Category Archives: News

Death of Mrs Christine Llewellyn

Yesterday evening, I learned that former MEA Chairman, Christine Llewellyn, died on Tuesday from acute heart failure.

Cross Party Group on ME, Scotland

With only two of the MSPs from the previous Cross-Party Group on ME in the Scottish Parliament available to join any new group following the election, Charlie Gordon (Glasgow Cathcart, Labour)…

NHSPlus statement – 25 groups now signed up

Another ME support group has signed up to the joint charities and support groups’ statement on the NHS Plus occupational health guidance for ME/CFS – bringing the total up to…

Government pledge £340m for disabled children

Charities applaud £340m package but push for rights from "Community Care" magazine, 24 May 2007 by Amy Taylor 

Information requested: London Homeopathic Hospital

MAY BE REPOSTED   I am seeking information about people who are being seen/have been seen at the London Homeopathic Hospital but have now been told that they will no…

Drug research story, Daily Mail

Daily Mail – June 6 Could these new drugs end the misery of chronic fatigue? by Roger Dobson

Lyme Disease Action annual conference

Bookings are now being taken for the UK’s sixth annual conference on tick-borne conferences, organised by Lyme Disease Action.

New phone number for Young ME Sufferers Trust


Wanted – travel insurance feedback

MAY BE REPOSTED I’m in the process of preparing a short MEA information sheet on the subject of travel insurance – a topic that we are often asked about at…

The MEA Ramsay Research Fund: guide to policy

Please note that a permanent link to this policy statement will shortly be provided on this website, and the statement will also appear in the July issue of our quarterly…

NHS cuts back on homeopathy

From The Times, May 23 2007 by Mark Henderson, Science Editor

Walking the Amazon for ME research

The longest-ever expedition to be mounted to raise funds for ME research will start at the beginning of April next year – when former British Army captain Ed Stafford and…

APPG summary, May 17


Gibson Inquiry now disbanded

The following statement was posted on the official website of the Group for Scientific Research into ME, led by Dr Ian Gibson MP, on Friday, 18 May:

Minutes of Gibson Inquiry meeting, May 8

Group on Scientific Research into ME 8th May 2007 4pm Room W2 HOC Agenda

Final call: Edinburgh conference, May 25

If anyone intending to come to the New Horizons: International  Conference on ME/CFS Biomedical Research (on Friday 25th May 2007, at the Edinburgh Conference Centre, part of the campus…

Jane Colby letter in The Independent

The Independent Extra : Education First Letter Thursday 17 May

Italian language ME/CFS website

We have just been notified of this Italian-language ME/CFS website and chat forum. CFSItalia  The site administrator tells us: CFSItalia’s aim is to brief patients, health care professionals and people…

Fergusson elected Presiding Officer of the Scottish Parliament

Alex Fergusson has been elected as the new Presiding Officer of the Scottish Parliament. Mr Fergusson, who has a son with ME, was deputy convenor of the Parliament’s Cross Party…

House of Commons, NICE, May 14

Brighton MP David Lepper tabled a question about the draft NICE guideline on clinical practice in ME/CFS. He received a written answer from Minister for Public Health Caroline Flint on…

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