July 26, 2017   The ME Association petition calling for a complete review of the NICE guideline for ME/CFS has been supported by 15,180 people. We understand it represents the biggest expression of...

Review: People with ME/CFS are more functionally impaired than people with multiple sclerosis | 19 July 2017

July 19, 2017   Insights into biomedicine, 12 June 2017. This was the main finding from an online study that compared people with ME/CFS with those suffering from multiple sclerosis – a disease...

ME Association to fund six student bursaries for CMRC research conference | 18 July 2017

July 18, 2017 The ME Association is keen to encourage undergraduate and postgraduate medical and science students to develop a clinical or research interest in ME/CFS at an early stage in their careers....

ME Association Guide to ME/CFS Symptom Management – Part Three | 17 July 2017

July 17, 2017   This is the third and final part in our short series on symptom management. Part 1 of this guide covered symptoms A to F, while Part 2 covered symptoms H...

Forward ME Group – Meeting with RCGP representatives leads to increased GP education opportunities | 14 July 2017

July 14, 2017 On 22nd June 2017, Dr Charles Shepherd – representing the ME Association – and other members including the Countess of Mar, met with representatives from the Royal College of General Practitioners...

ME Association provide new research grant to Dr Keith Geraghty to examine two controversial ME/CFS treatments recommended by NICE | 13 July 2017

July 13, 2017 ME Association trustees have approved a new research grant that will critically examine the theoretical basis that underlies the use of Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET)...

ME Association Guide to ME/CFS Symptom Management – Part Two | 13 July 2017

July 13, 2017 This is the second in our short series on symptom management. Part 1 of this guide covered symptoms A to F and can be read, here. The complete guide has...

Feedback requested on proposed relocation of Bath Mineral Hospital CFS/ME service for adults | 12 July 2017

July 12, 2017 We have been contacted by Bath NHS Foundation Trust who advised us of the Royal United Hospital’s proposal to relocate the adult CFS/ME service from the Mineral Hospital to a purpose-built Royal...

CDC removes CBT and GET as recommended treatments for ME/CFS | 11 July 2017

July 11, 2017 In America, the Centers for Disease Control and Prevention (CDC) has updated its website information for ME/CFS, improving diagnostic criteria and removing previous recommended treatments – CBT and GET. While...

ME Association Petition: The NICE guideline for CFS/ME is not fit for purpose… | 10 July 2017

July 10, 2017 Update: 14.15pm 13th July 2017 We have extended the petition deadline to Friday 21st July at 5pm. This follows the NICE decision to extend their own consultation deadline and because...

ME Association Guide to ME/CFS Symptom Management – Part One | 06 July 2017

July 6, 2017 Over the next week or so we will provide a series of blogs that combine to produce a useful guide to symptom management. When the series is complete, we’ll include an...

Breaking news! ME Association has heard back from NICE about the guideline review… and it’s not good news | 05 July 2017

July 5, 2017 The ME Association has heard back from NICE about the guideline review… and the news is not good. Buried in the letter to stakeholders that was sent out in December...

Countess of Mar and Lord Hunt defend ME/CFS in Lords debate on medically unexplained symptoms | 05 July 2017

July 5, 2017 By Russell Fleming, Content Manager, ME Association. The Countess of Mar was once again defending people with ME/CFS in the House of Lords yesterday, this time in a debate about...

Meditation – it’s never worked for me, but does it work for you? | 04 July 2017

July 4, 2017 By Russell Fleming, Content Manager, ME Association. I have lived with M.E. for a long time. Not as long as some, but longer than most. One of the ways in...

Research: brain structural differences are associated with unrefreshing sleep in CFS | 04 July 2017

July 4, 2017 Published in NMR in Biomedicine, 29 June 2017. RESEARCH ARTICLE Medial cortex deficits correlate with unrefreshing sleep in patients with chronic fatigue syndrome Zack Y. Shan, Richard Kwiatek, Richard Burnet,...

Research: Unperturbed Cytotoxic Lymphocyte Phenotype and Function in ME/CFS | 30 June 2017

June 30, 2017 Published in Frontiers in Immunology | Primary Immunodeficiencies, 26 June, 2017. Unperturbed Cytotoxic Lymphocyte Phenotype and Function in ME/CFS Patients Jakob Theorell, Indre Bileviciute-Ljungar, Bianca Tesi, Heinrich Schlums, Mette Sophie Johnsgaard, Babak Asadi-Azarbaijani, Elin Bolle Strand and Yenan...

