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News archive
Help with purchase of powered wheelchairs and scooters
Friday, 30 May 2008

In the search for a powered wheelchair that he couldn't afford to buy himself, a 43-year-old man with ME and his social worker turned to The Mobility Trust, a national charity providing powered wheelchairs and scooters for severely disabled chldren and adults who cannot obtain them any other way.

Read more...
 
RCGP refuses to change their classification of CFS as a mental health disorder
Thursday, 29 May 2008
Back in April The MEA wrote to the Royal College of General Practitioners (RCGP) to ask them to change their decision to classify CFS as a mental health disorder in an important training document for GPs:  Care of People with Mental Health Problems. We have now received a very disappointing reply.
Read more...
 
Inaugural meeting for Dingwall area group – September 3
Thursday, 22 May 2008

The inaugural meeting of Dingwall Area ME Support Group in Scotland will be held on Wednesday 3 September between 1 and 3pm.

Read more...
 
Adam Findlay and his MedicAlert sport band
Wednesday, 21 May 2008

Adam Findlay

Adam Findlay, aged 16, from the Weston-super-Mare was your average teenager, playing for his local and school rugby team and socialising with friends until, at the tender age of 13 he was struck down with ME. Suddenly his life changed.

Read more...
 
Co-proxamol in the news again?
Tuesday, 20 May 2008

The ME Association has just been approached by a major TV news channel which is collecting stories about people who regret the day when the pain-killing drug, co-proxamol, was taken off prescription – except for doctors using it on a very restricted 'named patient' basis.

Read more...
 
A star is born – in Malta!
Monday, 19 May 2008

me-poster 2008-1.jpg  Photo: Brian Grech

From silent sufferer to eloquent and beautiful advocate for ME – that's the astonishing story of sixth-former Denise Vella, who lives in Malta.

Read more...
 
ME Question Time in Colchester, October 11
Monday, 19 May 2008

An ME Question Time – an opportunity to discuss what's happening in the ME world today – will be held in Colchester, Essex, on Saturday, October 11.

Read more...
 
'To Oz on 2 wheels' cyclist visits Weston, near Spalding
Friday, 16 May 2008

Eric in Weston.jpg

Eric Smart, who is cycling from Aberdeen to Australia for The ME Association popped into the village of Weston, near Spalding, South Lincs, on Friday, May 16 – 561 miles into his epic 15,000-mile journey. He plans to reach Aberdeen in South Australia some time in 2010.

Read more...
 
MEA and Tymes Trust jointly reject call for more GET therapists
Thursday, 15 May 2008

The ME Association and The Young ME Sufferers Trust today jointly reject this week's call for the number of graded exercise therapists to be increased. This is because of our serious concern for the safety of patients  given this controversial approach to management.

Read more...
 
Your help needed with new ME Association survey
Sunday, 11 May 2008

To mark ME Awareness Month, The ME Association wants to hear from as many people as possible about their experiences – good or bad – of coping with ME.

Read more...
 
ME Association position on graded exercise therapy (GET)
Sunday, 11 May 2008

The ME Association rejects calls being made this week for the number of graded exercise therapists to be increased because we have concerns about both the effectiveness and safety of this controversial approach to management.

Read more...
 
Letters page, The Sun, May 12
Sunday, 11 May 2008
Dear Sir

It was a bad day for children when ME got called by the barmy name 'Chronic
fatigue syndrome'. Some of our children can't speak or swallow and have to
be tube fed. That is so not 'fatigue'. That is devastation.

Jane Colby
Executive Director
The Young ME Sufferers Trust
 
Look in on our ME-relevant advertisers
Sunday, 11 May 2008

Our advertisers include a Welsh company that makes chemical-free mattresses, a holiday and retreats centre in Gascony, an ammonia-free hairdresser in Keighley (West Yorkshire) and an electric bike company helping people enjoy their pedal-power.

They're all relevant to people with ME/CFS and their carers.

Click here to visit them

 

 
'The roots of chronic fatigue'
Friday, 09 May 2008

From The Economist print section, 8 May 2008

ME is a puzzling illness, but it appears to have a biological basis and a test for it could be developed.

Read more...
 
Closure of specialist paediatric units - question in the House
Thursday, 08 May 2008

Labour MP for Norwich North, Dr Ian Gibson, has been asking about the recent closure of specialist ME paediatric services in Leeds, Stevenage and London.

Read more...
 
'Sacked Hassocks quiz contestant wins £150,000'
Thursday, 08 May 2008

image.jpg  From The Argus, Brighton, 8 May 2008

A woman who suffered chronic fatigue syndrome was sacked from her job - but went on to win £150,000 on TV's Who Wants To Be A Millionaire.

Read more...
 
Closure of the IMEGA electronic news group
Wednesday, 07 May 2008

The IMEGA electronic news group, founded nine years ago to provide a means of contact and information between officers of local and national ME groups, was closed without warning at the weekend.

Read more...
 
'Man, 20, plagued by ME took own life'
Wednesday, 07 May 2008

From the East Anglian Daily Times, 7 May 2008 (reporter: Elliott Furniss)

A YOUNG man from Colchester who had been plagued by ME for 10 years took his own life, an inquest has heard.

Read more...
 
Incapacity Benefit: questions in the House
Tuesday, 06 May 2008

Labour MP Dr Ian Gibson been firing off questions to Government ministers about Incapacity Benefit and ME.

Read more...
 
'What it really means to be healthy'
Tuesday, 06 May 2008

From The Guardian, May 6

After a bout of glandular fever at university, Keith Kahn-Harris developed chronic fatigue syndrome, from which he still suffers. He explains how this debilitating and misunderstood illness has changed his life for ever.

Read more...
 
'Is debilitating ME in the genes rather than the mind?'
Tuesday, 06 May 2008

From the Daily Mail, 5 May 2008 (writer Daniel Bates)

The debilitating disease ME could be in the genes, scientists say. They found that patients with myalgic encephalomyelitis shared certain genetic characteristics.

Read more...
 
A quarter of a million visitors to this website
Tuesday, 06 May 2008

The 250,000th visitor to this website – since we installed a reliable stats counter in May last year – logged in earlier this morning. The quarter of a million visitors have so far read 1,349,307 pages.

Read more...
 
Royal Society of Medicine meeting on CFS
Tuesday, 06 May 2008

MAY BE REPOSTED

As previously announced, The ME Association was allowed to set up a display stand at the meeting on Chronic Fatigue Syndrome (NB: no mention of ME in the official title) for health professionals (only) that was held that at the Royal Society of Medicine (RSM) on Monday 28 April.

Read more...
 
'Seven genetic types of ME' found
Monday, 05 May 2008

From BBC Online, 5 May 2007

Geneticists have identified a biological basis for seven different subtypes of chronic fatigue syndrome.

Read more...
 


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