The MEA Events Calendar

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About 3,000 people a day are visiting this website and they might well be looking at this page. These events may also be included in our ME Essential magazine. To have your event listed, please email Tony Britton or phone/text: 07516 656 537.

Saturday, September 20
Straight Road Community Centre, Straight Road, Prettygate, Colchester C03 9EF, 1.45pm

Colchester ME Self-Help Group meeting. Guest speaker: Professor Simon Carding, gut microbial specialist at the University of East Anglia/Norwich Medical School: ‘A role for a leaky gut and the intestinal microbiota in the pathophysiology of ME/CFS’. For more information about the Colchester Group, please contact Vivienne Mills, tel: 01206 530 297, email: viv.mills@colchester-mesh.org.uk

Wednesday, September 24
Neurosupport, Norton Street, Liverpool L3 8LR, 1-4pm

Welfare Benefits Advice. An appointment is necessary. Please phone 0151 298 2999 to arrange.

Wednesday, September 24
Henry Booth Lecture Theatre (Level 1), Mayo Building, Salford Royal Hospital, Stott Lane, Salford M6 8HD, 6.30pm

Meeting called by Dr Louise Barber, clinical psychologist with the Salford Royal Foundation NHS Trust,to discuss the setting upon an ME/CFS support group in Salford. This note has apparently been circulated to past and present ME/CFS patients: “Many people with ME/CFS have expressed an interest in being involved in trying to set up a CFS support group in Salford. The CFS team at the Salford Royal are keen to help to facilitate this in the initial stages, by sending out letters to past, present and future patients of the Salford Royal Hospital. The nature of ME/CFS support groups means that they are led an organised by patients themselves, but this can be an overwhelming task unless a core number of people, with many different and complementary skills are dedicated to offering the time to get it off the ground”.

Saturday, September 27
18 Nursery Gardens, Whittlesey, seven miles east of Peterborough, PE7 1TE, 10am-12noon

Coffee morning at the home of Marian and John Dunham, of Peterborough ME Group. There will be a £2 admission charge which will include a cuppa and a cake. There will also be a raffle. For more information about the group, please phone Marian Dunham on 01733 203 480 or email pboromesg@ntlworld.com

Saturday, September 27
Wolfson College, Linton Road, Oxford OX2 6UD, 2pm

The annual ME Association ‘ME Question Time’, co-hosted by local ME group OMEGA. Panellists: MEA medical advisers Dr Nigel Speight and Dr Charles Shepherd, expert ME/CFS dietitian Sue Luscombe, Jane Colby, executive director of the Young ME Sufferers Trust and mitochondrial expert Dr Karl Morten from the John Radcliffe Hospital, Oxford. Entry will be free and tea, coffee and light refreshments will be served in the interval. But, in a departure from our usual practice, we are asking people who intend to come to let us have an idea of numbers in advance for catering purposes. Please email: admin@meassociation.org.uk or phone 01280 818 968. A quiet room with seating will be available close to the meeting room. More details about the event HERE.

Saturday, September 27
Knockburn Loch, near Banchory, Scotland, 9am-5pm

MEA fundraiser Lorraine McIver, from Aberdeen, is taking on an enormous challenge today – taking on The Beast Race, 10k of rough terrain, dirt tracks and 30 mega obstacles on the way. If you would like to support Lorraine’s fundraising, please visit her online page at www.justgiving.com/haggis-neeps and put some money into her account.

Sunday, September 28
Victoria Embankment Recreation Ground, Nottingham, 9.30am

There are three people running for the ME Association today in the Robin Hood Marathon and Half-Marathon.
Matthew Fagg, from West Bridgford, will be taking part in the marathon. If you would like to support his fundraising, please visit his online page at www.justgiving.com/Matthew-Foggsy
Clare Biddle, from Gamston, has entered the half-marathon and has her fund-raising page at www.justgiving.com/claire-biddle
The third runner is Kirstie Ronayne, from Nottingham, who has also entered the Half Marathon. Kirstie’s online fundraising page is at www.justgiving.com/Kirstie-Ronayne3/

Sunday, September 28
Sheffield City Centre

Vanessa Cox from Knaresborough has booked herself in for the 10k BUPA Great Northern Run which takes place in Sheffield today. If you would like to support her fundraising for the ME Association, please visit www.justgiving.com/vanessas10kchallenge. As at June 23 when we put this item up, the race organisers were still taking team entries for their Business Challenge. To see if your work team can still take part and raise money for the ME Association, please visit /www.greatrun.org/Events/BusinessChallenges.aspx?id=11