What’s on? Your guide to local events in the next seven days | 30 June 2017

June 30, 2017 Taken from the ME Association event’s calendar. Saturday, July 1 Jersey Farm Community Centre, 66 Harvest Court, St Albans AL4 9QY, 11.30am-12.30pm Yoga session organised by the St Albans ME...

CMRC 2017 Science Conference in Bristol: Deadline for research abstracts | 30 June 2017

June 30, 2017 Experts in neurovirology, imaging and orthostatic intolerance will take the lead for the fourth annual UK CFS/M.E. Research Collaborative (CMRC) conference, which will this year be held in Bristol on...

ME Association Review: GETSET fails to demonstrate GET can significantly improve physical function | 28 June 2017

June 28, 2017 Guided graded exercise self-help plus specialist medical care versus specialist medical care alone for chronic fatigue syndrome (GETSET): a pragmatic randomised controlled trial In view of the fact that the...

ME Association reaction: BBC Radio 4 File on 4 – Children with M.E. | 27 June 2017

June 27, 2017   Dr Charles Shepherd comments on the BBC ‘File on 4’ programme: “I would personally like to thank Matthew Hill and the BBC for making the programme and to all...

UK Biobank: Prevalence of and risk factors for severe cognitive and sleep symptoms in ME/CFS and MS | 25 June 2017

June 25, 2017 Published in BMC Neurology, 20 June 2017. Dr Charles Shepherd comments on this latest study from the UK ME/CFS Biobank team: These are the results from another one of the...

The NICE guideline saga: how we got to where we are | 24 June 2017

June 24, 2017 Last week ME/CFS stakeholders – including the ME Association – received a letter from NICE informing us that the consultation period for consideration of a review of the current NICE...

‘Very helpful and constructive meeting’ with RCGP representatives at House of Lords | 24 June 2017

June 24, 2017 This is a brief update from MEA medical adviser, Dr Charles Shepherd, who was one of the charity representatives meeting with members of the Royal College of General Practitioners. The meeting...

No increased risk of chronic fatigue syndrome after HPV vaccination | 24 June 2017

June 24, 2017 Source: Norwegian Institute of Public Health, 23 June 2017. Girls receiving one or more doses of HPV vaccine have no greater risk of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) than unvaccinated...

Mixed response to GETSET from Science Media Centre experts | 23 June 2017

June 23, 2017 From science media centre, 22 June 2017. Expert reaction to study on guided self-help graded exercise therapy as a treatment for chronic fatigue syndrome (CFS) Researchers publishing in The Lancet present...

The Telegraph: Exercise can help chronic fatigue syndrome, study shows | 23 June 2017

June 23, 2017 From The Telegraph, Science, 22 June 2017. By Sarah Knapton, science editor 22 JUNE 2017 • 11:30PM Increasing exercise each day can help patients with Chronic Fatigue System to feel less...

Invitation to the Foggy ‘PAW-TY’ in Portsmouth and Live on Facebook | 21 June 2017

June 21, 2017 Helen Hyland writes, Foggy is about to start globetrotting again – raising awareness of ME by travelling to the places in the world that his ‘owner’ Sally Callow can only...

Scottish Parliament debate on Lyme Disease | 21 June 2017

June 21, 2017 Lyme Disease We are very much aware of the recognised cross-over in symptom presentation with people who were diagnosed with Lyme Disease but for whom antibiotic treatment of the initial...

BBC Radio 4 – File on 4: Children with ME to be broadcast next Tuesday at 8pm | 21 June 2017

June 21, 2017 This is a radio programme that ME Association medical adviser Dr Charles Shepherd has been liaising with the BBC about over the past few months. It will be broadcast next...

New and updated! ME Association guide to completing your ESA application | 21 June 2017

June 21, 2017 One of the ME Association’s most sought-after guides – the one that helps you complete the complicated application for Employment and Support Allowance (ESA) – is back on sale after...

Preliminary results from UK ME/CFS Biobank study presented at immunology conference in Chicago | 20 June 2017

June 20, 2017 Insights into the Immunology of Chronic Fatigue Syndrome Professor Eleanor Riley was representing the UK ME/CFS Biobank at a major immunology conference in Chicago last week. Other key speakers were Vicky...