The MEA Events Calendar

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About 2,500 people a day are visiting this website and they might well be looking at this page. These events may also be included in our ME Essential magazine. To have your event listed, please email Tony Britton or phone/text: 07516 656 537.

Friday, July 25
Three Peaks Challenge

Four friends – Nick Lee, Brett Skowron, Tom Williams and Sarah Millman – will be attempting The Three Peaks Challenge today to raise money for the ME Association. They will be aiming to scale Scafell Pike, Ben Nevis and Sbowdon, the highest peaks in England, Scotland and Wales, all within the space of 24 hours. It can be done! If you would like to contribute to their epic fundraiser, Sarah has set up a fundraising page at www.justgiving.com/3-Peaks-Challenge-2014

Saturday, July 26
The gardens of Duddingston Kirk, Edinburgh, 1pm

Edinburgh ME Self-Help Group’s annual garden party. Buffet, refreshments and raffle. Admission charge £6 (members), £8 (non-members). Please send a cheque for the correct amount to Jeff Begg, 26 Lampacre Road, Edinburgh EH12 7HX, making your cheque payable to Edinburgh edmesh. If you have any special dietary requirements, please discuss them with Jeff at the time of the booking, tel. 07979 543 245.

Tuesday, July 29
Wigton Market, Cumbria

Carlisle ME Support Group arts and craft stall on the market. For more information about the group, please email Linda Danielis at linda.danielis@talk21.com

Wednesday, July 30
Neurosupport, Norton Street, Liverpool L3 8LR, 1-4pm

Benefits advice session. Appointments necessary so please phone reception on 0151 298 2999 to book your place. Also, on Thursday mornings, people can phone in and speak to a benefits adviser directly – on Thursdays, phone 0151 298 3283.

Wednesday, August 6
Murrayfield Hotel, Edinburgh, 2.30pm

edMesh’s monthly café meeting.

Wednesday, August 13
Braid Hills Hotel, 134 Brain Road, Edinburgh EH10 6JD, 6.30 for 7pm start

Talk by Dr Raymond Perrin, osteopath and ME/CFS researcher, on the latest research into ME/CFS. Car parking is available at the hotel, and buses stop on Comiston Road at the bottom of a flight of steps up to the hotel car park. Event organised by Mrs Rosalind Stuart-Menteth, Osteopath, 67 Comiston Road, Edinburgh EH19 6AG, tel: 0131 447 4080.

Monday, August 18
M&S Café, Crystal Peaks Shopping Mall, Sheffield, 11.30am-1pm

Sheffield ME Group drop-in event. For more information about the group, please phone 0114 253 6700 (Tues-Fri 10am-12noon and 1-4pm) or email: info@sheffieldmegroup.co.uk

Tuesday, August 19
Café, West Yorkshire Playhouse, Playhouse Square, Quarry Hill, Leeds LS2 7UP, 12.30pm

Regular, monthly social gathering in great surroundings of the Leeds ME Network. Join us for a chat and, if you like, a bite to eat.New members are very welcome! Look for the tables with the green LMETG signs. For more information about the Leeds ME Network, please visit http://leedsmenetwork.yolasite.com/meetings.php

Saturday, August 30
Dorking, Surrey

Becky De la Haye, from Sittingbourne in Kent, will be taking part in the tough Nuts Challenge (an obstacle and endurance race) to raise money for The ME Association. If you would like to support her fundraising, please visit Beck’y online page at www.justgiving.com/Becky-De-la-Haye

Saturday, August 30
Boughton House, Kettering, Northants, all day

Amy Ward and friends will be taking part in the women’s only Mudderella event today – taking on a muddy obstacle course over seven miles. Amy has set up a fundraising page at www.justgiving.com/BarrattLadiesandFriends, hoping to raise up to £4,000 for the ME Association. If you would like to contribute to their fundraising, please visit their page.

Wednesday, September 3
Murrayfield Hotel, Edinburgh, 2.30pm

edMesh’s monthly café meeting.