Monday, September 29
Museum of Carpet, Stour Vale Mill, Green Street, Kidderminster DY10 1AZ, 2-4pm

AGM of the Worcestershire ME Support Group. All welcome. For more information about this group, please email worcsmegroup@yahoo.co.uk

Tuesday, September 30
‘Shed Food and Drink’, Countryside Park, A4025, Crossway Green, Stourport on Severn DY13 93E, 12.30pm

Worcestershire ME Support Group group lunch, or just drop for for a cuppa and chat.For more information about this group, please email worcsmegroup@yahoo.co.uk

Sunday October 5
Bournemouth

ME recoverer Roisin Reid from Welwyn Garden City, Hertfordshire, is taking part in the Bournemout Marathon Festival Half-Marathon today to raise money for the ME Association. She says she had a very tough time when she was ill. If you would like to support her fundraising, please visit www.justgiving.com/Roisin-Reid

Monday, October 6
Llanishen Community Shop, Llangranog road (off Templeton Ave), Llanishen CF14 5BL, check time with organiser

ME Support in Glamorgan (MESiG) meeting. For more details, contact Christalla, tel: 0292 976 2347 or email christallaconstantinou@talktalk.net

Tuesday, October 7
The Exmouth Arms 167 Bath Road, Cheltenham GL53 7LX, 10.30am

Cheltenham Fibro, ME/CFS Babes and Guys coffee morning – this will be held on the first Tuesday in every month at The Exmouth Arms. The pub has a ‘buy one hot drink get the second’ free offer. For more information about the group, contact Alice Reeve Alice Reeve, Tel: 0844 887 2483 or 07970 462092, Email: fibrobabes@gmail.com

Tuesday, October 7
Balmoral Hotel, Blacks Road, Dunmurry, Belfast BT10 0NF, 7.30pm

Meeting of ME Support in Northern Ireland – always a friendly gathering. Guest speaker: nutritional therapist Sarah Trimble, who has a special interest in the use of nutritional therapy to support fibromyalgia and ME. Sarah is also a tutor for the UK College of Nutrition and Health. This event is free to all ME Support NI members
Non-members pay £2.00. Limited seats available so make sure you book your seat

Tuesday, October 7
Hove Town Hall, 1pm

The Sussex & Kent ME/CFS Society in partnership with national charities Action for M.E. (AfME) and Association for Young people with ME (AYME) are holding a regional conference. Main speakers will include Dr Gabrielle Murphy, Dr Keith Hine and Health Researcher Dr Zoe Gotts, and the conference will be opened by Caroline Lucas MP.
Dr Murphy, lead clinician of the CFS/ME service at London’s Royal Free Hospital will give a presentation on the diagnosis and treatment of the illness. Dr Hine will talk about his experience of ME/CFS since becoming a hospital consultant in Sussex 28 years ago. Dr Gotts, lead researcher at Cumbrian Centre for Sleep Research along with Sonya Chowdhury (AfME) and Mary Jane Willows (AYME) will give an overview of the UK CFS/ME Research Collaborative’s aims and progress so far along with research initiatives and much more.
For tickets, call 01273 674828.

Tuesday, October 7
Mourne Country Hotel, 52 Belfast Road, Newry, Northern Ireland BT34 1TR, 7-9.15am

‘Quiz the Experts”, an evening organised by the Newry and Mourne ME/Fibromyalgia Support Group, with the following panellists: Dr Vance Spence (founder of ME Research UK), Dr William Weir (ME/CFS specialist physician) and Dr Anne Macintyre (ME/CFS specialist physician). Entry £3, includes a light supper. Free to members. Event sponsored by the McConkey family in memory of Eileen McConkey. For more information about this group, please contact Joan McParland, tel: 07712 892 834 (phone answered between 4 and 6pm daily) or email: newryandmourne.me.fms@live.co.uk

Friday, October 10
Jury’s Inn, Milton Keynes
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Annual conference of the Association of Young People with ME (AYME). Keynote speech by Dr David Vickers, consultant community paediatrician. Other speakers will be specialist dietitian and nutrition consultant Sue Luscombe, consultant clinical psychologist Dr Hazel O’Dowd while education options and support pre- and post-16 will be discussed by Cath Kitchen and Alexa Wilkinson. A group of AYME members will also share their own experiences. Tickets £27.50 per person, including hot lunch, refreshments and car parking. For further information, please email: jan@ayme.org.uk

