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New phone number for Young ME Sufferers Trust |
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Wednesday, 30 May 2007 |
NOTICE FROM THE YOUNG ME SUFFERERS TRUST
Our new telephone number
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Wanted - travel insurance feedback |
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Thursday, 24 May 2007 |
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MAY BE REPOSTED
I'm in the process of preparing a short MEA information sheet on the subject of travel insurance - a topic that we are often asked about at this time of year. |
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The MEA Ramsay Research Fund: guide to policy |
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Wednesday, 23 May 2007 |
Please note that a permanent link to this policy statement will shortly be provided on this website, and the statement will also appear in the July issue of our quarterly ME Essential magazine.
THE MEA RAMSAY RESEARCH FUND (RRF)
One of the many scandalous aspects of ME/CFS is the fact that research into the underlying physical cause of this illness has never been given a high priority by the Medical Research Council (MRC) – the government funded body that plays a major role in stimulating and funding medical research activity here in the UK. Added to this is the fact that pharmaceutical companies don't generally regard ME/CFS as a useful avenue to pursue. The result is that almost all research carried out so far into the underlying physical cause has had to be funded by charities or individuals. |
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NHS cuts back on homeopathy |
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Wednesday, 23 May 2007 |
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From The Times, May 23 2007
by Mark Henderson, Science Editor |
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Walking the Amazon for ME research |
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Tuesday, 22 May 2007 |
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The longest-ever expedition to be mounted to raise funds for ME research will start at the beginning of April next year – when former British Army captain Ed Stafford and professional outdoor instructor Luke Collyer take on the world's second largest river.
They plan to take a year to walk 4,000 miles from the source of the River Amazon in southern Peru to the river mouth in Brazil without any support whatsoever. |
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Monday, 21 May 2007 |
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MAY BE REPOSTED
COMMITTEE ROOM 17: HOUSE OF COMMONS |
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Gibson Inquiry now disbanded |
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Monday, 21 May 2007 |
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The following statement was posted on the official website of the Group for Scientific Research into ME, led by Dr Ian Gibson MP, on Friday, 18 May:
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Minutes of Gibson Inquiry meeting, May 8 |
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Sunday, 20 May 2007 |
Group on Scientific Research into ME
8th May 2007 4pm Room W2 HOC
Agenda |
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Final call: Edinburgh conference, May 25 |
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Friday, 18 May 2007 |
If anyone intending to come to the New Horizons: International Conference on ME/CFS Biomedical Research
http://www.meresearch.org.uk/newhorizons.html (on Friday 25th May 2007, at the Edinburgh Conference Centre, part of the campus of Heriot-Watt University, Edinburgh, UK) has not yet registered, please register by email or phone ASAP. The registration fee is £60, and included in this are a delegate pack, finger buffet lunch, and morning and afternoon coffee/tea breaks, served on-site.
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Jane Colby letter in The Independent |
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Friday, 18 May 2007 |
The Independent Extra : Education
First Letter
Thursday 17 May
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Italian language ME/CFS website |
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Friday, 18 May 2007 |
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We have just been notified of this Italian-language ME/CFS website and chat forum.
CFSItalia
The site administrator tells us:
CFSItalia’s aim is to brief patients, health care professionals and people with suspected CFS (Chronic Fatigue Syndrome) by publicising studies, research, centres of diagnosis addresses, recent findings, pathogenesis hypotheses, treatments and their results.
In the Forum, people with CFS and their families share experiences about facing with the disease and daily difficulties caused by it, compare information about medical centres and dedicated National and International Laws, and keep informed about initiatives, conferences and meetings and media campaigns,
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Fergusson elected Presiding Officer of the Scottish Parliament |
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Wednesday, 16 May 2007 |
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Alex Fergusson has been elected as the new Presiding Officer of the Scottish Parliament. Mr Fergusson, who has a son with ME, was deputy convenor of the Parliament's Cross Party Group on ME before Scotland went to the polls on May 3. |
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House of Commons, NICE, May 14 |
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Tuesday, 15 May 2007 |
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Brighton MP David Lepper tabled a question about the draft NICE guideline on clinical practice in ME/CFS. He received a written answer from Minister for Public Health Caroline Flint on May 14. |
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Joint statement on NHS Plus occupational health guidance |
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Monday, 14 May 2007 |
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A total of 25 ME charities and organisations have now signed up to a joint statement on the recently published NHS Plus occupational health guidance for Chronic Fatigue Syndrome, which appears below.
The statement has been sent to Dr Ira Madan, clinical standards director of NHS Plus, and was discussed at the All Party Parliamentary Group on ME which Dr Madan attended on May 17. She conceded some points and offered to meet with the charities for further discussion.
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Information about "Activive" wanted (UK & USA) |
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Monday, 14 May 2007 |
MAY BE REPOSTED
I am investigating therapeutic claims relating to ME/CFS that are being made in the UK for a 'natural' product known as Activive.
I would be be grateful for any information from anyone who has ever bought or used this product.
I understand that the country of origin for this product is the USA.
Dr Charles Shepherd
Medical Adviser, ME Association
E:
This email address is being protected from spam bots, you need Javascript enabled to view it
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Warning as tick diseases on rise |
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Thursday, 10 May 2007 |
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BBC Online, 10 May 2007:
The public has been warned to take extra precautions against ticks as the warm weather heralds a peak in numbers of the blood-sucking parasites |
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Minutes of the last APPG meeting |
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Thursday, 03 May 2007 |
Minute of the Meeting of the APPG on M.E. held 1.30pm, Thursday 22 February 2007, Committee Room 17, House of Commons (approved for circulation).
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Tuesday, 01 May 2007 |
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A new ME website has been set up in Malta by Rebecca Sultana. |
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