Wednesday, September 3
John Lewis café, Sheffield, 5-6.30[m

Sheffield ME Group drop-in event. For more information about the group, please phone 0114 253 6700 (Tues-Fri 10am-12noon and 1-4pm) or email: info@sheffieldmegroup.co.uk

Thursday, September 4
London to Paris Bike Ride

Dave Spencer, from Hitchin in Hewrtfordshire, is taking part in the London to Paris Bike Ride today to raise money for the ME Association. If you would like to contribute to his donations page, please visit www.justgiving.com/Dave-Spencer4

Saturday, September 6
Yorkshire Fatigue Clinic, Forsyth Business Centre, Tower Court, Oakdale Road, Clifton Moor, York YO30 3XL, 1-4pm

Followed by an hour-long drop-in session that is open to all.
Open event to mark the clinic’s 2nd anniversary. This is a chance for people to get together and celebrate another successful year for the clinic. There will be speakers, workshops and chance to have a chat over a cup of tea. Call the clinic on 01904 557 148 or email: sue@yorkshirefatigueclinic.co.uk

Saturday, September 6
Linda Carvill’s home, 3.30-7pm

South East London ME Support Group’s annual summer picnic (indoors, if wet). Friends and family are welcome. Please bring buffet food to share Iif you feel well enough) – drinks are provided. Please let Linda or your telephone volunteer know if you hope to cone so we can contact you if there is any change of plan. For further information about the group, email Sue Rogers at SELMESG7@gmail.com or phone Gill Day on 0208 771 2490

Sunday, September 7
Pittville Park, Cheltenham

Today is the Cheltenaham Half Marathon. Taking part in it to raise funds for the ME Association will be Christopher Holder. If you would like to support his fundraising, please visit his online page at www.justgiving.com/Christopher-Holder1/

Sunday, September 7
5 Primezone Mews, off Haringey Park, London N8 9JP, 3pm.

AGM of the North London ME Group, For more information about this group, please phone 07816 979 262 (leave message giving your contact details if the phone is not answered immediately) or email: info@nlmenetwork.org.uk

Sunday, September 7
Newcastle City Centre to Gateshead, 13.1miles

The Great North Run takes place today. Among those running for the ME Association will be Mike Richards from Lincoln and Andrew Featherstone from Ferryhill. If you would like to support Mike’s fundraising, please visit his online page at
www.justgiving.com/MikeRichards70-ME
To support Andrew’s fundraising, please go to www.justgiving.com/featherstakesonMEpart2

Saturday, September 13
Sheraton Hotel, 150 West 500 South, Salt Lake City, Utah, USA, 7.30am-12noon

Conference ‘Advances in the Science and Treatment ofd ME/CFS and FM’ sponsored by the Organization for Fatigue and Fibromyalgia Education and Research (OFFER) and the University of Utah School of Medicine Office of CME. Speakers: Dr Lucinda Bateman (executive director of OFFER), Dr Elizabeth Unger (acting chief, Viral Chronic Diseases Branch, Center for Disease Control and Prevention), Alan Light, PhD (University of Utah departments of anesthesiology, and neurobiology and anatomy), Magdelena Lang PhD (Massachusetts General Hospital department of neurology, Boston) and Bruce Campbell PhD (Author, Managing Chronic Fatigue Syndrome and Fibromyalgia: A Seven-Part Plan and director of website “CFIDS & Fibromyalgia Self-Help”)
Patient Conference, same speakers, 1-5pm
Details HERE.

Tuesday, September 16
Café, West Yorkshire Playhouse, Playhouse Square, Quarry Hill, Leeds LS2 7UP, 12.30pm

Regular, monthly social gathering in great surroundings of the Leeds ME Network. Join us for a chat and, if you like, a bite to eat.New members are very welcome! Look for the tables with the green LMETG signs. For more information about the Leeds ME Network, please visit http://leedsmenetwork.yolasite.com/meetings.php

Wednesday, September 17
JOHN LEWIS 5th Floor Restaurant 300 Oxford St, W1A 1EX, 5pm

Meeting of the Central London ME Group. John Lewis have rearranged the seating within the 5th floor restaurant. We will be next to the Kuoni travel office which is within the restaurant at the front of the store overlooking Oxford St. Please ask a member of staff if you have any difficulty finding us. There will be a copy of the Canadian Guidelines on the table or ring the group’s mobile no 07771 238 199. Nearest tube : Oxford Circus and Bond Street. There is some disabled parking on Old Cavendish St between John Lewis and House of Fraser.

