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John Walker case: jury still out |
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Wednesday, 31 October 2007 |
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The jury trying former Mayor of Sefton John Walker and his wife Catie is due to resume its deliberations today. |
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Scottish charity regulator to name defaulting charities |
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Tuesday, 30 October 2007 |
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OSCR has begun to publish details of charities that have failed to provide it with Annual Returns and accounts. |
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Name Change Committee: ME/CFS gets the nod |
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Tuesday, 30 October 2007 |
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The CFS Name Change Advisory Board (NCAB) has amended its initial proposal and now recommends that the name for ‘chronic fatigue syndrome’ be changed to the acronym ME/CFS. (Note: Many illnesses are known by their acronym - e.g., HIV.) The resolution modifies their earlier recommendation that the 'ME' in ME/CFS should stand for Myalgic Encephalopathy. |
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Tuesday, 30 October 2007 |
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ME Series
You & Yours (Mon - Fri 12.04– just before 1pm) and Case Notes (Tues 9– 9.30, repeat Wed 4.30 – 5.00pm). |
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New Australian website for people with ME |
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Sunday, 28 October 2007 |
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Australian occupational therapist Priscilla Ling has launched a new website containing practical hints for those with ME/CFS. |
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New 'allergy-free' cookbook |
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Sunday, 28 October 2007 |
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Cookery journalist and author Grace Cheetham has a new cookbook out - full of recipes for people who suffer from allergies and food intolerances. |
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Latest 'ME Essential' magazine |
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Sunday, 28 October 2007 |
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The 44 page October issue of ME Essential is now available.
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Financing a judicial review of the NICE guideline on ME/CFS |
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Saturday, 27 October 2007 |
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The ME Association recently received an email from the One Click Group asking for a contribution towards the costs of bringing a legal action for judicial review of the NICE Guideline on CFS/ME. The Association has been asked by members for its view on whether such a contribution should be made. |
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Inquiry into NICE: final hearing |
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Friday, 26 October 2007 |
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The Health Select Committee of the House of Commons will hold its final day of evidence in its inquiry into the National Institute for Health and Clinical Excellence (NICE) on Thursday, November 8. |
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Former mayor 'backstabbed' in fraud benefit case |
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Thursday, 25 October 2007 |
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A former mayor and his wife were accused of swindling benefits because of political grudge against him, a court heard yesterday (October 24). |
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Closure of The MEACH Trust |
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Wednesday, 24 October 2007 |
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In view of questions being asked, and the absence of any public statement, The ME Association asked the Charity Commission (CC) a number of questions last week regarding the decision to dissolve the MEACH TRUST charity on 21 August 2007. |
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Health minister: 'no specific plans to improve ME/CFS services' |
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Tuesday, 23 October 2007 |
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In Parliament, October 19
Answer to written question to the Health Secretary about specialist services for ME/CFS
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Activive - regulatory update |
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Friday, 19 October 2007 |
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A few months ago The ME Association started receiving queries about the medicinal claims being made for a product called Activive that was being sold over the internet. |
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Steve Craig's online art gallery |
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Friday, 19 October 2007 |
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From the October issue of The ME Association's quarterly magazine, ME Essential, published this weekend.
An artist, poet and teacher who went down with ME has opened an online art gallery to show his work. |
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ME/CFS occupational health guidance under review |
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Friday, 19 October 2007 |
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From the October issue of The ME Association's quarter magazine, ME Essential, published this weekend.
A total of 25 ME charities and groups have now signed up to a statement repudiating the NHS Pus occupational health guidance for ME/CFS as "insulting to many people with this illness who have fought tooth and nail to keep their jobs and tried everything to get better". |
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Please send a letter to your MP |
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Friday, 19 October 2007 |
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To find out who your MP is click here and type in your postcode
To download a copy of our latest political briefing paper, click here
Please help us raise the profile of ME in Parliament. |
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Berkshire ME/CFS services campaign - update |
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Wednesday, 17 October 2007 |
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Reading area ME Support Group and West Berkshire ME/CFS and FM Group tell us:
For some years, we have been pressing for improvements in the care available to patients. |
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ME research: two years to walk The Amazon |
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Monday, 15 October 2007 |
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Photo by Jeremy James
The longest-ever expedition to be mounted to raise funds for ME research is now likely to take up to two years to complete, say explorers Ed Stafford and Luke Collyer. |
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Research – The James Lind Alliance |
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Monday, 15 October 2007 |
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The James Lind Alliance website now has information and reports relating to two research meetings held in September 2007 (with the AMRC) and June 2007 (with The Lancet). |
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Concern over sick notes overhaul |
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Thursday, 11 October 2007 |
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From 'Pulse' the weekly newsletter for GPs
Further moves towards relieving GPs of duties for writing sick notes have sparked controversy, after a GPC negotiator said he feared the issue was being hijacked by politicians seeking to cut social benefits.
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Budget boost for Medical Research Council |
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Wednesday, 10 October 2007 |
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From The Times, 10 October 2007
Government funding of medical research will rise by a record amount over the next three years as part of efforts to turn basic discoveries into new treatments. |
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Chocolate and ME in 'Pulse' medical magazine |
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Friday, 05 October 2007 |
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Eating a daily dose of dark chocolate can help ease symptoms of chronic fatigue syndrome, report the Daily Mail and BBC News online. |
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Friday, 05 October 2007 |
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From
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The Promoting Commission (the patient leaders who do the organizing) of the Catalan CFS-FMS Popular Legislative Initiative (CFS-FMS PLI)has received the Alternativa Award last September 29, 2007 in Barcelona, Spain.
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Critical appraisal of chronic Lyme Disease |
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Thursday, 04 October 2007 |
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The New England Journal of Medicine (4 October 2007) has just published:
'A critical appraisal of "Chronic Lyme Disease"
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New ME/CFS group in Northamptonshire |
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Thursday, 04 October 2007 |
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A new ME/CFS group is to be set up in Crick, Northamptonshire – at the home of Mrs Patricia Lake, who is the wife of the vicar the Rev David Lake. |
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Grants for powered wheelchairs? |
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Wednesday, 03 October 2007 |
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This is an anonymised version of an inquiry we have just received at The ME Association. if anybody can help by pointing us towards the right organisation, please
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New chief executive for the Medical Research Council |
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Wednesday, 03 October 2007 |
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The Medical Research Council has announced that Sir Leszec Borysiewicz will be replacing Professor Colin Blakemore as Chief Executive. |
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Dark chocolate - new treatment for ME/CFS? |
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Monday, 01 October 2007 |
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The UK media are today reporting that eating dark chocolate, which has a high cocoa content, may be an effective treatment for ME/CFS. |
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Chocolate 'aids fatigue syndrome' |
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Monday, 01 October 2007 |
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BBC Online
A daily dose of dark chocolate may help reduce the symptoms of chronic fatigue syndrome, say UK researchers. |
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