By joining the ME Association, you will also be helping others with M.E.
We recognise that your personal support of our cause is important and we will do all that we can to support the needs of our members.
Subscriptions are a vital part of our charity income and they allow us to help make the UK a better place for people with M.E.
Moreover, the more members we have, the more representative we can be – which is especially useful when trustees and staff take part in medical and societal debate, or we decide to launch a specific campaign.
You don’t have to be personally affected by M.E. to join the ME Association. Membership is available to carers, family-members, and anyone with a professional interest in the condition.
“If it wasn’t for the ME Association I don’t think I would have been able to move from being very severely ill to where I am today.”
“The ME Association has been there since I first became ill and given support when all else has failed. Its continuing presence is very important to me.”
“Members of the charity have been very quick to help me with problems and especially Dr Shepherd, as he is so busy and trying to do so much despite his own poor health. I’m very grateful to all the team.”
“I like and trust that many people working for the ME Association have first-hand knowledge and experience of M.E.”
(see also at the bottom of this page…)
Why you should join the ME Association
1. We are regarded as the UK’s premiere M.E. charity and actively campaign for greater recognition and understanding of the disease:
- We recognise that M.E. is a physical disease,
- Many of our trustees and staff are affected by M.E. or are primary carers for family members who have the disease, and this personal experience is reflected in everything we try to achieve,
- We understand the nature of M.E. and how hard it is to live with the condition,
- Our combined experience of M.E. and of the inequalities faced by this community, provides the main motivation for us to help others.
2. We fund biomedical research into M.E. and aim to discover effective treatments and a cure:
- We achieve this via the Ramsay Research Fund – named after Dr Melvin Ramsay who helped establish the ME Association and was first to recognise the disease in 1955,
- We invest in quality research, as we have with Dr Karl Morten who is examining mitochondria, and infrastructure projects, as with the UK ME/CFS Biobank.
3. We work to secure improved health services that recognise the reality of M.E. and for better welfare support that is easier to obtain by those too ill to work or care for themselves.
4. We provide ME Connect, our flagship telephone and email service, which offers support and information to anyone affected by M.E:
- ME Connect is available every day of the year – even on bank holidays – and has managed more than 35,000 calls since its inception in 2003.
5. We are championed by the UK’s best-known M.E. campaigner, Dr Charles Shepherd, our honorary medical adviser and a trustee of the ME Association. He not only has personal experience of the disease, but manages to:
- regularly provide updated medical information – that we publish as leaflets that are available in the online shop or as articles in our members magazine, or on our website and social media,
- represents the ME Association, e.g. as chair of the steering group for the UK ME/CFS Biobank, as an executive member of the CFS/ME Research Collaborative, and, as a member of Forward ME, which is chaired by the Countess of Mar,
- provides key contributions to major publications, e.g. the NICE ME/CFS clinical guideline review process, and other ME Association reports such as the widely cited publications relating to illness management,
- attends key research and medical conferences, often presenting, and always publishing reports for members and the wider patient community to read,
- overseas and edits our very popular research reviews, that help lay audiences better understand the research that is taking place into their illness, and,
- has been heavily involved in the continuing promotion of the award-winning documentary ‘Unrest’.
6. We provide the best quarterly member’s magazine:
- ME Essential is delivered straight to your door and features exclusive interviews, medical and scientific updates and includes stories about how people cope with M.E. as well as member’s stories.
7. We listen to what our members – and those in the wider M.E. community – tell us about their experiences of this illness and the difficulties faced by a life with M.E.:
- We feature a monthly survey on our website homepage that seeks feedback from people with M.E. about their lived experience,
- We host very popular and open debates on our Facebook and Twitter pages,
- We invite questions via Facebook, ME Connect, ME Essential, and head office,
- We also formally canvass members and non-members about their feelings towards the ME Association and try to ensure we are meeting their needs.
Full Membership is available to all adults with ME/CFS, carers and anyone with an interest in the disease.
£18.00 (UK residents and BFPO)
£24.00 (Mainland Europe including Republic of Ireland)
£30.00 (Rest of the World)
Each full member is entitled to vote at our Annual and Extraordinary General Meetings.
If you join by annual standing order, you can select £10 worth of leaflets from the largest stock of literature held by any M.E. charity in the UK.
In order to take advantage of this offer you will also need to download, complete, and return the Membership Application Form, together with the form indicating your chosen selection of free leaflets.
How to pay your subscription
You can join the ME Association and pay your annual subscription in several ways:
- Debit or credit card via our online shop,
- Debit or credit card by phone to head office (01280 818964 between 9.30am and 3.00pm, Monday-Friday),
- Download and complete the Membership Application Form, and pay by debit or credit card, cheque, postal order, or annual standing order (and qualify for £10 worth of free leaflets).
When we have received your subscription, we will send you:
- A copy of the latest issue of our magazine, ME Essential,
- An information sheet: ‘Where to find benefits’,
- An information sheet listing a number of books which you may find helpful, and,
- If you have paid by annual standing order, your selection of £10 worth of free leaflets.
More reasons to join the ME Association
We asked members why they joined the ME Association, and the top 5 reasons were:
- I wanted a continuing source of reliable support and information
- I agreed with what I felt was the ME Association ethos i.e. that M.E. is a real and physical disease
- I wanted to belong to a charity that provided support, lobbying and biomedical research
- I wanted to be part of a community which ensured I no longer felt isolated and alone
- I wanted to contribute financially to the work of the ME Association
“I found the information leaflets were excellent on dealing with work and benefit issues.”
“I was desperate for information that would give me good advice to help in any recovery I might make and found the magazine offered the best hope.”
“It stops me from feeling so alone. It is a very strong advocate for patients.”
“I really appreciate the extraordinary amount of work and effort that each of you dedicates to supporting our community.”
“I like that it has regular medical input from Dr Shepherd, who seems like a reliable doctor with a thorough knowledge of ME and ongoing interest in current research.”
“The ME Association makes me feel less isolated. I believe that ME is real and physical, and I like that the MEA is wholeheartedly behind research to prove this.”
“I like most of all that you are consistent in your beliefs about this illness and vigilant on our behalf about negative media coverage…”
“It sticks to its guns about ME being a physical illness, not psychological, and continually fights against the prevailing NICE guideline re: CBT and GET.”
The top 5 reasons for joining, and all the quotes shown on this page, were freely given as a result of a comprehensive stakeholder survey, that obtained views from members and non-members of the ME Association.
Other pages in this section:
ME Association Registered Charity Number 801279