
| NHS specialist services throughout the UK |
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There is a growing number of specialist NHS services in England for people with ME/CFS. When we have reliable information, we hope to publish details of similar services in Scotland and Wales. Contact details for the services appear below. Please remember that, while patients can contact any of the services for information, referrals for assessment, diagnosis and treatment must be made by your GP or the professional responsible for your health care.
CLINICAL NETWORK COORDINATING CENTRES
Greater Manchester
NATIONAL DIAGNOSTIC AND SPECIALIST REHABILITATION SERVICE This service, based in the regional Essex Neuroscience Unit at Queen's Hospital in Romsford, has a national inpatient service and a national outpatient service. The clinical lead is consultant neurologist Professor Leslie Findley and his associate specialist is Dr J Davis. The inpatient unit on Sahara A Ward has eight dedicated beds for patients with ME/CFS – the only unit of its type in the UK. The average length of stay is three months. The inpatient service offers a wide range of evidence-based treatments including:
Medical inquiries: Valerie Day, medical secretary (Monday-Friday, 9am-5pm) – Tel: 01708 435 044 Fax: 01708 435 246 This e-mail address is being protected from spambots. You need JavaScript enabled to view it Therapy inquiries:Therapy secretary (Monday-Friday, 9am-5pm) – Tel: 01708 435 044 Fax: 01708 435 246 This e-mail address is being protected from spambots. You need JavaScript enabled to view it Referral and Inpatient/Outpatient Funding inquiries: Tracy Grover, administrative assistant (Monday-Friday, 8am-2.30pm) – Tel: 01708 435 044 Fax: 01708 435 246 This e-mail address is being protected from spambots. You need JavaScript enabled to view it General Team inquiries: Address and fax as above. Tel: 01708 435 044 (Monday-Friday 8am-4pm), This e-mail address is being protected from spambots. You need JavaScript enabled to view it
ADULT TEAMS
Chronic Fatigue Research and Treatment Unit, Mapother House 1st Floor, De Crespigney Park, Denmark Hill, London SE5 8AZ Tel: 0203 228 5075 Fax: 0203 228 5074. The Fatigue Service, Department of Infection and Immunity, Royal Free Hospital, Pond Street, London NW3 2QG.
Royal London Homeopathic Hospital Adult Chronic Fatigue Service, Royal London Homeopathic Hospital, 60 Great Ormond Street, London WC1N 3HR. Tel: 020 7391 8975 (UCLH internal 18975) Fax: 020 7391 8869
St Bartholomew's Hospital
Bath and Wiltshire Royal National Hospital for Rheumatic Diseases, Upper Borough Walls, Bath, Somerset BA1 1RL.
Buckinghamshire Chronic Pain and Fatigue Management Service, Rayners Hedge, Croft Road, Aylesbury, Bucks HP21 7RD, tel: 01296 393319.
In Bury, the adult service is provided at the Prestwich Walk-In Centre, Fairfax Road, Prestwich M25 1BT.
Based in the Pain Management Centre, Ward 22, Frenchay Hospital, Bristol. This service has access to occupational therapy, physiotherapy, psychology, counselling and a specialist GP.
Tel: 01733 774583
There are no specialist ME/CFS services in Cheshire.
Clinics in Truro, Bodmin, Camborne/ Redruth, Helston, Poltair and Stratton.
Cumbria (North) North Cumbria CFS/ME Service, Keswick Community Hospital, Crosthwaite Road, Keswick, Cumbria CA12 5HP.
Cumbria (South) – See entry for Lancashire and South Cumbria
Tel: 01332 786657
Wonford House Hospital, Dryden Road, Exeter EX2 5AF
This service covers Plymouth, South and West Devon (Torbay, Devon and Plymouth Primary Care Trusts).
Dorset Tel: 01929 557560
CFS/ME Service, St Margaret’s Health Centre, St Margaret’s Garth, Crossgate, Durham DH1 4DS. For information about accessing this service or managing the illness, contact the following, tel: 0191 370 9486 – Kristi Greensmith, CFS/ME administrator, Vicki Piggott, clinical specialist physiotherapist CFS/ME, Marie Liddell, clinical specialist occupational therapist.
Essex Neurosciences Unit (Chronic Fatigue Service) Sahara A Ward, Queen’s Hospital, Rom Valley Way, Romford, Essex RM7 0AG
Essex-wide Managed from Southend Hospital NHS Foundation Trust, Prittlewell Chase, Westcliff on Sea, SS0 0RY
Hampshire and Isle of Wight Hampshire and Isle of Wight Chronic Fatigue Service
Portsmouth Chronic Fatigue Syndrome Service
Harrogate, North Yorkshire CFS/ME service, Briary Wing, Harrogate District Hospital, Lancaster Park Road, Harrogate HG2 7SX.
