ME Awareness Week – Events Guide

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ME Awareness Week – Events Guide

Please let us know what event you have planned for ME Awareness Week (7th – 13th May), and we’ll feature it on our website and social media as part of this special, Events Guide.

We’re going BLUE to raise awareness of the struggle of living with M.E.

We’ve listed the events that we are aware of, so far. For some of them, the details are a little sketchy, but we promise to fill in the gaps as best we can as more information becomes available.

The Go BLUE, JustGiving campaign page is now fully open. Please support the ME Association if you can.

If you have any questions about fundraising, then contact Helen Hyland, our fundraising manager, by email or give her call on 01280 838964.

And if you need fundraising supplies – like our brilliant new Go BLUE for ME balloons (pictured), please check out this list and let us know what you might need.

The Emirates Spinnaker Tower.

National monuments and local buildings

Going BLUE on May 12th

  • Blackpool Tower
  • Greystone bridge in Merseyside
  • Royal Border Bridge in Berwick upon Tweed
  • Spinnaker Tower in Portsmouth
  • Theatre Severn in Shrewsbury
  • Tyne and Gateshead Millennium Bridges
  • York Bar Walls and the Council’s West Offices HQ

Sadly, our application for the Scotland’s iconic Kelpies to be Scotland’s BLUE symbol was unsuccessful, but we’ll try again next year.

ME Awareness Events

St Austell, Cornwall
Choral performance by the InTune Choir at the atrium of Wheal Martyn China Clay Museum, Carthew, St Austell, PL26 8XG in Cornwall at 3.00pm on 12th May – promoted by Olivia Rowe.

For a quick preview of their music, have a listen to them on the link above or click the image opposite – ‘Somebody to Love….’

Belper, Derbyshire
Louise McAllan and her Chronic Creatives friends are to be exhibiting mainly BLUE knitted creatures in the Woollen Wood exhibition as part of the Belper Arts Festival between 12 – 20th May.

Bromsgrove, Worcestershire
Invisible Exhibition – A new look at M.E.  – presented by Anne Nicolls.

It runs from 4th April – 20th May, at the Artrix Arts Centre, Bromsgrove, B60 1GN

Anne gave an excellent interview to BBC West Midlands on their Sunday Breakfast Show on 15th April. You can listen again – it starts at 1hr 20mins.

Coventry Cathedral, Coventry
The All About M.E. Knitathon – will exhibit a massive number of knitted squares donated by people with ME from all around the world.

The campaign was organised by ME Association supporter, Lauren Childs who has turned these squares into blankets that will be donated to people with severe M.E.

The exhibition will begin on Tuesday 8th May.  Cathedral opening times from Tuesday – Saturday are 10.00am to 4.00pm and Sunday 12.00pm – 3.00pm.

Goodwood Racecourse, West Sussex
The Just Walk event taking place on 12th May is continuing to attract participants, including:

Jude Adams and Marg Mayne, Kenneth Wyke, Susan and Adrian Vaughan, Kayleigh Rivett and Anthony Munn (walking for ME Foggy Dog), Jonathan White and family, Tom Maddocks, Veronica Wright, Leah Oates and her mother, Wendy, Meg and Paul Everitt and Micheal Leeming.

ME Association chairman, Neil Riley, hopes to be there to meet and encourage walkers. There are still places for this event, but the deadline for final registration is Wednesday 9th May.

A Chopin Soiree.

Marylebone Lane, London,
An evening of Chopin. Rosie Millen is hosting her first ever classical piano recital in The Steinway Hall, 44 Marylebone Lane, W1U 2DB.

She will be joined by professional musicians Vivi Cahyadi, Stanislaw Klajn and Tim Norman. Doors open at 6.30pm and the performance will end at 8.30pm with post show drinks. Tickets £10 plus booking fee from Eventbrite.

Plymouth, Devon
Monster Family Fun Day organised by Broken Puppet Theatre Company on 12th May at The Waterfront, 9 Grand Parade, Plymouth from 12.30pm to 3.30pm to raise awareness and funds for the Ramsay Research Fund. An ME Awareness Day display will include a ‘Blue Rose’ Memorial stand (the Blue Rose, is an international symbol of remembrance for those who have lost their lives to M.E.).

Portsmouth, Hampshire
Sally Callow and ME Foggy Dog are organising two public events:

  • ME Awareness Week event, Frank Sorrell Centre, Portsmouth, 12.30pm – 2.00pm on 11th May
  • International ME Awareness Day, Coffee Morning, Lily & Lime LD Portsmouth 10.00am –12.00pm on 12th May

Subway Branches, East Midlands
36 Subway ‘Resso’ branches are to be organising BLUE events throughout ME Awareness Week – promoted by Joy Patel.

One event includes a 2-hour Impact Fit-A-Thon by former colleague Tania Lockhart.


Music 4 M.E.
ME Association supporters Nigel Henshaw and Keiran Moon are closely involved in the production of a new music album – Music 4 M.E.

This is an album of original songs and poetry composed and performed by people with M.E and their carers or family about their experiences of living with M.E.

The album will be launched on 12th May to raise funds for biomedical research including the ME Association’s Ramsay Research Fund.

Rachel Parkin will also be walking around Pontefract racecourse on 13th May and donating 10% of her recently published book called INVISIBLE to the Music 4 M.E. project.

Online events:


Ashburton, Devon,
Yasmin Crawford is hosting a showing of Unrest together with a Photographic Exhibition of her work on 12/05/2018 at Station Yard Studios, 4 Station Yard, Chuley Road, Newton Abbott, TQ13 7EF.  Doors open at 18.30.  Tickets £10 on the door or £8 in advance.

Cribbs Causeway, Bristol
Mall collection – Liz and Helen Wood – The Mall at Cribbs Causeway, Bristol, BS34 5DG on 12th May.

