Archive of MEA Surveys

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    If you have been referred to an NHS hospital-based ME/CFS clinic how would you rate the experience? If not, why have you not been referred?

    • Excellent (8%, 57 Votes)
    • Good (11%, 75 Votes)
    • Average (6%, 44 Votes)
    • Poor (9%, 63 Votes)
    • Useless (25%, 173 Votes)
    • Mixed - good and bad (9%, 66 Votes)
    • No local service (16%, 116 Votes)
    • Cannot get a referral (9%, 60 Votes)
    • Do not want a referral (6%, 39 Votes)
    • Do not need a referral (1%, 12 Votes)
    • Total Voters: 705

Start Date: April 1, 2012 @ 1:00 am
End Date: June 30, 2012 @ 10:10 am

    How disabled are you on the MEA Disability Rating Scale? The scale can be found in 'Quick Links' immediately above this question

    • 100% (2%, 28 Votes)
    • 90% (6%, 66 Votes)
    • 80% (11%, 128 Votes)
    • 70% (16%, 192 Votes)
    • 60% (17%, 203 Votes)
    • 50% (16%, 186 Votes)
    • 40% (10%, 119 Votes)
    • 30% (11%, 130 Votes)
    • 20% (5%, 61 Votes)
    • 10% (2%, 29 Votes)
    • 0% (4%, 28 Votes)
    • Total Voters: 1,170

Start Date: March 1, 2012 @ 12:30 am
End Date: April 2, 2012 @ 5:54 pm

    If the MEA Ramsay Research Fund helps to fund a high quality Rituximab trial, would you be willing to take part?

    • YES - definitely (57%, 498 Votes)
    • YES - probably (21%, 189 Votes)
    • Not sure (12%, 103 Votes)
    • Probably not (5%, 40 Votes)
    • Definitely not (5%, 51 Votes)
    • Total Voters: 881

Start Date: February 1, 2012 @ 1:00 am
End Date: April 2, 2012 @ 5:55 pm

    What has happened to your alcohol intake since developing ME/CFS?

    • No longer drink alcohol (49%, 677 Votes)
    • Decreased (32%, 445 Votes)
    • No change (5%, 74 Votes)
    • Increased (5%, 63 Votes)
    • Never drunk alcohol (9%, 124 Votes)
    • Total Voters: 1,383

Start Date: January 1, 2012 @ 11:42 am
End Date: February 27, 2012 @ 3:42 pm

    What is the most important problem/concern facing you as 2011 comes to an end?

    • Benefits and finances (40%, 469 Votes)
    • Depression (10%, 122 Votes)
    • Education (3%, 37 Votes)
    • Employment (9%, 105 Votes)
    • Good medical care (19%, 225 Votes)
    • Loneliness (6%, 73 Votes)
    • Relationships (5%, 59 Votes)
    • Social care/support (3%, 37 Votes)
    • No problems/concerns (1%, 13 Votes)
    • None of the above (4%, 32 Votes)
    • Total Voters: 1,172

Start Date: December 1, 2011 @ 8:10 am
End Date: February 27, 2012 @ 3:38 pm

    How much help/support do you need with personal care, meals, mobility etc from a partner, friend or carer?

    • Day and night (15%, 121 Votes)
    • Only at night (0%, 3 Votes)
    • Over 75% of the day (11%, 85 Votes)
    • 50% to 75% of the day (18%, 142 Votes)
    • Less than 50% of the day (21%, 166 Votes)
    • Occasionally (17%, 134 Votes)
    • Rare occasions (6%, 50 Votes)
    • No care required (10%, 76 Votes)
    • Tick this box if you answered as a carer (2%, 17 Votes)
    • Total Voters: 794

Start Date: November 1, 2011 @ 11:00 am
End Date: December 1, 2011 @ 8:17 am

    How much do you roughly spend in a year on vitamins, minerals and other health supplements?

    • Nothing (19%, 146 Votes)
    • Less than £5 (6%, 45 Votes)
    • £5 - £25 (9%, 67 Votes)
    • £25 - £50 (10%, 80 Votes)
    • £50 - £100 (14%, 104 Votes)
    • £100 - £250 (15%, 116 Votes)
    • £250 - £500 (10%, 78 Votes)
    • £500 - £1000 (9%, 68 Votes)
    • Over £1000 (8%, 61 Votes)
    • Total Voters: 766

Start Date: October 1, 2011 @ 12:01 am
End Date: November 1, 2011 @ 11:00 am

    When the opportunity arises, would you be willing to donate a blood sample to the M.E. Biobank?

    • Yes - definitely (84%, 722 Votes)
    • Yes - probably (11%, 92 Votes)
    • Not sure (3%, 24 Votes)
    • Probably not (1%, 7 Votes)
    • Definitely not (1%, 14 Votes)
    • Total Voters: 859

Start Date: September 1, 2011 @ 11:57 am
End Date: October 1, 2011 @ 12:00 pm

    Have you ever been given a written management plan by a doctor or ME/CFS clinic?

    • Yes - from a GP (1%, 11 Votes)
    • Yes - from a consultant (2%, 22 Votes)
    • Yes - from an ME/CFS clinic (13%, 131 Votes)
    • Yes - from a private doctor (3%, 31 Votes)
    • No (78%, 812 Votes)
    • Do not see a doctor (3%, 28 Votes)
    • Total Voters: 1,035

Start Date: August 1, 2011 @ 1:07 am
End Date: September 1, 2011 @ 12:21 pm

    What has happened to your weight since the onset of ME? (1 stone = 6.4kg)

    • Large increase – over 3 stone (20%, 273 Votes)
    • Moderate increase – 1 to 3 stone (33%, 443 Votes)
    • Small increase – up to 1 stone (10%, 129 Votes)
    • Fluctuates (12%, 161 Votes)
    • No change (6%, 86 Votes)
    • Small loss - less than 1 stone (7%, 100 Votes)
    • Moderate loss – 1 to 2 stone (7%, 94 Votes)
    • Large loss - more than 2 stone (5%, 57 Votes)
    • Total Voters: 1,343

Start Date: July 1, 2011 @ 10:26 am
End Date: September 1, 2011 @ 12:20 pm