Herefordshire and Worcestershire Tel: 01562 823424 (ext 53436)
Hillingdon and Harrow Tel: 01895 279 374
Hull and East Yorkshire Tel: 01482 675376 Kent and Medway George Villa, Hermitage Lane, Maidstone ME16 9PH, and satellite clinics in the west of Kent.
Lancashire and South Cumbria The Lancashire and South Cumbria Chronic Fatigue Service runs ME/CFS clinics at (1) Clitheroe Community Hospital (covering Blackburn with Darwen; Burnley, Pendle and Rossendale;Hyndburn and Ribble Valley) (2) Preston (Chorley and South Ribble; Preston) (3) Kendal (for Morecambe Bay) and (4) Freckleton (Blackpool; Fylde; Wyre). [The multi-disciplinary team includes Dr David Grimes, a consultant physician at Blackburn Royal Infirmary (who sees the more complex cases), a physiotherapist (Maureen Howe) who is also the team manager, a clinical psychologist, two additional physiotherapists, and an assistant psychologist.]
Lancashire (Ashton, Wigan and Leigh ME/CFS service, ST/OT Unit. Leigh Infirmary, The Avenue, Leigh, WN7 1HS. Tel: 01942 264 321. Fax: 01942 264 323,
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Leeds and West Yorkshire Chronic Fatigue Unit, Outpatients Suite, Newsam Centre, Seacroft Hospital, York Road, Leeds LS14 6WB
Tel: 0116 225 6193 (Clinical lead: Dr Trevor Friedman, consultant liaison psychiatrist, CFS Service – Liaison Psychiatry, Brandon Unit, Leicester General Hospital, Gwendolen Road, Leicester LE5 4PW).
Tel: 01476 464046
The Administrator, CFS/ME Service, 9th Floor, Regent House, Heaton Lane, Stockport SK4 1BSTel: 0161 426 5481
[The service only accepts referrals from GPs / Consultants and at present we cover Stockport, Oldham, South & Central Manchester] GP referrals to ME/CFS Service, Occupational Therapy Department, Lowestoft Hospital, Tennyson Road, Lowestoft, Suffolk NR32 1PT, tel: 01502 527579, fax: 01502 527554. Senior Occupational Therapist: Jo O'Leary. Service administrator: This e-mail address is being protected from spambots. You need JavaScript enabled to view it Clinics are held at the St James Health and Resource Centre, Queens Road, Great Yarmouth NR30 3DG, tel: 01493 335 790. Nottinghamshire Nottingham CFS/ME Service, Mobility Centre, Hucknall Road, Nottingham NG5 1PJ Tel: 0115 969 1169 (ext 59878) or 0115 993 6628
George Eliot Hospital, College Road, Nuneaton, Warwickshire, CV10 7DJ.
OCCMET (Oxfordshire Community CFS/ME Tream)
Tel: 01733 774583
Hope Hospital, Stott Lane, Salford M6 8HD
Sheffield (South Yorkshire and North Derbyshire) Fairlawns, Middlewood Primary Health Care Centre, 621 Middlewood Road, Sheffield S6 1TT.
Mytton Oak 15, Royal Shrewsbury Hospital (North), Copthorne, Shrewsbury SY3 8XQ
Tel: 01749 836688
Tel: 0121 301 2290 (new phone number for the service).
Tel: 0208 296 4152 (Clinical lead: Dr Amolak Bansal)
Fairlawns, Middlewood Primary Health Care Centre, 621 Middlewood Road, Sheffield S6 1TT.
Tel: 01332 786657
Tel: 01543 576609 Fax: 01543 576608 (Correspondence to M. Wong) The ME/CFS service is provided within the Department of Psychology (Physical Health Psychology and Rehabilitation), Cannock Chase Hospital, Brunswick Road, Cannock WS11 5XY
Referrals should be made to: Sussex ME/CFS Service, Sydney West Primary Care Centre, Leylands Road, Burgess Hill, West Sussex RH15 8HS. This is also where people referred to the service by their GP are medically assessed.
