ME Awareness Week

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ME Awareness Week

This is the week that everyone raises awareness of M.E. by telling the world that it is real and physical. It is a great time for our community to let others know that we will never be forgotten – to champion the cause of M.E. and highlight current concerns.

Awareness Week was established by patient advocates and is focused on May 12th, the birthday of Florence Nightingale, who was believed to have suffered with the condition.

ME Awareness Week will run from Monday, 7th to Sunday, 13th May, 2018. Stay tuned for planned activities  from the ME Association, or create your own events and let us help you organise and promote them.

Go Blue for M.E.

Traditionally, people who use this week to raise awareness with planned events – and fundraising activities – have adopted a ‘Go Blue’ theme. But, how you choose to raise awareness is entirely up to you. Just do what you can, where you can, to inform others about this cruel illness.

Some Ideas:

  • BLUE faces
  • BLUE hair
  • BLUE nails
  • BLUE raffles
  • BLUE profile photographs on social media
  • BLUE tongues
  • BLUE balloons tied to garden gates
  • Bake sales, plant sales, tea parties, supermarket and shopping centre collections, walks, concerts, orienteering, fun days…

Blue Sunday

Anna Jones launched her Blue Sunday tea parties back in 2013, and they have been going strong ever since.

She said, “I invited friends and family to join me for afternoon tea and asked for small donations of the price people would expect to pay for a pot of tea and a slice of cake in a coffee shop.

“As many of my fellow sufferers are too poorly to travel, I held a virtual tea party too, where people could join in online. I uploaded photos and videos of the event being held at home so that even those stuck in bed on the other side of the world could join in.”

Walk the Distance. Make a Difference.

For those of you who are able to do something rather more physical, we’re teaming up with Just Walk in 2018 to offer you places in the event on ME Awareness Day.

It takes place at Goodwood Racecourse, in West Sussex, on Saturday 12th May 2018. How far you walk is entirely up to you – there are distances to suit all levels of fitness and aspirations (from 10km to 60km).

Full training advice is given, and there will be full support for you on the day – including medical support teams and complete safety backup.

Entry fees start from just £15 for adults and £7.50 for children but early bird discounts are available on places booked before 30th November.

Visit the Just Walk website for more information and to book your place, and enjoy a thoroughly good day out in some beautiful countryside, raising awareness for M.E.

Help and Support

We’re here to help you turn your idea into reality – whatever it is you want to do – and we can give you the support you need to get started, and help promote your event, if you would like us to do so.

Whatever you decide, if you choose to raise funds for the ME Association, be sure to take plenty of photographs – we’d love to be able to report your event on our website, social media, and in our members magazine, ME Essential.

Helen Hyland, our Fundraising Manager, is here to help you every step of the way, and can also provide you with a ME Association fundraising pack if you require one.

You can contact Helen by email, or by phone (01280 838964).


When you have decided on an activity, please consider registering it on Justgiving. It’s a convenient platform that allows you to share your event or challenge among family, friends, and throughout the wider community.

Start fundraising with JustGiving

You can easily monitor how much money you are raising – can keep everyone updated – and monies raised will be automatically donated to the ME Association.

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