November 18, 2017 Neo's first official public appearance for the ME Association, with be at the Santa Dash in Glasgow on 10th December. Please support his challenge.

Understanding the neurobiology of fatigue: Professor Julia Newton ‘Standing up for fatigue’ | 16 November 2017

November 16, 2017 The Royal Society hosted a two-day conference 'understanding the neurobiology of fatigue'. One of the distinguished researchers was Professor Julia Newton from the University of Newcastle, who spoke about the role of autonomic dysfunction and ME/CFS.

International Business Times: One woman’s debilitating experience with M.E. | 15 November 2017

November 15, 2017 Hannah Price, 23, has had ME since she was 11 years old. Like many people with ME, Hannah developed it after contracting a virus that she never truly recovered from...

Advertising Standards Authority ruling on ME Association complaint re Kathy Kent and the Lightning Process | 15 November 2017

November 15, 2017 Background: When the SMILE trial results were published, the ME Associated stated that we would continue to refer cases where Lightning Process practitioners are making unproven therapeutic claims to the...

We hear from Cara Tomas about her recent study on cellular bioenergetic deficiencies in ME/CFS | 13 November 2017

November 13, 2017 Cara Tomas is a PhD student working with Professor Julia Newton at the Institute of Cellular Medicine, and her research was featured in the New Scientist last week.

Research: Exercise–induced changes in cerebrospinal fluid miRNAs in Gulf War Illness, Chronic Fatigue Syndrome and sedentary control subjects | 11 November 2017

November 11, 2017 The changes in brain chemistry — observed in levels of miRNAs that turn protein production on or off — were seen 24 hours after riding a stationary bike for 25 minutes.

MEA Fundraising Feature: Completing a pilgrimage to the ‘edge of the world’ | 10 November 2017

November 10, 2017 Over 65 days, Sophie Breese and her partner walked the Camino de Santiago from her home in France to Fisterra in North west Spain. A total of 1,376km!

Don’t forget to order your Christmas cards! | 09 November 2017

November 9, 2017   This year’s Christmas cards have flown out of the office like hot cakes! We have two designs – a nativity scene, and a village scene, featuring skaters on a...

“Our findings validate their symptoms — that their illness is real and has a biological basis.” Professor Jose Montoya | 09 November 2017

November 9, 2017   This was a blog written by Ruthann Richter and published by Stanford Medicine, 8th November, 2017. For years, infectious disease expert Jose Montoya, MD, has been frustrated by the mysteries...

MEA Fundraising Feature: Alison and Joy – Running for M.E. in the Leeds Abbey Dash | 07 November 2017

November 7, 2017 Last weekend, two very special ladies donned the iconic purple ME Association, 'It’s Real It’s Physical', t-shirts to embark on the Leeds Abbey Dash for M.E.

UK ME/CFS Biobank: The importance of patient involvement | 06 November 2017

November 6, 2017   Published in the Journal Fatigue: Biomedicine, Health & Behaviour, October 30, 2017. This editorial, written by key members of the ME/CFS Biobank team, is open access and provides an...

New Scientist: Blood cells in chronic fatigue syndrome are drained of energy | 04 November 2017

November 4, 2017   This article appeared in the New Scientist on November 3rd, 2017, and was written by Andy Coghlan. It relates to recent research from lead researcher, Cara Tomas, who worked...

The Screw M.E. Market auction begins on Sunday 5th November at 12.30pm! | 03 November 2017

November 3, 2017 Quite an alarming title. But if you’ve lived with or around M.E. you will surely have felt like shouting it, or something similar, at one time or another – perhaps at the top of your voice, regardless of who could hear you, or what they might think.

BBC Breakfast with Jennifer Brea and Dr Charles Shepherd | 02 November 2017

November 2, 2017   Last Saturday saw Jennifer Brea and Dr Charles Shepherd interviewed on BBC Breakfast by presenters Naga Munchetty and Steph McGovern. BBC Breakfast attracts a very large audience and although...

MEA Summary Review: Rethinking Childhood Adversity in ME/CFS | 30 October 2017

October 30, 2017 We recently posted the conclusion of a new study from a research group at Newcastle University, led by Professor Julia Newton, which evaluated existing claims that childhood adversity was a...

ME Association review of Unrest in Parliament: “I cannot recall a parliamentary meeting where we have had so much genuine interest in ME/CFS” | 26 October 2017

October 26, 2017   By Dr Charles Shepherd, Hon Medical Adviser to the ME Association. As ME Association members will know, the Rt Hon John Bercow MP – Speaker of the House of...

