ME Awareness Week

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ME Awareness Week

M.E. Awareness Week was established by patient advocates and is focused on May 12th, the birthday of Florence Nightingale, who was believed to have suffered with M.E.

This is the week that everyone we know raises awareness of M.E. by telling the world that M.E. is a real and physical disease. It is a great time for our community to let others know that we will never be forgotten – to champion the cause of M.E. and highlight current issues.

M.E. Awareness Week will run from Monday, 7th May, to Sunday, 13th May, 2018. This year the ME Association will be encouraging people to Go BLUE for M.E. – to shine a spotlight on this cruel disease.

Ready to join the madness? If you have an event planned, do please let us help you organise and promote it. Please start by clicking on the orange ‘Start Fundraising’ button on our JustGiving ‘Go Blue for ME 2018‘ page. We’ll then be in touch to discuss how we can best support your efforts.

Need fundraising supplies?

T-shirt, balloons, leaflets, posters… Please download, complete, and return this form to let us know what you think you need to help make your event a huge success. We also have a poster ‘Going Blue For M.E.‘ that you can download, print and display.



Focus on Workplace and Education

In 2018, the ME Association will focus campaigns on two particular areas – the workplace and further education. We know that many people struggle with staying in work, or going back. And we know that going to college or university can be particularly hard when you have a hidden illness like M.E.

We’ll be working hard to raise awareness amongst employers and educational establishments to help support people with M.E. as best we can. Our fundraising will also work to support events in the workplace, and in schools, colleges or universities.

Walk the Distance. Make a Difference.

For those of you who are able to do something rather more physical, we’re teaming up with Just Walk in 2018 to offer you places in the event on ME Awareness Day.

It takes place at Goodwood Racecourse, in West Sussex, on Saturday 12th May 2018. How far you walk is entirely up to you – there are distances to suit all levels of fitness and aspirations (from 10km to 60km).

Full training advice is given, and there will be full support for you on the day – including medical support teams and complete safety backup.

Entry fees start from just £15 for adults and £7.50 for children.

Visit the Just Walk website for more information and to book your place, and enjoy a thoroughly good day out in some beautiful countryside, raising awareness for M.E.

Go Blue for M.E. 2018

Here are a few ideas of how you can use this special week to raise awareness of M.E. with planned events – and fundraising activities – with the ‘Go Blue’ theme.

How you choose to raise awareness is entirely up to you. Just do what you can, where you can, to inform others about this cruel disease.

Some Ideas:

  • BLUE faces
  • BLUE hair
  • BLUE nails
  • BLUE raffles
  • BLUE profile photographs on social media
  • BLUE tongues
  • BLUE balloons tied to garden gates
  • Bake sales, plant sales, tea parties, supermarket and shopping centre collections, walks, concerts, orienteering, fun days…

Blue Sunday

Anna Jones launched her Blue Sunday tea parties back in 2013, and they have been going strong ever since.

She said, “I invited friends and family to join me for afternoon tea and asked for small donations of the price people would expect to pay for a pot of tea and a slice of cake in a coffee shop.

“As many of my fellow sufferers are too poorly to travel, I held a virtual tea party too, where people could join in online. I uploaded photos and videos of the event being held at home so that even those stuck in bed on the other side of the world could join in.”


Join the M.E. Awareness Week team on JustGiving by clicking the orange ‘Start Fundraising’ button on our JustGiving ‘Go Blue for ME 2018‘ page. We’ll then be in touch to discuss how we can best support your efforts.

Justgiving is a convenient platform that allows you to share your event or challenge among family, friends, and throughout the wider community, and you will share in the success of the wider ME Association fundraising team.

You can easily monitor how much money you are raising – can keep everyone updated – and monies raised will be automatically donated to the ME Association.

Help and Support

We’re here to help you turn your idea into reality – whatever it is you want to do – and we can give you the support you need to get started, and help promote your event, if you would like us to do so.

Whatever you decide, if you choose to raise funds for the ME Association, be sure to take plenty of photographs – we’d love to be able to report your event on our website, social media, and in our members magazine, ME Essential.

Helen Hyland, our Fundraising Manager, is here to help you every step of the way – with fundraising supplies, advice, moral support, and much more. You can contact Helen by email, or by phone (01280 838964).

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