Category Archives: News

MEA Fundraising Feature: “I ran the Bristol Half Marathon last weekend for my boyfriend LorI” | 21 September 2017

  By Helen Hyland, Fundraising Manager, ME Association. “I am running in the Bristol Half Marathon for the ME Association because I want to raise awareness for those affected by ME.”…

The SMILE trial is published – with press release, science media centre ‘expert reactions’, and media coverage | 21 September 2017

  Note: This blog has been updated at 08.22 on 25 September, with details of the Daily Mail article. The SMILE Trial – a randomised trial of specialist medical care…

Breaking News: NICE decides to Fully Update its guideline on ME/CFS! | 20 September 2017

  Following the stakeholder consultation, NICE have this morning announced they will now commence a FULL REVIEW of the guideline for ME/CFS, effectively overturning previous expert advice not to update…

ME Association Summary Report of the 4th Annual CMRC Research Conference in Bristol | 20 September 2017

  By Dr Charles Shepherd, Hon. Medical Adviser to the ME Association Introduction This is a summary report of what I felt were the highlights and main points to emerge…

ME Association Statement: Lightning Process and SMILE trial in young people with ME/CFS | 19 September 2017

  The ME Association has spoken out robustly and campaigned against the Specialist Medical Intervention and Lightning Evaluation (SMILE) trial since first learning of the launch of its pilot in…

MEA Fundraising stories: Trying to strike the right balance | 16 September 2017

  Our fundraisers are all striving to raise money to support people with M.E. and when we report their stories, we are also honouring their efforts. Fundraisers can be people…

MEA Fundraising: The Beaumont Brothers – have a listen to some “great music” and raise funds for M.E. research | 15 September 2017

  By Helen Hyland, Fundraising Manager, ME Association. “Great music” was how the reviewers described the new CD released by the Beaumont Brothers. And, if this clip is anything to…

Ask your MP to sign the early day motion against the NICE guideline for ME/CFS and invite them to watch Unrest | 13 September 2017

  M.E. patient Sarah Reed has done incredibly well to obtain an early day motion that could lead to a debate in parliament about the inadequacies of the NICE guideline…

Weekend fundraising roundup: Giving their all for M.E. | 11 September 2017

  By Helen Hyland, Fundraising Manager. We had fundraising events taking place across the country this last weekend. And in all kinds of weathers – from bright sunshine to downpours…

Forward ME respond to NICE consultation on new guideline for suspected neurological conditions | 11 September 2017

  Forward-ME submission to NICE suspected neurological conditions consultation. There is a new guideline being considered by NICE (National Institute for Health and Care Excellence) that has a direct bearing on…

The ME Association teams up with Gamesessions to help promote M.E. awareness with free copy of Mechanic Escape | 09 September 2017

  Press Release, 09 September, 2017. GameSessions, the company behind many game giveaways and trials, today announces a new programme to support charities. Over the next few months, they will…

MEA Featured Fundraiser: Mary Corbett is joined by Tour de France legend | 06 September 2017

  Written by Helen Hyland, Fundraising Manager, ME Association. IF ALL GOES TO PLAN….. ….is how Mary Corbett starts all her blogs about her adventures as a Tandem Tart cyclist…

MEA Featured Fundraiser: Jo Hardstaff is kick scooting her way round the south coast of England | 04 September 2017

  Written by Helen Hyland, MEA Fundraising Manager It is such a joy working with our fundraisers over the years. The people who keep coming back for more, and more….

Dr Mark Vink and Dr Simin Ghatineh review the Dutch and UK FITNET Trials for CBT in adolescent ME/CFS | 04 September 2017

  Published in Behavioural Sciences, 11 August 2017. In November last year, when it was announced that the UK would be conducting a £1.1million internet-based trial of cognitive behavioural therapy…

Where to go for help financing necessary daily needs and for disability aids and appliances? | 02 September 2017

  We have a really busy and very friendly community Facebook page and encourage anyone who has a question about ME/CFS or living with this condition to contact us via…

Why are we asking about weight change in this month’s ME Association website survey? | 02 September 2017

  Changes in weight – which can be upwards or downwards – are often reported by people with ME/CFS and we frequently feature questions on this subject on MEA Facebook…

MEA Review: Geraghty et al. Pacing brings about the greatest positive impact with the least negative reactions | 02 September 2017

  Published in the Journal of Health Psychology, 29 August 2017. Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments:…

MEA Review: To the heart of the issue – new study on two-day CPET in M.E. and MS | 29 August 2017

  Published in Clinical Physiology and Functional Imaging, 07 August 2017. The New Zealand pilot study on 2-day CPET is not the first to examine CPET results in ME/CFS, however…

MEA Review: Cytokine responses to exercise and activity in patients with chronic fatigue syndrome | 25 August 2017

  Published in, Clinical and Experimental Immunology, 05 August, 2017. Cytokine responses to exercise and activity in patients with chronic fatigue syndrome: Case control study Authors: L.V. Clark, M. Buckland,…

BBC Radio: After Martine McCutcheon – an interview with Colin Barton from Sussex & Kent M.E. Society | 25 August 2017

  We recently featured local radio coverage of M.E. in Norfolk and Suffolk, and on Monday, 21 August, it was Sussex and Surrey’s turn. And unlike the situation reported in…

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