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May 27, 2016 From Arthritis Care and Research (Hoboken), January 2016. Gene Expression Factor Analysis to Differentiate Pathways Linked to Fibromyalgia, Chronic Fatigue Syndrome, and Depression in a Diverse Patient Sample. Iacob E,...

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Videocast scrutiny later today of major US federally-funded ME/CFS research initiative | 26 May 2016

May 26, 2016 People interested in following the money in ME/CFS research should watch a videocast later today of a discussion being held on the US Government’s latest federally-funded ME/CFS research initiative. Dr...

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An hour’s discussion about M.E | John Darvall programme, BBC Radio Bristol | 25 May 2016

May 25, 2016 BBC Radio Bristol presenter John Darvall devoted an hour of his programme this morning to a discussion about M.E. – with interviews with three women who told their stories. There...

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#MillionsMissing: Sea of empty shoes left outside Department of Health in global ME protest | London Evening Standard| 25 May 2016

May 25, 2016 From the London Evening Standard, 25 May 2016. Story by Tom Marshall. A sea of empty shoes filled the pavement in Whitehall today as part of a silent demonstration by...

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Elderly ME sufferer raises awareness of devastating effects of illness through a virtual protest | Guardian series (Essex) | 24 May 2016

May 24, 2016 From the Guardian Series (Essex), 24 May 2016. Story by Lara Keay. A 76-YEAR-OLD who has suffered from chronic fatigue syndrome for 30 years is calling on people to take...

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Rituximab – update by The ME Association | 23 May 2016

May 23, 2016 Following the ME Awareness Week research and clinical meeting in Sussex where Dr Amolak Bansal provided an update on the current situation regarding the proposal to carry out a clinical...

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TGI Friday! Our weekly round-up of recently published research abstracts | 20 May 2016

May 19, 2016 This week - a really mixed bag of five studies.

Photo by Melanie Cherriman

reMEmber shine spotlight on ME/CFS research and management | Dr Shepherd reports on Burgess Hill meeting | 14 May 2016

May 18, 2016 Dr Amolak Bansal and Dr Charles Shepherd were spreading the word about ME/CFS at the reMEmber meeting on May 14.

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ME Association’s contributions towards mitochondrial muscle research in ME/CFS | 17 May 2016

May 17, 2016 The ME Association is heavily involved in medical research that is exploring whether there are faults in mitochondrial muscle function that can be linked exclusively to ME/CFS. Following our joint...

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UK ME/CFS Biobank opens for business | 13 May 2016

May 13, 2016 Dr Charles Shepherd reports on the ME Awareness Day meeting at the London School of Hygiene and Tropical Medicine (LSHTM) to celebrate the opening up of the ME/CFS Biobank for...

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ME is more than just tiredness – the truth about chronic fatigue syndrome | BT.com Lifestyle | 12 May 2016

May 12, 2016 From BT.com Lifestyle, 12 May 2016. Words by Susan Griffin. People have long approached sufferers of myalgic encephalopathy (ME) with suspicion. Those living with ME – also known as chronic...

Ten important things that people with M.E. want you to know | The Huffington Post | 12 May 2016

May 12, 2016 From The Huffington Post, 12 May 2016. Words by Natasha Hinde. It’s estimated that around 250,000 people in Britain are affected by ME, yet many people are still unaware of...

‘I’ve suffered with ME since I was eight – and the way I’m treated hasn’t changed in 30 years’ | The Independent | 12 May 2016

May 12, 2016 From The Independent (Voices), 12 May 2016. Words by Jason Reed. How do you write about living with an illness for almost 30 years without sounding like you’re whining? It’s...

Whitstable M.E. sufferer says GPs ignored her condition | Canterbury Times | 10 May 2016

May 12, 2016 A Whitstable mum whose battle with Chronic Fatigue Syndrome (M.E.) leaves her bedridden and in serious pain, says more needs to be done to raise awareness, after even her GPs...

The MEA Disability Rating Scale, 2016

May 10, 2016 A disability assessment scale can be useful for following progress and providing information for benefit, employment and insurance assessments. We’re posting this to help participants in our latest Quick Survey...

