Category Archives: News

BBC Breakfast with Jennifer Brea and Dr Charles Shepherd | 02 November 2017

  Last Saturday saw Jennifer Brea and Dr Charles Shepherd interviewed on BBC Breakfast by presenters Naga Munchetty and Steph McGovern. BBC Breakfast attracts a very large audience and although…

MEA Summary Review: Rethinking Childhood Adversity in ME/CFS | 30 October 2017

  We recently posted the conclusion of a new study from a research group at Newcastle University, led by Professor Julia Newton, which evaluated existing claims that childhood adversity was…

ME Association review of Unrest in Parliament: “I cannot recall a parliamentary meeting where we have had so much genuine interest in ME/CFS” | 26 October 2017

  By Dr Charles Shepherd, Hon Medical Adviser to the ME Association. As ME Association members will know, the Rt Hon John Bercow MP – Speaker of the House of…

Would you like to work for the ME Association? We are hoping to recruit a public relations manager | 25 October 2017

  The ME Association is Britain’s first charity dedicated to people with M.E. Our role is to help make the UK a better place for people with the disease by…

ME Association petition has been sent to Sir Andrew Dillon at NICE: M.E. is not a functional disorder | 23 October 2017

We wrote to Sir Andrew Dillon last Friday, with a covering letter (below) and enclosed the final petition – supported by 13,593 people.

The ME Association and Shella Films present: A very special lunchtime reception and exclusive screening of Unrest for MPs and honoured guests | 23 October 2017

  Tomorrow (24th October) will see a very special lunchtime reception (12.30-2.00pm) where MPs and members of the House of Lords will be able to watch an exclusive screening of…

MEA Review: Grey and white matter differences in chronic fatigue syndrome | 19 October 2017

  A recent study reported differences in brain structure in people with chronic fatigue syndrome (ME/CFS). This was not the first paper to report such aberrations, but it was the first…

MEA Review: The SMILE trial – a lesson in how not to conduct clinical trials in people with ME/CFS | 12 October 2017

  The SMILE trial was an attempt to determine the efficacy of the Lightning Process® when delivered in addition to specialist medical care in the treatment of ME/CFS for children…

MEA Fundraising Feature: “Who knew that raising funds for such a great cause could be so uplifting?” | 11 October 2017

  By Helen Hyland, Fundraising Manager, ME Association. “I am only doing a tiny thing, the only thing I can think of and it helps to actually be able to…

MEA Fundraising Feature: David is not about to let a ‘little trip’ stop him from achieving his goal | 06 October 2017

  By David Fardon. “When we first met, Sandra and I loved long country walks together. Then about 8 years ago,  Sandra became ill. This cruel illness (M.E) leaves her…

The Flu and M.E. – all you need to know about the 2017/18 flu vaccine | 04 October 2017

As there is no simple answer as to whether you should have a flu vaccine if you have ME/CFS, we want to give you all the information we can to help you make an informed choice.

‘People are obsessed with ModCloth’s latest Instagram featuring a model in a wheelchair’ | 04 October 2017

  From Yahoo Lifestyle, 02 October 2017. With one photo, vintage clothing company ModCloth has done a significant amount to push for more inclusive representation in fashion. On Sunday, the company posted…

Breaking News! UK ME/CFS Biobank team receives largest ever grant to continue biomedical research project | 03 October 2017

  By Russell Fleming, Content Manager, ME Association. ME Association trustees and staff were over the moon when we heard that the CureME team at the London School of Hygiene…

Why are we asking about Melatonin and sleep disturbance in this month’s website survey? | 02 October 2017

  By Dr Charles Shepherd, Hon. Medical Adviser, ME Association. Sleep disturbance is a core symptom of ME/CFS with various problems being reported. These can range from hypersomnia or increased…

MEA Fundraising Feature: Talk about M.E. to your colleagues? Let’s work on it… | 29 September 2017

  By Sarah Staples, Press Officer, ME Association. I’m lucky enough to interview some of the ME Association’s fundraisers. Last week I caught up with Aymsley Edwards who in July,…

Schoolgirl’s illness message goes viral | 29 September 2017

  WATCH SHANNON’S ORIGINAL FACEBOOK VIDEO MESSAGE, HERE. Pirate FM News, 29 September 2017. A video by a 10-year-old schoolgirl girl who has been battling an illness for seven years…

MEA Fundraising Feature: Camino de Santiago – Pilgrim update | 28 September 2017

  By Helen Hyland, Fundraising Manager, ME Association. On Tuesday 29th August, Sophie Breese embarked on the journey of a lifetime. A pilgrimage no less. Walking the Camino de Santiago from…

“I felt as if I were on trial for benefit fraud, rather than having my needs fairly assessed.” | 28 September 2017

  The following story has been written by a mother and daughter, and it’s about their recent experience at a PIP tribunal. ‘Amy’ is not the daughter’s real name, and her…

ME Association Petition: M.E. is not a functional disorder | 27 September 2017

The suspected neurological conditions guideline specifically refers to M.E./CFS as a ‘functional’ disorder, which it defines as being ‘driven by emotion’ that, ‘may mimic physical disease’.

The Telegraph: An interview with author and poet Frieda Hughes, reveals she was diagnosed with M.E. | 25 September 2017

  The Telegraph, Lifestyle, Family, 25 September 2017. Frieda Hughes: ‘I genuinely believed I was adopted until I was 14’ Having famous parents is not without its downsides. For every path it…

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