Friday, October 10
The Charis Centre, West Green Drive, Crawley, West Sussex RH11 7EL, 10.30am

Start of a six-week self-management course for people with ME/CFS being held on consecutive Friday mornings. The course is run by an expert tutor from local ME/CFS support group, reMEmber, which has been organising ME/CFS-tailored self-management training courses since September 2001. The cost for whole six-session course is £30. Free parking available nearby. For more information, contact reMEmber, PO Box No. 1647 Hassocks, West Sussex BN6 9GQ. Tel: 01273 831733 Email: me_cfs@hotmail.com Make cheques payable to “reMEmber”.

Saturday, October 11
Caemaen Day Centre, Coleshill Terrace, Llanelli SA15 3BT, 2pm

Meeting of the Carmarthenshire ME Group. Please phone John James on 01267 233 793 or email rjames939@btinternet.com to check that all’s well for the meeting.

Sunday, October 12
Hyde Park, London, 8.30am start

One of our running stars, Matt Prior, has entered The Royal Parks Ultra 50k race that takes in five Royal Parks, the Thames towpath and some of the world’s most iconic landmarks. If you would like to supports Matt, plea visit his online fundraising page at www.justgiving.com/Matt-PriorRPU

Sunday, October 12
Danny House, New Way Lane, Hurstpierpoint, Hassocks BN6 9BB‎, 7.30pm.

reMEmber present The Lou Beckerman Quartet and guests who will be dipping into their album ‘Into The Blue’ and playing much else besides. Tickets £20 each from reMEmber, PO Box 1647,
Hassocks, West Sussex, BN6 9GQ. Tel: 01273 831733 (Please make cheques payable to ‘Remember’ and enclosed a stamped, addressed envelope).

Wednesday, October 15
Conference Room, The Circle, 33 Rockingham Lane, Sheffield S1 4FW, 1.30pm

Annual medical conference of the Sheffield ME Group. Guest Speaker: MEA medical adviser Dr Charles Shepherd – Hot Topics in ME/CFS: Benefits, Research and Management followed by questions and answers. Website for more information: http://www.sheffieldmegroup.co.uk

Sunday, October 19
Chelmsford, Essex

Today, the Chelmsford Marathon takes place and Robert Smith, who lives in the city, is taking part to raise money for the ME Association. If you would like to support Rob”s fundraising, please visit his online page at www.justgiving.com/Rob-Smith007/

Tuesday, October 21
Café, West Yorkshire Playhouse, Playhouse Square, Quarry Hill, Leeds LS2 7UP, 12.30pm

Regular, monthly social gathering in great surroundings of the Leeds ME Network. Join us for a chat and, if you like, a bite to eat.New members are very welcome! Look for the tables with the green LMETG signs. For more information about the Leeds ME Network, please visit http://leedsmenetwork.yolasite.com/meetings.php

Saturday, October 25
Lammermuir Hall, St Cuthbert’s Church, 5 Lothian Road, Edinburgh, 2pm (doors open 1.30pm)

AGM and Open Meeting of Edinburgh ME Self-Help Group. The guest speaker will be Dr Peter Strigner, from Biggar, who has more than 38 years experience as a doctor in the NHS. Now practising independently, Dr Strigner specialises in Nutritional Medicine and CFS is something he has previously treated. Dr Strigner believes that there are strong nutritional contributors to CFS which can be identified specifically through specialised lab tests. He believes that thinking ‘out of the box’ and sometimes challenging accepted wisdom can bring positive results in cases where well-intentioned conventional methods, such as the inappropriate reliance on medical drugs, repeatedly fail or have little to offer. He practises Integrated Medicine, which selects from the worlds of both complementary and conventional medicine. Everyone welcome. Free talk. Refreshments, Wheelchair access. Car shares or help with transport available on request. For more information about the group, please phone 0845 625 2025 or email membership@edmesh.org.uk

Monday, October 27
Dublin

We have two runners taking part in the Dublin Marathon today – Jonny Hanson, who has obtained one of the two guaranteed places offered by the ME Association, and his friend Gareth Davidson, who will be running independently. Thank you very much, you two! If you would like to support either of them, Jonny’s fundraising page is at www.justgiving.com/jonnyhanson while Gareth’s page can be found at (details to come).