Would you like to work for the ME Association? We are hoping to recruit a public relations manager | 25 October 2017

October 25, 2017   The ME Association is Britain’s first charity dedicated to people with M.E. Our role is to help make the UK a better place for people with the disease by...

ME Association petition has been sent to Sir Andrew Dillon at NICE: M.E. is not a functional disorder | 23 October 2017

October 23, 2017   The most recent ME Association petition called on NICE to amend its proposed guideline on suspected neurological conditions, and remove all reference to ME/CFS being a functional disorder. We wrote to...

The ME Association and Shella Films present: A very special lunchtime reception and exclusive screening of Unrest for MPs and honoured guests | 23 October 2017

October 23, 2017   Tomorrow (24th October) will see a very special lunchtime reception (12.30-2.00pm) where MPs and members of the House of Lords will be able to watch an exclusive screening of...

MEA Review: Grey and white matter differences in chronic fatigue syndrome | 19 October 2017

October 19, 2017   A recent study reported differences in brain structure in people with chronic fatigue syndrome (ME/CFS). This was not the first paper to report such aberrations, but it was the first...

MEA Review: The SMILE trial – a lesson in how not to conduct clinical trials in people with ME/CFS | 12 October 2017

October 12, 2017   The SMILE trial was an attempt to determine the efficacy of the Lightning Process® when delivered in addition to specialist medical care in the treatment of ME/CFS for children...

MEA Fundraising Feature: “Who knew that raising funds for such a great cause could be so uplifting?” | 11 October 2017

October 11, 2017   By Helen Hyland, Fundraising Manager, ME Association. “I am only doing a tiny thing, the only thing I can think of and it helps to actually be able to...

MEA Fundraising Feature: David is not about to let a ‘little trip’ stop him from achieving his goal | 06 October 2017

October 6, 2017   By David Fardon. “When we first met, Sandra and I loved long country walks together. Then about 8 years ago,  Sandra became ill. This cruel illness (M.E) leaves her...

The Flu and M.E. – all you need to know about the 2017/18 flu vaccine | 04 October 2017

October 4, 2017 As there is no simple answer as to whether you should have a flu vaccine if you have ME/CFS, we want to give you all the information we can to help you make an informed choice.

‘People are obsessed with ModCloth’s latest Instagram featuring a model in a wheelchair’ | 04 October 2017

October 4, 2017   From Yahoo Lifestyle, 02 October 2017. With one photo, vintage clothing company ModCloth has done a significant amount to push for more inclusive representation in fashion. On Sunday, the company posted...

Breaking News! UK ME/CFS Biobank team receives largest ever grant to continue biomedical research project | 03 October 2017

October 3, 2017   By Russell Fleming, Content Manager, ME Association. ME Association trustees and staff were over the moon when we heard that the CureME team at the London School of Hygiene...

Why are we asking about Melatonin and sleep disturbance in this month’s website survey? | 02 October 2017

October 2, 2017   By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. Sleep disturbance is a core symptom of ME/CFS with various problems being reported. These can range from hypersomnia or increased...

MEA Fundraising Feature: Talk about M.E. to your colleagues? Let’s work on it… | 29 September 2017

September 30, 2017   By Sarah Staples, Press Officer, ME Association. I’m lucky enough to interview some of the ME Association’s fundraisers. Last week I caught up with Aymsley Edwards who in July,...

Schoolgirl’s illness message goes viral | 29 September 2017

September 29, 2017   WATCH SHANNON’S ORIGINAL FACEBOOK VIDEO MESSAGE, HERE. Pirate FM News, 29 September 2017. A video by a 10-year-old schoolgirl girl who has been battling an illness for seven years...

MEA Fundraising Feature: Camino de Santiago – Pilgrim update | 28 September 2017

September 28, 2017   By Helen Hyland, Fundraising Manager, ME Association. On Tuesday 29th August, Sophie Breese embarked on the journey of a lifetime. A pilgrimage no less. Walking the Camino de Santiago from...

“I felt as if I were on trial for benefit fraud, rather than having my needs fairly assessed.” | 28 September 2017

September 28, 2017   The following story has been written by a mother and daughter, and it’s about their recent experience at a PIP tribunal. ‘Amy’ is not the daughter’s real name, and her...