November 21, 2014 This exquisite bracelet is up for sale in our Christmas auction – which starts at 9am on November 21


‘Voices from the Shadows’ available for free viewing – but with an X-rated advisory notice | 21 November 2014

November 21, 2014 The hour-long film Voices from the Shadows is now available to watch for free until the end of the year – on Vimeo – by entering a promo code of...


Wait times to be halved for latest NHS drugs | The Times | 21 November 2014

November 21, 2014 From The Times, 21 November 2104. Story by health correspondent Chris Smyth. Waiting times for cutting-edge drugs will be cut in half under government plans to rip up a “broken”...


TGI Friday! Our weekly round-up of recently published research abstracts | 21 November 2014

November 21, 2014 Fewer free radicals found in people with CFS after treatment with French Oak Wood supplement. Plus effects of gut biome on brain activity,


Forward ME Group | Minutes of meeting held on 21 October 2014

November 19, 2014 These Minutes will also be posted shortly on the website of the Forward ME Group. Minutes of the Meeting held in the Television Interview Room House of Lords Tuesday 21...


The woman who runs a charity from bed | BBC ‘Ouch’ disability blog | 18 November 2014

November 18, 2014 Vikki George, founder of Postpals. This is a charity that delivers cards and gifts to sick children.

Foggy and his Northern Ireland host Claire Thomson meet the Mayor of Derry, Cllr Brenda Stevenson

Foggy’s World Tour – now he meets the Mayor of Derry | 15 November 2014

November 15, 2014 Foggy Dog and his Northern Ireland host Claire Thomson meet the Mayor of Derry, Councillor Brenda Stevenson


TGI Friday! Our weekly round-up of recently published research abstracts |14 November 2014

November 14, 2014 From Antioxidants & Redox Signalling, 11 November 2014. Does oral Coenzyme Q10 plus NADH supplementation improve fatigue and biochemical parameters in Chronic Fatigue Syndrome? Dr. Jesus Castro-Marrero, Ph.D.(1), Prof. Mario...


Encouraging new ideas for ME/CFS research | looking back at the Research Collaborative conference in September | 13 November 2014

November 13, 2014 From the Medical Research Council’s ‘Insight’ blog, 12 November 2014. Encouraging new ideas for CFS/ME research At the inaugural conference of the UK CFS/ME Research Collaborative in September researchers in...


Take part in our stunning Auction of Promises | from 21 to 25 November

November 12, 2014 From November 21 until 4pm on November 25 Visit the auction list and place your bids there. Fantastic opportunity for some fabulous gifts including: Tea for two with the Rt...


Foggy goes round the world to raise money | The News, Portsmouth | 10 November 2014

November 11, 2014 LITERARY legend Phileas Fogg famously went around the world in 80 days. Fine if you are a human, but it’s a tall order for a cuddly toy. Still, 9cm-tall Foggy...

Capability assessment waits ‘will take 18 months to reduce’ |BBC News | 8 November 2014

November 8, 2014 Maximus president Leslie Wolfe says reducing the existing backlog could take more than a year/

In Parliament | Countess of Mar intervention during questions on the Work Capability Assessment | 5 November 2014

November 6, 2014 During questions in the House of Lords on November 5 about the Work Capability Assessment (the test questionnaire for Employment and Support Allowance), the Countess of Mar asked: My Lords,...

Work Programme adviser: ‘Almost every day one of my clients mentioned feeling suicidal’ | The Guardian | 5 November 2014

November 5, 2014 Whistleblower says her job was box ticking, sanctioning sick people who had little chance of employment, and she wasn’t able to treat clients as human beings From The Guardian, 5...

Mother cleared of poisoning teenager daughter with hormones supplied by Belgian doctor says case should be landmark for parents’ rights | The Independent | 1 November 2014

November 1, 2014 From The Independent, 1 November 2014. Story by Paul Gallagher. A mother cleared of poisoning her daughter after taking desperate measures to treat a chronic condition has said that the...

TGI Friday! Our weekly round-up of recently published research abstracts | 31 October 2014

October 31, 2014 From the Medical-Surgical Journal, Society of Physicians and Naturalists Iasi – Romania, July-September 2014 Main neuroendocrine features, diagnosis and therapeutic possibilities in the chronic fatigue syndrome, an underdiagnosed entity. Amihăesei...