Tuesday, October 28
Rowberry’s Garden Centre, Lodgeford Hill, Lower Chaddesley Corbett, Kidderminster, DY10 4QN, 12.30pm

Worcestershire ME Support Group group lunch, or just drop for for a cuppa and chat.For more information about this group, please email worcsmegroup@yahoo.co.uk

Tuesday,November 18
Café, West Yorkshire Playhouse, Playhouse Square, Quarry Hill, Leeds LS2 7UP, 12.30pm

Regular, monthly social gathering in great surroundings of the Leeds ME Network. Join us for a chat and, if you like, a bite to eat.New members are very welcome! Look for the tables with the green LMETG signs. For more information about the Leeds ME Network, please visit http://leedsmenetwork.yolasite.com/meetings.php

Tuesday, November 4
The Exmouth Arms 167 Bath Road, Cheltenham GL53 7LX, 10.30am

Cheltenham Fibro, ME/CFS Babes and Guys coffee morning – this will be held on the first Tuesday in every month at The Exmouth Arms. The pub has a ‘buy one hot drink get the second’ free offer. For more information about the group, contact Alice Reeve Alice Reeve, Tel: 0844 887 2483 or 07970 462092, Email: fibrobabes@gmail.com

Tuesday, November 4
Gosforth Civic Hall, Regent Farm Road, Gosforth, Newcastle upon Tyne, NE3 3HD, 10.30 for 11am-3.30pm

Newcastle ME/CFS Research conference, co-sponsored by the ME Association and ME North. Speakers include: Professor Julia Newton, leader of the ME/CFS research group at Newcastle University), Zoe Gotts (sleep studies), Fai Ng (MRC Fatigue Biomarker Study), Professor Stephen Todryk (Northumbria University), study into the immune system response, especially to infections, of people with ME/CFS which the MEA is co-funding with Action for ME; Vicki Strassheim (new study into severe ME); Sarah Jayne Bolton (mitochondrial studies), Justin Durham (temperomandibular joint study in CFS), Andreas Kinklemeyer (update on MR studies in CFS), Stuart Watson (HPA axis function in CFS). Admission: £5.00 We will post more details as we receive them.

Wednesday, November 12
Landstingshuset, Hantverkargatan 45, Stockholm, Sweden, 1-5pm

The seminar is organised by the Swedish National Society for ME patients (Riksföreningen för ME-patienter, RME) in cooperation with RME local associations in Stockholm and Skåne. Most lectures are held in English and are followed by a brief question time. Coffee and light refreshments will be served in the break. Speakers: Dr Peter C Rowe, John Hopkins Children’s Center, Baltimore, USA: Orthostatic intolerance and pediatric ME/CFS; Dr. Nigel Speight, The University Hospital of North Durham, Great Britain (and paediatric medical adviser, The ME Association): Diagnosis and Management (and misdiagnosis leading to allegations of child abuse); Dr. Amolak S. Bansal, Department of Immunology, St Helier Hospital, England: The immune/virus/endocrine interface in ME/CFS; Natalie Gillberg, 14-years-old and suffering from ME/CFS and Camilla Gillberg, parent: Living with ME/CFS as a child. The seminar is free and aimed primarily at professionals in health care and schools. Seats are limited. General public may attend as far as space allows. Registration and information:www.rme.nu/seminarium-2014 Last date for registration: September 20, 2014. For questions about the seminar, please contact RME at info@rme.nu Website: www.rme.nu

Thursday, November 20
JOHN LEWIS 5th Floor Restaurant 300 Oxford St, W1A 1EX, 5pm

Meeting of the Central London ME Group. John Lewis have rearranged the seating within the 5th floor restaurant. We will be next to the Kuoni travel office which is within the restaurant at the front of the store overlooking Oxford St. Please ask a member of staff if you have any difficulty finding us. There will be a copy of the Canadian Guidelines on the table or ring the group’s mobile no 07771 238 199. Nearest tube : Oxford Circus and Bond Street. There is some disabled parking on Old Cavendish St between John Lewis and House of Fraser.

