Archive of MEA Surveys

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    Overall, what has happened to your ME/CFS over the past year?

    • Major improvement (3%, 10 Votes)
    • Minor improvement (17%, 64 Votes)
    • No change (25%, 95 Votes)
    • Minor deterioration (27%, 105 Votes)
    • Major deterioration (28%, 108 Votes)
    • Total Voters: 382

Start Date: December 1, 2013 @ 3:01 pm
End Date: June 1, 2014 @ 8:07 am

    Have you written to or visited your MP, MSP, AM, or MLA in relation to ME/CFS? If so, how helpful was his/her intervention?

    • Very helpful (6%, 11 Votes)
    • Partly helpful (13%, 25 Votes)
    • Not helpful (33%, 64 Votes)
    • Made things worse (2%, 3 Votes)
    • Never contacted an MP (46%, 89 Votes)
    • Total Voters: 192

Start Date: November 1, 2013 @ 8:39 am
End Date: December 1, 2013 @ 8:38 am

    What is your MAIN reason for using the MEA website?

    • Diagnosis (26%, 136 Votes)
    • Donating / Fundraising (0%, 1 Votes)
    • Finding a Local Group (5%, 26 Votes)
    • Finding an NHS Service (3%, 15 Votes)
    • The news blog (22%, 112 Votes)
    • Research (23%, 121 Votes)
    • Treatment (14%, 71 Votes)
    • Website poll (1%, 7 Votes)
    • Other (6%, 31 Votes)
    • Total Voters: 519

Start Date: October 1, 2013 @ 11:48 am
End Date: November 1, 2013 @ 8:01 am

    How many of your blood relatives have (or did have) a diagnosis of ME/CFS? Overseas votes are welcome in this poll.

    • None (69%, 727 Votes)
    • 1 (19%, 199 Votes)
    • 2 (8%, 89 Votes)
    • 3 (2%, 20 Votes)
    • 4 (1%, 8 Votes)
    • 5 (0%, 1 Votes)
    • 6 or more (1%, 7 Votes)
    • Total Voters: 1,051

Start Date: September 1, 2013 @ 1:02 am
End Date: October 1, 2013 @ 1:00 am

    Should ME/CFS charities that support research be collaborating to help fund a Rituximab trial?

    • Yes (82%, 425 Votes)
    • No (5%, 28 Votes)
    • Not sure (10%, 54 Votes)
    • Neutral (3%, 9 Votes)
    • Total Voters: 516

Start Date: August 4, 2013 @ 8:51 am
End Date: September 1, 2013 @ 1:01 am

    Are you going to apply for a Personal Independence Payment (PIP) from the DWP?

    • Yes- definitely (24%, 100 Votes)
    • Yes - probably (7%, 28 Votes)
    • Not sure (12%, 50 Votes)
    • No (23%, 97 Votes)
    • Not yet - I claim DLA (34%, 150 Votes)
    • Total Voters: 425

Start Date: July 1, 2013 @ 4:33 pm
End Date: August 4, 2013 @ 8:31 am

    How supportive is your GP in providing medical evidence for DWP benefit claims?

    • Very helpful (23%, 95 Votes)
    • Fairly helpful (13%, 54 Votes)
    • Variable (10%, 41 Votes)
    • Never asked for help (17%, 70 Votes)
    • Not helpful (15%, 64 Votes)
    • Refuses to do so (5%, 22 Votes)
    • Do not claim benefits (17%, 75 Votes)
    • Total Voters: 420

Start Date: June 1, 2013 @ 12:14 am
End Date: July 1, 2013 @ 4:35 pm

    Should ME/CFS charities that fund/support research be joining the UK Research Collaborative?

    • Yes – definitely (39%, 241 Votes)
    • Yes – with caution (31%, 190 Votes)
    • Not sure (9%, 54 Votes)
    • No opinion (1%, 7 Votes)
    • Probably not (5%, 29 Votes)
    • Definitely not (15%, 101 Votes)
    • Total Voters: 622

Start Date: May 1, 2013 @ 10:26 am
End Date: June 2, 2013 @ 5:46 pm

    Some researchers are linking ME to problems in childhood. So did you, on balance, have a happy childhood?

    • Yes, very happy (27%, 336 Votes)
    • Yes, happy (23%, 283 Votes)
    • Neutral (4%, 46 Votes)
    • Mixture of happy and unhappy (26%, 326 Votes)
    • No, unhappy (12%, 152 Votes)
    • No, very unhappy (8%, 109 Votes)
    • Total Voters: 1,254

Start Date: April 1, 2013 @ 12:18 am
End Date: June 2, 2013 @ 5:47 pm

    Overall, how do you rate the content, layout, ease of use etc of the MEA website:

    • Excellent (37%, 117 Votes)
    • Good (41%, 129 Votes)
    • Fair (14%, 43 Votes)
    • Poor (4%, 11 Votes)
    • Very poor (4%, 14 Votes)
    • Total Voters: 314

Start Date: March 1, 2013 @ 7:40 am
End Date: June 2, 2013 @ 5:47 pm