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News archive
Clinical trials - questions posed at a meeting this week
Wednesday, 27 June 2007

'HOW CAN CLINICAL TRIALISTS SERVE THE NEEDS OF CLINICIANS AND PATIENTS MORE EFFECTIVELY?'

NB: this report also contains information on a new MRC meeting regarding ME/CFS research.

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ME double bill on BBC Radio Scotland: updated weblink
Monday, 25 June 2007
Special double feature on ME as Radio Scotland explored one of the most misunderstood and controversial of diseases – ME.
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MEA support statement on wasteful research
Monday, 25 June 2007

ME CHARITY CALLS FOR MEDICAL RESEARCH COUNCIL TO STOP WASTING MONEY ON INAPPROPRIATE RESEARCH

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NICE Guideline on ME/CFS - latest
Friday, 22 June 2007
The ME Association has been informed today that the NICE guideline on ME/CFS will now be published on Wednesday 22 August 2007.
 
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AGM meeting of the All-Party Parliamentary Group on ME
Wednesday, 20 June 2007
The next APPG meeting, chaired by Dr Des Turner MP, will take place: 1.30 - 3pm on Thursday 12 July 2007 in Committee Room 17, House of Commons, Palace of Westminster (entry via St Stephen's entrance).

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Minutes of the APPG, May 17
Wednesday, 20 June 2007
Minutes of the meeting of the All Party Parliamentary Group on M.E.
held at 1.30pm, Thursday 17th May 2007
Committee Room 17, House of Commons

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MEA Board of Trustees meeting, June 16
Wednesday, 20 June 2007
This is a brief summary of key issues that were discussed at The ME Association Board of Trustees meeting held in Buckingham on Friday 16 June 2007
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Dick Patterson receives his MBE
Wednesday, 13 June 2007

Patterson MBE.jpg

Mr Dick Patterson, president of the Dorset ME Support Group, is pictured with members of his family after receiving his MBE from The Queen earlier today.

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Death of Mrs Christine Llewellyn
Friday, 08 June 2007

Yesterday evening, I learned that former MEA Chairman, Christine Llewellyn, died on Tuesday from acute heart failure.

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Cross Party Group on ME, Scotland
Thursday, 07 June 2007

With only two of the MSPs from the previous Cross-Party Group on ME in the Scottish Parliament available to join any new group following the election, Charlie Gordon (Glasgow Cathcart, Labour) has invited MSPs to volunteer to reform the Group for this parliament.

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NHSPlus statement - 25 groups now signed up
Thursday, 07 June 2007
Another ME support group has signed up to the joint charities and support groups' statement on the NHS Plus occupational health guidance for ME/CFS - bringing the total up to 25.
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Government pledge £340m for disabled children
Wednesday, 06 June 2007

Charities applaud £340m package but push for rights

from "Community Care" magazine, 24 May 2007

by Amy Taylor 

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Information requested: London Homeopathic Hospital
Wednesday, 06 June 2007
MAY BE REPOSTED
 

I am seeking information about people who are being seen/have been seen at the London Homeopathic Hospital but have now been told that they will no longer be able to have follow-up appointments there.

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Drug research story, Daily Mail
Wednesday, 06 June 2007
Daily Mail - June 6

Could these new drugs end the misery of chronic fatigue?
by Roger Dobson
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Lyme Disease Action annual conference
Monday, 04 June 2007

Bookings are now being taken for the UK's sixth annual conference on tick-borne conferences, organised by Lyme Disease Action.

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