Saturday, November 22
Yorkshire Fatigue Clinic, Forsyth Business Centre, Tower Court, Oakdale Road, Clifton Moor, York YO30 3XL, 2-3pm

Followed by an hour-long drop-in session that is open to all.
Carers Event: This event is aimed at the partners, friends and family members of someone experiencing CFS/ME/Chronic Fatigue. The session will develop your understanding of fatigue, how to support someone with a fatigue disorder and how to look after your own needs too. £3 per person, payable on the day. Call the clinic on 01904 557 148 or email: sue@yorkshirefatigueclinic.co.uk

Monday, November 24
Cob House (Trip Advisor) – Cob House Fisheries, Worcester Road, Wichenford, Worcester, WR6 6YE, 12.30pm

Worcestershire ME Support Group group lunch, or just drop for for a cuppa and chat.For more information about this group, please email worcsmegroup@yahoo.co.uk

Wednesday, November 26
The Toby Carvery, 415 Brighton Road, South Croydon, Surrey CR2 6ES, 4pm

Meeting of the Croydon ME Support Group. We have met at the Toby Carvery for the last few years and it has worked well. Afternoons seem to be a good time for most and it is quiet in the restaurant at that time. Please put the date in your diary now and call nearer the time to let us know if you are able to come so we can get the right size table when I arrive. For more information about the group, please contact Danielle McCullough, tel: 07841 650 784, email: croydonme@gmail.com

Wednesday, November 26
Venue to notified but either in Central Edinburgh or Glasgow, 1-3.30pm

Members’ open meeting called by the Neurological Alliance of Scotland. For more information, please contact Irene Cameron, NAoS, Mansfield Traquiar Centre, 15 Mansfield Place, Edinburgh EH3 6BB, email: irene.cameron@scottishneurological.org.uk, Mobile: 07921 020258 (Tuesday to Thursday)
Web: www.scottishneurological.org.uk

Saturday, December 6
Tyesdale Community Centre, 32 Tyesdale, South Bretton, Peterborough, PE3 9XZ, 6.30pm

Peterborough ME Group Christmas Social. Entertainment by the Bell Ringers. For more information about the group, please phone Marian Dunham on 01733 203 480 or email pboromesg@ntlworld.com

Sunday, December 7
Balmoral Hotel, Blacks Road, Dunmurry, Belfast BT10 0NF, 2-6pm

Group Christmas dinner organised by ME Support Northern Ireland. Free to all MESNI members, while non-members are welcome but will pay £15. Antoinette Christie is organising the event through the group’s Facebook page at https://www.facebook.com/groups/365117956886428/770083829723170/?notif_t=group_activity

December 9-10
Natcher Conference Center (Building 45), Main Auditorium, 45 Center Drive, National Institutes of Health, Bethesda, Maryland, 301–496–9966, USA

National Institutes of Health Pathways to Prevention workshop: Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. More information HERE.

Tuesday,December 16
Café, West Yorkshire Playhouse, Playhouse Square, Quarry Hill, Leeds LS2 7UP, 12.30pm

Regular, monthly social gathering in great surroundings of the Leeds ME Network. Join us for a chat and, if you like, a bite to eat.New members are very welcome! Look for the tables with the green LMETG signs. For more information about the Leeds ME Network, please visit http://leedsmenetwork.yolasite.com/meetings.php

2015

Sunday, May 25
BUPA London 10k event, Central London

We have 13 guaranteed places on offer for people who would like to take part in this event while raising money for the ME Association, and they’re filling up fast.
So far, we have an entry from a seven-person team – Harriet Bannington, Michaela Ford, Carley Pease, Michael Gimenez-Alda, Mark Sturgess, Mel Drew and Chris Jacobs whose joint fundraising page is HERE. They’ve set themselves a target to raise £1,750 for the MEA – can you chip in some money to help them?

September
Ecuador

Ewan Ross will be climbing Mount Cotopaxi in Ecuador(19,300ft) to raise money for the ME Association. His wife, Jackie, has ME and he writes that he wants to do what he can to raise awareness of the difficulty in obtaining treatment for the illness. “The last doctor told her to take a multi-vitamin. I could not believe that so little is known about ME”. Ross is a veteran in the world of having challenges – he’s already been up to Everest Base Camp and has take part in both the Great North and the Great South Runs. If you would like to support Ewan’s fundraising for The MEA,please visit his online page at www.justgiving.com/ewanrosscotopaxi


About 3.000 people a day are visiting this website and they might well be looking at this page. These events may also be included in our ME Essential magazine. To have your event listed, please email Tony Britton or phone/text: 07516 656 537.