Category Archives: News

The NICE guideline for ME/CFS is unethical – Dr Diane O’Leary, Kennedy Institute of Ethics | 23 August 2017

  When Forward-ME met with Dr Diane O’Leary from the Kennedy Institute of Ethics, Washington D.C., it was with the NICE guideline very much in mind. Readers will recall that…

The 2017 Invest In ME Research Conference Report – Dr Charles Shepherd | 22 August 2017

  The Invest in ME Research conference took place on Friday, 2nd June, 2017. This year’s conference was held at One Great George Street, an impressive Edwardian building located opposite St James’s…

The APPG on M.E. comes to an end. Focus of lobbying will now be via Forward-ME Group | 22 August 2017

    Following this year’s general election, none of the parliamentarians (with the exception of the Countess of Mar (pictured)), wanted to stand for re-election of the All-Party Parliamentary Group for…

MEA Summary Review: Cytokine signature associated with disease severity in ME/CFS | 18 August 2017

  There has been a lot of talk recently about a new research paper from Stanford University concerning cytokine signatures and disease severity. In this review, we hope to break…

CMRC 2017 Update: Look who’s flying-in to present at the ME/CFS research conference next month! | 18 August 2017

  “I am very excited to attend the CMRC conference and welcome the chance to talk about our research with other researchers from around the world. M.E./CFS can turn a…

BBC Radio Norfolk: An epic seven-year battle with local commissioning groups for suitable healthcare for M.E. sufferers | 17 August 2017

  This was the breakfast show broadcast on BBC Radio Norfolk which ran for well over three hours. M.E. was featured throughout the programme with local group M.E. Support Norfolk and their unstinting…

The Daily Mail: Why are doctors and patients still at war over M.E.? | 15 August 2017

  From Mail Online, by Jerome Burne, 15 August 2017. This article also made it into the print edition. How the best treatment for the debilitating condition is one of…

Caring for Mam: ‘I am functioning through a crisis’ writes Emma Hayes | 13 August 2017

Published in thejournal.ie, 13 August 2017 I CAN COUNT on one hand the amount of people I have shared my troubles with. Intensely private and protective of my mother, I…

NICE Guideline Review: We hear back from NICE about the identity of ‘topic experts’ | 13 August 2017

The ME Association learns that NICE consulted with a patient representative, two neurology experts, three psychiatry experts, and one paediatric expert over the recommendation to take ‘no action’ in the…

Top scientists gather at Stanford to share insights into ME/CFS | 13 August 2017

From The Mercury News, 12 August 2017. Stanford: Scientist searches for answer to his son’s devastating condition As a renowned Stanford scientist, Ron Davis has a deep appreciation for the…

Chief Medical Officer for England responds to MEA Petition against NICE guideline | 08 August 2017

  Dame Sally Davies, the Chief Medical Officer for England, today responded to our petition – supported by over 15,000 people – calling on the National Institute for Care and…

Severe ME Day – A time to reflect and to consider what we want to change | 08 August 2017

By Russell Fleming, Content Manager, ME Association. Severe ME Day is generally regarded as a time of remembrance for those who had been members of our community but were taken…

Buzzfeed News – This Is Why I Quit Exercise Therapy | 07 August 2017

By Camilla Maxted, 06 August 2017. When it comes to my illness, I’ve learned to listen to my symptoms, trust my body, and give it the one thing it really…

Stanford symposium to highlight new ME/CFS research | 07 August 2017

From Palo Alto Online, 05 August 2017. A community symposium with world researchers of one of the world’s most puzzling diseases will take place at Stanford University on Aug. 12….

The Times: Behind the story – A battle of prescriptions | 01 August 2017

By Oliver Moody and Tom Whipple, The Times, 01 August 2017. One lot of scientists is mocked as stooges of a free-market conspiracy to dismantle the welfare state. The other stands…

The Times: Scientists trade insults over myalgic encephalomyelitis (ME) study | 01 August 2017

The Times, 01 August 2017. An acrimonious scientific row has broken out after a £5 million publicly funded study investigating treatments for chronic fatigue syndrome was condemned as “deeply flawed”…

Stanford researchers identify biomarkers associated with chronic fatigue syndrome severity | 31 July 2017

The following is a press release from Stanford Medicine that had been subject to an embargo until 8pm UK-time. Researchers at the Stanford University School of Medicine have linked chronic…

Journal of Health Psychology: Special Issue on the PACE Trial – Introduction by David Marks | 31 July 2017

  In Saturday’s blog we featured a press release from the Journal of Health Psychology (The Pace Trial – The Making of a Medical Scandal). Today the Journal has published its…

Euromene: New European ME/CFS Biomarker database project | 31 July 2017

Last week, an inaugural review was published that presented a biomarker database initiative by EUROMENE, and will lead to better collaboration between ME/CFS research groups across Europe. The review also highlighted…

BBC Norfolk: How I fought chronic fatigue syndrome through art | 31 July 2017

Published online by BBC Norfolk, 29 July 2017. An artist diagnosed with chronic fatigue syndrome says painting helps her cope. Jasmine Farrow, 37, was diagnosed with chronic fatigue syndrome, also…

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