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News archive
Tenth anniversary of the Wareham ME/CFS clinic in Dorset
Sunday, 30 November 2008

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A dinner was held this month to mark the 10th anniversary of the opening of the ME/CFS clinic at Wareham Hospital in Dorset – the first of its kind in the UK. 

Read more...
 
Volunteers wanted for Reading area ME Support Group covering Mid/East Berks
Sunday, 30 November 2008

The Reading area group now urgently requires volunteers to fill key role posts of: Group Contact/Coordinator, Core Group members, Treasurer, Newsletter Editor, Librarian, Rep for East Berks PCT services & help with the following tasks: answering emails, co-ordinating social events (for Bracknell, Maidenhead &  Windsor area, and for overall coordination).

Read more...
 
First of next year's ME/CFS research conferences in the UK
Friday, 28 November 2008

UK charity Invest in ME has announced the date of their fourth international research conference . It will be held in Westminster on Thursday 29 May 2009 with – says the organisation – the support of the European ME Alliance. Details will be announced later.

 
Guardian profile of Yvette Cooper, the UK Treasury minister who had ME
Friday, 28 November 2008

This appeared in The Guardian on Friday, November 28. Profile written by ALLEGRA STRATTON.

There may be a reason why the chief secretary to the Treasury, Yvette Cooper, is bullish about the government's electoral prospects despite a downturn. Twelve years ago the then 27-year-old was a leader writer on the Independent but was clearly so taken with a particular thesis that she strayed from the leader writer's usual anonymity to make the same argument twice in less than six months before the 1997 general election.

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Eric finishes the European leg of his MEA cycle ride
Thursday, 27 November 2008

Eric Smart, our Aberdeen-Australia cyclist, posted a new blog overnight – but still leaves a bit of a  mystery about exactly where he is.

Read more...
 
Sheffield GPs go online
Thursday, 27 November 2008

A new website designed to give patients a greater say on healthcare in Sheffield has been launched. Sheffieldhealth.co.uk has been created by the Central Sheffield GP Consortium to provide up-to-date healthcare information and advice for patients, as well as providing hosting online surveys, allowing them to air their views about services in the city.

Read more...
 
Worcestershire treasurer up for second top volunteers award
Wednesday, 26 November 2008

Bernard Speakman, treasurer of the Worcestershire ME Group, will be at Buckingham Palace tomorrow (November 27) to attend the Victim Support Volunteer of the Year Awards ceremony hosted by the Princess Royal.

Read more...
 
November 25: Eleven letters in the "Daily Mail" on guess what....?
Tuesday, 25 November 2008

... The Lightning Process!

Read more...
 
Professor Holgate to speak on the need for a national research strategy for ME/CFS
Saturday, 22 November 2008

Professor Stephen Holgate, chair of the Medical Research Council's new advisory panel on ME/CFS, has been booked by the Dorset ME Support Group to speak on the need for a national research strategy for the illness.

Read more...
 
Winners of the MEA annual prize draw
Saturday, 22 November 2008
Thanks to all who bought tickets this year – which were circulated with our quarterly ME Essential magazine. The winners were Miss N Sismey of Spalding (£250), Claire Moore of Glasgow (£150) and Tina Lockton of Leicester (£50).
 
MEA response to a letter in the Daily Mail about the Lightning Process
Friday, 21 November 2008

The letter appeared yesterday (November 20) under the headline  'I believe there is a cure for ME: I've tested it' 

The Lightning Process - Another miracle cure for ME?
 
Zena Gibson (letters 20 November) believes that ME is caused by raised levels of the stress hormone adrenaline and that it can be cured by an expensive 3 day training programme known as the Lightning Process - discoveries that are worthy of a Nobel Prize.  She is also convinced that ME is a disease of 'yuppies' - hence her use of the derogatory term 'yuppie flu'.

Read more...
 
The 'tiredness disease' - report in Cardiff students' weekly
Thursday, 20 November 2008

From Gair Rhydd, Cardiff's Student Weekly, 17 November 2008

Emma McFarnon investigates the frequently misunderstood illness, ME

Read more...
 
MEperspectives No. 1 - Rachel Miles
Tuesday, 18 November 2008

Rachel - use this.jpg The first in an occasional series being put on The ME Association website.

For four years I've been suffering with ME and for four years I’ve been trying to describe it to non-sufferers. I’ve compared it to a permanent flu, to a never-ending marathon, to insomnia with eventual pointless sleep.

Read more...
 
Judicial Review ruling sparks pesticides review
Tuesday, 18 November 2008

The Government said it will look again at its system for avoiding risks from crop pesticides after an environmental campaigner won a landmark ruling that the current measures contravene European law.

Read more...
 
Information on the suitability of flu jabs for people with ME/CFS
Monday, 17 November 2008

We're receiving a lot of inquiries about whether people with ME/CFS should be having flu vaccinations. To see our updated information leaflet on the subject, which covers all aspects of flu vaccine,  please use our downloadable order which can be found here. The leaflet is on page 3.

 
'I think we've been taken prisoner" - Guardian reporter tells Ed Stafford
Monday, 17 November 2008

"I've think we've been taken prisoner,", I told Ed. "Well, there's not a lot we can do about it", he said. Just a week before, the possibility of being surrounded by armed men would have filled me with dread but I seemed to have developed Ed's "Oh, we'll worry about it in the morning" attitude.

Read more...
 
Mickel Therapy and ME/CFS: BBC Reporting Scotland, 1.30pm today (Friday)
Friday, 14 November 2008
The MEA has just been informed that BBC 'Reporting Scotland' (TV) will be doing their item on Mickel Therapy on the news programme being put out at 1.30pm today (Friday 14 November), and probably on the early evening (6pm) news programme as well.
 

BBC TV Scotland website:

http://www.bbc.co.uk/scotland/

BBC 1 Scotland can be viewed on Sky Digital Channel 971

 
Kevin Tripp's killer to be sentenced
Wednesday, 12 November 2008

The man who killed ME campaigner Kevin Tripp with a single blow in a London supermarket this summer is to be sentenced at the Old Bailey on December 5.

Read more...
 
Summary of MEA Board of Trustees meeting held on Friday 7 November 2008
Tuesday, 11 November 2008
This is a short summary of key points to emerge from a full day meeting of The ME Association Board of Trustees that took place at our Head Office in Buckingham on Friday 7 November 2008.  Informal discussions involving trustees also took place on a number of issues the night before. 
 
Please note that this is a summary - not the official minutes. 
 
The order of subjects below is not necessarily in the order that they were discussed.

Read more...
 
' Incapacitated' - Incapacity Benefit reform on BBC Radio 4, 8pm on Monday 10 November
Monday, 10 November 2008

Dr Ben Goldacre's (possibly rather controversial) programme on Incapacity Benefit reform, and the tough new government policy on sickness benefits, will be transmitted at 8pm on BBC Radio 4 on Monday 10 November.

More information about the programme here.

To read or join in the discussion on the programme, click here.

 
Terms of reference for APPG Inquiry into NHS service provision
Tuesday, 04 November 2008

The deadline for comments on the draft terms of reference for the APPG Inquiry into English NHS service provision is Friday 14 November 2008.

Read more...
 


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