Wednesday, September 17
Dotty Nell’s café, Gleadless Town End, Sheffield, 12.30am-2pm[m

Sheffield ME Group drop-in event. For more information about the group, please phone 0114 253 6700 (Tues-Fri 10am-12noon and 1-4pm) or email: info@sheffieldmegroup.co.uk

Saturday, September 20
Straight Road Community Centre, Straight Road, Prettygate, Colchester C03 9EF, 1.45pm

Colchester ME Self-Help Group meeting. Guest speaker: Professor Simon Carding, gut microbial specialist at the University of East Anglia/Norwich Medical School: ‘A role for a leaky gut and the intestinal microbiota in the pathophysiology of ME/CFS’. For more information about the Colchester Group, please contact Vivienne Mills, tel: 01206 530 297, email: viv.mills@colchester-mesh.org.uk

Saturday, September 27
Wolfson College, Oxford, 2pm

The annual ME Association ‘ME Question Time’, co-hosted by local ME group OMEGA. Panellists will include MEA medical advisers Dr Nigel Speight and Dr Charles Shepherd, expert ME/CFS dietitian Sue Luscombe and Jane Colby, executive director of the Young ME Sufferers Trust. Wolfson College also has some bed and breakfast accomodation available during the summer vacation if you want to stay overnight. Details on the college website: https://www.wolfson.ox.ac.uk/conference/bed-and-breakfast

Saturday, September 17
18 Nursery Gardens, Whittlesey, seven miles east of Peterborough, PE7 1TE, 10am-12noon

Coffee morning at the home of Marian and John Dunham, of Peterborough ME Group. There will be a £2 admission charge which will include a cuppa and a cake. There will also be a raffle. For more information about the group, please phone Marian Dunham on 01733 203 480 or email pboromesg@ntlworld.com

Sunday, September 28
Nottingham City Centre, 9.30am

Matthew Fagg, from West Bridgford, will be taking part in the Robin Hood Marathon today to raise money for The ME Association. If you would like to support Matthew’s fundraising, please visit his online page at www.justgiving.com/Matthew-Foggsy

Sunday, September 28
Sheffield City Centre

Vanessa Cox from Knaresborough has booked herself in for the 10k BUPA Great Northern Run which takes place in Sheffield today. If you would like to support her fundraising for the ME Association, please visit www.justgiving.com/vanessas10kchallenge. As at June 23 when we put this item up, the race organisers were still taking team entries for their Business Challenge. To see if your work team can still take part and raise money for the ME Association, please visit /www.greatrun.org/Events/BusinessChallenges.aspx?id=11

Sunday October 5
Bournemouth

ME recoverer Roisin Reid from Welwyn Garden City, Hertfordshire, is taking part in the Bournemout Marathon Festival Half-Marathon today to raise money for the ME Association. She says she had a very tough time when she was ill. If you would like to support her fundraising, please visit www.justgiving.com/Roisin-Reid

Tuesday, October 7
Hove Town Hall, 1pm

The Sussex & Kent ME/CFS Society in partnership with national charities Action for M.E. (AfME) and Association for Young people with ME (AYME) are holding a regional conference. Main speakers will include Dr Gabrielle Murphy, Dr Keith Hine and Health Researcher Dr Zoe Gotts, and the conference will be opened by Caroline Lucas MP.
Dr Murphy, lead clinician of the CFS/ME service at London’s Royal Free Hospital will give a presentation on the diagnosis and treatment of the illness. Dr Hine will talk about his experience of ME/CFS since becoming a hospital consultant in Sussex 28 years ago. Dr Gotts, lead researcher at Cumbrian Centre for Sleep Research along with Sonya Chowdhury (AfME) and Mary Jane Willows (AYME) will give an overview of the UK CFS/ME Research Collaborative’s aims and progress so far along with research initiatives and much more.
For tickets, call 01273 674828.

Sunday, October 12
Hyde Park, London, 8.30am start

One of our running stars, Matt Prior, has entered The Royal Parks Ultra 50k race that takes in five Royal Parks, the Thames towpath and some of the world’s most iconic landmarks. If you would like to supports Matt, plea visit his online fundraising page at www.justgiving.com/Matt-PriorRPU

Sunday, October 12
Danny House, New Way Lane, Hurstpierpoint, Hassocks BN6 9BB‎, 7.30pm.

reMEmber present The Lou Beckerman Quartet and guests who will be dipping into their album ‘Into The Blue’ and playing much else besides. Tickets £20 each from reMEmber, PO Box 1647,
Hassocks, West Sussex, BN6 9GQ. Tel: 01273 831733 (Please make cheques payable to ‘Remember’ and enclosed a stamped, addressed envelope).

