Category Archives: News

Euromene: New European ME/CFS Biomarker database project | 31 July 2017

Last week, an inaugural review was published that presented a biomarker database initiative by EUROMENE, and will lead to better collaboration between ME/CFS research groups across Europe. The review also highlighted…

BBC Norfolk: How I fought chronic fatigue syndrome through art | 31 July 2017

Published online by BBC Norfolk, 29 July 2017. An artist diagnosed with chronic fatigue syndrome says painting helps her cope. Jasmine Farrow, 37, was diagnosed with chronic fatigue syndrome, also…

The PACE Trial: The Making of a Medical Scandal | 29 July 2017

Press release, Journal of Health Psychology, 28 July 2017. Journal of Health Psychology Special Issue on The PACE Trial, Vol. 22, No 9, Aug. 2017. A Special Issue of the…

Inspirational Exeter woman with ME gives hopes to others with illness | 28 July 2017

From DevonLive.com, 25 July, 2017. Like most people, “life and soul of the party” Mary Cousins took her good health for granted until she began experiencing excruciating stomach pains. In…

What is the prognosis for someone severely affected by M.E.? | 28 July 2017

We received the following questions from someone severely affected by M.E. – who has made no progress and is desperate to know if her health will improve – and thought…

The NICE guideline consultation: UK stakeholder submissions | 27 July 2017

NICE issued its surveillance proposal document two weeks ago and asked registered stakeholders to respond. The deadline for these submissions has now passed – though we understand at least one…

‘No confidence’: Charities reject NICE ‘no update’ proposal for ME/CFS guideline | 26 July 2017

Published online in Vada magazine, By Adam Lowe 26 July, 2017. Charities in the UK have delivered a resounding vote of ‘no confidence’ to NICE, the body which sets clinical guidelines for doctors…

Feedback requested on proposed relocation of Bath Mineral Hospital CFS/ME service for adults | 26 July 2017

This blog was first published 12 July 2017 We have been contacted by Bath NHS Foundation Trust who advised us of the Royal United Hospital’s proposal to relocate the adult CFS/ME…

ME Association petition represents biggest expression of no confidence in a NICE guideline ever recorded | 26 July 2017

  The ME Association petition calling for a complete review of the NICE guideline for ME/CFS has been supported by 15,180 people. We understand it represents the biggest expression of…

Review: People with ME/CFS are more functionally impaired than people with multiple sclerosis | 19 July 2017

  Insights into biomedicine, 12 June 2017. This was the main finding from an online study that compared people with ME/CFS with those suffering from multiple sclerosis – a disease…

ME Association to fund six student bursaries for CMRC research conference | 18 July 2017

The ME Association is keen to encourage undergraduate and postgraduate medical and science students to develop a clinical or research interest in ME/CFS at an early stage in their careers….

ME Association Guide to ME/CFS Symptom Management – Part Three | 17 July 2017

  This is the third and final part in our short series on symptom management. Part 1 of this guide covered symptoms A to F, while Part 2 covered symptoms H…

Forward ME Group – Meeting with RCGP representatives leads to increased GP education opportunities | 14 July 2017

On 22nd June 2017, Dr Charles Shepherd – representing the ME Association – and other members including the Countess of Mar, met with representatives from the Royal College of General Practitioners…

ME Association provide new research grant to Dr Keith Geraghty to examine two controversial ME/CFS treatments recommended by NICE | 13 July 2017

ME Association trustees have approved a new research grant that will critically examine the theoretical basis that underlies the use of Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET)…

ME Association Guide to ME/CFS Symptom Management – Part Two | 13 July 2017

This is the second in our short series on symptom management. Part 1 of this guide covered symptoms A to F and can be read, here. The complete guide has…

CDC removes CBT and GET as recommended treatments for ME/CFS | 11 July 2017

In America, the Centers for Disease Control and Prevention (CDC) has updated its website information for ME/CFS, improving diagnostic criteria and removing previous recommended treatments – CBT and GET. While…

ME Association Petition: The NICE guideline for CFS/ME is not fit for purpose… | 10 July 2017

Update: 14.15pm 13th July 2017 We have extended the petition deadline to Friday 21st July at 5pm. This follows the NICE decision to extend their own consultation deadline and because…

ME Association Guide to ME/CFS Symptom Management – Part One | 06 July 2017

Over the next week or so we will provide a series of blogs that combine to produce a useful guide to symptom management. When the series is complete, we’ll include an…

Breaking news! ME Association has heard back from NICE about the guideline review… and it’s not good news | 05 July 2017

The ME Association has heard back from NICE about the guideline review… and the news is not good. Buried in the letter to stakeholders that was sent out in December…

Countess of Mar and Lord Hunt defend ME/CFS in Lords debate on medically unexplained symptoms | 05 July 2017

  By Russell Fleming, Content Manager, ME Association. The Countess of Mar was once again defending people with ME/CFS in the House of Lords yesterday, this time in a debate…

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