Swindon and Wiltshire Adult Chronic Fatigue Services Referrals should be made to the chronic fatigue service at the Great Western Hospital, Marlborough Road, Swindon, Wiltshire SN3 6BB. The service is provided by a clinical psychologist, a physiotherapist, an occupational therapy and a dietitian, and hopes soon (mid-June 2010) to have in post a GP with a special interest. Teesside (South) James Cook University Hospital, Middlesborough (Department of Infectious Diseases and Travel Medicine). Clinical lead: Dr Brendan McCarron (consultant physician in Infectious Diseases, Specialist Nurse ME/CFS:
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Tel: 01642 835 898
Tel: 0191 22723 6666 (ext 23284) Wigan and Leigh See Lancashire (Wigan and Leigh) Wiltshire South Tel: 01225 465941 (ext 202)
Tel: 01483 715911 (ext 6357)
See entry for Herefordshire and Worcestershire. CHILDREN AND YOUNG PEOPLE’S TEAMS
Bath Paediatric ME/CFS Service, Royal National Hospital for Rheumatic
The Children’s Community Nursing Teams Nightingale Court, Ida Darwin Fulbourn Cambridge CB1 5EE Tel: 01223 884335 Fax: 01223 884299
Cornwall Clinics are run in Truro, Bodmin, Camborne/Redruth, Helston, Poltair and Stratton.
Children’s Community Team, Cockermouth Cottage Hospital, Isel Road, Cockermouth, Cumbria CA13 9HT
Tel: 01392 208614
CFS/ME Service for Children and Young People, Children’s Centre, Damers Road, Dorchester, DT1 2LB. Tel: 01305 253148
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Hertfordshire January 2009: The ME/CFS service for children and adolescents at Lister Hospital, Stevenage, has been reinstated. The original service was closed in 2006 and this resulted in widespread protests from parents and children – who then had to travel to London's Great Ormond Street Hospital if they required access to a specialist ME/CFS service.The new service, which started in November 2008, is currently covering North and East Hertfordshire. The situation is due to be reviewed in six months time. We don't, at present, have contact details for this service. Liverpool Royal Liverpool Children’s Hospital.Tel: 0151 228 4811 (ext 3803) Manchester Service for Children and Young People Harrington Building
Frimley Children's Centre, 12 Church Road, Frimley, Camberley, Surrey GU16 7AD, tel: 01483 782851. The chronic fatigue service here takes referrals from paediatricians at four Hampshire and Surrey hospitals in its catchment area. The service – which is entirely domiciliary – is co-ordinated by nurse specialist Chrissie Cowan and has access to a consultant paediatrician Dr Michael Tettenborn and a physiotherapist.
Great Ormond Street Hospital
Children’s Service, D Floor, East Block, Nottingham University Hospital, Queens Medical Centre, Nottingham NG7 2HU)
"Fairlawns", 621 Middlewood Road, Sheffield S6 1TT. Administrator: This e-mail address is being protected from spambots. You need JavaScript enabled to view it . Tel: 0114 229 2937. Surrey and North Hampshire Frimley Children's Centre, 12 Church Road, Frimley, Camberley, Surrey GU16 7AD, tel: 01483 782851. The chronic fatigue service here takes referrals from paediatricians at four Hampshire and Surrey hospitals in its catchment area. The service – which is entirely domiciliary – is co-ordinated by nurse specialist Chrissie Cowan and has access to a consultant paediatrician Dr Michael Tettenborn and a physiotherapist. Sussex There is a monthly ME/CS paediatric clinic at the Royal Alexandra Children's Hospital, Eastern Rad, Brighton BN2 5BE
NHS SPECIALIST SERVICES IN SCOTLAND We want to build up a picture of specialist NHS services for adults and children with ME in Scotland. If you know of any good services, please let us know. If you have any tried any services, your feedback will be most welcome. Email This e-mail address is being protected from spambots. You need JavaScript enabled to view it We'll publish the detail as it comes in. NHS SPECIALIST SERVICES IN WALES We are building up a picture of specialist NHS services for adults and children with ME in Wales. If you know of any good services, please let us know. If you have any tried any services, your feedback will be most welcome. Email This e-mail address is being protected from spambots. You need JavaScript enabled to view it North Wales ME/CFS Service,Connor's Quay Clinic, Wepre Drive, Connah's Quay, Deeside, Flintshire CH5 4HA Tel: 01244 813 486 Fax: 01244 830883 (This service takes referrals from the east of North Wales. Staff: Simon Neal, clinical psychologist; Penny Cowley, head of dietetics; Chris Watson, superintendent physiotherapist). Statement from North East Wales NHS Trust (found in the link highlighted above), accessed 25 November 2009:
ME/CFS Service, Peblig Ward, Eryri Hospital, The Park, Caernarfon, Gwynedd LL55 2YE
Pain and Fatigue Management Centre
NHS SPECIALIST SERVICES IN NORTHERN IRELAND Northern Ireland's only specialist NHS service for people with ME/CFS at Windsor House, Belfast City Hospital, closed in July 2009, when the clinical lead – who did the work on a voluntary basis – decided to retire. There are at present no plans to replace it – although the Northern Ireland ME Association is lobbying for the needs of the province's 7,000 people with the illness to be met.
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