Sunday, October 19
Chelmsford, Essex

Today, the Chelmsford Marathon takes place and Robert Smith, who lives in the city, is taking part to raise money for the ME Association. If you would like to support Rob”s fundraising, please visit his online page at www.justgiving.com/Rob-Smith007/

Tuesday, October 21
Café, West Yorkshire Playhouse, Playhouse Square, Quarry Hill, Leeds LS2 7UP, 12.30pm

Regular, monthly social gathering in great surroundings of the Leeds ME Network. Join us for a chat and, if you like, a bite to eat.New members are very welcome! Look for the tables with the green LMETG signs. For more information about the Leeds ME Network, please visit http://leedsmenetwork.yolasite.com/meetings.php

Tuesday,November 18
Café, West Yorkshire Playhouse, Playhouse Square, Quarry Hill, Leeds LS2 7UP, 12.30pm

Regular, monthly social gathering in great surroundings of the Leeds ME Network. Join us for a chat and, if you like, a bite to eat.New members are very welcome! Look for the tables with the green LMETG signs. For more information about the Leeds ME Network, please visit http://leedsmenetwork.yolasite.com/meetings.php

Thursday, November 20
JOHN LEWIS 5th Floor Restaurant 300 Oxford St, W1A 1EX, 5pm

Meeting of the Central London ME Group. John Lewis have rearranged the seating within the 5th floor restaurant. We will be next to the Kuoni travel office which is within the restaurant at the front of the store overlooking Oxford St. Please ask a member of staff if you have any difficulty finding us. There will be a copy of the Canadian Guidelines on the table or ring the group’s mobile no 07771 238 199. Nearest tube : Oxford Circus and Bond Street. There is some disabled parking on Old Cavendish St between John Lewis and House of Fraser.

Saturday, November 22
Yorkshire Fatigue Clinic, Forsyth Business Centre, Tower Court, Oakdale Road, Clifton Moor, York YO30 3XL, 2-3pm

Followed by an hour-long drop-in session that is open to all.
Carers Event: This event is aimed at the partners, friends and family members of someone experiencing CFS/ME/Chronic Fatigue. The session will develop your understanding of fatigue, how to support someone with a fatigue disorder and how to look after your own needs too. £3 per person, payable on the day. Call the clinic on 01904 557 148 or email: sue@yorkshirefatigueclinic.co.uk

Saturday, December 6
Tyesdale Community Centre, 32 Tyesdale, South Bretton, Peterborough, PE3 9XZ, 6.30pm

Peterborough ME Group Christmas Social. Make it a date! More details later. For more information about the group, please phone Marian Dunham on 01733 203 480 or email pboromesg@ntlworld.com

December 9-10
Natcher Conference Center (Building 45), Main Auditorium, 45 Center Drive, National Institutes of Health, Bethesda, Maryland, 301–496–9966, USA

National Institutes of Health Pathways to Prevention workshop: Advancing the Research on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. More information HERE.

Tuesday,December 16
Café, West Yorkshire Playhouse, Playhouse Square, Quarry Hill, Leeds LS2 7UP, 12.30pm

Regular, monthly social gathering in great surroundings of the Leeds ME Network. Join us for a chat and, if you like, a bite to eat.New members are very welcome! Look for the tables with the green LMETG signs. For more information about the Leeds ME Network, please visit http://leedsmenetwork.yolasite.com/meetings.php

2015

September
Ecuador

Ewan Ross will be climbing Mount Cotopaxi in Ecuador(19,300ft) to raise money for the ME Association. His wife, Jackie, has ME and he writes that he wants to do what he can to raise awareness of the difficulty in obtaining treatment for the illness. “The last doctor told her to take a multi-vitamin. I could not believe that so little is known about ME”. Ross is a veteran in the world of having challenges – he’s already been up to Everest Base Camp and has take part in both the Great North and the Great South Runs. If you would like to support Ewan’s fundraising for The MEA,please visit his online page at www.justgiving.com/ewanrosscotopaxi


About 2,500 people a day are visiting this website and they might well be looking at this page. These events may also be included in our ME Essential magazine. To have your event listed, please email Tony Britton or phone/text: 07516 656 537.