Blog Archives

‘A life back on track’ – Chris Vine’s story as told to The Herald, Glasgow, 28 June 2010

From The Herald, Glasgow, 28 June 2010 (story by Marisa Duffy) On arrival at the Renfrewshire home of children’s author and model railway engineer Chris Vine, there is no doubt…

Memory problems? Then please contact the boffins at the University of East London

Do you forget to return that phone call? Forget appointments? Has it become worse since you were diagnosed with ME? The Chronic Illness Research Team (CIRT) at the University of…

£164,000 grant for study into the Lightning Process and children with ME

Dr Esther Crawley’s team at the Royal National Hospital for Rheumatic Diseases in Bath have been awarded £164,000 to to investigate whether it is possible to recruit to a randomised…

APPG on ME: agenda for meeting on Wednesday, 10 March 2010

The next All Party Parliamentary Group on M.E. will meet in Committee Room 18, House of Commons, between 1.30 and 3pm, Wednesday 10 March 2010.

XMRV and ME/CFS – Third negative study reported in the British Medical Journal

ME ASSOCIATION SUMMARY AND COMMENT A third European XMRV study, which has attempted to find the human retrovirus XMRV in people with ME/CFS, has failed to do so.  Results from…

Third negative XMRV study reported in today’s British Medical Journal

A Dutch team has failed to find evidence of the XMRV virus in blood samples taken from Dutch patients with Chronic Fatigue Syndrome. The BMJ also carries an editorial by…

ME debated in the House of Commons yesterday (Tuesday, 23 February 2010)

MPs discussed ME in a short debate in the House of Commons last night (Tuesday, 23 February 2010).

BBC television to investigate problems with Employment and Support Allowance

The BBC’s current affairs department is investigating the difficulties people face when trying to claim Employment and Support Allowance (ESA), for a television documentary.

‘Homeopathy should not be funded by the NHS, MPs expected to say’ – Sunday Telegraph

From the Sunday Telegraph, 21 February 2010 (Story by health correspondent, Laura Donnelly) Homoeopathic medicines should not be allowed to make claims they cannot justify and should not be paid…

XMRV and the Ramsay Research Fund

  The ME Association’s Ramsay Research Fund (RRF) is a separate ring-fenced research fund that supports biomedical studies aimed at increasing our understanding of the underlying disease process in ME/CFS as…

Whittemore Peterson Institute respond to second UK study into XMRV and ME/CFS

Issued by the Whittemore Peterson Institute today (18 February 2010) WPI is aware of the recent UK study that was unable to detect the presence of XMRV in any CFS…

‘Constant agony of an ME sufferer’ – Belfast Telegraph

Letter to the Belfast Telegraph, 18 February 2010 Thank you for the article highlighting ME (February 9). I am now in my fourth year of suffering from the illness. Like…

‘Cuts doom plans for ME clinics’ – Manchester Evening News

From the Manchester Evening News, 18 February 2010 Health bosses have pulled the plug on two new ME clinics in Tameside and Glossop in a bid to claw back a…

New Challenge to Chronic Fatigue ‘Virus’ – ScienceNOW magazine

From ScienceNOW magazine, published by the American Association for the Advancement of Science, 16 February 2010 (Story by Sam Kean). A theory linking chronic fatigue syndrome (CFS) to an infectious…

CFIDS Association of America comment on second UK study into XMRV and ME/CFS

Second XMRV Negative Study … Still In Search of a Proper and Robust Replication Study Suzanne D. Vernon, PhD Scientific Director The CFIDS Association of America

XMRV and ME/CFS – second UK study fails to establish any link

ABSENCE OF XENOTROPIC MURINE LEUKAEMIA VIRUS-RELATED VIRUS (XMRV) IN UK PATIENTS WITH CHRONIC FATIGUE SYNDROME RETROVIROLOGY: 2010, 7, 10

BMJ rapid responses to editorial by Santhouse et al

The British Medical Journal has now published a number of responses to the challenging editorial by Santhouse et al on issues raised by the death of Lynn Gilderdale. Read them…

Parliamentary Question, 1 February 2010: work capability assessments and ME

Hansard source David Drew, the Labour MP for Stroud, has asked his fourth parliamentary question about ME/CFS in the space of three weeks. This time he asked whether the Secretary…

In the BMJ today (11 Feb 2010): Defeatism is undermining evidence that chronic fatigue syndrome can be treated

This editorial comment appeared in the British Medical Journal today (11 February 2010). It is written by Dr Alastair M Santhouse, Professor Matthew Hotopf and Professor Anthony David. The ME…

ME Perspective No 4 –’20 facts about being a carer for someone with ME’

Greg and Linda Crowhurst posted this on the internet today (9 February 2010) From time to time, the ME Association website publishes personal accounts about ME/CFS which we call ME…