Archive of MEA Surveys

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    How will the PACE trial results affect the NHS management of people with ME/CFS?

    • Improve it a lot (3%, 20 Votes)
    • Improve it a bit (2%, 15 Votes)
    • Not sure (5%, 40 Votes)
    • No opinion (1%, 6 Votes)
    • Make it a bit worse (10%, 75 Votes)
    • Make it much worse (79%, 595 Votes)
    • Total Voters: 751

Start Date: March 1, 2011 @ 9:18 am
End Date: March 30, 2011 @ 8:28 am

    Do you welcome the MRC announcement on ME/CFS biomedical research priorities and the £1.5 million of ring-fenced funding?

    • Yes (8%, 59 Votes)
    • Yes – but needs more funding (27%, 211 Votes)
    • Yes - but it must be biomedical research (59%, 451 Votes)
    • Not sure (2%, 13 Votes)
    • NO (4%, 35 Votes)
    • Total Voters: 769

Start Date: February 1, 2011 @ 11:31 am
End Date: March 1, 2011 @ 5:27 am

    Where have you obtained the most useful/helpful information about your ME/CFS?

    • Alternative therapist (4%, 27 Votes)
    • GP (3%, 17 Votes)
    • Internet (51%, 329 Votes)
    • Local support group (4%, 28 Votes)
    • National charity (10%, 68 Votes)
    • NHS clinic (2%, 15 Votes)
    • NHS physician (2%, 14 Votes)
    • OT, physio or nurse (2%, 13 Votes)
    • Private physician (5%, 32 Votes)
    • Psychiatrist, psychologist or CBT therapist (2%, 11 Votes)
    • Self-help book (7%, 48 Votes)
    • None of the above (8%, 49 Votes)
    • Total Voters: 651

Start Date: January 4, 2011 @ 9:30 am
End Date: January 31, 2011 @ 6:27 am

    If you are unable to work due to ME/CFS, what is the best description of your current benefit status?

    • Receiving ICB (42%, 223 Votes)
    • Appealing re: ICB (4%, 19 Votes)
    • Lost appeal re:ICB (2%, 13 Votes)
    • Refused ICB - not appealing (2%, 13 Votes)
    • Receiving ESA (14%, 73 Votes)
    • Appealing re: ESA (9%, 46 Votes)
    • Lost appeal re: ESA (1%, 6 Votes)
    • Refused ESA - not appealing (1%, 6 Votes)
    • Never applied (16%, 84 Votes)
    • Not eligible (9%, 49 Votes)
    • Total Voters: 532

Start Date: November 30, 2010 @ 5:35 pm
End Date: January 4, 2011 @ 6:26 am

    Overall, how do you rate the UK press coverage of ME/CFS news items so far this year?

    • Very helpful (7%, 26 Votes)
    • Helpful (17%, 64 Votes)
    • Neutral (22%, 81 Votes)
    • Unhelpful (34%, 126 Votes)
    • Very unhelpful (20%, 79 Votes)
    • Total Voters: 376

Start Date: November 1, 2010 @ 7:43 am
End Date: November 30, 2010 @ 6:22 pm

    Which of the following best describes your current ability to undertake any type of paid employment?

    • I can work FULL-TIME (7%, 175 Votes)
    • I can work PART-TIME (11%, 264 Votes)
    • I can work OCCASIONALLY (11%, 260 Votes)
    • I CANNOT WORK (71%, 1,637 Votes)
    • Total Voters: 2,336

Start Date: September 27, 2010 @ 12:00 pm
End Date: September 30, 2010 @ 10:15 am

    How long is the waiting time to be seen at your local NHS hospital-based ME/CFS clinic/service?

    • no waiting list (1%, 8 Votes)
    • less than 1 month (2%, 16 Votes)
    • 1-2 months (8%, 58 Votes)
    • 3-4 months (12%, 86 Votes)
    • 5-6 months (9%, 69 Votes)
    • 7-8 months (4%, 29 Votes)
    • 9-12 months (5%, 39 Votes)
    • more than 12 months (11%, 79 Votes)
    • waiting list full/closed (1%, 10 Votes)
    • no local service (47%, 333 Votes)
    • Total Voters: 727

Start Date: September 30, 2010 @ 10:12 am
End Date: November 1, 2010 @ 7:50 am

    What should be the top priority for the reformed All Party Parliamentary Group (APPG) on ME?

    • XMRV (47%, 913 Votes)
    • Benefits (23%, 442 Votes)
    • Medical Education (14%, 274 Votes)
    • MRC Research (6%, 108 Votes)
    • NHS Services (4%, 78 Votes)
    • NICE Guideline Review (4%, 74 Votes)
    • Severely affected (2%, 47 Votes)
    • Children's Issues (1%, 15 Votes)
    • None of the above (0%, 7 Votes)
    • Total Voters: 1,958

Start Date: July 30, 2010 @ 3:45 pm
End Date: August 31, 2010 @ 3:45 pm

    Before you became ill with ME/CFS how much physical exercise did you normally take?

    • Below average (30%, 429 Votes)
    • Above average (24%, 339 Votes)
    • Average (23%, 325 Votes)
    • A lot (21%, 297 Votes)
    • Very little (2%, 45 Votes)
    • Total Voters: 1,435

Start Date: June 30, 2010 @ 3:41 pm
End Date: July 30, 2010 @ 3:41 pm

    If you have had an ATOS medical assessment in relation to a DLA or ESA benefit application, how do you rate the procedure?

    • Dreadful (70%, 327 Votes)
    • Very poor (16%, 76 Votes)
    • Poor (7%, 32 Votes)
    • Neutral (3%, 12 Votes)
    • Excellent (2%, 10 Votes)
    • Good (2%, 10 Votes)
    • Total Voters: 467

Start Date: June 2, 2010 @ 3:25 pm
End Date: June 30, 2010 @ 3:25 pm