Policies and Documents

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In this section we are building up a collection of general documents for website visitors to download.

ME ASSOCIATION DOCUMENTS


ILLNESS MANAGEMENT REPORTS

May 2015: ‘No decisions about me, without me’: Part 1 – Results of the 2012 ME Association Patient Survey Examining Acceptability, Efficacy and Safety of CBT, GET, and Pacing, as Interventions used as Management Strategies for ME/CFS: 294 pages

May 2010: ‘Managing my ME: What people with ME/CFS and their carers want from the UK’s health and social services’: Results of the ME Association’s major survey of illness management requirements: 32 pages


GOVERNANCE AND OPERATIONAL POLICIES

Articles of Association (approved at EGM on 19th November 2013)

Advocacy and the ME Association

Confidentiality policy – ME Connect

Grievance procedure

The MEA and the Data Protection Act 1998

Equal Opportunities Policy


MISCELLANEOUS

MEA submission to APPG Inquiry into NHS Services

Statement of Intent to donate body to ME/CFS medical research

EXTERNAL DOCUMENTS

Chief Medical Officer’s Report 2002

CMO Report 2002, Annexes 6 and 7

Report of the APPG on ME Inquiry into NHS Service Provision for ME/CFS (March, 2010).

Evidence-based Review of the Work Capability Assessment, 2013

Scottish Good Practice Statement on ME-CFS, 2010

Work Capability Assessment – 2011 report of the Fluctuating Conditions Group

UK CFS/ME RESEARCH COLLABORATIVE

Application Form to join the UK CFS/ME Research Collaborative as an Associate Member (free)

Membership categories of the UK CFS/ME Research Collaborative


Our Charity Registration Number is 801279.