The importance of early and accurate diagnosis | helpful hints for healthcare professionals that could improve prognosis | 9 May 2016

May 9, 2016 This leaflet is also available as a FREE download HERE. INTRODUCTION ME/CFS is a complex multisystem disease that has a population prevalence of at least 0.2% to 0.4% (ie it...

M.E. Awareness Week, 9-15 May | This is what the ME Association will be doing…

May 8, 2016 In addition to ‘Going Blue’ the MEA is involved in a wide range of other activities which are designed to increase awareness and highlight the need for serious biomedical research...

TGI Friday! Our weekly round-up of recently published research abstracts | 6 May 2016

May 6, 2016 From Biofactors, published online 29 April 2016. Ubiquinol-10 [ie, Co-enzyme Q10] supplementation improves autonomic nervous function and cognitive function in chronic fatigue syndrome. Fukuda S(1,2,3), Nojima J(4), Kajimoto O(5), Yamaguti...

M.E. Awareness Week, 9-15 May | SHE’S GOING BLUE – ARE YOU?

May 4, 2016 'Going Blue' – a colourful twist to an important week.

‘Family’s battle against chronic fatigue of ME’ | The Harborough Mail | 29 April 2016

April 29, 2016 From the Harborough Mail, 29 April 2016. For many years, there was a debate as to whether chronic fatigue illness M.E. was actually a genuine illness at all. But Desborough...

TGI Friday! Our weekly round-up of recently published research abstracts (and related items) | 29 April 2016

April 29, 2016 From Fatigue: Biomedicine, Health & Behavior, published online 28 April 2016 (open access). Editorial The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem Jonathan C.W. Edwards(a), Simon McGrath(b),...

Awareness Week: they’re going ‘Blue for M.E.’ – can you join them? | 9-15 May 2016

April 27, 2016 A big ‘Thank you’ to everyone who is planning on doing their bit in ME Awareness Week next month.

GMC impose conditions on Dr Nigel Speight’s licence to practice | 23 April 2016

April 23, 2016 The ME Association’s paediatric medical adviser Dr Nigel Speight had conditions attached to his licence to practice by a panel of the General Medical Council on Wednesday (April 20). The...

TGI Friday! Our weekly round-up of recently published research abstracts | 22 April 2015

April 22, 2016 This week - independent suicide figures analysis, Leonard Jason group case notes.

‘The Misleading Research at the Heart of Disability Cuts’ | Huffington Post blog | 20 April 2016

April 20, 2016 From The Blog at the Huffington Post, 20 April 2016 | By Dr Simon Duffy, Director of the Centre for Welfare Reform. In the wake of the resignation of Iain...

The ME Association’s ‘Purple booklet’ | apologies for late delivery | 18 April 2016

April 18, 2016 We apologise for late delivery to all those who have pre-ordered the Eighth Edition of the Shepherd/Chaudhuri masterwork: ME/CFS/PVFS: An Exploration of the Key Clinical Issues. We had to make...

‘What I’m really thinking’: the person with ME | The Guardian, 16 April 2016

April 17, 2016 From The Guardian, 16 April 2016. Anonymous contribution. I have myalgic encephalomyelitis. If you think it is hard to say, try living with it every day. Yes, I understand that...

TGI Friday! Our weekly round-up of recently published research abstracts | 15 April 2016

April 15, 2016 This week – a really mixed bag: drug review (ampligen), health services research, online forums.

‘If you think comfortable families don’t get sucked into poverty, think again’ | The Guardian | 14 April 2016

April 15, 2016 From The Guardian, 14 April 2016 (Words by Frances Ryan). It’s frightening how life can change. Over a decade ago, Thomas Hemingford, now 45, was on a comfortable wage as...

‘Misleading medical research underpins disability cuts’ | Centre for Welfare Reform | 14 April 2016

April 14, 2016 The Centre for Welfare Reform press release | 14 April 2015. A new report from the Centre for Welfare Reform explains how a current scientific controversy relates to the debate...