Category Archives: News

Can you help? We need short video clips for a Sky One series ‘What’s up TV’ that will campaign for M.E. | 25 May 2018

Whats up TV are hoping to run a campaign about M.E. in their current series on Sky One.

2018 CMRC Research Conference: Register Now for ME/CFS Bristol Conference | 25 May 2018

The CMRC Research Conference is a fantastic opportunity for researchers and patients to network and to hear more about M.E. research developments.

Government Inquiry into support for children and young people with special educational needs and disabilities (SEND) | 23 May 2018

The Education Committee is seeking parental views on SEND which may affect children with M.E.

Carol Monaghan, MP, Parliamentary Questions on ME/CFS and Biomedical Research Funding | 23 May 2018

The Minister of State for Health and Social Care responds to biomedical research question.

NICE ME/CFS Clinical Guideline: Draft Scoping Report Published Ahead of Stakeholder Meeting on Friday | 21 May 2018

The draft scoping report sets out the parameters by which NICE will create the content for the new guideline.

Inquest Ruling: Young drama student Merryn Crofts killed by M.E. | 18 May 2018

Pathologist Daniel DuPlessis pointed out that Merryn had inflammation of the ganglia – gatekeepers to sensations in the brain.

A Record-breaking ME Awareness Week 2018. Thank You Everyone! | 18 May 2018

A round-up of ME Awareness Week 2018. A special week that has broken all previous records.

ME/CFS Biobank: Free samples and data available to selected researchers! | 18 May 2018

We would particularly welcome applications from young researchers, researchers entering the field of ME/CFS, and researchers from localities where ME/CFS is under-recognised and/or research is particularly scarce.

Rochdale Online: Merryn Crofts Missing Millions Manchester | 17 May 2018

Merryn’s family attended Millions Missing Manchester, placing a pair of her pink Doc Martens outside the Town Hall.

ME Awareness Week: Thornbury mother and daughter team hold ME awareness event | 16 May 2018

Liz and Helen Wood have campaigned for the awareness event for a number of years, after Helen was diagnosed with the condition in 2005.

ME Awareness Week: ‘Please stop a while and think what it would be like…’ by Mary Corbett |15 May 2018

Last week Mary took the decision to share the other side of M.E. It’s a side that we all recognise, but we don’t always talk about.

ME Association Ramsay Research Fund invests in new study with ME/CFS Biobank to examine dysfunctional immune system and energy metabolism | 15 May 2018

New research that will examine both immune system dysfunction in M.E. and defects in the way that energy is being produced at a cellular level.

‘ME Awareness Week’ New Motion from Gail Ross, MSP, in the Scottish Parliament | 14 May 2018

If sufficient numbers of MSPs can be encouraged to sign the Motion then it could be used to bolster support for a full debate in Westminster.

ME Awareness Day: BBC Newsbeat – Millions Missing London Protest | 14 May 2018

“The way I describe it is I’m actually grieving the loss of my sister because she’s not around anymore.”

Stephen Kerr MP launches M.E.-friendly GP initiative in Stirling with help from the ME Association | 12 May 2018

“The ME Association are doing fantastic work in helping those coping with ME. I am happy to support them in any way I can.”

36 Subway branches lend their support to ME Awareness Week! | 11 May 2018

“Our staff are brilliant – we really can’t thank them enough!” Joy Patel.

ME Awareness Week: Miss Teen Continental UK Finalist is a Model Fundraiser for M.E. | 11 May 2018

Keri Johnstone spent her Bank Holiday Monday doing a Charity walk in aid of the ME Association ‘Go Blue for M.E.’ campaign.

ME Awareness Week: University, Work, and M.E. by Ev Francis | 10 May 2018

“I believe that the working world is still very unaware of the symptoms caused by M.E.”

ME Awareness Week: An island trek – Antje Rook is fundraising on behalf of her inspirational friend | 10 May 2018

Raising funds for M.E. research “Because I want my friend to be able to have a normal life again.”

Southern Daily Echo: ‘I count my blessings’ – Meet the woman who high-fived her daughter after being diagnosed with ME | 10 May 2018

“The worst comment I get is “I get tired too, its our age”. If you don’t have M.E., you honestly don’t know the meaning of the word.”

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