

October 2, 2017   By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. Sleep disturbance is a core symptom of ME/CFS with various problems being reported. These can range from hypersomnia or increased...

MEA Fundraising Feature: Talk about M.E. to your colleagues? Let’s work on it… | 29 September 2017

September 30, 2017   By Sarah Staples, Press Officer, ME Association. I’m lucky enough to interview some of the ME Association’s fundraisers. Last week I caught up with Aymsley Edwards who in July,...

Schoolgirl’s illness message goes viral | 29 September 2017

September 29, 2017   WATCH SHANNON’S ORIGINAL FACEBOOK VIDEO MESSAGE, HERE. Pirate FM News, 29 September 2017. A video by a 10-year-old schoolgirl girl who has been battling an illness for seven years...

MEA Fundraising Feature: Camino de Santiago – Pilgrim update | 28 September 2017

September 28, 2017   By Helen Hyland, Fundraising Manager, ME Association. On Tuesday 29th August, Sophie Breese embarked on the journey of a lifetime. A pilgrimage no less. Walking the Camino de Santiago from...

“I felt as if I were on trial for benefit fraud, rather than having my needs fairly assessed.” | 28 September 2017

September 28, 2017   The following story has been written by a mother and daughter, and it’s about their recent experience at a PIP tribunal. ‘Amy’ is not the daughter’s real name, and her...

ME Association Petition: M.E. is not a functional disorder | 27 September 2017

September 27, 2017 The suspected neurological conditions guideline specifically refers to M.E./CFS as a 'functional' disorder, which it defines as being 'driven by emotion' that, 'may mimic physical disease'.

The Telegraph: An interview with author and poet Frieda Hughes, reveals she was diagnosed with M.E. | 25 September 2017

September 25, 2017   The Telegraph, Lifestyle, Family, 25 September 2017. Frieda Hughes: ‘I genuinely believed I was adopted until I was 14’ Having famous parents is not without its downsides. For every path it...

New MEA Guide: How to manage at university with M.E. | 25 September 2017

September 25, 2017   The following guide has been written by Pippa Stacey and is now available as a download from our online shop. Pippa, who has M.E., recently graduated from the University of York with an...

The Times: Mutiny by ME sufferers forces a climbdown on exercise treatment | 25 September 2017

September 25, 2017   By Tom Whipple, Science Editor, The Times, 25 September 2017. A patient revolt in collaboration with MPs and academics has led to a major review of NHS guidelines on...

MEA Weekend Fundraising: Would you Adam and Eve it! Cockney-themed walk through the streets of London | 22 September 2017

September 22, 2017   By Helen Hyland, Fundraising Manager, ME Association. This weekend’s fundraising for MEA is the story of two cities….. And some very determined women. Sinead and Lynette in London Sinead...

MEA Fundraising Feature: “I ran the Bristol Half Marathon last weekend for my boyfriend LorI” | 21 September 2017

September 21, 2017   By Helen Hyland, Fundraising Manager, ME Association. “I am running in the Bristol Half Marathon for the ME Association because I want to raise awareness for those affected by ME.”...

The SMILE trial is published – with press release, science media centre ‘expert reactions’, and media coverage | 21 September 2017

September 21, 2017   Note: This blog has been updated at 08.22 on 25 September, with details of the Daily Mail article. The SMILE Trial – a randomised trial of specialist medical care...

Breaking News: NICE decides to Fully Update its guideline on ME/CFS! | 20 September 2017

September 20, 2017   Following the stakeholder consultation, NICE have this morning announced they will now commence a FULL REVIEW of the guideline for ME/CFS, effectively overturning previous expert advice not to update...

ME Association Summary Report of the 4th Annual CMRC Research Conference in Bristol | 20 September 2017

September 20, 2017   By Dr Charles Shepherd, Hon. Medical Adviser to the ME Association Introduction This is a summary report of what I felt were the highlights and main points to emerge...

ME Association Statement: Lightning Process and SMILE trial in young people with ME/CFS | 19 September 2017

September 19, 2017   The ME Association has spoken out robustly and campaigned against the Specialist Medical Intervention and Lightning Evaluation (SMILE) trial since first learning of the launch of its pilot in...

MEA Fundraising stories: Trying to strike the right balance | 16 September 2017

September 16, 2017   Our fundraisers are all striving to raise money to support people with M.E. and when we report their stories, we are also honouring their efforts. Fundraisers can be people...

MEA Fundraising: The Beaumont Brothers – have a listen to some “great music” and raise funds for M.E. research | 15 September 2017

September 15, 2017   By Helen Hyland, Fundraising Manager, ME Association. “Great music” was how the reviewers described the new CD released by the Beaumont Brothers. And, if this clip is anything to...

Ask your MP to sign the early day motion against the NICE guideline for ME/CFS and invite them to watch Unrest | 13 September 2017

September 13, 2017   M.E. patient Sarah Reed has done incredibly well to obtain an early day motion that could lead to a debate in parliament about the inadequacies of the NICE guideline...

Weekend fundraising roundup: Giving their all for M.E. | 11 September 2017

September 11, 2017   By Helen Hyland, Fundraising Manager. We had fundraising events taking place across the country this last weekend. And in all kinds of weathers – from bright sunshine to downpours...

Forward ME respond to NICE consultation on new guideline for suspected neurological conditions | 11 September 2017

September 11, 2017   Forward-ME submission to NICE suspected neurological conditions consultation. There is a new guideline being considered by NICE (National Institute for Health and Care Excellence) that has a direct bearing on...

The ME Association teams up with Gamesessions to help promote M.E. awareness with free copy of Mechanic Escape | 09 September 2017

September 9, 2017   Press Release, 09 September, 2017. GameSessions, the company behind many game giveaways and trials, today announces a new programme to support charities. Over the next few months, they will...

MEA Featured Fundraiser: Mary Corbett is joined by Tour de France legend | 06 September 2017

September 6, 2017   Written by Helen Hyland, Fundraising Manager, ME Association. IF ALL GOES TO PLAN….. ….is how Mary Corbett starts all her blogs about her adventures as a Tandem Tart cyclist...

MEA Featured Fundraiser: Jo Hardstaff is kick scooting her way round the south coast of England | 04 September 2017

September 4, 2017   Written by Helen Hyland, MEA Fundraising Manager It is such a joy working with our fundraisers over the years. The people who keep coming back for more, and more....

Dr Mark Vink and Dr Simin Ghatineh review the Dutch and UK FITNET Trials for CBT in adolescent ME/CFS | 04 September 2017

September 4, 2017   Published in Behavioural Sciences, 11 August 2017. In November last year, when it was announced that the UK would be conducting a £1.1million internet-based trial of cognitive behavioural therapy...