Category Archives: News

Board meeting, EGM and AGM summaries

MAY BE REPOSTED This is a brief summary of key issues that were discussed at the February 2007 meeting of the ME Association Board of Trustees. A full meeting was…

Rick runs the London Marathon

Vice-chair of The ME Association, Rick Osman, will be running the London Marathon for The MEA again on 22 April 2007.

APPG on ME – NICE changes speakers

We have just had it confirmed that Professor Sir Michael Rawlins, chairman of the National Institute for Health and Clinical Excellence, will be unable to attend the meeting of the…

APPG on ME – agenda for February 22

Meeting of the All Party Parliamentary Group on ME – to be held on Thursday 22nd February, 1.30 to 2.30pm, Committee Room 17, House of Commons

Genes study resumes today

A vital ME Association-funded study into the genetic origins of ME/CFS enters a new phase today (Monday, February 12) – when a full-time research assistant joins the team at Glasgow…

What is an encephalopathy?

The decision by researchers on the American CFS Name Change Advisory Board (meeting in Florida on 12 January 2007) to agree that a new name should be adopted for chronic…

Gibson Report: key points raised by The ME Association

This is a summary of key points raised by The ME Association during the meeting at the House of Commons on Tuesday 6 February to discuss feedback to the Gibson…

Minister makes it a musical 50th for ME

Instead of having a traditional 50th birthday for family and friends, the minister of the United Reformed Church in the Scottish fishing port of Fraserburgh will be having a musical…

Health Select Committee to investigate NICE

Commons' Health Committee press notice, 2 February 2007

ME ‘People’s Day’, London, 10 May 2007

For the second year running, the annual "ME People's Day Event" in central London during ME Awareness Week is being organised by Di Newman, of the Peterborough ME and CFS…

Daily Mail, February 6 (“Lightning Process”)

SAVED FROM A LIVING DEATH by Esther Rantzen For 14 years, Esther Rantzen’s daughter Emily had her life destroyed by ME. Trapped in a wheelchair, wasting away, she wanted to…

MEA’s position on the Lightning Process

Dozens of people have used this site’s search tool to find out more about the "Lightning Process", which was featured in the Daily Mail on February 6 and in other…

New meet-up group in Glasgow

For details about this informal and friendly group, which started in Glasgow just before Christmas, please click here

APPG on ME – minutes of last meeting (Nov 2006)

Minutes of the meeting of the All Party Parliamentary Group on M.E. Held 1.30pm, Thursday 16th November 2006 Committee Room 17, House of Commons

NICE chairman to attend next APPG on ME

Sir Michael Rawlins, Chairman, National Institute for Health and Clinical Excellence, will appear before the next All-Party Parliamentary Group on M.E.

National ME organisations respond to DWP guidance

STATEMENT BY NATIONAL ME ORGANISATIONS ON DWP CFS/ME GUIDANCE DOCUMENT (VERSION 9) We are pleased that the DWP has acknowledged that there has been a 'black hole' with ME/CFS, resulting…

AGM/EGM reminder for ME Association members

As already notified to members in our ME Essential quarterly magazine, we shall be holding our Annual General Meeting on 17 February 2007.

NICE confirms guideline publication delay until August 2007

MAY BE REPOSTED The ME Association has just received this communication from NICE

Dr Nigel Speight’s evidence to the Gibson Inquiry

MAY BE REPOSTED Following a request from the Gibson Inquiry secretariat, The ME Association has forwarded a copy of the transcript and Powerpoint slides used by Dr Nigel Speight, Paediatric…

Letter to The Financial Times from The ME Association

SUBMITTED FOR PUBLICATION Dear Sir, "Gently does it" says Edi Smockum on advising us about exercise when ill. Tiredness, muscle aches, chills and swollen lymph glands require rest. What excellent…

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