Cuts to Employment and Support Allowance ‘being considered’ | BBC News | 30 October 2014

October 30, 2014 Details leaked to the BBC of likely successors to Atos to run the Work Capability Assessments

Pledging for our UK ME/CFS Biobank Appeal continues until end of today (October 31)

October 30, 2014 The deadline for the receipt of pledges to our online Christmas Appeal to safeguard the future of the UK ME/CFS Biobank has been extended to October 31. So far 81...

Nobel Laureates join the fight against ME/CFS | Open Medicine Foundation | 29 October 2014

October 29, 2014 Mario Capecchi is one of two Nobel Laureates to join the scientific advisory board of the Open Medicine Foundation.

Findings of brain anomalies may shed light on chronic fatigue | San Francisco Chronicle | 29 October 2014

October 29, 2014 From the San Francisco Chronicle, 29 October 2014 (story by Erin Allday). Stanford researchers have found some striking abnormalities in the brains of people with chronic fatigue syndrome, a frustrating...

Parliamentary Question | diagnosis and treatment of people with ME/CFS | 21 October 2014

October 27, 2014 Barry Sheerman, Labour MP for Huddersfield, asked the Secretary of State for Health what steps his department were taking to improve access to diagnosis and treatment for people with myalgic...

Judicial Review launched against disability benefit delays | Welfare Weekly | 24 October 2014

October 25, 2014 From Welfare Weekly, 24 October 2014. Lawyers have launched legal action against the government over “unnecessary and unacceptable” disability benefit delays, it has been revealed today (24 October 2014). Irwin...

Thousands with degenerative conditions classified as ‘fit to work in future’ – despite no possibility of improvement | The Independent | 23 October 2014

October 23, 2014 From The Independent, 23 October 2014. Story by Emily Dugan, Social Affairs Editor. More than a third of people with degenerative conditions such as Parkinson’s and multiple sclerosis are having...

NICE guideline – over to NHS England | but swift action to correct their classification of ME/CFS | 18 October 2014

October 18, 2014 The Forward ME Group of charities held a meeting with Professor Mark Baker from NICE at the House of Lords on 25 June 2014. The Minutes for this meeting can...

TGI Friday! Our weekly round-up of recently published research abstracts and related items | 17 October 2014

October 17, 2014 From Quality of Life Research, 11 October 2014 [Epub ahead of print]. Assessment of recovery status in chronic fatigue syndrome using normative data. Matthees A. P.O. Box 6483, East Perth,...

Griffith researcher awarded $1.85m grant to accelerate diagnosis, treatment for CFS | Medical News website | 14 October 2014

October 14, 2014 Team led by Professor Sonya Marshall-Gradisnik (pictured) wins the award.

Professor Leonard Jason discusses treatment and management | latest video release by Dutch group | 12 October 2014

October 12, 2014 The latest in the series of educational videos about ME/CFS made for worldwide release by the Dutch group, ME/CVS Vereniging, appeared online this week. This one – No 54 – features Leonard...

Spend a day soaking up the ME/CFS research news | Newcastle, Tuesday 4 November 2014

October 10, 2014 The main campus at the University of Newcastle – where Professor Julia Newton and her team are based.

Your views wanted on musculoskeletal services in Buckinghamshire | 10 October 2014

October 10, 2014 To take part in their online survey, click on the following link: https://www.surveymonkey.com/s/XC7DNFB

TGI Friday! Our weekly round-up of recently published research abstracts | 10 October 2014

October 10, 2014 From the Journal of Applied Physiology, 2 October 2014 Phenylephrine Alteration of Cerebral Blood Flow During Orthostasis; Effect on N-Back Performance in Chronic Fatigue Syndrome. Medow MS(1), Sood S(2), Messer...

£15,230 now received in pledges for our UK ME/CFS Biobank Appeal | 8 October 2014

October 8, 2014 We have today received received another £200 – bringing the total amount of pledges received to £15,230. Pending the arrival of any further last-minute pledges, this is the amount now...