Foggy on one of his most recent visits - to the Phillippines

July 3, 2015 Foggy in sunshine mood – on a recent visit to the Phillippines


‘Chronic fatigue breakthrough offers hope for millions’ | New Scientist magazine | 2 July 2015

July 3, 2015 UK magazine New Scientist discusses the implications of this week's Rituximab phase 2 clinical trial results.


TGI Friday! Our weekly round-up of recently published research abstracts | 3 July 2015

July 3, 2015 This week - Rituximab phase 2 trial, review of behavioural interventions, brain imaging before and after CBT, quality of life outcomes.


Why our July ‘Quick Survey’ focuses on Coeliac Disease testing | 2 July 2015

July 2, 2015 If you have irritable bowel symptoms, we would like to know if you have ever been tested to exclude Coeliac Disease.


ESA sickness benefit cuts being considered | BBC News | 2 July 2015

July 2, 2015 Leaked plans to cut ESA to level of Jobseeker's Allowance – meaning a loss of about £30 a week.


Further evidence of Rituximab’s effectiveness in treating ME/CFS | PlosOne publish results of Phase 2 trial | 1 July 2015

July 1, 2015 Øystein Fluge and Olav Mella – they're leading the Rituximab trials in Norway.


Parliamentary Statement | quicker-than-expected rollout of PIP to replace DLA | 25 June 2015

July 1, 2015 Baroness Altmann – announced an earlier-than-expected rollout of Personal Independence Payments

Sam Cam and sister

Sam Cam’s sister stricken with M.E. for a year | Daily Mail | 27 June 2015

June 27, 2015 ‘I recovered from a year of ME by diving into the crystal sea, the cold literally shocking the sickness out of my system,’ she says.


TGI Friday! Our weekly round-up of recently published research abstracts | 26 June 2015

June 26, 2015 This week - faecal transplants, gene expression, the SEID criteria and Lyme Disease.

Bill Clayton, York lo-res

York ME sufferers want to set up new group | The Press, York | 24 June 2015

June 24, 2015 Bill Clayton, a co-founder of the new York ME Group. York has been without its own group for many years.


Interact with ME/CFS scientific researchers for free | Newcastle CMRC conference | 13-14 October 2015

June 23, 2015 Free admission for Associate Members – thanks to Medical Research Council sponsorship

Scottish Government accused of undermining role of parents | The Telegraph | 19 June 2015

June 22, 2015 Start of the relevant section from the Children and Young People (Scotland) Act 2014.

Work4ME launch volunteering project in Edinburgh | 22 June 2015

June 22, 2015 The Work4ME Co-operative in Scotland has reduced the number of training sessions that people will be required to attend for its next project – which will help up to 10...

M.E. parents fury at child abuse claims | Sunday Express | 21 June 2015

June 21, 2015 From The Sunday Express, 21 June 2015. Story by Caroline Wheeler, political editor. HUNDREDS of parents whose children suffer from a crippling illness that leaves them permanently exhausted have been...

TGI Friday! Our weekly round-up of recently published research abstracts & related items | 19 June 2015

June 19, 2015 Includes major focus on M.E. in the current issue of Annals of Internal Medicine.

Urgent action needed to re-register the APPG on ME | please ask your MP to join | 19 June 2015

June 19, 2015 Message from Secretariat – we still need an MP as Chair and to fill other key posts.

Couple agree to marry – then swim across Windermere for the ME Association | Ely Weekly News | 18 June 2015

June 18, 2015 From the Ely Weekly News, 18 June 2015. A couple who are just days away from getting married have raised almost £2,000 for a charity close to their hearts. Bride-to-be...

Devoted Rob takes the plunge for the love of Michelle | 18 June 2015

June 18, 2015 Devoted husband Rob Dolton is facing his demons and vowing to complete a 1500m sponsored swim to highlight a debilitating condition his wife has battled for more than 20 years....

‘It’s All in Your Head’ psychosomatic book storm | Countess of Mar challenges author to change her mind about ME/CFS | 9 June 2015

June 17, 2015 The Countess and the cover of the controversial book claiming that ME/CFS is a psychosomatic illness.

‘It’s crucial to keep looking for a cure’ | Candis magazine | July 20125

June 16, 2015 From Candis magazine, July 2015. Julia Glenn, 55, from Dorset reveals why The ME Association’s research is so important to her The other day, Julia Glenn found herself lying on...

Forward ME Group | Minutes of meeting held on 24 February 2015, including presentation by Sue Marsh (Maximus)

June 16, 2015 Taken from the Forward-ME website, 16 June 2015. FORWARD-ME Minutes of the Meeting held in the Television Interview Room, House of Lords Tuesday 24 February 2015, 2pm Present: Countess of...

For your diary, please | This year’s ‘M.E. Question Time’ | Kingston-upon-Thames, October 3

June 12, 2015 The Tiffin School. Kingston-upon-Thames – venue for this year's ME Question Time.

TGI Friday! | Our weekly round-up of recently published research abstracts | 12 June 2015

June 12, 2015 From Neuromuscular Disorders, 23 April 2015.[Epub ahead of print] Perceived fatigue is highly prevalent and debilitating in patients with mitochondrial disease. Gorman GS(1), Elson JL(2), Newman J(3), Payne B(4), McFarland...

‘She always gave me the option to walk away’ | Huffington Post | 11 June 2015

June 12, 2015 From The Huffington Post, Young Voices 11 June 2015. Story by Lucy Sherriff. Caring for a partner is something you don’t envisage doing until later life, but for Paul Davies...

Organophosphate sheep dipping | short Commons debate | 10 June 2015

June 12, 2015 A half-hour debate on Organophosphate Sheep Dipping took place in Westminster Hall at 4.30pm on Wednesday, 10 June 2015. Jessica Morden Labour, Newport East 4:00 pm, 10th June 2015 I...

Former Llanelli serviceman to take on 11 physical challenges inspired by ME sufferer mum | Llanelli Star | 10 June 2015

June 11, 2015 From the Llanelli Star, 10 June 2015. A FORMER serviceman from Llanelli is pushing his body to the limit — taking on 11 gruelling physical challenges in a year to...

Failure to keep up with the research on ME/CFS is ‘inexcusable’ | Our letter to The Times | 8 June 2015

June 8, 2015 Letter sent in response to this David Aaronovitch book review that appeared in 'The Times' this week.

The most recent popular items that have appeared on MEA Facebook | 6 June 2015

June 6, 2015 Over 40,000 people have visited our Facebook pages in the past week. And, since May 28, here are the posts they spent most time with – shown by the numbers...

M.E, the menopause and HRT – feedback welcome | 5 June 2015

June 5, 2015 Our medical adviser, Dr Charles Shepherd, is preparing a new MEA Management File on the subject of M.E, the Menopause and HRT. This is because the menopause has a number...

PIPs disability benefit delay unlawful, says High Court | BBC News | 5 June 2015

June 5, 2015 From BBC News, 5 June 2015. A delay in paying welfare benefits to two disabled people was “unlawful”, the High Court has ruled. A judge said nine and 13-month waits...

New test uses a single drop of blood to reveal entire history of viral infections | The Guardian | 4 June 2015

June 5, 2015 From The Guardian, 4 June 2015. Story by science editor Ian Sample. Cheap and rapid test allows doctors to access list of every virus that has infected or continues to...