Eastleigh, Hampshire
Chrissie Russell is holding a coffee morning/clothes swap and cat toy sale at the Emmanuel Baptist Church Hall, Desborough Road, Eastleigh, SO59 5LZ, on Saturday 12th May between 11.30-13.30.

Lochaber, Scottish Highlands
Lubi Dicerova and Iiona Tarvide will be climbing Ben Nevis – the hard way – on 12th May.

Lon-Y Lyn, Caerphilly
2 x 12-hour Static Bike Ride for M.E. – promoted by Kat Gower – Moat House Inn, 30 Lon-Y Lyn, Caerphilly, CF83 1BY. Kat has organised her cycling challenge for the ME Association as part of Team Foggy.

Netley, Hampshire
Keri Johnstone and family will be walking in Victoria Country Park, on Monday 7th May to raise awareness

Paignton, Devon
Lottie Jakes is organising an Awareness Day at “The Street” at South Devon College, Vantage Point, Long Road, Paignton TQ4 7EJ from 10.00am to 2.00pm.

Plymouth, Devon
Clare McCarthy and ME friends in Plymouth are to be hosting an information stand at Derriford Hospital in Plymouth on 16th May and are hoping to sign-up as many doctors and health professionals to receive the ME Association ‘Purple Book’ as possible.

Sidmouth, Devon
Awareness at the Humbug Giftshop, 3 Fore Street, Sidmouth, EX10 8AQ – promoted by Karen Greenslade throughout ME Awareness Week.

Stevenage, Hertfordshire
Barclays, Unit 3, The Forum, Stevenage – Awareness and Cake Sale Day – promoted by Jacqualine Collins  on 4th May.

Roker Pier, Sunderland
Walk for M.E. – Lauren Nelder is walking from Roker Pier in Sunderland to South Shields Pier.

Other Events:

  • Ellen Adby is planning a week-long social media campaign from her bedside,
  • Amy Baker is celebrating her birthday on ME Awareness Day, and inviting donations to her JustGiving page in lieu of birthday cards,
  • Rev Jules Beauchamp is planning a 40km challenge static cycle-athon in his village hall in Waverton, near Chester,
  • Claire Bentley and the Bentley family are hoping to organise a BLUE Activity every day in May,
  • Abby Cappleman is making and selling ME Awareness Key-rings and planning a Pyjama event,
  • Lara Clark and friends will hold an Awareness Day at “The Street” in South Devon College between 10am and 2pm on 9th May,
  • Claire Carter is rounding up friends to walk with her from East Finchley to Millions Missing Protest in London,
  • Reannan Cowell will be holding an Awareness Day at college,
  • Catherine de Zwaan and her husband Joel are organising a Tea Party on 7th May,
  • Georgina Hambling and Katie Hallows will be selling cakes,
  • Ellie Hand will be holding a coffee morning,
  • Emma Jenkins’ Mum is hosting a display of posters and information leaflets at her gift shop – The Hub, 22 High Street, Redbourn, St Albans, Herts, AL3 7LL – throughout ME Awareness Week,
  • Ruth Laing will host a sponsored event, ME is PANTS!
  • Melanie Lambert is holding a coffee morning at home for friends,
  • Jenny Leveridge is planning on going BLUE on a ferry to Ireland,
  • Sarah McDonnell is holding a coffee morning for friends in Cornwall on 9th May,
  • Helen McLean is going to dye her hair blue,
  • Marion Michell is planning on tweeting from her bed through 12th May,
  • Thalia Moore is shaving her head on ME Awareness Day,
  • Carrie-Louise Morton is planning an awareness day at the University of Winchester,
  • Jenny Newland is inviting people to sponsor her singing a song,
  • Viv Oliver and her family are planning to walk 12 miles, one mile for every month that her brother Shaun has been bedridden with M.E. on 12th May in Egerton, Kent,
  • Rachel Pryke is to be running in the park run in Divonne-les-Bains, France on 12th May,
  • Antje Rook will be walking round the Isle of Portland with her two collie dogs,
  • Meryl Tyers is counting her steps from now until the end of ME Awareness Week. And
  • Jane Winter is planning to dye her hair blue on 4th May,.

Further details to follow as soon as we know them! 🙂

Events for others

Darwin’s Gate, Shrewsbury
Millions Missing Protest. Shropshire M.E. Group, from 10.30am to 3.00pm. See the SMEG Facebook page for more details.

Haringey, London
T on the Green, Bruce Castle Park, N17 on 5th May from 2.00-5.00pm. An event to raise awareness of all ME charities, but in aid of ME Trust. For more information email or message Judith Bridges via Facebook.

Queen Square, Bristol
Millions Missing Protest. 12th May in Queen Square, Bristol, BS1 4QS, from 12-3.00pm. See the Millions Missing Bristol Facebook page for more information.

Severn Theatre, Shrewsbury
Shropshire ME Group on  12th May are raising awareness with banners near the Severn Theatre in Shrewsbury and also in the centre of the town by Darwin’s Gate Sculpture.

St Ives, Cambridgeshire
Time for Health, 8 Station Road (opposite Waitrose), will be holding an exhibition and video documenting the effect of M.E. on children, from 12.00-5.00pm on 12th May.

Help and Support

Events are now coming forward thick and fast, so keep referring back to this page for updates over the next few weeks.

If you would like us to feature your ME Awareness Week event, then please contact Helen Hyland, via email or phone (01280 838964). And, if you are hoping to raise funds for the ME Association then let us know and we will try and feature your event as a website blog.

A HUGE thank you to everyone who has come forward so far. We are very grateful for all you are doing to help raise funds and awareness of M.E. during ME Awareness Week 2018.


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