ME Awareness Week

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ME Awareness Week – How will you GO BLUE 4 ME?

Go Blue for ME is ME Association’s 2018 campaign for ME Awareness Week.

Our aim is to get more people than ever to ‘Go Blue’ in whatever way they can, to raise awareness of ME during this special week.

The aim is to colour in this cruel invisible illness to help people better see and understand what those we care about are going through.

How you go BLUE is entirely up to you.

This is the week that we tell the world that M.E. is a real and physical disease.

It is a great time for our community to let others know that we will never be forgotten – to champion the cause of M.E. and highlight current issues.

M.E. Awareness Week will run from Monday, 7th May, to Sunday, 13th May, 2018. 


This year the ME Association will be encouraging people to Go BLUE for M.E. – to shine a spotlight on this cruel disease.



If you have an event planned, let us help you organise and promote it:

  • Visit our JustGiving ‘Go Blue for ME 2018‘ page,
  • Click the orange ‘Start Fundraising’ button to create your own event page,
  • We’ll then be in touch to support you as best we can.

Focus on Workplace and Education

For ME Awareness Week, the ME Association has chosen to focus on two specific issues: employment and education. We want to raise awareness and understanding of:

  • the struggle to hold down a job,
  • the fear of losing a job and facing an uncertain future reliant on benefits,
  • the effect that giving up a career and the loss of employment can have,
  • the uncertainty of life on benefits,
  • the loss of education,
  • the difficulties encountered when trying to continue in education,
  • the successes and disappointments that studying can bring.

We will be posting two website surveys in advance of ME Awareness Week, and we want to hear from anyone with M.E. who would like to share their experience of these issues.

Go Blue for M.E. 2018

Here are a few ideas of how you can use this special week to raise awareness of M.E. with planned events – and fundraising activities – with the ‘Go Blue’ theme.

How you choose to raise awareness is entirely up to you. Just do what you can, where you can, to inform others about this cruel disease.

Some Ideas:

  • BLUE faces
  • BLUE hair
  • BLUE nails
  • BLUE raffles
  • BLUE profile photographs on social media
  • BLUE tongues
  • BLUE balloons tied to garden gates
  • Bake sales, plant sales, tea parties, supermarket and shopping centre collections, walks, concerts, orienteering, fun days…

Blue Sunday

Anna Redshaw launched her Blue Sunday tea parties back in 2013, and they have been going strong ever since.

She said, “I invited friends and family to join me for afternoon tea and asked for small donations of the price people would expect to pay for a pot of tea and a slice of cake in a coffee shop.

“As many of my fellow sufferers are too poorly to travel, I held a virtual tea party too, where people could join in online. I uploaded photos and videos of the event being held at home so that even those stuck in bed on the other side of the world could join in.”

Walk the Distance. Make a Difference.

For those of you who are able to do something rather more physical, we’re teaming up with Just Walk in 2018 to offer you places in the event on ME Awareness Day.

It takes place at Goodwood Racecourse, in West Sussex, on Saturday 12th May 2018. How far you walk is entirely up to you – there are distances to suit all levels of fitness and aspirations (from 10km to 60km).

Full training advice is given, and there will be full support for you on the day – including medical support teams and complete safety backup.

ME Association chairman, Neil Riley, will be in attendance, hoping to meet, and encourage everyone who is able to take part.

Entry fees start from just £15 for adults and £7.50 for children. The closing date for registration is Wednesday, 9th May.

Visit the Just Walk website for more information and to book your place, and enjoy a thoroughly good day out in some beautiful countryside, raising awareness for M.E.

Fundraising Supplies

T-shirt, balloons, leaflets, posters…

Please download, complete, and return this form to let us know what you think you need to help make your event a huge success.

We also have a poster ‘Going Blue For M.E.‘ that you can download, print and display.

ME Awareness Week – Events Guide

Please let us know what event you have planned for ME Awareness Week (7th – 13th May), and we’ll feature it on our website and social media as part of a special, Events Guide.

We’ve listed the events that we are aware of, so far. For some of them, the details are a little sketchy, but we promise to fill in the gaps as best we can as more information becomes available.

The Go BLUE, JustGiving campaign page is now fully open. Please support the ME Association if you can.

ME Awareness Day – The Birthday of Florence Nightingale

M.E. Awareness Week was established by patient advocates and is focused on May 12th, the birthday of Florence Nightingale, who was believed to have suffered with M.E.

“From 1857 Nightingale found herself often disabled by poor health, which some suggest may well have been Chronic Fatigue Syndrome(CFS). As a result, Nightingale now has been adopted as a kind of patron saint by for this under-studied disease. CFS sufferers… commemorate her birthday as a kind of rallying point; their own lamp in the dark.”


Join the M.E. Awareness Week team on JustGiving by clicking the orange ‘Start Fundraising’ button on our JustGiving ‘Go Blue for ME 2018‘ page. We’ll then be in touch to discuss how we can best support your efforts.

Justgiving is a convenient platform that allows you to share your event or challenge among family, friends, and throughout the wider community, and you will share in the success of the wider ME Association fundraising team.

You can easily monitor how much money you are raising – can keep everyone updated – and monies raised will be automatically donated to the ME Association.

Help and Support

We’re here to help you turn your idea into reality – whatever it is you want to do – and we can give you the support you need to get started, and help promote your event, if you would like us to do so.

Whatever you decide, if you choose to raise funds for the ME Association, be sure to take plenty of photographs – we’d love to be able to report your event on our website, social media, and in our members magazine, ME Essential.

Helen Hyland, our Fundraising Manager, is here to help you every step of the way – with fundraising supplies, advice, moral support, and much more. You can contact Helen by email, or by phone (01280 838964).

Other pages in this section:

ME Awareness Week – Events Guide

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